Primary Care for Adults on the Autism Spectrum
Nicolaidis, C., Kripke, C., & Raymaker, D. M. (2014). Primary Care for Adults on the Autism Spectrum. Medical Clinics of North America, 98(5), 1169-1191. https://doi.org/10.1016/j.mcna.2014.06.011
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Authors
Abstract
Autism spectrum disorder (ASD) is defined by differences in social communication and restricted, repetitive patterns of behavior, interests, or activities. Skills and challenges can change depending on environmental stimuli, supports, and stressors. Quality of life can be improved by the use of accommodations, assistive technologies, therapies to improve adaptive function or communication, caregiver training, acceptance, access, and inclusion. This article focuses on the identification of ASD in adults, referrals for services, the recognition of associated conditions, strategies and accommodations to facilitate effective primary care services, and ethical issues related to caring for autistic adults.
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These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:31.
-
R M Shavelle , D Strauss (1998). Comparative mortality of persons with autism in California, 1980-1996. J Insur Med, 30(4), 220.Type: Article OpenAlex: https://openalex.org/W1106379Crossref OpenAlex
-
Traolach Brugha , Sally McManus , John Bankart , Fiona Scott , Susan Purdon , Jane Smith et al. (2011). Epidemiology of Autism Spectrum Disorders in Adults in the Community in England . Archives of General Psychiatry, 68(5), 459. American Medical Association (AMA).Crossref OpenAlex OpenCitations
-
Fabian Guénolé , Jean-Marc Baleyte (2011). Meta-analysing the effectiveness of melatonin for sleep-disturbed individuals with autism spectrum conditions: should Rett syndrome be included? Developmental Medicine & Child Neurology, 53(11), 1063-1063. Wiley.OpenCitations
-
Robert M. Shavelle , David J. Strauss , Jane Pickett (2001). Causes of Death in Autism . Journal of Autism and Developmental Disorders, 31(6), 569-576. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Christina Nicolaidis , Dora M Raymaker *Autistic author. Learn more… , Katherine McDonald , Sebastian Dern , Elesia Ashkenazy *Autistic author. Learn more… , W. Cody Boisclair *Autistic author. Learn more… et al. (2011). Collaboration Strategies in Nontraditional Community-Based Participatory Research Partnerships: Lessons From an Academic–Community Partnership With Autistic Self-Advocates . Progress in Community Health Partnerships: Research, Education, and Action, 5(2), 143-150. Project MUSE.
-
Kamila Markram , Henry Markram (2010). The Intense World Theory – A Unifying Theory of the Neurobiology of Autism . Frontiers in Human Neuroscience, 4, 224-224. Frontiers Media SA.Crossref OpenAlex OpenCitations
-
R. Srikanth , G. Cassidy , C. Joiner , S. Teeluckdharry (2011). Osteoporosis in people with intellectual disabilities: a review and a brief study of risk factors for osteoporosis in a community sample of people with intellectual disabilities . Journal of Intellectual Disability Research, 55(1), 53-62. Wiley.Crossref OpenAlex OpenCitations
-
American Psychiatric Association (2013). Diagnostic and statistical manual of mental disorders, fifth edition (DSM-5) .Type: OtherCrossref
-
Rosemary B. Hughes , Emily M. Lund , Joy Gabrielli , Laurie E. Powers , Mary Ann Curry (2011). Prevalence of interpersonal violence against community-living adults with disabilities: A literature review. Rehabilitation Psychology, 56(4), 302-319. American Psychological Association (APA).Crossref OpenAlex OpenCitations
-
M A Stewart (1995). Effective physician-patient communication and health outcomes: a review. CMAJ, 152(9), 1423.Type: Article OpenAlex: https://openalex.org/W1836470756Crossref OpenAlex
-
