Family Adaptation in Families with Autistic Members: A Scoping Review and Thematic Synthesis of Relational Systems, Context, and Development

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Trew, S. & Russell, D. H. (2026). Family Adaptation in Families with Autistic Members: A Scoping Review and Thematic Synthesis of Relational Systems, Context, and Development. Child Psychiatry & Human Development. https://doi.org/10.1007/s10578-026-02023-5

Publication date: 7 May 2026 Added to AutiHub: 16 Sep 2026 Type: Article Article language: English
Publisher source (DOI) Full text OpenAlex source

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Authors

Publication authors
2
Publication authors identified as autistic
1 / 2 (50.0%)
  1. Sebastian Trew *
  2. Douglas Hugh Russell

Abstract

Abstract This scoping review synthesizes empirical research on how autistic family members shape family dynamics across relational subsystems, cultural contexts, and developmental stages. A comprehensive search conducted in January 2025 across five databases using the SPIDER framework yielded 102 studies analysed through convergent integrated three-stage thematic analysis informed by family systems theory. Five interconnected themes emerged: family identity reconstruction and role adaptation; emotional climate and communication patterns; cultural, societal, and structural contexts; pathways to resilience and positive adaptation; and developmental trajectories across the lifespan. These themes were integrated into an interpretive conceptual model in which communication emerged as a cross-cutting relational process, family adaptation unfolded across developmental time, and contextual conditions shaped which adaptive pathways were more or less available. Across studies, adaptive flexibility was a recurring feature of more positively adapting families, and caregiver mental health, especially maternal mental health in a mother-dominated evidence base, appeared closely linked to family emotional climate. A dedicated analysis reinterprets findings through a neurodiversity-informed lens, proposing foundational shifts toward investigating family adaptation with rather than to autism. Critically, autistic perspectives remain largely absent: of the 102 included studies, only five included autistic self-report as a primary data source. Future research must centre autistic voices, employ integrated longitudinal designs, and address structural barriers supporting equitable family systems.

Bibliography cited by this reference

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Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 19 Sep 2026 07:57.

Cited references
142
With a DOI
126
Without a DOI, from raw bibliography text
16
11 / 142 (7.7%) cited references include at least one author identified as autistic.
References with data to complete
22 / 142 (15.5%)
References with detected author names
134 / 142 (94.4%)
Without detected author names
8
Without a structured title
20
Without a stable identifier
16
References with raw author names still to review
8
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
450
From DOI or external metadata
450
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
19
92 / 450 (20.4%) names are linked to an author already present in AutiHub. 358 / 450 (79.6%) names are not yet linked.
Names linked to a person identified as autistic
15 / 450 (3.3%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 15 / 92 (16.3%). Distinct people identified as autistic: 11 / 404 (2.7%).
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