Autisme et puberte : une revue systematique a methodes mixtes

Titre original en anglais : Autism and Puberty: A Mixed Methods Systematic Review

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». six auteur·ices de cette publication sont identifié·es comme autistes dans le projet.

À propos de la mention auteur·ice autiste

Axbey, H., Ellis, R., Sinfield, M., Firth, E., Shaw, S. C. K., Peeroo, A., Carter, B., & Grant, A. (2026). Autism and Puberty: A Mixed Methods Systematic Review. Wellcome Open Research, 11, 815. https://doi.org/10.12688/wellcomeopenres.27647.1

Date de publication: 06/10/2026 Ajout dans AutiHub: 08/10/2026 Type: Article Langue de l’article: Anglais

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
8
Auteur·ices de la publication identifié·es comme autistes
6 / 8 (75,0 %)

Résumé

Contexte La puberte est une periode de changements profonds pour tous. Les enfants autistes peuvent trouver les changements pubertaires plus difficiles a gerer, en raison de sensibilites liees aux experiences sensorielles et de difficultes face au changement. La puberte chez les personnes autistes comporte donc des enjeux importants concernant la sante physique tout au long de la vie. Methodes Nous avons realise une revue systematique de la puberte chez les personnes autistes (y compris celles qui s'auto-identifient comme telles) et leurs soutiens, enregistree prospectivement (enregistrement : CRD42023446750). Nous avons effectue des recherches dans MEDLINE, APA PsycINFO, CINAHL et Web of Science, de 2013 a mars 2026. Nous avons utilise une synthese integree convergente (Joanna Briggs Institute), et deux jeunes personnes autistes ont contribue a notre analyse. Nous avons realise des evaluations de la qualite a l'aide des outils du Joanna Briggs Institute. Resultats Nous avons identifie 6885 dossiers uniques et inclus 81 articles/theses. La plupart des articles etaient de haute qualite. Nous avons degage cinq themes. Premierement, de nombreuses etudes ont compare des personnes autistes et non autistes, mais peu de differences ont ete identifiees, la puberte etant caracterisee comme une experience universelle. Deuxiemement, les parents se sentaient insuffisamment prepares a la puberte de leur enfant et incertains quant a son avenir. Troisiemement, une education supplementaire dans les domaines de la puberte et de la sexualite a ete identifiee comme necessaire pour les personnes autistes et pour celles qui s'en occupent. Quatriemement, la transgression des normes a ete examinee en detail, de nombreux parents craignant que leur enfant ne soit pas normal dans son comportement et son developpement ; ces preoccupations etaient rarement liees a quoi que ce soit de nuisible. Enfin, les changements physiques et les defis qu'ils engendrent ont ete abordes, en particulier les difficultes liees a la menarche et aux menstruations. Les limites des etudes comprenaient un manque de diversite (origine ethnique ; peu de peres) ainsi qu'une prise en compte restreinte des facteurs de confusion et de l'influence des auteurs sur la recherche. Conclusion Des interventions co-elaborees sont necessaires pour faciliter la comprehension du consentement, la gestion des changements pubertaires et l'apprentissage de competences. Les recherches synthetisees ne se concentraient pas sur le confort et le bien-etre, mais davantage sur la normalite, ou sur le manque de normalite percu, des jeunes personnes autistes. Les recherches futures devraient donner la priorite aux sujets importants pour les personnes autistes et devraient solliciter le consentement des participants autistes.

Background Puberty is a time of profound change for all. Autistic children may find pubertal changes harder to navigate, due to sensitives surrounding sensory experiences, and difficulty with change. Autistic puberty therefore has important messages about physical health across the life course. Methods We performed a prospectively registered (registration: CRD42023446750) systematic review of puberty in Autistic people (including self-identifying) and supporters. We searched: MEDLINE, APA PsycINFO, CINAHL, and Web of Science from 2013-March 2026. We used Convergent Integrated synthesis (Joanna Briggs Institute) and two Autistic young people assisted in our analysis. We undertook quality assessments using Joanna Briggs Institute tools. Results We identified 6885 unique records and included 81 articles/theses. Most papers were high quality. We developed five themes. First, many studies compared Autistic and non-Autistic people, but few differences were identified, with puberty characterised as a universal experience. Second, parents felt unprepared for their child’s puberty, and uncertain of their future. Third, additional education in areas of puberty and sex were identified as needed for Autistic people, and those caring for them. Fourth, breaking norms was explored at length, with many parents worrying their child was not normal in behaviour and development, these concerns rarely related to anything harmful. Finally, physical changes and the challenges these bring were discussed, specifically difficulties around menarche and menstruation. Limitations of studies included a lack of diversity (ethnicity; few fathers) and restricted consideration of confounding factors and author impact on research. Conclusion Co-developed interventions are required to facilitate understanding consent, navigating pubertal changes, and learning skills. The synthesised research did not focus on comfort and wellbeing, but more so on normality, or the perceived lack of normality, of Autistic young people. Future research should prioritise topics of importance to Autistic people and should seek consent from Autistic participants.

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Prépublications associées

Prépublication associée à cette publication
Autism and Puberty: A Mixed Methods Systematic Review
Confirmé Niveau de fiabilité: Élevé Manuel
Prépublication associée à cette publication
Autism and Puberty: A Mixed Methods Systematic Review
Confirmé Niveau de fiabilité: Élevé Manuel
Prépublication associée à cette publication
Autism and Puberty: A Mixed Methods Systematic Review
Confirmé Niveau de fiabilité: Élevé Manuel

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 23/10/2026 01:01.

Références citées
138
Avec un DOI
125
Sans DOI, à partir du texte brut de la bibliographie
13
16 / 138 (11,6 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
6 / 138 (4,3 %)
Références avec noms d’auteurices détectés
132 / 138 (95,7 %)
Sans nom d’auteurice détecté
6
Sans titre structuré
0
Sans identifiant stable
13
Références avec noms bruts d’auteurices restant à vérifier
0
Références avec problème de récupération des métadonnées externes
1
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
623
À partir du DOI ou de métadonnées externes
623
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
0
182 / 623 (29,2 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 441 / 623 (70,8 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
49 / 623 (7,9 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 49 / 182 (26,9 %). Personnes distinctes identifiées comme autistes : 34 / 521 (6,5 %).
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