Nicola Rose , John Rose , Sarah Kent (2012). Staff training in intellectual disability services: a review of the literature and implications for mental health services provided to individuals with intellectual disability . International Journal of Developmental Disabilities, 58(1), 24-39. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Lauren E Hirsch , Tamara Pringsheim (2016). Aripiprazole for autism spectrum disorders (ASD) . Cochrane Database of Systematic Reviews, 2016(6), CD009043-CD009043. Wiley.OpenAlex
-
Christina Nicolaidis (2012). What Can Physicians Learn from the Neurodiversity Movement? AMA Journal of Ethics, 14(6), 503-510. American Medical Association (AMA).Type: Article DOI: 10.1001/virtualmentor.2012.14.6.oped1-1206 OpenAlex: https://openalex.org/W2142098199
-
L. I. IEZZONI (2002). Satisfaction with quality and access to health care among people with disabling conditions . International Journal for Quality in Health Care, 14(5), 369-381. Oxford University Press (OUP).Crossref OpenAlex OpenCitations
-
L. Charlot , S. Abend , P. Ravin , K. Mastis , A. Hunt , C. Deutsch (2011). Non‐psychiatric health problems among psychiatric inpatients with intellectual disabilities . Journal of Intellectual Disability Research, 55(2), 199-209. Wiley.Crossref OpenAlex OpenCitations
-
Kimberley Rogers , Isabel Dziobek , Jason Hassenstab , Oliver T. Wolf , Antonio Convit (2007). Who Cares? Revisiting Empathy in Asperger Syndrome . Journal of Autism and Developmental Disorders, 37(4), 709-715. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Russell Lang , Lynn Kern Koegel , Kristen Ashbaugh , April Regester , Whitney Ence , Whitney Smith (2010). Physical exercise and individuals with autism spectrum disorders: A systematic review . Research in Autism Spectrum Disorders, 4(4), 565-576. Elsevier BV.Crossref OpenAlex OpenCitations
-
Lord (2012). Autism diagnostic observation schedule: ADOS-2 .Type: OtherCrossref
-
Johnny L. Matson , Martin N. Ancona , Jonathan Wilkins (2008). Sleep Disturbances in Adults with Autism Spectrum Disorders and Severe Intellectual Impairments . Journal of Mental Health Research in Intellectual Disabilities, 1(3), 129-139. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Annelies A. Spek , Nadia C. van Ham , Ivan Nyklíček (2013). Mindfulness-based therapy in adults with an autism spectrum disorder: A randomized controlled trial . Research in Developmental Disabilities, 34(1), 246-253. Elsevier BV.Crossref OpenAlex OpenCitations
-
Susan W. White , Donald Oswald , Thomas H. Ollendick , Lawrence Scahill (2009). Anxiety in children and adolescents with autism spectrum disorders . Clinical Psychology Review, 29(3), 216-229. Elsevier BV.Crossref OpenAlex OpenCitations
-
Gerda de Kuijper , Hans Mulder , Heleen Evenhuis , Frans Scholte , Frank Visser , Pieter J. Hoekstra (2013). Determinants of physical health parameters in individuals with intellectual disability who use long-term antipsychotics . Research in Developmental Disabilities, 34(9), 2799-2809. Elsevier BV.Crossref OpenAlex OpenCitations
-
Susan Dickerson Mayes , Susan L. Calhoun (2008). WISC-IV and WIAT-II Profiles in Children With High-Functioning Autism . Journal of Autism and Developmental Disorders, 38(3), 428-439. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Mary E. Stewart , Louise Barnard , Joanne Pearson , Reem Hasan , Gregory O’Brien (2006). Presentation of depression in autism and Asperger syndrome . Autism, 10(1), 103-116. SAGE Publications.Crossref OpenAlex OpenCitations
-
Russell Lang , Mandy Rispoli , Wendy Machalicek , Pamela J. White , Soyeon Kang , Nigel P. Pierce et al. (2009). Treatment of elopement in individuals with developmental disabilities: A systematic review . Research in Developmental Disabilities, 30(4), 670-681. Elsevier BV.Crossref OpenAlex OpenCitations
-
Finale Doshi-Velez , Yaorong Ge , Isaac Kohane (2014). Comorbidity Clusters in Autism Spectrum Disorders: An Electronic Health Record Time-Series Analysis . Pediatrics, 133(1), e54-e63. American Academy of Pediatrics (AAP).Crossref OpenAlex OpenCitations
