Shifting the System: AASPIRE and the Loom of Science and Activism

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

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Raymaker, D. M. (2019). Shifting the System: AASPIRE and the Loom of Science and Activism. In Autistic Community and the Neurodiversity Movement (pp. 133-145). Springer Singapore. https://doi.org/10.1007/978-981-13-8437-0_10

Publication date: 7 Nov 2019 Added to AutiHub: 6 Jul 2026 Type: Book chapter Article language: English
Publisher source (DOI) Full text OpenAlex source

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Authors

Publication authors
1
Publication authors identified as autistic
1 / 1 (100.0%)
  1. Dora M. Raymaker *

Abstract

Abstract In 2006 Dora Raymaker, Autistic person and autistic rights activist, co-founded the Academic Autism Spectrum Partnership in Research and Education (AASPIRE) with Christina Nicolaidis, a physician-researcher and parent of an autistic child. AASPIRE works within the sphere of academic health and social services research to conduct projects the A/autistic community wants done. It endeavors to return power to communities that experience oppression to make their voices heard in research and policy settings. For example, its website autismandhealth.org offers resources for autistic adults, their supporters, and healthcare providers to improve the healthcare of autistic adults in the US. AASPIRE has served as a model for community-based participatory autism research, promoting the growth of participatory autism research internationally.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 01:00.

