Du sujet anonyme à la partie prenante engagée : enrichir l’expérience des participants dans la recherche sur l’usage du langage autistique

Titre original en anglais : From anonymous subject to engaged stakeholder: Enriching participant experience in autistic-language-use research

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Williams, G. (2020). From anonymous subject to engaged stakeholder: Enriching participant experience in autistic-language-use research. Research for All, 4(2). https://doi.org/10.14324/rfa.04.2.13

Date de publication: 01/01/2020 Ajout dans AutiHub: 07/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
1
Auteur·ices de la publication identifié·es comme autistes
1 / 1 (100,0 %)
  1. Gemma Williams *

Résumé

Le projet pilote d’engagement communautaire Talking Together a réuni des binômes d’inconnus autistes et non autistes afin de : (1) parler de leurs expériences de la solitude dans leur ville locale ; et (2) réfléchir à des réponses potentielles, coproduites, à ce problème. Le projet avait évolué comme objectif secondaire à partir d’un besoin initial d’acquérir des données de conversation naturalistes pour ma recherche doctorale en linguistique, qui étudiait une reformulation théorique de l’usage du langage autistique comme « différent » plutôt que « déficient ». Le souhait de faire de la collecte de données une expérience significative pour les participants en elle-même était central dans la conception de la recherche, et le projet Talking Together sur la solitude a donc été conçu comme un moyen d’y parvenir. Toutefois, ce n’est qu’une fois la recherche en cours que le potentiel d’un impact immédiat et précieux est devenu apparent. Cet article examine les réussites et les difficultés du projet pilote Talking Together en tant que recherche participative menée par des personnes autistes, et explore comment les principes d’une recherche engagée et participative peuvent être appliqués afin de maximiser l’impact, même lorsque l’engagement n’est pas un objectif principal. Il explore également la nature « participative » de la recherche participative lorsque le chercheur appartient au groupe de parties prenantes marginalisé.

The Talking Together community-engagement pilot project brought together pairs of autistic and non-autistic strangers to: (1) talk about their experiences of loneliness in their local city; and (2) think about potential, co-produced responses to the problem. The project had evolved as a secondary aim, from an initial need to acquire naturalistic conversation data for my linguistic PhD research investigating a theoretical reframing of autistic language use as ‘different’ rather than ‘deficient’. The desire to make the data collection a meaningful experience for the participants in its own right was central to the research design, and so the Talking Together loneliness project was devised as a way to achieve this. However, it was not until the research was under way that the potential for valuable, immediate impact became apparent. This article reflects on the successes and challenges of the Talking Together pilot as a piece of autistic-led participatory research, and explores how the principles of engaged, participatory research can be applied so as to maximize impact, even where engagement may not be a primary aim. It also explores the ‘participatory’ nature of participatory research where the researcher belongs to the marginalized stakeholder group.

Bibliographie citée par cette référence

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Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:31.

Références citées
62
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
10 / 62 (16,1 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
25 / 193 (13,0 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 25 / 91 (27,5 %). Auteurices cité·es distinct·es identifié·es comme autistes : 18 / 162 (11,1 %).
Occurrences citées rattachées à la base AutiHub
91 / 193 (47,2 %)
Auteurices cité·es distinct·es rattaché·es : 64 / 162 (39,5 %)
Occurrences rattachées, non identifiées comme autistes
66 / 91 (72,5 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 66 / 193 (34,2 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 46 / 64 (71,9 %).
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