Le musicien neurodivergent : rapport méthodologique sur une étude de recherche-action participative

Titre original en anglais : The Neurodivergent Musician: A Methodology Report on A Participatory Action Research Study

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Détári, A., Dawson, G., Ballam, L., Chapman, A., Redelinghys, J., Baines, E., Furniss, P., Hugill, A., & Heaton, P. (2026). The Neurodivergent Musician: A Methodology Report on A Participatory Action Research Study. Neurodiversity, 4. https://doi.org/10.1177/27546330261434045

Date de publication: 01/04/2026 Ajout dans AutiHub: 10/09/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
9
Auteur·ices de la publication identifié·es comme autistes
1 / 9 (11,1 %)
  1. Anna Détári
  2. Georgia Dawson
  3. Lydia Ballam
  4. Alex Chapman
  5. James Redelinghys
  1. Emily Baines
  2. Pete Furniss
  3. Andrew Hugill *
  4. Pamela Heaton

Résumé

Selon les estimations, la prévalence de diverses formes de neurodivergence est beaucoup plus élevée chez les musiciens que dans la population générale. Malgré ce fait, nous savons très peu de choses sur les expériences vécues des musiciens neurodivergents (ND) dans des contextes professionnels, tels que les établissements d'enseignement et les lieux de travail. Le manque d'informations entraîne un manque de compréhension, de soutien approprié et d'inclusion du personnel ND dans ces espaces ; il est donc crucial de recueillir des informations exactes directement auprès de la population. Une étude de recherche-action participative (PAR) a été planifiée et organisée par des musiciens ND ; elle comprenait un événement en présentiel et des conversations de suivi en ligne, au cours desquelles des membres de la communauté (musiciens ND, enseignants en musique, chercheurs en musique et alliés neurotypiques) ont été invités à discuter de divers aspects de leur formation professionnelle et de leur vie professionnelle. Conformément aux principes directeurs de la PAR, tous les participants ont été invités à contribuer aux productions afin de garantir leur autonomie et d'utiliser pleinement leur expertise unique. Compte tenu de la quantité et de la richesse des données, ainsi que de l'espace limité, des discussions détaillées sur les résultats seront publiées séparément. Ici, nous avons choisi de nous concentrer sur l'approche méthodologique et la procédure afin de fournir un modèle pour l'utilisation de la PAR auprès de communautés adultes ND.

According to estimates, the prevalence of various forms of neurodivergence is much higher among musicians than in the general population. Despite this fact, we know very little about the lived experiences of neurodivergent (ND) musicians in professional settings, such as educational institutions and places of employment. The lack of information leads to a lack of understanding, appropriate support, and inclusion of ND personnel in these spaces; therefore, it is crucial to gather accurate information directly from the population. A Participatory Action Research (PAR) study was planned and organised by ND musicians, which consisted of an in-person event and online follow-up conversations, where members of the community (ND musicians, music educators, music researchers, and neurotypical allies) were invited to discuss various aspects of their vocational education and professional lives. In alignment with the guiding principles of PAR, all participants were invited to contribute to the outputs to ensure their autonomy and utilise their unique expertise to the fullest. Given the quantity and richness of the data and the limited space, detailed discussions about the findings will be published separately. Here, we opted to focus on the methodological approach and procedure to provide a template for using PAR with adult ND communities.

Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 12/09/2026 07:09.

Références citées
77
Avec un DOI
63
Sans DOI, à partir du texte brut de la bibliographie
14
10 / 77 (13,0 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
7 / 77 (9,1 %)
Références avec noms d’auteurices détectés
70 / 77 (90,9 %)
Sans nom d’auteurice détecté
7
Sans titre structuré
7
Sans identifiant stable
14
Références avec noms bruts d’auteurices restant à vérifier
7
Références avec problème de récupération des métadonnées externes
1
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
199
À partir du DOI ou de métadonnées externes
199
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
31
67 / 199 (33,7 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 132 / 199 (66,3 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
18 / 199 (9,0 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 18 / 67 (26,9 %). Personnes distinctes identifiées comme autistes : 15 / 191 (7,9 %).
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