-
Virginia L. Walker , Martha E. Snell (2013). Effects of Augmentative and Alternative Communication on Challenging Behavior: A Meta-Analysis . Augmentative and Alternative Communication, 29(2), 117-131. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Carl V Tyler , Sarah C Schramm , Matthew Karafa , Anne S Tang , Anil K Jain (2011). Chronic Disease Risks in Young Adults With Autism Spectrum Disorder: Forewarned Is Forearmed . American Journal on Intellectual and Developmental Disabilities, 116(5), 371-380. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Robert E. Rada (2013). Treatment Needs and Adverse Events Related to Dental Treatment Under General Anesthesia for Individuals With Autism . Intellectual and Developmental Disabilities, 51(4), 246-252. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Isaac S. Kohane , Andrew McMurry , Griffin Weber , Douglas MacFadden , Leonard Rappaport , Louis Kunkel et al. (2012). The Co-Morbidity Burden of Children and Young Adults with Autism Spectrum Disorders . PLoS ONE, 7(4), e33224. Public Library of Science (PLoS).Crossref OpenAlex OpenCitations
-
Gloria L. Krahn , Laura Hammond , Anne Turner (2006). A cascade of disparities: Health and health care access for people with intellectual disabilities . Mental Retardation and Developmental Disabilities Research Reviews, 12(1), 70-82. Wiley.Crossref OpenAlex OpenCitations
-
Sarah K. Harper , Thomas L. Webb , Kelly Rayner (2013). The Effectiveness of Mindfulness-Based Interventions for Supporting People With Intellectual Disabilities . Behavior Modification, 37(3), 431-453. SAGE Publications.Crossref OpenAlex OpenCitations
-
Christina Nicolaidis , Dora M Raymaker *Autistic author. Learn more… , Elesia Ashkenazy *Autistic author. Learn more… , Katherine McDonald , Sebastian Dern , Amelia E.V. Baggs et al. (2015). “Respect the way I need to communicate with you”: Healthcare experiences of adults on the autism spectrum . Autism, 19(7), 824-831. SAGE Publications.
-
Thompson E. Davis , Julie A. Hess , Brittany N. Moree , Jill C. Fodstad , Tim Dempsey , Whitney S. Jenkins et al. (2011). Anxiety symptoms across the lifespan in people diagnosed with Autistic Disorder . Research in Autism Spectrum Disorders, 5(1), 112-118. Elsevier BV.Crossref OpenAlex OpenCitations
-
SUE WOOLFENDEN , VANESSA SARKOZY , GRETA RIDLEY , MICHAEL COORY , KATRINA WILLIAMS (2012). A systematic review of two outcomes in autism spectrum disorder – epilepsy and mortality . Developmental Medicine & Child Neurology, 54(4), 306-312. Wiley.Crossref OpenAlex OpenCitations
-
E. van de Wouw , H.M. Evenhuis , M.A. Echteld (2012). Prevalence, associated factors and treatment of sleep problems in adults with intellectual disability: A systematic review . Research in Developmental Disabilities, 33(4), 1310-1332. Elsevier BV.Crossref OpenAlex OpenCitations
-
Matthew Siegel , Amy A. Beaulieu (2012). Psychotropic Medications in Children with Autism Spectrum Disorders: A Systematic Review and Synthesis for Evidence-Based Practice . Journal of Autism and Developmental Disorders, 42(8), 1592-1605. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Jessica Hellings , Alicia Cardona , Stephen Schroeder (2010). Long-Term Safety and Adverse Events of Risperidone in Children, Adolescents, and Adults With Pervasive Developmental Disorders . Journal of Mental Health Research in Intellectual Disabilities, 3(3), 132-144. Informa UK Limited.Crossref OpenAlex OpenCitations
-
M. Kerr , M. Scheepers , M. Arvio , J. Beavis , C. Brandt , S Brown et al. (2009). Consensus guidelines into the management of epilepsy in adults with an intellectual disability . Journal of Intellectual Disability Research, 53(8), 687-694. Wiley.Crossref OpenAlex OpenCitations
-
