Un apport des sciences de l’occupation aux travaux sur le camouflage : placer au centre les expériences intersectionnelles de perturbations occupationnelles

Titre original en anglais : An Occupational Science Contribution to Camouflaging Scholarship: Centering Intersectional Experiences of Occupational Disruptions

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

À propos de la mention auteur·ice autiste

Franklin, M. D., Taylor, E., Floríndez, D. C., Guzman, M., Lawson, T. L., Rios, J., & Angell, A. (2024). An Occupational Science Contribution to Camouflaging Scholarship: Centering Intersectional Experiences of Occupational Disruptions. Autism in Adulthood, 7(3), 238-248. https://doi.org/10.1089/aut.2023.0070

Titre de la revue ou du livre
Autism in Adulthood
Éditeur
SAGE Publications
Volume
7
Numéro
3
Pages
238-248
Date de publication: 22/04/2024 Ajout dans AutiHub: 30/09/2026 Type: Article Langue de l’article: Anglais

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
7
Auteur·ices de la publication identifié·es comme autistes
1 / 7 (14,3 %)

Résumé

Le camouflage, c’est-à-dire la dissimulation de traits neurodivergents afin de se fondre dans la société neurotypique dominante, est rapporté chez les femmes autistes. Toutefois, au coeur du camouflage se trouve le désir d’appartenir, qui reste à explorer dans la littérature malgré ses effets coûteux sur la qualité de vie des personnes. Les sciences de l’occupation, une discipline qui s’intéresse à l’agir humain et à l’appartenance, sont particulièrement bien placées pour aborder le camouflage. Pourtant, le camouflage n’a pas été exploré dans une perspective de sciences de l’occupation. Par conséquent, dans cet article conceptuel, nous explorons d’abord la perspective unique que les sciences de l’occupation apportent aux travaux sur le camouflage. Compte tenu de la rareté des recherches et des travaux sur le camouflage portant sur les femmes autistes ayant des identités intersectionnelles (p. ex., les femmes autistes noires), nous nous appuyons sur le cadre féministe noir du handicap de Bailey et Mobley. Deuxièmement, en analysant des récits qualitatifs existants dans la recherche sur le camouflage, nous mettons en lumière les « perturbations occupationnelles », ou les facteurs de risque potentiels du camouflage, en nous concentrant sur l’environnement de travail, les contextes éducatifs et les relations interpersonnelles et intimes. Nous soulignons l’importance de comprendre les expériences uniques des femmes autistes noires en matière de perturbations occupationnelles. Troisièmement, nous examinons comment le démasquage est un privilège qui n’est pas accordé à celles qui se trouvent au-delà des marges. Enfin, nous concluons par les implications et les orientations futures pour la recherche et les travaux interdisciplinaires, notamment une critique de la relation paradoxale de notre discipline entre la théorie de l’appartenance et le camouflage, des considérations thérapeutiques (masquage contre démasquage en toute sécurité), ainsi qu’un appel à l’action destiné aux universitaires, aux praticiens et aux alliés afin de remettre en question la nécessité de se camoufler pour appartenir, atténuant ainsi les perturbations occupationnelles existantes.

Camouflaging, the masking of neurodivergent traits to blend in with the dominant neurotypical society, is reported among autistic women. At the core of camouflaging, however, is the desire to belong, which is yet to be explored in the literature despite its costly impacts on one's quality of life. Occupational science, a discipline concerned with human doing and belonging is uniquely situated to address camouflaging. Yet, camouflaging has not been explored from an occupational science lens. Therefore, in this conceptual article, we first explore the unique perspective that occupational science contributes to camouflaging scholarship. Given the dearth of camouflaging research and scholarship on autistic women with intersecting identities (e.g., Black autistic women), we draw from Bailey and Mobley's Black Feminist Disability Framework. Second, analyzing existing qualitative narratives in camouflaging research, we illuminate “occupational disruptions,” or potential risk factors of camouflaging, focusing on the work environment, educational settings, and interpersonal and intimate relationships. We highlight the importance of understanding Black autistic women's unique experiences of occupational disruptions. Third, we consider how unmasking is a privilege not granted to those beyond the margins. Finally, we conclude with implications and future directions for interdisciplinary research and scholarship, including a critique of our discipline's paradoxical relationship between belonging theory and camouflaging, therapeutic considerations (masking vs. unmasking safely), and a call to action for scholars, practitioners, and allies to challenge the need for camouflaging to belong, thereby mitigating existing occupational disruptions.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 03/10/2026 01:01.

