La divulgation d'un trouble du spectre de l'autisme à l'école est-elle associée à une réduction de la stigmatisation ?

Titre original en anglais : Is disclosing an autism spectrum disorder in school associated with reduced stigmatization?

White, R., Barreto, M., Harrington, J., Kapp, S. K., Hayes, J., & Russell, G. (2019). Is disclosing an autism spectrum disorder in school associated with reduced stigmatization? Autism, 24(3), 744-754. https://doi.org/10.1177/1362361319887625

Date de publication: 27/11/2019 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
6
Auteur·ices de la publication identifié·es comme autistes
1 / 6 (16,7 %)

Résumé

Les données suggèrent que la divulgation d'un diagnostic d'autisme est associée à une réduction de la stigmatisation chez les adultes autistes. Cependant, on ne sait pas si cela est également vrai pour les adolescents autistes. Nous avons utilisé un protocole fondé sur une vignette et un questionnaire afin d'étudier les attitudes stigmatisantes chez des adolescents (âgés de 11 à 12 ans et de 14 à 16 ans, N total = 250) dans une école britannique. Nous avons étudié l'effet de la divulgation du fait qu'un adolescent fictif avait un diagnostic d'autisme sur les attitudes stigmatisantes des pairs, en testant l'effet de la divulgation du diagnostic sur la distance sociale et émotionnelle que les élèves souhaitaient maintenir avec l'adolescent autiste. Nous avons également testé l'effet de la divulgation sur l'évaluation par les pairs de la responsabilité de l'adolescent quant à son propre comportement. Nous avons vérifié si les effets étaient modérés par le genre et le groupe d'âge. La divulgation de l'autisme n'a pas influé sur la distance sociale et émotionnelle que les pairs souhaitaient maintenir avec l'adolescent autiste, mais elle a été associée à une réduction significative de la responsabilité personnelle attribuée au comportement de l'adolescent. Les garçons attribuaient davantage de responsabilité personnelle à l'adolescent autiste que les filles, mais cet effet du genre était réduit lorsque l'autisme était divulgué. Ces résultats suggèrent que la divulgation de l'autisme aux autres élèves pourrait avoir une utilité limitée pour réduire la stigmatisation par les pairs dans les écoles britanniques.

Evidence suggests disclosing an autism diagnosis is associated with reduced stigmatization for autistic adults. However, it is unknown whether this is true for autistic adolescents. We used a vignette-and-questionnaire design to study stigmatizing attitudes with adolescents (aged 11–12 and 14–16 years, total N = 250) in a UK school. We investigated the effect of disclosing that a fictional adolescent had an autism diagnosis on stigmatizing attitudes of peers by testing the effect of disclosure of diagnosis on the social and emotional distance pupils wanted to maintain from the autistic adolescent. We also tested the effect of disclosure on peers’ assessment of the adolescent’s responsibility for their own behaviour. We checked to see if the effects were moderated by gender and age-group. Disclosing autism did not affect the social and emotional distance peers wanted to maintain from the autistic adolescent, but was associated with significant reduction in personal responsibility attributed to the adolescent’s behaviour. Boys attributed more personal responsibility to the autistic adolescent than girls, but this gender effect was reduced when autism was disclosed. These findings suggest that disclosing autism to other pupils may be of limited use in reducing stigmatization by peers in UK schools.

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
64
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
5 / 64 (7,8 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
5 / 163 (3,1 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 5 / 37 (13,5 %). Auteurices cité·es distinct·es identifié·es comme autistes : 3 / 144 (2,1 %).
Occurrences citées rattachées à la base AutiHub
37 / 163 (22,7 %)
Auteurices cité·es distinct·es rattaché·es : 22 / 144 (15,3 %)
Occurrences rattachées, non identifiées comme autistes
32 / 37 (86,5 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 32 / 163 (19,6 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 19 / 22 (86,4 %).
