« Il n’y a nulle part ailleurs où je préférerais être qu’avec eux » : expériences positives des parents élevant des enfants autistes

Titre original en anglais : “There is Nowhere Else That I’d Rather be Than with Them”: Parents’ Positive Experiences Parenting Autistic Children

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Heyworth, M., McMahon, C., Tan, D. W., & Pellicano, E. (2025). “There is Nowhere Else That I’d Rather be Than with Them”: Parents’ Positive Experiences Parenting Autistic Children. Autism & Developmental Language Impairments, 10, 23969415251357222-23969415251357222. https://doi.org/10.1177/23969415251357222

Date de publication: 01/05/2025 Ajout dans AutiHub: 05/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
4
Auteur·ices de la publication identifié·es comme autistes
1 / 4 (25,0 %)
  1. Melanie Heyworth *
  2. Catherine McMahon
  3. Diana Weiting Tan
  4. Elizabeth Pellicano

Résumé

Contexte et objectifs : Un nombre important de recherches se concentre sur les conséquences négatives du fait d’élever des enfants autistes, particulièrement lorsque les parents s’identifient comme non autistes. Moins d’attention a été accordée aux expériences des parents autistes d’enfants autistes, et encore moins aux éléments positifs ou épanouissants du fait d’élever des enfants autistes, quel que soit le neurotype des parents. Cette étude a donc posé les questions suivantes : Qu’est-ce que les parents apprécient chez leurs enfants autistes, et qu’est-ce qui caractérise les relations positives des parents avec leurs enfants autistes ? Méthodes : Dans cette étude, 40 parents autistes et 40 parents non autistes ont participé à des entretiens semi-structurés afin de mieux comprendre leurs expériences positives du fait d’élever des enfants autistes. Nous avons analysé les réponses des participants au moyen d’une analyse thématique réflexive, en utilisant une approche inductive. Résultats : Nous avons identifié cinq thèmes : élever un enfant est à la fois difficile et agréable, et « il y a le bon et le mauvais, les hauts et les bas » (thème 1) ; les parents apprécient le temps passé avec leurs enfants autistes et « il n’y a nulle part ailleurs où je préférerais être qu’avec eux » (thème 2) ; les parents apprécient la personnalité de leur enfant autiste et « j’aime simplement la regarder être elle-même » (thème 3) ; élever des enfants autistes est épanouissant et « je sais que je dois faire quelque chose de bien » (thème 4) ; et la collaboration, l’apprentissage et l’acceptation sont essentiels à l’épanouissement parental, de sorte que « je ne voudrais pas qu’il en soit autrement » (thème 5). Dans l’ensemble, les parents nous ont dit qu’élever un enfant pouvait être complexe et difficile, et qu’ils connaissaient de bonnes et de mauvaises journées. Mais de nombreux parents se sentaient heureux d’élever leur enfant autiste, et ils appréciaient rire et faire des activités ensemble avec leur enfant. Les parents appréciaient souvent beaucoup leur enfant autiste, qu’ils considéraient comme attentionné, drôle et intéressant, et ils décrivaient apprécier la compagnie de leur enfant, parlant des qualités et des caractéristiques qu’ils valorisaient chez leur enfant autiste. Certains parents se sentaient heureux lorsque leur enfant avait besoin d’eux. Ils appréciaient de pouvoir aider leur enfant et faire en sorte qu’il se sente en sécurité. Cela leur donnait l’impression de bien remplir leur rôle de parent. Les parents ont discuté de l’incidence positive personnelle du sentiment d’auto-efficacité et du rôle des enfants autistes dans leur croissance personnelle. Enfin, les parents pensaient qu’il était important d’accepter leur enfant et que leur vie serait différente de ce qu’ils avaient imaginé. Ils ont réfléchi au rôle de l’acceptation et de la flexibilité dans leurs expériences de joie et d’épanouissement. Conclusions : Nous montrons que les parents autistes comme non autistes d’enfants autistes ont des expériences parentales positives, joyeuses et précieuses. Nos résultats ont des implications considérables, notamment pour la manière dont les chercheurs et les praticiens conceptualisent le fait d’élever des enfants autistes, ainsi que pour les façons dont les parents peuvent être soutenus afin de favoriser de telles expériences.

Background and Aims: A significant body of research focuses on the negative outcomes of parenting Autistic children, particularly when parents identify as non-Autistic. Less attention has been paid to the experiences of Autistic parents of Autistic children, and even less to the positive or fulfilling elements of parenting Autistic children, regardless of parent neurotype. This study therefore asked: What do parents value about their Autistic children, and what characterizes parents' positive relationships with their Autistic children? Methods: Here, 40 Autistic and 40 non-Autistic parents completed semistructured interviews to understand better their positive experiences of parenting Autistic children. We analyzed participant responses using reflexive thematic analysis, using an inductive approach. Results: We identified five themes: parenting is both challenging and enjoyable and "there's the good and the bad and the highs and the lows" (theme 1); parents value time with their Autistic children and "there is nowhere else that I'd rather be than with them" (theme 2); parents value their Autistic child's personality and "just love watching her be who she is" (theme 3); parenting Autistic children is fulfilling and "I know I must be doing something right" (theme 4); and collaboration, learning, and acceptance are key to parenting fulfillment so that "I wouldn't have it any other way" (theme 5). Overall, parents told us that parenting could be complex and challenging, and that they had good and bad days. But many parents felt happy to parent their Autistic child, and they enjoyed laughing and doing things together with their child. Parents often really liked their Autistic child, who they thought was caring, funny, and interesting, and they described enjoying their child's company, speaking about the qualities and characteristics they valued in their Autistic child. Some parents felt happy when their child needed them. They liked it when they could help their child and make their child feel safe. This made them feel like they were doing a good job as parent. Parents discussed the personal positive impact of experiencing feelings of self-efficacy and the role of Autistic children in their personal growth. Finally, parents thought that it was important to accept their child and that their life would be different than what they imagined. They reflected on the role of acceptance and flexibility in their experiences of joy and fulfillment. Conclusions: We show that both Autistic and non-Autistic parents of Autistic children have positive, joyful, and valuable parenting experiences. Our findings have far-reaching implications, including how researchers and practitioners conceptualize parenting Autistic children, and the ways in which parents can be supported to foster such experiences.

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Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
106
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
13 / 106 (12,3 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
18 / 403 (4,5 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 18 / 130 (13,8 %). Auteurices cité·es distinct·es identifié·es comme autistes : 13 / 367 (3,5 %).
Occurrences citées rattachées à la base AutiHub
130 / 403 (32,3 %)
Auteurices cité·es distinct·es rattaché·es : 101 / 367 (27,5 %)
Occurrences rattachées, non identifiées comme autistes
112 / 130 (86,2 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 112 / 403 (27,8 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 88 / 101 (87,1 %).
1 entrée de bibliographie citée n’a pas pu être entièrement enrichie à partir des métadonnées DOI.
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