Examen de la neurodiversité et de l'inclusion dans les réseaux de recherche en neurosciences : étude de cas du consortium de recherche sur l'autisme AIMS-2-TRIALS

Titre original en anglais : Examining Neurodiversity and Inclusion in Neuroscience Research Networks: A Case Study of the AIMS-2-TRIALS Autism Research Consortium

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Bianco, T. D., Estrin, G. L., Lautarescu, A., Oakley, B. F., Eaton, E., Terčon, J., Douglas, S., Plas, J., Belton, D., Loth, E., Doherty, M., & Jones, E. J. (2025). Examining Neurodiversity and Inclusion in Neuroscience Research Networks: A Case Study of the AIMS-2-TRIALS Autism Research Consortium. Open Research Europe, 5, 120. https://doi.org/10.12688/openreseurope.19394.1

Date de publication: 06/05/2025 Ajout dans AutiHub: 05/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
12
Auteur·ices de la publication identifié·es comme autistes
1 / 12 (8,3 %)
  1. Teresa Del Bianco
  2. Georgia Lockwood Estrin
  3. Alexandra Lautarescu
  4. Bethany F. Oakley
  1. Eliza Eaton
  2. Jerneja Terčon
  3. Sarah Douglas
  4. J Plas
  1. David Belton
  2. Eva Loth
  3. Mary Doherty *
  4. Emily J.H. Jones

Résumé

Contexte En raison de l'accent accru mis sur la recherche coproduite et dirigée par la communauté, la neurodiversité au sein des communautés de recherche a suscité de l'intérêt, en particulier dans le contexte de la recherche sur l'autisme. Cette étude examine la présence de chercheurs neurodivergents au sein d'un consortium de recherche en neurosciences, en mettant particulièrement l'accent sur la prévalence de l'autisme. Méthodes À l'aide de données d'enquête recueillies auprès de contributeurs actifs au consortium, nous avons examiné le statut neurodivergent autodéclaré des chercheurs, y compris les diagnostics formels d'autisme, les processus diagnostiques en cours et l'auto-identification comme neurodivergent. Résultats Une proportion des chercheurs interrogés a déclaré des diagnostics formels ou une auto-identification comme autiste (23 %), qui étaient significativement plus fréquents aux stades de carrière inférieurs ou égaux aux postes postdoctoraux (valeur p du chi carré = 0,01). De plus, nous avons identifié une association entre la neurodivergence et un diagnostic d'une affection de santé mentale parmi les chercheurs (Coef. = 1,93, valeur p = 0,002), soulignant l'importance de prendre en compte la neurodiversité au sein des environnements de recherche. Conclusions Cette étude souligne le besoin d'inclusivité et de soutien pour les chercheurs neurodivergents, en particulier dans le contexte des neurosciences qui intègrent ou n'intègrent pas encore d'initiatives de recherche participative. En amplifiant les voix des chercheurs neurodivergents, les communautés de recherche peuvent améliorer l'équité et l'impact de leurs résultats et favoriser un meilleur engagement du public en partageant les expériences et en comprenant les besoins des membres de la communauté.

Background Due to the increased emphasis on co-produced and community led research, neurodiversity within research communities has sparked interest, particularly within the context of autism research. This study investigates the presence of neurodivergent researchers within a neuroscience research consortium, with a particular focus on autism prevalence. Methods Using survey data collected from active contributors to the consortium, we examined the self-reported neurodivergent status of researchers, including formal diagnoses of autism, ongoing diagnostic processes, and self-identification as neurodivergent. Results A proportion of the surveyed researchers reported formal diagnoses or self-identification as autistic (23%), that were significantly more frequent at career stages below and including postdoctoral roles (Chi-Square p-value = 0.01). Further, we identified an association between neurodivergence and a diagnosis of a mental health condition among researchers (Coef. = 1.93, p-value = 0.002), highlighting the importance of accommodating neurodiversity within research environments. Conclusions This study underscores the need for inclusivity and support for neurodivergent researchers, particularly in the context of neuroscience that does or does not yet embed participatory research initiatives. By amplifying the voices of neurodivergent researchers, research communities can enhance the equity and impact of their outcomes and foster better public engagement by sharing experiences and understanding the needs of community members.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
44
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
12 / 44 (27,3 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
22 / 315 (7,0 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 22 / 153 (14,4 %). Auteurices cité·es distinct·es identifié·es comme autistes : 20 / 237 (8,4 %).
Occurrences citées rattachées à la base AutiHub
153 / 315 (48,6 %)
Auteurices cité·es distinct·es rattaché·es : 93 / 237 (39,2 %)
Occurrences rattachées, non identifiées comme autistes
131 / 153 (85,6 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 131 / 315 (41,6 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 73 / 93 (78,5 %).
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