  1. Karen F. Swaim , Sam B. Morgan (2001). Children's Attitudes and Behavioral Intentions Toward a Peer with Autistic Behaviors: Does a Brief Educational Intervention Have an Effect? Journal of Autism and Developmental Disorders, 31(2), 195-205. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  2. González Moreno, Andrés Santiago (2013). Diagnostic and Statistical Manual of Mental Disorders . American Psychiatric Association.
    Crossref OpenAlex OpenCitations
  3. Christian S. Crandall (1991). Multiple stigma and AIDS: Illness stigma and attitudes toward homosexuals and IV drug users in AIDS‐related stigmatization . Journal of Community & Applied Social Psychology, 1(2), 165-172. Wiley.
    Crossref OpenAlex OpenCitations
  4. B. Bradford Brown , James Larson (2009). Peer Relationships in Adolescence . Handbook of Adolescent Psychology. Wiley.
    Crossref OpenAlex OpenCitations
  5. Kathryn M. LaFontana , Antonius H. N. Cillessen (2010). Developmental Changes in the Priority of Perceived Status in Childhood and Adolescence . Social Development, 19(1), 130-147. Wiley.
    Crossref OpenAlex OpenCitations
  6. Adam Hatton (2014). Schools, pupils and their characteristics: January 2014 . Digital Education Resource Archive (University College London).
    Type: Article OpenAlex: https://openalex.org/W1600750962
    OpenAlex
  7. Manuela Barreto (2015). APA handbook of personality and social psychology, Volume 2: Group processes. American Psychological Association.
    Crossref OpenAlex
  8. P. W. Corrigan (2007). How Clinical Diagnosis Might Exacerbate the Stigma of Mental Illness . Social Work, 52(1), 31-39. Oxford University Press (OUP).
    Crossref OpenAlex OpenCitations
  9. Jill Locke , Eric H. Ishijima , Connie Kasari , Nancy London (2010). Loneliness, friendship quality and the social networks of adolescents with high‐functioning autism in an inclusive school setting . Journal of Research in Special Educational Needs, 10(2), 74-81. Wiley.
    Crossref OpenAlex OpenCitations
  10. S. K. Bell (2000). Children's Attitudes and Behavioral Intentions Toward a Peer Presented as Obese: Does a Medical Explanation for the Obesity Make a Difference? Journal of Pediatric Psychology, 25(3), 137-145. Oxford University Press (OUP).
    Crossref OpenAlex OpenCitations
  11. Rose E. A. Nevill , Susan W. White (2011). College Students’ Openness Toward Autism Spectrum Disorders: Improving Peer Acceptance . Journal of Autism and Developmental Disorders, 41(12), 1619-1628. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  12. Adam Rafalovich (2013). Attention Deficit‐Hyperactivity Disorder as the Medicalization of Childhood: Challenges from and for Sociology . Sociology Compass, 7(5), 343-354. Wiley.
    Crossref OpenAlex OpenCitations
  13. Emily Berger , Penelope Hasking , Graham Martin (2017). Adolescents’ Perspectives of Youth Non-Suicidal Self-Injury Prevention . Youth & Society, 49(1), 3-22. SAGE Publications.
    Crossref OpenAlex OpenCitations
  14. Rita Obeid , Nidal Daou , Danielle DeNigris , Christina Shane‐Simpson , Patricia J. Brooks , Kristen Gillespie-Lynch (2015). A Cross-Cultural Comparison of Knowledge and Stigma Associated with Autism Spectrum Disorder Among College Students in Lebanon and the United States . Journal of Autism and Developmental Disorders, 45(11), 3520-3536. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  15. Thomas Fondelli , Peter Rober (2017). ‘He also has the right to be who he is … ’. An exploration of how young people socially represent autism . International Journal of Inclusive Education, 21(7), 701-713. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  16. Erlend P. Kvaale , Nick Haslam , William H. Gottdiener (2013). The ‘side effects’ of medicalization: A meta-analytic review of how biogenetic explanations affect stigma . Clinical Psychology Review, 33(6), 782-794. Elsevier BV.