Références citées
76
Avec un DOI
70
Sans DOI, à partir du texte brut de la bibliographie
6
13 / 76 (17,1 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
4 / 76 (5,3 %)
Références avec noms d’auteurices détectés
72 / 76 (94,7 %)
Sans nom d’auteurice détecté
4
Sans titre structuré
4
Sans identifiant stable
6
Références avec noms bruts d’auteurices restant à vérifier
4
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
223
À partir du DOI ou de métadonnées externes
223
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
5
119 / 223 (53,4 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 104 / 223 (46,6 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
17 / 223 (7,6 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 17 / 119 (14,3 %). Personnes distinctes identifiées comme autistes : 16 / 189 (8,5 %).
  1. Gholnecsar E. Muhammad , Sherell A. McArthur (2015). “Styled by Their Perceptions”: Black Adolescent Girls Interpret Representations of Black Females in Popular Culture . Multicultural Perspectives, 17(3), 133-140. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  2. Jonathan S Beck , Rebecca A Lundwall , Terisa P. Gabrielsen , Jonathan C Cox , Mikle South (2020). Looking good but feeling bad: “Camouflaging” behaviors and mental health in women with autistic traits . Autism, 24(4), 809-821. SAGE Publications.
    Crossref OpenAlex OpenCitations
  3. Karen R. Whalley Hammell , Michael K. Iwama (2012). Well-being and occupational rights: An imperative for critical occupational therapy . Scandinavian Journal of Occupational Therapy, 19(5), 385-394. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  4. Florence Clark (1997). Reflections on the human as an occupational being: Biological need, tempo and temporality . Journal of Occupational Science, 4(3), 86-92. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  5. Eilidh Cage , Zoe Troxell-Whitman (2019). Understanding the Reasons, Contexts and Costs of Camouflaging for Autistic Adults . Journal of Autism and Developmental Disorders, 49(5), 1899-1911. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  6. Amber M Davis , Marjorie Solomon , Harolyn Belcher (2022). Examination of Race and Autism Intersectionality Among African American/Black Young Adults . Autism in Adulthood, 4(4), 306-314. SAGE Publications.
    Crossref OpenAlex OpenCitations
  7. Danielle Hitch , Geneviève Pépin , Karen Stagnitti (2014). In the Footsteps of Wilcock, Part Two: The Interdependent Nature of Doing, Being, Becoming, and Belonging . Occupational Therapy In Health Care, 28(3), 247-263. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  8. Julia Cook , Laura Hull , Laura Crane , Will Mandy (2021). Camouflaging in autism: A systematic review . Clinical Psychology Review, 89(102), 102080. Elsevier BV.
    Crossref OpenAlex OpenCitations
  9. Allison Shefcyk (2015). Count us in: Addressing gender disparities in autism research . Autism, 19(2), 131-132. SAGE Publications.
    Crossref OpenAlex OpenCitations
  10. Karen Whalley Hammell (2009). Sacred Texts: A Sceptical Exploration of the Assumptions Underpinning Theories of Occupation . Canadian Journal of Occupational Therapy, 76(1), 6-13. SAGE Publications.
    Crossref OpenAlex OpenCitations
  11. (s. d.). Pearson A Rose K. Autistic Masking: Understanding Identity Management and the Role of Stigma. 1st ed. Shoreham by Sea West Sussex: Pavillion Publishing & Media Ltd; 2023.
    Type: Autre
    Crossref
  12. Karen Whalley Hammell (2015). Respecting global wisdom: Enhancing the cultural relevance of occupational therapy’s theoretical base . British Journal of Occupational Therapy, 78(11), 718-721. SAGE Publications.
    Crossref OpenAlex OpenCitations
  13. Neil McLean (2012). Researching academic identity: using discursive psychology as an approach . International Journal for Academic Development, 17(2), 97-108. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  14. Maire Claire Diemer , Emily D Gerstein , April Regester (2022). Autism presentation in female and Black populations: Examining the roles of identity, theory, and systemic inequalities . Autism, 26(8), 1931-1946. SAGE Publications.
