Comprendre l'utilisation des médias sociaux par les adultes autistes

Titre original en anglais : Understanding Autistic Adults' Use of Social Media

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van Driel, M., Vines, J., Pena, B. B., & Koteyko, N. (2023). Understanding Autistic Adults' Use of Social Media. Proceedings of the ACM on Human-Computer Interaction, 7(CSCW2), 1-23. https://doi.org/10.1145/3610048

Date de publication: 28/09/2023 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
4
Auteur·ices de la publication identifié·es comme autistes
1 / 4 (25,0 %)
  1. Martine van Driel *
  2. John Vines
  3. Belén Barros Pena
  4. Nelya Koteyko

Résumé

L'autisme est une condition développementale qui touche 1 personne sur 100 \citeNationalAutisticSociety2021. Il affecte les préférences et les comportements interactionnels et sensoriels des personnes autistes. Les personnes autistes peuvent trouver les interactions difficiles, en partie en raison d'une surcharge sensorielle. Interagir en ligne peut offrir une alternative positive qui permet des interactions selon leurs propres modalités. Cependant, la plupart des plateformes de médias sociaux sont conçues selon des normes neurotypiques et peuvent donc empêcher la pleine participation des utilisateurs autistes. Nous démontrons, par l'analyse de 34 entretiens semi-structurés avec des adultes autistes, que la conception actuelle des médias sociaux n'est pas suffisante pour créer un environnement inclusif et permettre la participation des adultes autistes. Nous avons identifié six thèmes dans les entretiens : (1) « Les médias sociaux comparés aux interactions en personne », (2) « Les médias sociaux comme facilitants ou accablants », (3) « Les normes sociales perçues », (4) « Rester en contact et trouver de nouvelles communautés », (5) « Garder le contrôle grâce à des pratiques systématiques » et (6) « Être authentique ». Les thèmes montrent l'attention que les adultes autistes accordent à l'interaction en ligne, ce qui suggère que les interactions en ligne peuvent être tout aussi difficiles que les interactions en personne se sont avérées l'être. Afin de devenir plus inclusives envers les adultes autistes, nous recommandons que les plateformes de médias sociaux développent les fonctionnalités de participation nécessitant peu d'efforts, offrent un contrôle accru sur le contenu algorithmique, soutiennent l'expression de l'intention et du ton, facilitent la découverte des normes interactionnelles et renforcent la sociabilité fondée sur les intérêts.

Autism is a developmental condition that impacts 1 in 100 people \citeNationalAutisticSociety2021. It affects autistic people's interactional and sensory preferences and behaviours. Autistic people can find interactions difficult in part due to sensory overwhelm. Interacting online can provide a positive alternative that allows for interactions on their own terms. However, most social media platforms are designed by neurotypical standards and can therefore inhibit full participation by autistic users. We demonstrate through the analysis of 34 semi-structured interviews with autistic adults that current social media design is not sufficient for creating an inclusive environment and enabling participation from autistic adults. We identified six themes across the interviews: (1) 'Social Media compared to In-Person Interactions', (2) 'Social Media as Enabling/Overwhelming', (3) 'Perceived Social Norms', (4) 'Keeping Connected and Finding New Communities', (5) 'Keeping Control through Systematic Practices', and (6) 'Being Authentic'. The themes demonstrate the attention that autistic adults give to online interaction, suggesting that online interactions may be just as fraught as in-person interactions have been shown to be. In order to become more inclusive of autistic adults, we recommend that social media platforms expand low-effort participation features, provide increased control over algorithmic content, support expression of intent and tone, aid discovery of interactional norms, and reinforce interest-based sociality.

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:31.

Références citées
58
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
9 / 58 (15,5 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
12 / 166 (7,2 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 12 / 54 (22,2 %). Auteurices cité·es distinct·es identifié·es comme autistes : 9 / 148 (6,1 %).
Occurrences citées rattachées à la base AutiHub
54 / 166 (32,5 %)
Auteurices cité·es distinct·es rattaché·es : 44 / 148 (29,7 %)
Occurrences rattachées, non identifiées comme autistes
42 / 54 (77,8 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 42 / 166 (25,3 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 35 / 44 (79,5 %).
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