Cited references
27
With a DOI
10
Without a DOI, from raw bibliography text
14
10 / 27 (37.0%) cited references include at least one author identified as autistic.
References with data to complete
10 / 27 (37.0%)
References with detected author names
17 / 27 (63.0%)
Without detected author names
10
Without a structured title
10
Without a stable identifier
13
References with raw author names still to review
10
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
100
From DOI or external metadata
100
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
30
80 / 100 (80.0%) names are linked to an author already present in AutiHub. 20 / 100 (20.0%) names are not yet linked.
Names linked to a person identified as autistic
28 / 100 (28.0%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 28 / 80 (35.0%). Distinct people identified as autistic: 7 / 42 (16.7%).
  1. Christina Nicolaidis , Dora M. Raymaker * , Katherine McDonald , Sebastian Dern * , Elesia Ashkenazy * , W. Cody Boisclair * et al. (1985). Natural experiments and the educational context: The environment and effects of an alternative inner‐city public school on adolescents . American Journal of Community Psychology, 13(6), 617-643. Wiley.
    Type: Article DOI: 10.1007/bf00929793 OpenAlex: https://openalex.org/W4083272
    OpenAlex
  2. Autistics.org. (2011). Autistics.org: The real voice of autism (Archived webpage). https://web.archive.org/web/20140208025225/‚ http://archive.autistics.org .
    Type: Other
    Crossref
  3. Erin E. Stack , Katherine McDonald (2018). We Are “Both in Charge, the Academics and Self‐Advocates”: Empowerment in Community‐Based Participatory Research . Journal of Policy and Practice in Intellectual Disabilities, 15(1), 80-89. Wiley.
    Type: Article DOI: 10.1111/jppi.12236 OpenAlex: https://openalex.org/W2789815652
    Crossref OpenAlex OpenCitations
  4. Barbara A. Israel , David Satcher (2013). Methods For Community - Based Participatory Research For Health .
    Type: Book OpenAlex: https://openalex.org/W1498878353
    OpenAlex
  5. (n.d.). Smith, J. (2001–2006). This way of life (Archived webpage). http://www.oocities.org/growingjoel/ .
    Type: Other
    Crossref
  7. Mary Oschwald , Paula Renker , Rosemary B. Hughes , Anne Arthur , Laurie E. Powers , Mary Ann Curry (2009). Development of an Accessible Audio Computer-Assisted Self-Interview (A-CASI) to Screen for Abuse and Provide Safety Strategies for Women With Disabilities . Journal of Interpersonal Violence, 24(5), 795-818. SAGE Publications.
    Type: Article DOI: 10.1177/0886260508317175 OpenAlex: https://openalex.org/W2068267622
    Crossref OpenAlex OpenCitations
  8. BA Israel (2005). Methods in community-based participatory research for health . Methods in community-based participatory research for health.
    Type: Other
    Crossref
  9. Christina Nicolaidis , Dora M. Raymaker * , Marsha Katz , Mary Oschwald , Rebecca Goe , Sandra M. Leotti et al. (2015). Community-Based Participatory Research to Adapt Health Measures for Use by People With Developmental Disabilities . Progress in Community Health Partnerships: Research, Education, and Action, 9(2), 157-170. Project MUSE.
    Type: Article DOI: 10.1353/cpr.2015.0037 OpenAlex: https://openalex.org/W2110239954
    Crossref OpenAlex OpenCitations
  10. DM Raymaker (2018). Spoon Knife 3: Incursions . Spoon Knife 3: Incursions, 215.
    Type: Other
    Crossref
  11. Christina Nicolaidis , Dora M. Raymaker * (2015). Community-based participatory research with communities defined by race, ethnicity, and disability: Translating theory to practice . In The SAGE Handbook of Action Research (pp. 167). SAGE Publications Ltd.
    Type: Book chapter DOI: 10.4135/9781473921290.n17 OpenAlex: https://openalex.org/W2585959274
    Crossref OpenAlex OpenCitations
  12. Dora M. Raymaker * (2018). Hoshi and the Red City Circuit .
    Type: Book OpenAlex: https://openalex.org/W3185475082
    Crossref OpenAlex
  14. DM Raymaker (2013). Worlds of autism: Across the spectrum of neurological difference . Worlds of autism: Across the spectrum of neurological difference, 169.
    Type: Other
    Crossref
  15. Dora M. Raymaker * , Christina Nicolaidis (2013). Participatory research with autistic communities: Shifting the system . Worlds of autism: Across the spectrum of neurological difference, 305.
    Type: Article OpenAlex: https://openalex.org/W2468210776
    OpenAlex
  16. AASPIRE. (2013). About page. https://aaspire.org/about .
    Type: Other
    Crossref
  17. Dora M. Raymaker * , r/Science (2017). Science AMA Series: I'm Dora Raymaker, an Assistant Research Professor at Portland State University, I conduct community-engaged research with the autistic and other disability communities. I am also autistic, and I am here today to talk about my research on autism and and employment. AMA! The Winnower. Wiley.
    Type: Dataset DOI: 10.15200/winn.148822.28666 OpenAlex: https://openalex.org/W2594899392
    OpenAlex
  18. Rosemary B. Hughes , Rosemary B. Hughes , Dora M. Raymaker * , Emily M. Lund , Mary Oschwald , Marsha Katz et al. (2019). The relation of abuse to physical and psychological health in adults with developmental disabilities . Disability and Health Journal, 12(2), 227-234. Elsevier BV.
    Type: Article DOI: 10.1016/j.dhjo.2018.09.007 OpenAlex: https://openalex.org/W2909309144
    OpenAlex
  19. Dora M. Raymaker * (2018). Heat Producing Entities . PDXScholar (Portland State University).
    Type: Article OpenAlex: https://openalex.org/W3186912016
    OpenAlex
  20. (n.d.). Nicolaidis, C. (2018, May 24). Hi, I’m Dr. Christina Nicolaidis and I’m editor of a brand new peer-reviewed journal called Autism in Adulthood. Ask me anything about the new journal or the ways that people on the autism spectrum can get better health care! (Online forum). https://www.reddit.com/r/askscience/comments/8lrqke/askscience_ama_series_hi_im_dr_christina .
    Type: Other
    Crossref
  21. Sara Ryan (2014). Worlds of autism: across the spectrum of neurological difference . Choice Reviews Online, 51(10), 51-5873-51-5873. American Library Association.
    Type: Article DOI: 10.5860/choice.51-5873 OpenAlex: https://openalex.org/W4240717879
    OpenAlex
  22. (n.d.). Raymaker, D. M. (2017, February 27). I’m Dora Raymaker, an Assistant Research Professor at Portland State University, I conduct community-engaged research with the autistic and other disability communities. I am also autistic, and I am here today to talk about my research on autism and employment. AMA! [Online forum]. https://www.reddit.com/r/science/comments/5wj58r/science_ama_series_im_dora_raymaker_an_assistant .
    Type: Other
    Crossref
  23. (n.d.). Nicolaidis, C., Raymaker, D. M., Kapp, S. K., Baggs, A., Ashkenazi, E., McDonald, K. E., et al. (in press). Including autistic adults in research: Lessons learned and recommendations to the field. Autism: The International Journal of Research and Practice.
    Type: Other
    Crossref
  24. (n.d.). Hughes, R. B., Robinson-Whelen, S., Raymaker, D., Lund, E. M., Oschwald, M., Katz, M., et al. (in press). The relation of abuse to physical and psychological health in adults with developmental disabilities. Disability and Health Journal. https://www.sciencedirect.com/science/article/pii/S1936657418301948 .
    Type: Other
    Crossref
  25. Oschwald, M., Nicolaidis, C., Raymaker, D. M., McCammon, M. A., Berlin, M., Joyce, A., et al. (2015). Pregnancy, disability, and women’s decisions (Video series). https://pregnancyanddisability.org .
    Type: Other
    Crossref
  26. (n.d.). Raymaker, D. M., Sale, T., Valera, M., Caruso, N., & Gould, V. (2018, March). Empowerment of individuals experiencing early psychosis through community based participatory research and technology: Lessons learned from EASA connections. Paper presented at the meeting of Annual Research & Policy Conference on Child, Adolescent, and Young Adult Behavioral Health, Tampa, FL.
    Type: Other
    Crossref
  27. (n.d.). Hunt, S. (2018, May). Fourth annual culturally responsive symposium highlights effective activism. Vanguard. http://psuvanguard.com .
    Type: Other
    Crossref