    Crossref OpenAlex OpenCitations
  15. Laura Hull , K.V. Petrides , Carrie T. Allison , P. Smith , Simon Baron-Cohen , Meng-Chuan Lai et al. (2017). “Putting on My Best Normal”: Social Camouflaging in Adults with Autism Spectrum Conditions . Journal of Autism and Developmental Disorders, 47(8), 2519-2534. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  16. Amber Angell (2014). Occupation-Centered Analysis of Social Difference: Contributions to a Socially Responsive Occupational Science . Journal of Occupational Science, 21(2), 104-116. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  17. Siobhan Tierney , Jan Burns , Elizabeth Kilbey (2016). Looking behind the mask: Social coping strategies of girls on the autistic spectrum . Research in Autism Spectrum Disorders, 23(Suppl. C), 73-83. Elsevier BV.
    Crossref OpenAlex OpenCitations
  18. Kimberle Crenshaw (1991). Mapping the Margins: Intersectionality, Identity Politics, and Violence against Women of Color . Stanford Law Review, 43(6), 1241. JSTOR.
    Type: Article DOI: 10.2307/1229039 OpenAlex: https://openalex.org/W2337002970
    Crossref OpenAlex OpenCitations
  19. Laura Hull , Meng-Chuan Lai , Simon Baron-Cohen , Carrie T. Allison , P. Smith , K.V. Petrides et al. (2020). Gender differences in self-reported camouflaging in autistic and non-autistic adults . Autism, 24(2), 352-363. SAGE Publications.
    Crossref OpenAlex OpenCitations
  20. Hazel Rose Markus , Shinobu Kitayama (2010). Cultures and Selves . Perspectives on Psychological Science, 5(4), 420-430. SAGE Publications.
    Crossref OpenAlex OpenCitations
  21. Laura Hull , Lily Levy , Meng-Chuan Lai , K.V. Petrides , Simon Baron-Cohen , Carrie T. Allison et al. (2021). Is social camouflaging associated with anxiety and depression in autistic adults? Molecular Autism, 12(1), 13. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  22. Danielle Hitch , Geneviève Pépin , Karen Stagnitti (2014). In the Footsteps of Wilcock, Part One: The Evolution of Doing, Being, Becoming, and Belonging . Occupational Therapy In Health Care, 28(3), 231-246. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  23. Goldie A. McQuaid , Nancy Raitano Lee , Gregory L. Wallace (2022). Camouflaging in autism spectrum disorder: Examining the roles of sex, gender identity, and diagnostic timing . Autism, 26(2), 552-559. SAGE Publications.
    Crossref OpenAlex OpenCitations
  24. Isobel Moore , Gareth Morgan , Alice Welham , Ginny Russell (2022). The intersection of autism and gender in the negotiation of identity: A systematic review and metasynthesis . Feminism & Psychology, 32(4), 421-442. SAGE Publications.
    Crossref OpenAlex OpenCitations
  25. Ann A. Wilcock (2007). Occupation and Health: Are They One and the Same? Journal of Occupational Science, 14(1), 3-8. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  26. Alice Turnock , Kate Langley , Catherine RG Jones (2022). Understanding stigma in autism: a narrative review and theoretical model . Autism Adulthood, 4(1), 76. SAGE Publications.
    Crossref OpenAlex OpenCitations
  27. Anna Cook , Jane Ogden , Naomi Winstone (2018). Friendship motivations, challenges and the role of masking for girls with autism in contrasting school settings . European Journal of Special Needs Education, 33(3), 302-315. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  28. Florence A. Clark , Diane Parham , Michael E. Carlson , Gelya Frank , Jeanne Jackson , Doris Pierce et al. (1991). Occupational Science: Academic Innovation in the Service of Occupational Therapy’s Future . American Journal of Occupational Therapy, 45(4), 300-310. SAGE Publications.
    Crossref OpenAlex OpenCitations
  29. Ella Perry , Will Mandy , Laura Hull , Eilidh Cage (2022). Understanding Camouflaging as a Response to Autism-Related Stigma: A Social Identity Theory Approach . Journal of Autism and Developmental Disorders, 52(2), 800-810. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  30. Julie Lounds Taylor , Natalie A Henninger , Marsha R Mailick (2015). Longitudinal patterns of employment and postsecondary education for adults with autism and average-range IQ . Autism, 19(7), 785-793. SAGE Publications.