    Crossref OpenAlex OpenCitations
  17. Robert C. Butler , Jennifer M Gillis (2011). The Impact of Labels and Behaviors on the Stigmatization of Adults with Asperger’s Disorder . Journal of Autism and Developmental Disorders, 41(6), 741-749. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  18. Luisa Ruiz Calzada , Nancy Pistrang , Will Mandy (2012). High-Functioning Autism and Asperger’s Disorder: Utility and Meaning for Families . Journal of Autism and Developmental Disorders, 42(2), 230-243. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  19. Talcott Parsons (1951). Illness and the role of the physician: A sociological perspective. American Journal of Orthopsychiatry, 21(3), 452-460. American Psychological Association (APA).
    Crossref OpenAlex OpenCitations
  20. Jonathan M. Campbell (2007). Middle School Students' Response to the Self-Introduction of a Student With Autism . Remedial and Special Education, 28(3), 163-173. SAGE Publications.
    Crossref OpenAlex OpenCitations
  21. B. G. Link , L. H. Yang , J. C. Phelan , P. Y. Collins (2004). Measuring Mental Illness Stigma . Schizophrenia Bulletin, 30(3), 511-541. Oxford University Press (OUP).
    Crossref OpenAlex OpenCitations
  22. Nicole Matthews , Agnes R. Ly , Wendy A. Goldberg (2015). College Students’ Perceptions of Peers with Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 45(1), 90-99. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  23. Jonathan M Campbell , Jane E Ferguson , Caitlin V Herzinger , Jennie N Jackson , Christine A Marino (2004). Combined descriptive and explanatory information improves peers’ perceptions of autism . Research in Developmental Disabilities, 25(4), 321-339. Elsevier BV.
    Crossref OpenAlex OpenCitations
  24. Rhidian Hughes , Meg Huby (2002). The application of vignettes in social and nursing research . Journal of Advanced Nursing, 37(4), 382-386. Wiley.
    Crossref OpenAlex OpenCitations
  25. SHERRI CAVAN (1967). Being Mentally Ill. A Sociological Theory . Family Process, 6(1), 132-133. Wiley.
    OpenAlex
  26. Jason D. Carter , Judith A. Hall , Dana R. Carney , Janelle C. Rosip (2006). Individual differences in the acceptance of stereotyping . Journal of Research in Personality, 40(6), 1103-1118. Elsevier BV.
    Crossref OpenAlex OpenCitations
  27. Bridgette L. Tonnsen , Erin R. Hahn (2016). Middle School Students’ Attitudes Toward a Peer With Autism Spectrum Disorder . Focus on Autism and Other Developmental Disabilities, 31(4), 262-274. SAGE Publications.
    Crossref OpenAlex OpenCitations
  28. Patrick Chambres , Catherine Auxiette , Carole Vansingle , Sandrine Gil (2008). Adult Attitudes Toward Behaviors of a Six-year-old Boy with Autism . Journal of Autism and Developmental Disorders, 38(7), 1320-1327. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  29. Fumio Someki , Miyuki Torii , Patricia J. Brooks , Tatsuya Koeda , Kristen Gillespie-Lynch (2018). Stigma associated with autism among college students in Japan and the United States: An online training study . Research in Developmental Disabilities, 76, 88-98. Elsevier BV.
    Crossref OpenAlex OpenCitations
  30. Louise Dolphin , Eilis Hennessy (2014). Adolescents׳ perceptions of peers with depression: An attributional analysis . Psychiatry Research, 218(3), 295-302. Elsevier BV.
    Crossref OpenAlex OpenCitations
  31. Emily Iobst , Laura Nabors , Kim Rosenzweig , Laura Srivorakiat , Rachel Champlin , Jonathan Campbell et al. (2009). Adults’ perceptions of a child with autism . Research in Autism Spectrum Disorders, 3(2), 401-408. Elsevier BV.
