Les problemes d'internalisation a l'adolescence comme mediateur entre un diagnostic d'autisme durant l'enfance et la qualite de vie chez de jeunes adultes emergents avec et sans autisme : une etude longitudinale sur 10 ans

Titre original en anglais : Adolescence internalizing problems as a mediator between autism diagnosis in childhood and quality of life in emerging adults with and without autism: a 10-year longitudinal study

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Andersen, P. N., Orm, S., Fossum, I. N., Øie, M. G., & Skogli, E. W. (2023). Adolescence internalizing problems as a mediator between autism diagnosis in childhood and quality of life in emerging adults with and without autism: a 10-year longitudinal study. BMC Psychiatry, 23(1), 149-149. https://doi.org/10.1186/s12888-023-04635-w

Date de publication: 09/03/2023 Ajout dans AutiHub: 20/09/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
5
Auteur·ices de la publication identifié·es comme autistes
1 / 5 (20,0 %)
  1. Per Normann Andersen
  2. Stian Orm *
  3. Ingrid Nesdal Fossum
  4. Merete Glenne Øie
  5. Erik Winther Skogli

Résumé

Resume Contexte Les personnes autistes ont tendance a avoir une qualite de vie reduite tout au long de leur vie. Cette qualite de vie reduite peut resulter de traits autistiques, de souffrance psychique et d'une mauvaise adequation personne/environnement. Dans cette etude longitudinale, nous avons examine le role des problemes d'internalisation et d'externalisation a l'adolescence dans la mediation de la relation entre le fait d'avoir un diagnostic d'autisme depuis l'enfance et la qualite de vie percue a l'age de jeune adulte emergent. Methodes Au total, 66 participants d'un groupe de jeunes adultes emergents avec autisme (age moyen 22,2 ans) et sans autisme (age moyen 20,9 ans) ont ete evalues lors de trois vagues d'evaluation (T1 a 12 ans, T2 a 14 ans et T3 a 22 ans). Les parents ont rempli la Child Behavior Checklist a T2 et les participants ont rempli le Perceived Quality of Life Questionnaire a T3. Les effets totaux et indirects ont ete testes dans une analyse de mediation sequentielle. Resultats Les resultats ont montre que les problemes d'internalisation mediaient completement l'association entre le diagnostic d'autisme durant l'enfance et la qualite de vie au debut de l'age adulte, tandis que les problemes d'externalisation ne la mediaient pas. Conclusion Nos resultats suggerent qu'il est important de preter attention aux problemes d'internalisation a l'adolescence afin d'ameliorer la qualite de vie ulterieure des jeunes adultes emergents autistes.

Abstract Background Individuals with autism tend to have a reduced quality of life across their lifespan. This reduced quality of life may be a result of autism traits, mental distress, and poor person/environment fit. In this longitudinal study, we looked at the role of adolescence internalizing and externalizing problems in mediating the relationship between having an autism diagnosis from childhood and perceived quality of life as emerging adults. Methods A total of 66 participants in a group of emerging adults with autism (mean age 22.2 years), and without autism (mean age 20.9 years) were assessed in three assessment waves (T1 at 12 years, T2 at 14 years, and T3 at 22 years of age). Parents filled out the Child Behavior Checklist at T2 and participants filled out the Perceived Quality of Life Questionnaire at T3. Total and indirect effects were tested in serial mediation analysis. Results The results showed that internalizing problems fully mediated the association between childhood autism diagnosis and the quality of life in emerging adulthood, while externalizing problems did not. Conclusion Our findings suggest that attention to adolescent internalizing problems is important to improve the later quality of life for emerging adults with autism.

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Références citées
70
Avec un DOI
64
Sans DOI, à partir du texte brut de la bibliographie
6
9 / 70 (12,9 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
6 / 70 (8,6 %)
Références avec noms d’auteurices détectés
66 / 70 (94,3 %)
Sans nom d’auteurice détecté
4
Sans titre structuré
5
Sans identifiant stable
6
Références avec noms bruts d’auteurices restant à vérifier
3
Références avec problème de récupération des métadonnées externes
0
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Noms d’auteurices détectés dans la bibliographie citée
332
À partir du DOI ou de métadonnées externes
332
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
4
138 / 332 (41,6 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 194 / 332 (58,4 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
9 / 332 (2,7 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 9 / 138 (6,5 %). Personnes distinctes identifiées comme autistes : 4 / 282 (1,4 %).
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