    Crossref OpenAlex OpenCitations
  31. Will Mandy (2019). Social camouflaging in autism: Is it time to lose the mask? Autism, 23(8), 1879-1881. SAGE Publications.
    Crossref OpenAlex OpenCitations
  32. Nathan V. Mallipeddi , Rachel A. VanDaalen (2022). Intersectionality Within Critical Autism Studies: A Narrative Review . Autism in Adulthood, 4(4), 281-289. SAGE Publications.
    Crossref OpenAlex OpenCitations
  33. Sarah Cassidy , K. Gould , Ellen Townsend , Mirabel Pelton , Ashley Robertson , Jacqui Rodgers (2020). Is Camouflaging Autistic Traits Associated with Suicidal Thoughts and Behaviours? Expanding the Interpersonal Psychological Theory of Suicide in an Undergraduate Student Sample . Journal of Autism and Developmental Disorders, 50(10), 3638-3648. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  34. Pernille Fraser (2021). Educational Policy in the UK: An Interview with Artist/Activist Jessica Starns . Ought: The Journal of Autistic Culture, 3(1). Grand Valley State University Libraries - DIGITAL COMMONS JOURNALS.
    OpenAlex OpenCitations
  35. Moya Bailey , Izetta Autumn Mobley (2019). Work in the Intersections: A Black Feminist Disability Framework . Gender & Society, 33(1), 19-40. SAGE Publications.
    Crossref OpenAlex OpenCitations
  36. Alexis Nizzero , Paige Cote , Heidi Cramm (2017). Occupational disruption: A scoping review . Journal of Occupational Science, 24(2), 114-127. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  37. (s. d.). Creswell JW Cresswell JD. Research Design Qualitative Quantitative and Mixed Methods Approaches. 5th ed. Thousand Oaks CA: Sage;. 2018.
    Type: Autre
    Crossref
  38. Sarabeth Broder‐Fingert , Christine Silva , Michael Silverstein , Emily Feinberg (2019). Participant characteristics in autism intervention studies . Autism, 23(1), 265-266. SAGE Publications.
    Crossref OpenAlex OpenCitations
  39. Angel L. Miles , Akemi Nishida , Anjali J. Forber-Pratt (2017). An open letter to White disability studies and ableist institutions of higher education . Disability Studies Quarterly, 37(3). The Ohio State University Libraries.
    Crossref OpenAlex OpenCitations
  40. Temple Lovelace , Mary P. Comis , JoVonne M. Tabb , Olajumoke E. Oshokoya (2022). Missing from the Narrative: A Seven-Decade Scoping Review of the Inclusion of Black Autistic Women and Girls in Autism Research . Behavior Analysis in Practice, 15(4), 1093-1105. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  41. Ami Tint , Jonathan Weiss (2018). A qualitative study of the service experiences of women with autism spectrum disorder . Autism, 22(8), 928-937. SAGE Publications.
    Crossref OpenAlex OpenCitations
  42. Florence Clark (1997). Reflections on the human as an occupational being: Biological need, tempo and temporality . Journal of Occupational Science, 4(3), 86-92. Informa UK Limited.
    Type: Article DOI: 10.1080/14427591.1997.12452866
    OpenCitations
  43. Louise Bradley , Rebecca Shaw , Simon Baron-Cohen , Sarah Cassidy (2021). Autistic Adults' Experiences of Camouflaging and Its Perceived Impact on Mental Health . Autism in Adulthood, 3(4), 320-329. SAGE Publications.
    Crossref OpenAlex OpenCitations
  44. Harro B (2000). The cycle of socialization . Readings for Diversity and Social Justice, 45.
    Type: Autre
    Crossref
  45. Felicity Sedgewick , Laura Crane , Vivian Hill , Elizabeth Pellicano (2019). Friends and Lovers: The Relationships of Autistic and Neurotypical Women . Autism in Adulthood, 1(2), 112-123. SAGE Publications.
    Crossref OpenAlex OpenCitations
  46. Susan M Hayward , Keith R. McVilly , Mark A. Stokes (2019). “I Would Love to Just Be Myself”: What Autistic Women Want at Work . Autism in Adulthood, 1(4), 297-305. SAGE Publications.
    Crossref OpenAlex OpenCitations
  47. Wilcock A (2006). 2nd ed . 2nd ed.
    Type: Autre
    Crossref
