Évaluation de la réalisation des activités de la vie quotidienne chez les adultes autistes

Titre original en anglais : Assessing Activity of Daily Living Task Performance Among Autistic Adults

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Krempley, T. & Schmidt, E. K. (2021). Assessing Activity of Daily Living Task Performance Among Autistic Adults. Autism in Adulthood, 3(1), 37-51. https://doi.org/10.1089/aut.2020.0042

Date de publication: 01/03/2021 Ajout dans AutiHub: 21/09/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
2
Auteur·ices de la publication identifié·es comme autistes
1 / 2 (50,0 %)
  1. Tema Krempley *
  2. Elizabeth K. Schmidt

Résumé

Les activités de la vie quotidienne (ADL) sont des activités auxquelles les personnes s'adonnent de façon routinière, telles que se brosser les dents, préparer un repas et prendre soin de leur enfant. L'autonomie dans les ADL est associée à de meilleurs résultats en matière de vie autonome, d'éducation, d'emploi, de relations et de santé mentale. Par conséquent, cet article de point de vue comprend une revue de la littérature et des bases de données d'évaluation afin d'identifier et de résumer les évaluations des ADL destinées aux adultes autistes. Ces évaluations ont été comparées et analysées à l'aide du paradigme de la neurodiversité. Plus précisément, nous avons comparé les évaluations à l'aide de priorités prédéterminées identifiées par les auteurs : (1) le type d'évaluation, (2) l'inclusivité et (3) les facteurs de performance. Nous avons identifié cinq mesures distinctes étalonnées, quatre mesures fondées sur la performance, ainsi qu'une variété de listes de contrôle, d'enquêtes, de questionnaires et/ou d'entretiens utilisés pour évaluer la réalisation des ADL chez les adultes autistes. Les auteurs présentent leurs perspectives concernant les difficultés liées aux évaluations actuelles, notamment l'utilisation fréquente d'évaluations étalonnées, le manque d'inclusivité et l'absence de prise en compte des facteurs de performance (par exemple, sensoriels, moteurs et émotionnels), ainsi que la rareté des évaluations conçues spécifiquement pour les adultes autistes de plus de 30 ans. En réponse à ces difficultés, nous recommandons aux chercheurs de s'associer à des adultes autistes afin de développer un nouvel outil d'évaluation. Si les chercheurs ou les cliniciens utilisent des mesures existantes, nous recommandons qu'ils privilégient l'autoévaluation aux déclarations par un tiers et qu'ils incluent des méthodes visant à améliorer l'accessibilité de l'évaluation. Nous recommandons également que les cliniciens et les chercheurs proposent des pauses, des objets réconfortants ou des adaptations sensorielles durant l'évaluation afin de diminuer l'anxiété, et posent des questions de suivi pour comprendre si l'environnement ou la santé émotionnelle ont une incidence sur la réalisation des ADL d'une personne.

Activities of daily living (ADLs) are activities that people engage in on a routine basis, such as brushing their teeth, preparing a meal, and caring for their child. Independence with ADLs is associated with better outcomes in independent living, education, employment, relationships, and mental health. Therefore, this perspective piece includes a review of the literature and assessment databases to identify and summarize ADL assessments for Autistic adults. These assessments were compared and analyzed using the neurodiversity paradigm. Specifically, we compared assessments using predetermined priorities the authors identified: (1) assessment type, (2) inclusivity, and (3) performance factors. We identified five unique norm-referenced measures, four performance-based measures, and a variety of checklists, surveys, questionnaires, and/or interviews used to assess ADL performance among Autistic adults. The authors present their perspectives regarding the challenges with the current assessments, including the high-frequency use of norm-referenced assessments, lack of inclusivity, and failure to consider performance factors (e.g., sensory, motor, and emotional), and the paucity of assessments designed specifically for Autistic adults older than 30 years. In response to these challenges, we recommend researchers partner with Autistic adults to develop a new assessment tool. If researchers or clinicians are using existing measures, we recommend that they utilize self-report over proxy-report and include methods to improve the accessibility of the assessment. We also recommend that clinicians and researchers offer breaks, comfort objects, or sensory modifications during the assessment to decrease anxiety; and ask follow-up questions to understand whether environment or emotional health are impacting one's ADL performance.

Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 02/10/2026 13:58.

Références citées
82
Avec un DOI
67
Sans DOI, à partir du texte brut de la bibliographie
15
8 / 82 (9,8 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
11 / 82 (13,4 %)
Références avec noms d’auteurices détectés
72 / 82 (87,8 %)
Sans nom d’auteurice détecté
10
Sans titre structuré
10
Sans identifiant stable
14
Références avec noms bruts d’auteurices restant à vérifier
9
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
332
À partir du DOI ou de métadonnées externes
332
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
9
148 / 332 (44,6 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 184 / 332 (55,4 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
21 / 332 (6,3 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 21 / 148 (14,2 %). Personnes distinctes identifiées comme autistes : 18 / 288 (6,2 %).
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