Définir l'épanouissement autistique : exploration des expériences vécues à travers un prisme neurodivergent

Titre original en anglais : Defining Autistic Flourishing: Exploring Lived Experiences through a Neurodivergent Lens

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Hedlund, Å., Lindström, T., Bölte, S., Black, M. H., Hirvikoski, T., Isakson, K., Unéus, D., Ingard, C., Wik, J., & Bertilsdotter Rosqvist, H. (2026). Defining Autistic Flourishing: Exploring Lived Experiences through a Neurodivergent Lens. Autism in Adulthood. https://doi.org/10.1177/25739581261462070

Date de publication: 11/07/2026 Ajout dans AutiHub: 14/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
10
Auteur·ices de la publication identifié·es comme autistes
1 / 10 (10,0 %)
  1. Åsa Hedlund
  2. Therese Lindström
  3. Sven Bölte
  4. Melissa H. Black
  5. Tatja Hirvikoski
  1. Kajsa Isakson
  2. Danielle Unéus
  3. Cecilia Ingard
  4. Jonas Wik
  5. Hanna Bertilsdotter Rosqvist *

Résumé

Contexte : L'autisme a historiquement été conceptualisé de manière à exclure la possibilité de l'épanouissement ou d'une « bonne vie ». Toutefois, les évolutions de notre compréhension de l'autisme, parallèlement à un discours plus récent porté principalement par les voix des personnes autistes, ont mis en évidence que de nombreuses personnes autistes peuvent s'épanouir selon des critères qu'elles déterminent subjectivement. L'application d'idées neuronormatives sur ce que signifie vivre une bonne vie est de plus en plus remise en question. Cette étude, menée par des chercheurs neurodivergents, examine l'épanouissement autistique du point de vue d'adultes autistes. Méthodes : Cette étude phénoménologique coproduite visait à explorer les perspectives autistiques sur l'épanouissement. Nous avons interrogé au total 29 adultes autistes, une à quatre fois chacun, au moyen de groupes de discussion, d'entretiens oraux individuels ou de réponses écrites. Nous avons analysé les données d'entretien à l'aide d'une analyse thématique réflexive qualitative. Résultats : Les participants ont décrit leurs définitions de l'épanouissement, à court et à long terme. Celles-ci comprenaient la croissance personnelle, le lien social et l'autodétermination, ainsi que des possibilités d'éprouver du plaisir. Sur la base des éclairages apportés par les adultes autistes, nous comprenons l'épanouissement autistique comme un phénomène dynamique qui unit la croissance et l'autonomie à long terme à des expériences à court terme de plaisir mental, physique ou holistique. Conclusion : L'épanouissement autistique signifie s'engager dans le monde à sa propre manière autistique, et non s'adapter à des normes neuronormatives. Il ne doit pas être confondu avec l'épanouissement neurotypique, car cela en affaiblit le sens. Il convient d'examiner comment le soutien peut nourrir les manières d'être autistiques, plutôt que d'inciter à se conformer aux attentes neuronormatives.

Background: Autism has historically been conceptualized in ways that exclude the possibility of flourishing or a “good life.” However, shifts in our understanding of autism, alongside a more recent discourse driven primarily by the voices of autistic people, have highlighted that many autistic people can flourish according to their subjectively determined standards. The application of neuronormative ideas of what it means to live a good life is increasingly challenged. This study, led by neurodivergent researchers, examines autistic flourishing from the perspective of autistic adults. Methods: This co-produced phenomenological study sought to explore autistic perspectives on flourishing. We interviewed a total of 29 autistic adults one to four times each, either through focus groups, individual oral interviews, or written responses. We analyzed the interview data using qualitative reflexive thematic analysis. Results: Participants described their definitions of flourishing, both short and long terms. They included personal growth, connection, and self-determination, as well as opportunities for experiencing pleasure. Based on the insights of autistic adults, we understand autistic flourishing as a dynamic phenomenon that unites long-term growth and autonomy with short-term experiences of mental, physical, or holistic enjoyment. Conclusion: Autistic flourishing means engaging with the world in one’s own autistic way, not adapting to neuronormative standards. It should not be conflated with neurotypical flourishing, as this weakens its meaning. It should be explored how support can nurture autistic ways of being, rather than push for conformity with neuronormative expectations.

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:31.

Références citées
50
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
15 / 50 (30,0 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
25 / 162 (15,4 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 25 / 75 (33,3 %). Auteurices cité·es distinct·es identifié·es comme autistes : 18 / 147 (12,2 %).
Occurrences citées rattachées à la base AutiHub
75 / 162 (46,3 %)
Auteurices cité·es distinct·es rattaché·es : 62 / 147 (42,2 %)
Occurrences rattachées, non identifiées comme autistes
50 / 75 (66,7 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 50 / 162 (30,9 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 44 / 62 (71,0 %).
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