    Crossref OpenAlex OpenCitations
  32. Claudia Malacrida (2004). Medicalization, Ambivalence and Social Control: Mothers’ Descriptions of Educators and ADD/ADHD . Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine, 8(1), 61-80. SAGE Publications.
    Crossref OpenAlex OpenCitations
  33. Department for Education (2017). Schools, pupils and their characteristics: January 2017 . Schools, pupils and their characteristics: January 2017.
    Type: Autre
    Crossref
  34. Stacey S. Horn (2003). Adolescents' reasoning about exclusion from social groups. Developmental Psychology, 39(1), 71-84. American Psychological Association (APA).
    Crossref OpenAlex OpenCitations
  35. Jan Kornelis Dijkstra , Siegwart Lindenberg , René Veenstra (2007). Same-gender and cross-gender peer acceptance and peer rejection and their relation to bullying and helping among preadolescents: Comparing predictions from gender-homophily and goal-framing approaches. Developmental Psychology, 43(6), 1377-1389. American Psychological Association (APA).
    Crossref OpenAlex OpenCitations
  36. David Farrugia (2009). Exploring stigma: medical knowledge and the stigmatisation of parents of children diagnosed with autism spectrum disorder . Sociology of Health & Illness, 31(7), 1011-1027. Wiley.
    Crossref OpenAlex OpenCitations
  37. Annemarie Wright , Anthony F. Jorm , Andrew J. Mackinnon (2011). Labeling of mental disorders and stigma in young people . Social Science & Medicine, 73(4), 498-506. Elsevier BV.
    Crossref OpenAlex OpenCitations
  38. Marsha Harnum , Jim Duffy , Duncan A. Ferguson (2007). Adults’ Versus Children’s Perceptions of a Child with Autism or Attention Deficit Hyperactivity Disorder . Journal of Autism and Developmental Disorders, 37(7), 1337-1343. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  39. Lise Mogensen , Jan Mason (2015). The meaning of a label for teenagers negotiating identity: experiences with autism spectrum disorder . Sociology of Health & Illness, 37(2), 255-269. Wiley.
    Crossref OpenAlex OpenCitations
  40. David B. Feldman , Christian S. Crandall (2007). Dimensions of Mental Illness Stigma: What About Mental Illness Causes Social Rejection? Journal of Social and Clinical Psychology, 26(2), 137-154. Guilford Publications.
    Crossref OpenAlex OpenCitations
  41. Steven K. Kapp *Auteur·ice autiste. En savoir plus… , Kristen Gillespie-Lynch , Lauren E. Sherman , Ted Hutman (2013). Deficit, difference, or both? Autism and neurodiversity. Developmental Psychology, 49(1), 59-71. American Psychological Association (APA).
    Type: Article DOI: 10.1037/a0028353 OpenAlex: https://openalex.org/W2124715426
    AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
  42. David E. Gray (2002). ‘Everybody just freezes. Everybody is just embarrassed’: felt and enacted stigma among parents of children with high functioning autism . Sociology of Health & Illness, 24(6), 734-749. Wiley.
    Crossref OpenAlex OpenCitations
  43. Elinor Ochs , Tamar Kremer‐Sadlik , Olga Solomon , Karen Gainer Sirota (2001). Inclusion as Social Practice: Views of Children with Autism . Social Development, 10(3), 399-419. Wiley.
    Crossref OpenAlex OpenCitations
  44. Bernard Weiner (1993). On sin versus sickness: A theory of perceived responsibility and social motivation. American Psychologist, 48(9), 957-965. American Psychological Association (APA).