  48. Elizabeth Martin , Clare Hocking , Margaret Sandham (2023). Doing, being, becoming, and belonging: Experiences transitioning from bowel cancer patient to survivor . Journal of Occupational Science, 30(2), 277-290. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  49. Michelle Berger , Eric Asaba , Mandana Fallahpour , Lisette Farias (2022). The sociocultural shaping of mothers’ doing, being, becoming and belonging after returning to work . Journal of Occupational Science, 29(1), 7-20. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  50. James Brunton , Finian Buckley (2021). ‘You’re thrown in the deep end’: adult learner identity formation in higher education . Studies in Higher Education, 46(12), 2696-2709. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  51. Gunilla Carlsson , Marianne Granbom , Sofi Fristedt , Oskar Jonsson , Louise Hägg , Jenny Ericsson et al. (2022). A hundred days in confinement: Doing, being, becoming, and belonging among older people in Sweden during the COVID-19 pandemic . Journal of Occupational Science, 29(3), 402-416. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  52. Kate Seers , Rachel Hogg (2023). “Fake it ‘till you make it”: authenticity and wellbeing in late diagnosed autistic women . Feminism & Psychology, 33(1), 23. SAGE Publications.
    Crossref OpenAlex OpenCitations
  53. Liesl Peters , Roshan Galvaan (2021). A scoping review exploring ‘opportunity’ in occupational science: Possibilities for conceptual development . Journal of Occupational Science, 28(2), 249-267. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  54. Patricia Hill Collins (2002). Black Feminist Thought . Routledge.
    Crossref OpenAlex OpenCitations
  55. Morénike Giwa Onaiwu *Auteur·ice autiste. En savoir plus… (2020). I, Too, Sing Neurodiversity . Ought: The Journal of Autistic Culture, 2(1). Grand Valley State University Libraries - DIGITAL COMMONS JOURNALS.
  56. Courtney L. McCluney , Myles I. Durkee , Richard E. Smith , Kathrina J. Robotham , Serenity Sai-Lai Lee (2021). To be, or not to be…Black: The effects of racial codeswitching on perceived professionalism in the workplace . Journal of Experimental Social Psychology, 97(104199), 104199. Elsevier BV.
    Crossref OpenAlex OpenCitations
  57. Jo Halsall , Chris Clarke , Laura Crane (2021). “Camouflaging” by adolescent autistic girls who attend both mainstream and specialist resource classes: Perspectives of girls, their mothers and their educators . Autism, 25(7), 2074-2086. SAGE Publications.
    Crossref OpenAlex OpenCitations
  58. M. Ariel Cascio , Jonathan Weiss , Éric Racine (2021). Making Autism Research Inclusive by Attending to Intersectionality: a Review of the Research Ethics Literature . Review Journal of Autism and Developmental Disorders, 8(1), 22-36. Springer Science and Business Media LLC.
    Crossref OpenCitations
  59. Finbar Horgan , Neil Kenny , Paula Flynn (2023). A systematic review of the experiences of autistic young people enrolled in mainstream second-level (post-primary) schools . Autism, 27(2), 526-538. SAGE Publications.
    Crossref OpenAlex OpenCitations
  60. Elizabeth M. Radulski (2022). Conceptualising Autistic Masking, Camouflaging, and Neurotypical Privilege: Towards a Minority Group Model of Neurodiversity . Human Development, 66(2), 113-127. S. Karger AG.
    Crossref OpenAlex OpenCitations
  61. Aaron Dallman , Kathryn L Williams , Lauren Villa (2022). Neurodiversity-Affirming Practices are a Moral Imperative for Occupational Therapy . The Open Journal of Occupational Therapy, 10(2), 1-9. Western Michigan University - DIGITAL COMMONS.
    Crossref OpenAlex OpenCitations
  62. Shana R. Cohen , Kohrissa Joseph , Sarah Levinson , Jan Blacher , Abbey Eisenhower (2022). My autism is my own”: autistic identity and intersectionality in the school context . Autism Adulthood, 4(4), 315-327. SAGE Publications.
    Crossref OpenAlex OpenCitations
  63. (s. d.). Hammond T. Autistic Voices: This Was Never About ABA. The Kisha Project. 2022. https://thekishaproject.com/aba Accessed April8 2024.
    Type: Autre
    Crossref
  64. (s. d.). Gardner F. First-Hand Perspectives on Behavioral Interventions for Autistic People and People with Other Developmental Disabilities. Office of Developmental Primary Care at the University of California; 2017. https://autisticadvocacy.org/wp-content/uploads/2017/05/Behavioral-Interventions-Report-Final.pdf Accessed April8 2024.
    Type: Autre
    Crossref