Autism and attention-deficit/hyperactivity symptoms as risk factors of school attendance problems in youth with rare genetic disorders

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Orm, S., Tien, I. S., Wood, J. J., & Fjermestad, K. W. (2024). Autism and attention-deficit/hyperactivity symptoms as risk factors of school attendance problems in youth with rare genetic disorders. Discover Psychology, 4(1). https://doi.org/10.1007/s44202-024-00303-6

Publication date: 21 Nov 2024 Added to AutiHub: 17 Sep 2026 Type: Article Article language: English
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Authors

Publication authors
4
Publication authors identified as autistic
2 / 4 (50.0%)
  1. Stian Orm *
  2. Ingrid S. Tien *
  3. Jeffrey J. Wood
  4. Krister W. Fjermestad

Abstract

School attendance problems are common among youth with autism spectrum disorder (ASD) or attention-deficit/hyperactivity disorder (ADHD). We investigated the role of ASD and ADHD symptoms in school attendance problems among youth with rare genetic disorders, which are present in fewer than 1 in 2000 people. Parents completed the Social Responsiveness Scale (SRS) and the Child Behavior Checklist (CBCL) about their youth with a rare genetic disorder (N = 93; M age = 13.2 years, SD = 2.3, 62.4% females, 37.6% males). School attendance problems were assessed with the CBCL school anxiety and truancy items. The data were analyzed using generalized linear mixed models. One-fourth of the sample (27%) displayed school anxiety, and 11% displayed truancy. More ASD symptoms (OR = 1.04, 95% CI [1.02, 1.06]) and ADHD symptoms (OR = 1.22, 95% CI [1.07, 1.38]) were associated with a higher risk of school anxiety. The analyses indicated that the associations between ASD and ADHD symptoms and school anxiety could be accounted for by internalizing symptoms. Externalizing symptoms were associated with truancy. There was no relationship between ASD/ADHD symptoms and truancy. More ASD and ADHD symptoms in youth with rare genetic disorders are associated with an increased risk of being afraid of school, but not truancy. The risk entangled by ASD and ADHD symptoms can be accounted for by the commonly co-occurring internalizing symptoms. Assessment of ASD and ADHD symptomatology in youth with rare genetic disorders may be important to target educational and psychosocial support and prevent school attendance problems.

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Cited references
97
With a DOI
91
Without a DOI, from raw bibliography text
5
2 / 97 (2.1%) cited references include at least one author identified as autistic.
References with data to complete
3 / 97 (3.1%)
References with detected author names
94 / 97 (96.9%)
Without detected author names
3
Without a structured title
3
Without a stable identifier
5
References with raw author names still to review
3
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
466
From DOI or external metadata
466
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
5
78 / 466 (16.7%) names are linked to an author already present in AutiHub. 388 / 466 (83.3%) names are not yet linked.
Names linked to a person identified as autistic
2 / 466 (0.4%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 2 / 78 (2.6%). Distinct people identified as autistic: 2 / 403 (0.5%).
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