Menstruation et autisme : une revue systématique qualitative

Titre original en anglais : Menstruation and Autism: A Qualitative Systematic Review

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Ellis, R., Williams, G., Caemawr, S., Craine, M., Holloway, W., Williams, K., Shaw, S. C. K., & Grant, A. (2025). Menstruation and Autism: A Qualitative Systematic Review. Autism in Adulthood. https://doi.org/10.1089/aut.2024.0307

Date de publication: 17/04/2025 Ajout dans AutiHub: 05/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
8
Auteur·ices de la publication identifié·es comme autistes
8 / 8 (100,0 %)
  1. Rebecca Ellis *
  2. Gemma Williams *
  3. Selena Caemawr *
  4. Monique Craine *
  1. Willow Holloway *
  2. Kathryn Williams *
  3. Sebastian Charles Keith Shaw *
  4. Aimee Grant *

Résumé

Contexte : La menstruation est un processus biologique qui peut être irrégulier, douloureux et s'accompagner de fatigue, de retrait social et d'émotions accrues. Certaines données suggèrent que les personnes autistes vivent la menstruation différemment des personnes non autistes. Méthodes : Cette revue systématique (enregistrement PROSPERO : CRD42023399674) a interrogé quatre bases de données en février 2023. Nous avons utilisé une synthèse thématique pour analyser les études qualitatives portant sur les expériences liées à la menstruation chez les personnes autistes et les personnes apportant un soutien aux personnes autistes. Nous avons également évalué la qualité des études à l'aide de CASP. Résultats : Notre synthèse thématique de douze sources (huit évaluées par les pairs ; quatre issues de la littérature grise) a identifié des priorités différentes entre les parents, les professionnels et les personnes autistes. Les personnes autistes ont rapporté des répercussions physiques, émotionnelles et sociales de la menstruation. En outre, une augmentation des expériences spécifiques à l'autisme pendant la menstruation a été rapportée, telle qu'une sensibilité sensorielle accrue, l'épuisement autistique et l'anxiété, qui étaient souvent invisibles pour les personnes qui les soutenaient. Les priorités des personnes autistes concernant la menstruation étaient d'acquérir des connaissances et des compétences avant leurs premières règles. Cependant, les parents et les professionnels se concentraient sur les comportements externes, notamment l'hygiène et l'acquisition de l'autonomie dans la gestion des règles. Les sources décrivaient insuffisamment les caractéristiques démographiques des participants et accordaient une place limitée aux perspectives autistes. Conclusions : Nous concluons qu'un soutien adapté est nécessaire pour répondre aux besoins à la fois des personnes autistes et de celles qui les soutiennent. Ce soutien devrait être éclairé par des recherches qui placent les personnes autistes au centre.

Background: Menstruation is a biological process which can be irregular, painful, and co-occur with fatigue, social withdrawal, and increased emotions. There is some evidence to suggest Autistic people experience menstruation differently to non-Autistic people. Methods: This systematic review (PROSPERO registration: CRD42023399674) searched four databases in February 2023. We used thematic synthesis to analyse qualitative studies of experiences related to menstruation for Autistic people and people providing support to Autistic people. We also appraised the quality of studies with CASP. Results: Our thematic synthesis of twelve (eight peer-reviewed; four grey literature) sources identified differing priorities between parents, professionals, and Autistic people. Autistic people reported physical, emotional and social impacts of menstruation. Furthermore, there were reports of increased Autism-specific experiences during menstruation such as increased sensory sensitivities, burnout and anxiety, which were often unseen by those who supported them. Autistic people's menstruation priorities were obtaining knowledge and skills ahead of their first period. However, parents and professionals focused on external behaviours including hygiene and obtaining independence in managing periods. Sources poorly described participant demographics and had a limited focus on Autistic perspectives. Conclusions: We conclude there needs to be tailored support to meet the needs of both Autistic individuals and those who support them. This should be informed by research which centers Autistic people.

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
94
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
14 / 94 (14,9 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
35 / 342 (10,2 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 35 / 97 (36,1 %). Auteurices cité·es distinct·es identifié·es comme autistes : 26 / 322 (8,1 %).
Occurrences citées rattachées à la base AutiHub
97 / 342 (28,4 %)
Auteurices cité·es distinct·es rattaché·es : 81 / 322 (25,2 %)
Occurrences rattachées, non identifiées comme autistes
62 / 97 (63,9 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 62 / 342 (18,1 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 55 / 81 (67,9 %).
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