Adaptation familiale dans les familles comptant des membres autistes : une revue exploratoire et une synthèse thématique des systèmes relationnels, du contexte et du développement

Titre original en anglais : Family Adaptation in Families with Autistic Members: A Scoping Review and Thematic Synthesis of Relational Systems, Context, and Development

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Trew, S. & Russell, D. H. (2026). Family Adaptation in Families with Autistic Members: A Scoping Review and Thematic Synthesis of Relational Systems, Context, and Development. Child Psychiatry & Human Development. https://doi.org/10.1007/s10578-026-02023-5

Publication date: 07/05/2026 Ajout dans AutiHub: 16/09/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
2
Auteur·ices de la publication identifié·es comme autistes
1 / 2 (50,0 %)
  1. Sebastian Trew *
  2. Douglas Hugh Russell

Résumé

Résumé Cette revue exploratoire synthétise les recherches empiriques sur la manière dont les membres autistes de la famille façonnent les dynamiques familiales au sein des sous-systèmes relationnels, des contextes culturels et des stades de développement. Une recherche exhaustive menée en janvier 2025 dans cinq bases de données à l'aide du cadre SPIDER a permis d'identifier 102 études, analysées au moyen d'une analyse thématique intégrée convergente en trois étapes, éclairée par la théorie des systèmes familiaux. Cinq thèmes interconnectés ont émergé : reconstruction de l'identité familiale et adaptation des rôles ; climat émotionnel et modes de communication ; contextes culturels, sociétaux et structurels ; voies vers la résilience et l'adaptation positive ; et trajectoires développementales tout au long de la vie. Ces thèmes ont été intégrés dans un modèle conceptuel interprétatif dans lequel la communication est apparue comme un processus relationnel transversal, l'adaptation familiale se déployait au fil du développement, et les conditions contextuelles façonnaient les voies adaptatives plus ou moins accessibles. Dans l'ensemble des études, la flexibilité adaptative constituait une caractéristique récurrente des familles s'adaptant plus positivement, et la santé mentale des aidants, en particulier la santé mentale maternelle dans une base de données probantes dominée par les mères, semblait étroitement liée au climat émotionnel familial. Une analyse spécifique réinterprète les résultats à travers une perspective éclairée par la neurodiversité, proposant des changements fondamentaux visant à étudier l'adaptation familiale avec l'autisme plutôt qu'à l'autisme. Il est essentiel de noter que les perspectives autistes demeurent largement absentes : parmi les 102 études incluses, seules cinq comprenaient l'autoévaluation de personnes autistes comme source principale de données. Les recherches futures doivent placer les voix autistes au centre, utiliser des plans longitudinaux intégrés et s'attaquer aux obstacles structurels afin de soutenir des systèmes familiaux équitables.

Abstract This scoping review synthesizes empirical research on how autistic family members shape family dynamics across relational subsystems, cultural contexts, and developmental stages. A comprehensive search conducted in January 2025 across five databases using the SPIDER framework yielded 102 studies analysed through convergent integrated three-stage thematic analysis informed by family systems theory. Five interconnected themes emerged: family identity reconstruction and role adaptation; emotional climate and communication patterns; cultural, societal, and structural contexts; pathways to resilience and positive adaptation; and developmental trajectories across the lifespan. These themes were integrated into an interpretive conceptual model in which communication emerged as a cross-cutting relational process, family adaptation unfolded across developmental time, and contextual conditions shaped which adaptive pathways were more or less available. Across studies, adaptive flexibility was a recurring feature of more positively adapting families, and caregiver mental health, especially maternal mental health in a mother-dominated evidence base, appeared closely linked to family emotional climate. A dedicated analysis reinterprets findings through a neurodiversity-informed lens, proposing foundational shifts toward investigating family adaptation with rather than to autism. Critically, autistic perspectives remain largely absent: of the 102 included studies, only five included autistic self-report as a primary data source. Future research must centre autistic voices, employ integrated longitudinal designs, and address structural barriers supporting equitable family systems.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 19/09/2026 23:31.

Références citées
142
Avec un DOI
126
Sans DOI, à partir du texte brut de la bibliographie
16
11 / 142 (7,7 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
22 / 142 (15,5 %)
Références avec noms d’auteurices détectés
134 / 142 (94,4 %)
Sans nom d’auteurice détecté
8
Sans titre structuré
20
Sans identifiant stable
16
Références avec noms bruts d’auteurices restant à vérifier
8
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
450
À partir du DOI ou de métadonnées externes
450
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
19
92 / 450 (20,4 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 358 / 450 (79,6 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
15 / 450 (3,3 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 15 / 92 (16,3 %). Personnes distinctes identifiées comme autistes : 11 / 404 (2,7 %).
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