Elizabeth A. Perkins , Karen A. Berkman (2012). Into the Unknown: Aging with Autism Spectrum Disorders . American Journal on Intellectual and Developmental Disabilities, 117(6), 478-496. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Yoon-Suk Hwang , Patrick Kearney (2013). A systematic review of mindfulness intervention for individuals with developmental disabilities: Long-term practice and long lasting effects . Research in Developmental Disabilities, 34(1), 314-326. Elsevier BV.Crossref OpenAlex OpenCitations
-
Emma W. Viscidi , Elizabeth W. Triche , Matthew F. Pescosolido , Rebecca L. McLean , Robert M. Joseph , Sarah J. Spence et al. (2013). Clinical Characteristics of Children with Autism Spectrum Disorder and Co-Occurring Epilepsy . PLoS ONE, 8(7), e67797. Public Library of Science (PLoS).Crossref OpenAlex OpenCitations
-
Dwayne Dove , Zachary Warren , Melissa L. McPheeters , Julie Lounds Taylor , Nila A. Sathe , Jeremy Veenstra‐VanderWeele (2012). Medications for Adolescents and Young Adults With Autism Spectrum Disorders: A Systematic Review . Pediatrics, 130(4), 717-726. American Academy of Pediatrics (AAP).Crossref OpenAlex OpenCitations
-
Christina Nicolaidis , Dora M Raymaker *Autistic author. Learn more… , Katherine McDonald , Sebastian Dern , W. Cody Boisclair *Autistic author. Learn more… , Elesia Ashkenazy *Autistic author. Learn more… et al. (2013). Comparison of Healthcare Experiences in Autistic and Non-Autistic Adults: A Cross-Sectional Online Survey Facilitated by an Academic-Community Partnership . Journal of General Internal Medicine, 28(6), 761-769. Springer Science and Business Media LLC.
-
Melanie Chapman , Pam Iddon , Kathy Atkinson , Colin Brodie , Duncan Mitchell , Garry Parvin et al. (2011). The misdiagnosis of epilepsy in people with intellectual disabilities: A systematic review . Seizure, 20(2), 101-106. Elsevier BV.Crossref OpenAlex OpenCitations
-
Timothy Buie , Daniel B. Campbell , George J. Fuchs , Glenn T. Furuta , Joseph Levy , Judy VandeWater et al. (2010). Evaluation, Diagnosis, and Treatment of Gastrointestinal Disorders in Individuals With ASDs: A Consensus Report . Pediatrics, 125(Supplement_1), S1-S18. American Academy of Pediatrics (AAP).Crossref OpenAlex OpenCitations
-
William V. Bobo , William O. Cooper , C. Michael Stein , Mark Olfson , David Graham , James Daugherty et al. (2013). Antipsychotics and the Risk of Type 2 Diabetes Mellitus in Children and Youth . JAMA Psychiatry, 70(10), 1067. American Medical Association (AMA).Crossref OpenAlex OpenCitations
-
Robert M. Joseph , Helen Tager‐Flusberg , Catherine Lord (2002). Cognitive profiles and social‐communicative functioning in children with autism spectrum disorder . Journal of Child Psychology and Psychiatry, 43(6), 807-821. Wiley.Crossref OpenAlex OpenCitations
-
Kathleen Humphries , Meg Ann Traci , Tom Seekins (2009). Nutrition and Adults With Intellectual or Developmental Disabilities: Systematic Literature Review Results * . Intellectual and Developmental Disabilities, 47(3), 163-185. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Børge Sivertsen , Maj‐Britt Posserud , Christopher Gillberg , Astri J Lundervold , Mari Hysing (2012). Sleep problems in children with autism spectrum problems: a longitudinal population-based study . Autism, 16(2), 139-150. SAGE Publications.Crossref OpenAlex OpenCitations
-
David Allen , Paul Langthorne , Bruce J. Tonge , Eric Emerson , Peter McGill , Robert Fletcher et al. (2013). Towards the Prevention of Behavioural and Psychiatric Disorders in People with Intellectual Disabilities . Journal of Applied Research in Intellectual Disabilities, 26(6), 501-514. Wiley.Crossref OpenAlex OpenCitations
-
Valeria Frighi , Matthew T. Stephenson , Alireza Morovat , Iain E. Jolley , Marialena Trivella , Christina A. Dudley et al. (2011). Safety of antipsychotics in people with intellectual disability . British Journal of Psychiatry, 199(4), 289-295. Royal College of Psychiatrists.Crossref OpenAlex OpenCitations
-
