L’autisme et les symptômes de déficit de l’attention avec hyperactivité comme facteurs de risque de problèmes de fréquentation scolaire chez les jeunes atteints de maladies génétiques rares

Titre original en anglais : Autism and attention-deficit/hyperactivity symptoms as risk factors of school attendance problems in youth with rare genetic disorders

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». deux auteur·ices de cette publication sont identifié·es comme autistes dans le projet.

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Orm, S., Tien, I. S., Wood, J. J., & Fjermestad, K. W. (2024). Autism and attention-deficit/hyperactivity symptoms as risk factors of school attendance problems in youth with rare genetic disorders. Discover Psychology, 4(1). https://doi.org/10.1007/s44202-024-00303-6

Publication date: 21/11/2024 Ajout dans AutiHub: 17/09/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
4
Auteur·ices de la publication identifié·es comme autistes
2 / 4 (50,0 %)
  1. Stian Orm *
  2. Ingrid S. Tien *
  3. Jeffrey J. Wood
  4. Krister W. Fjermestad

Résumé

Les problèmes de fréquentation scolaire sont fréquents chez les jeunes présentant un trouble du spectre de l’autisme (TSA) ou un trouble de déficit de l’attention avec hyperactivité (TDAH). Nous avons étudié le rôle des symptômes de TSA et de TDAH dans les problèmes de fréquentation scolaire chez des jeunes atteints de maladies génétiques rares, présentes chez moins d’une personne sur 2 000. Les parents ont rempli la Social Responsiveness Scale (SRS) et la Child Behavior Checklist (CBCL) concernant leur jeune atteint d’une maladie génétique rare (N = 93 ; âge moyen = 13,2 ans, ET = 2,3 ; 62,4 % de filles, 37,6 % de garçons). Les problèmes de fréquentation scolaire ont été évalués à l’aide des items d’anxiété scolaire et d’absentéisme de la CBCL. Les données ont été analysées au moyen de modèles mixtes linéaires généralisés. Un quart de l’échantillon (27 %) présentait une anxiété scolaire, et 11 % présentaient de l’absentéisme. Davantage de symptômes de TSA (OR = 1,04, IC à 95 % [1,02, 1,06]) et de symptômes de TDAH (OR = 1,22, IC à 95 % [1,07, 1,38]) étaient associés à un risque plus élevé d’anxiété scolaire. Les analyses ont indiqué que les associations entre les symptômes de TSA et de TDAH et l’anxiété scolaire pouvaient être expliquées par des symptômes intériorisés. Les symptômes extériorisés étaient associés à l’absentéisme. Il n’y avait pas de relation entre les symptômes de TSA/TDAH et l’absentéisme. Davantage de symptômes de TSA et de TDAH chez les jeunes atteints de maladies génétiques rares sont associés à un risque accru d’avoir peur de l’école, mais non d’absentéisme. Le risque associé aux symptômes de TSA et de TDAH peut être expliqué par les symptômes intériorisés qui les accompagnent fréquemment. L’évaluation de la symptomatologie du TSA et du TDAH chez les jeunes atteints de maladies génétiques rares peut être importante afin de cibler le soutien éducatif et psychosocial et de prévenir les problèmes de fréquentation scolaire.

School attendance problems are common among youth with autism spectrum disorder (ASD) or attention-deficit/hyperactivity disorder (ADHD). We investigated the role of ASD and ADHD symptoms in school attendance problems among youth with rare genetic disorders, which are present in fewer than 1 in 2000 people. Parents completed the Social Responsiveness Scale (SRS) and the Child Behavior Checklist (CBCL) about their youth with a rare genetic disorder (N = 93; M age = 13.2 years, SD = 2.3, 62.4% females, 37.6% males). School attendance problems were assessed with the CBCL school anxiety and truancy items. The data were analyzed using generalized linear mixed models. One-fourth of the sample (27%) displayed school anxiety, and 11% displayed truancy. More ASD symptoms (OR = 1.04, 95% CI [1.02, 1.06]) and ADHD symptoms (OR = 1.22, 95% CI [1.07, 1.38]) were associated with a higher risk of school anxiety. The analyses indicated that the associations between ASD and ADHD symptoms and school anxiety could be accounted for by internalizing symptoms. Externalizing symptoms were associated with truancy. There was no relationship between ASD/ADHD symptoms and truancy. More ASD and ADHD symptoms in youth with rare genetic disorders are associated with an increased risk of being afraid of school, but not truancy. The risk entangled by ASD and ADHD symptoms can be accounted for by the commonly co-occurring internalizing symptoms. Assessment of ASD and ADHD symptomatology in youth with rare genetic disorders may be important to target educational and psychosocial support and prevent school attendance problems.

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Références citées
97
Avec un DOI
91
Sans DOI, à partir du texte brut de la bibliographie
5
2 / 97 (2,1 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
3 / 97 (3,1 %)
Références avec noms d’auteurices détectés
94 / 97 (96,9 %)
Sans nom d’auteurice détecté
3
Sans titre structuré
3
Sans identifiant stable
5
Références avec noms bruts d’auteurices restant à vérifier
3
Références avec problème de récupération des métadonnées externes
0
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Noms d’auteurices détectés dans la bibliographie citée
466
À partir du DOI ou de métadonnées externes
466
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
5
78 / 466 (16,7 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 388 / 466 (83,3 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
2 / 466 (0,4 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 2 / 78 (2,6 %). Personnes distinctes identifiées comme autistes : 2 / 403 (0,5 %).
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