    Crossref OpenAlex OpenCitations
  45. Neil Humphrey , Sarah Lewis (2008). `Make me normal' . Autism, 12(1), 23-46. SAGE Publications.
    Crossref OpenAlex OpenCitations
  46. Jeneva L. Ohan , Troy A. W. Visser (2009). Why Is There a Gender Gap in Children Presenting for Attention Deficit/Hyperactivity Disorder Services? Journal of Clinical Child & Adolescent Psychology, 38(5), 650-660. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  47. Jennifer L. Jones , Kami L. Gallus , Kacey L. Viering , Lauren M. Oseland (2015). ‘Are you by chance on the spectrum?’ Adolescents with autism spectrum disorder making sense of their diagnoses . Disability & Society, 30(10), 1490-1504. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  48. S.M. Zeedyk , G. Rodriguez , L.A. Tipton , B.L. Baker , J. Blacher (2014). Bullying of youth with autism spectrum disorder, intellectual disability, or typical development: Victim and parent perspectives . Research in Autism Spectrum Disorders, 8(9), 1173-1183. Elsevier BV.
    Crossref OpenAlex OpenCitations
  49. Anthony F. Jorm , AnneMarie Wright (2008). Influences on young people's stigmatising attitudes towards peers with mental disorders: National survey of young Australians and their parents . British Journal of Psychiatry, 192(2), 144-149. Royal College of Psychiatrists.
    Crossref OpenAlex OpenCitations
  50. Noah J. Sasson , Kerrianne E Morrison (2019). First impressions of adults with autism improve with diagnostic disclosure and increased autism knowledge of peers . Autism, 23(1), 50-59. SAGE Publications.
    Crossref OpenAlex OpenCitations
  51. Cliodhna O'Connor , Irini Kadianaki , Kristen Maunder , Fiona McNicholas (2018). How does psychiatric diagnosis affect young people's self-concept and social identity? A systematic review and synthesis of the qualitative literature . Social Science & Medicine, 212, 94-119. Elsevier BV.
    Crossref OpenAlex OpenCitations
  52. Bruce G. Link , Jo C. Phelan (2001). Conceptualizing Stigma . Annual Review of Sociology, 27(1), 363-385. Annual Reviews.
    Crossref OpenAlex OpenCitations
  53. Anna-Kaisa Newheiser , Manuela Barreto (2014). Hidden costs of hiding stigma: Ironic interpersonal consequences of concealing a stigmatized identity in social interactions . Journal of Experimental Social Psychology, 52, 58-70. Elsevier BV.
    Crossref OpenAlex OpenCitations
  54. Maccoby E. E. (1998). The two sexes: Growing up apart, coming together . The two sexes: Growing up apart, coming together.
    Type: Autre
    Crossref
  55. Morgan S. B. (1996). The Shared Activities Questionnaire. The Shared Activities Questionnaire..
    Type: Autre
    Crossref
  56. Jolien Van der Graaff , Susan Branje , Minet De Wied , Skyler Hawk , Pol Van Lier , Wim Meeus (2014). Perspective taking and empathic concern in adolescence: Gender differences in developmental changes. Developmental Psychology, 50(3), 881-888. American Psychological Association (APA).
    Type: Article DOI: 10.1037/a0034325 OpenAlex: https://openalex.org/W2314238864
    Crossref OpenAlex OpenCitations
  57. Russell G. (2016). Re-thinking autism: Diagnosis, identity and equality . Re-thinking autism: Diagnosis, identity and equality, 252.
    Type: Autre
    Crossref
  58. Scheff T. J. (1966). Being mentally ill: A sociological theory . Being mentally ill: A sociological theory.
    Type: Autre
    Crossref
  59. David Watson , Lee Anna Clark , Auke Tellegen (1988). Development and validation of brief measures of positive and negative affect: The PANAS scales. Journal of Personality and Social Psychology, 54(6), 1063-1070. American Psychological Association (APA).
    Crossref OpenAlex OpenCitations
  60. Spencer E. Cahill , Eleanor E. Maccoby (1999). The Two Sexes: Growing Up Apart, Coming Together . Contemporary Sociology, 28(4), 422. SAGE Publications.
    Type: Article DOI: 10.2307/2655304 OpenAlex: https://openalex.org/W4299958088
    OpenAlex