« Une combinaison de tout » : une approche mixte des facteurs que les personnes autistes considèrent comme importants dans la suicidalité
Titre original en anglais : “A Combination of Everything”: A Mixed-Methods Approach to the Factors that Autistic People Consider Important in Suicidality
Moseley, R., Marsden, S. J., Allison, C., Parsons, T., Cassidy, S., Procyshyn, T. L., Pelton, M., Weir, E. M., Chikaura, T., Mosse, D., Hall, I., Owens, L., Cheyette, J., Crichton, D., Rodgers, J., Hodges, H., & Baron-Cohen, S. (2026). “A Combination of Everything”: A Mixed-Methods Approach to the Factors that Autistic People Consider Important in Suicidality. Autism in Adulthood. https://doi.org/10.1177/25739581251371393
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Auteurs
Résumé
Contexte : Le suicide est une cause majeure de décès chez les personnes autistes, mais il est insuffisamment expliqué par des théories élaborées dans des populations non autistes. Les perceptions des personnes autistes concernant les facteurs sous-jacents aux expériences suicidaires sont essentielles pour orienter la compréhension conceptuelle, l’évaluation du risque, ainsi que les politiques et la pratique clinique vers la prévention du suicide. Méthodes : Nous avons recruté 1369 participants autistes pour une enquête en ligne conçue en consultation avec des personnes autistes. Les participants comprenaient 326 hommes cisgenres, 718 femmes cisgenres et 325 personnes transgenres ou de genre divergent, âgées de 16 à 89 ans. Nous leur avons demandé d’évaluer l’importance de 19 facteurs contribuant à leurs pensées et sentiments suicidaires, et de fournir leurs propres explications concernant des facteurs supplémentaires s’ils le souhaitaient. Parallèlement à l’analyse thématique de ces données qualitatives, nous avons examiné si les évaluations des facteurs contributifs différaient selon l’âge et le genre, et si ces évaluations prédisaient statistiquement les niveaux de suicidalité au cours de la vie. Résultats : La solitude, les sentiments d’inutilité ou d’échec, le désespoir et la maladie mentale étaient les facteurs contributifs aux pensées et sentiments suicidaires les mieux évalués, en particulier par les femmes autistes et les minorités de sexe/genre ; les évaluations différaient également selon l’âge. Les réponses qualitatives indiquaient la complexité de la suicidalité, le statut autiste influençant à la fois la nature des facteurs de stress (par exemple, la stigmatisation sociétale) et les états cognitivo-émotionnels (par exemple, se sentir déconnecté en se sentant différent des autres) identifiés par les participants. Une plus grande importance perçue du harcèlement, des difficultés d’accès au soutien et de traumatismes passés caractérisait les participants ayant connu des projets ou des tentatives de suicide. Conclusion : Bien que certaines des expériences et des états mentaux identifiés par les participants ressemblent à ceux identifiés dans des groupes non autistes, le profil psychologique des participants autistes et leurs expériences de marginalisation semblaient fortement contextualiser les expressions de désespoir, de sentiment d’être un fardeau, d’inutilité, de solitude et de sentiment d’être piégé. Les personnes autistes varient quant aux facteurs perçus comme sous-jacents à la suicidalité. Toutefois, les associations entre la suicidalité et l’importance perçue du harcèlement, des traumatismes et de l’incapacité à accéder au soutien soulignent la nécessité de changements sociétaux et systémiques pour prévenir le suicide.
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