Yona Lunsky , Elizabeth Lin , Rob Balogh , Julie Klein-Geltink , Jennifer Bennie , Andrew S. Wilton et al. (2011). Are adults with developmental disabilities more likely to visit EDs? The American Journal of Emergency Medicine, 29(4), 463-465. Elsevier BV.Crossref OpenAlex OpenCitations
-
Fletcher (2007). DM-ID: diagnostic manual-intellectual disability: a textbook of diagnosis of mental disorders in persons with intellectual disability .Type: OtherCrossref
-
M. A. Polimeni , Amanda L. Richdale , A. J. P. Francis (2005). A survey of sleep problems in autism, Asperger's disorder and typically developing children . Journal of Intellectual Disability Research, 49(4), 260-268. Wiley.Crossref OpenAlex OpenCitations
-
DANIEL A ROSSIGNOL , RICHARD E FRYE (2011). Melatonin in autism spectrum disorders: a systematic review and meta‐analysis . Developmental Medicine & Child Neurology, 53(9), 783-792. Wiley.Crossref OpenAlex OpenCitations
-
T. Hylkema , C. Vlaskamp (2009). Significant improvement in sleep in people with intellectual disabilities living in residential settings by non‐pharmaceutical interventions . Journal of Intellectual Disability Research, 53(8), 695-703. Wiley.Crossref OpenAlex OpenCitations
-
Sally‐Ann Cooper , E. Smiley , A. Jackson , J. Finlayson , L. Allan , D. Mantry et al. (2009). Adults with intellectual disabilities: prevalence, incidence and remission of aggressive behaviour and related factors . Journal of Intellectual Disability Research, 53(3), 217-232. Wiley.Crossref OpenAlex OpenCitations
-
Jill A. Hollway , Michael G. Aman (2011). Pharmacological treatment of sleep disturbance in developmental disabilities: A review of the literature . Research in Developmental Disabilities, 32(3), 939-962. Elsevier BV.Crossref OpenAlex OpenCitations
-
Lisa I. Iezzoni , Bonnie L. O'Day , Mary Killeen , Heather Harker (2004). Communicating about Health Care: Observations from Persons Who Are Deaf or Hard of Hearing . Annals of Internal Medicine, 140(5), 356-362. American College of Physicians.Type: Article DOI: 10.7326/0003-4819-140-5-200403020-00011 OpenAlex: https://openalex.org/W2050708608Crossref OpenAlex OpenCitations
-
G. de Kuijper , H. Evenhuis , R. B. Minderaa , P. J. Hoekstra (2014). Effects of controlled discontinuation of long‐term used antipsychotics for behavioural symptoms in individuals with intellectual disability . Journal of Intellectual Disability Research, 58(1), 71-83. Wiley.Crossref OpenAlex OpenCitations
-
Russell Lang , April Regester , Stacy Lauderdale , Kristen Ashbaugh , Anna Haring (2010). Treatment of anxiety in autism spectrum disorders using cognitive behaviour therapy: A systematic review . Developmental Neurorehabilitation, 13(1), 53-63. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Heidi Ching , Tamara Pringsheim (2012). Aripiprazole for autism spectrum disorders (ASD) . Cochrane Database of Systematic Reviews, (5), CD009043-CD009043. John Wiley & Sons, Ltd.Crossref OpenAlex OpenCitations
-
(n.d.). Nicolaidis C, Raymaker D, McDonald K, et al. “Respect the way I need to communicate with you”: healthcare experiences of adults on the autistic spectrum. Paper presented at: Annual Meeting of the Society of General Internal Medicine. Phoenix, May 4–7, 2011.Type: OtherCrossref
-
Donna Spencer , Jaclyn Marshall , Brady Post , Mahesh Kulakodlu , Craig Newschaffer , Taylor Dennen et al. (2013). Psychotropic Medication Use and Polypharmacy in Children With Autism Spectrum Disorders . Pediatrics, 132(5), 833-840. American Academy of Pediatrics (AAP).Crossref OpenAlex OpenCitations
-
Robert J. Fletcher , E. L. Loschen , Chrissoula Stavrakaki (2017). Diagnostic Manual―Intellectual Disability 2: A Textbook of Diagnosis of Mental Disorders in Persons with Intellectual Disability .Type: Book OpenAlex: https://openalex.org/W2988103300OpenAlex
-
(2017). Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-5) . The SAGE Encyclopedia of Abnormal and Clinical Psychology. SAGE Publications, Inc..OpenAlex