Caractéristiques sanitaires et sociales des adultes autistes dans la cohorte britannique Adult Autism Spectrum Cohort (ASC-UK) : une étude transversale

Titre original en anglais : Health and social characteristics of autistic adults in the UK-wide Adult Autism Spectrum Cohort (ASC-UK): A cross-sectional study

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». deux auteur·ices de cette publication sont identifié·es comme autistes dans le projet.

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Brice, S., Petrou, A., Hamilton, J., McConachie, H., Le Couteur, A., Ingham, B., Wilson, C., Hardy, R., Berney, T., Mason, D., Garland, D., & Parr, J. R. (2026). Health and social characteristics of autistic adults in the UK-wide Adult Autism Spectrum Cohort (ASC-UK): A cross-sectional study. Research in Autism, 137, Article 202963. https://doi.org/10.1016/j.reia.2026.202963

Date de publication: 27/07/2026 Ajout dans AutiHub: 04/10/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
12
Auteur·ices de la publication identifié·es comme autistes
2 / 12 (16,7 %)
  1. S. Brice
  2. A.M. Petrou
  3. J. Hamilton
  4. H. McConachie
  1. A. Le Couteur
  2. Barry Ingham
  3. Colin Wilson *
  4. R. Hardy
  1. T. Berney
  2. D. Mason *
  3. D. Garland
  4. Jeremy R. Parr

Résumé

Objectif Cette étude visait à caractériser les situations sanitaires, sociales et démographiques des adultes autistes au Royaume-Uni à l'aide des données de l'Adult Autism Spectrum Cohort-UK (ASC-UK), une vaste cohorte transversale en population générale. Elle cherchait à identifier les différences liées à l'âge et au genre en matière de santé mentale et physique, d'accès aux soins de santé, d'emploi, de relations sociales et de besoins de soutien. Méthodes Entre 2015 et 2021, 2129 adultes autistes (diagnostiqués ou s'auto-identifiant), âgés de 16 ans et plus, ont été recrutés par diverses voies, notamment les services du NHS et des organisations communautaires. Les données ont été recueillies à l'aide d'un questionnaire d'inscription de 78 items couvrant dix domaines de la vie quotidienne et de la Social Responsiveness Scale-2 (SRS-2). Les répondants ont été répartis en quatre catégories d'âge et comparés à l'aide de tests statistiques appropriés, notamment l'ANOVA, le test de Kruskal-Wallis, le test du chi carré et des mesures de taille d'effet. Résultats Les adultes autistes ont signalé des taux élevés d'affections physiques (par exemple, gastro-intestinales, obésité, arthrite) et de troubles de santé mentale (par exemple, anxiété, dépression), avec des variations notables selon le genre et l'âge. Les femmes ont signalé significativement davantage de problèmes de santé mentale et physique que les hommes. L'emploi était le plus faible dans les groupes les plus jeunes et les plus âgés, et le chômage était associé à une mauvaise santé mentale. Un écart substantiel a été observé entre le soutien nécessaire et le soutien reçu, en particulier chez les femmes et les personnes ayant des besoins de santé complexes. La défavorisation sociale n'était pas significativement associée aux diagnostics de santé. Conclusion Les adultes autistes dans l'ensemble du Royaume-Uni connaissent d'importantes inégalités de santé et des besoins de soutien non satisfaits. Le genre et l'âge influencent les résultats, et les services de santé doivent s'adapter afin d'améliorer l'accès et l'équité. Cette étude fournit des éclairages essentiels couvrant l'ensemble de la vie afin d'orienter les politiques, la pratique et les futures recherches longitudinales.

Purpose This study aimed to characterise the health, social, and demographic circumstances of autistic adults in the UK using data from the Adult Autism Spectrum Cohort-UK (ASC-UK), a large, cross-sectional, population-based cohort. It sought to identify age- and gender-related differences in mental and physical health, healthcare access, employment, social relationships, and support needs. Methods Between 2015 and 2021, 2129 autistic adults (diagnosed or self-identified), aged 16 years and older, were recruited via diverse routes including NHS services and community organisations. Data were collected using a 78-item registration questionnaire covering ten domains of daily life and the Social Responsiveness Scale-2 (SRS-2). Responders were grouped into four age categories and compared using appropriate statistical tests including ANOVA, Kruskal-Wallis, Chi-square, and effect size measures. Results Autistic adults reported high rates of physical (e.g., gastrointestinal, obesity, arthritis) and mental health conditions (e.g., anxiety, depression), with notable gender and age variation. Females reported significantly more mental and physical health issues than males. Employment was lowest in the youngest and oldest groups and unemployment was associated with poor mental health. A substantial gap was found between needed and received support, particularly among females and those with complex health needs. Social deprivation was not significantly associated with health diagnoses. Conclusion Autistic adults across the UK experience substantial health disparities and unmet support needs. Gender and age influence outcomes, and healthcare services must adapt to improve access and equity. This study offers critical, lifespan-wide insights to inform policy, practice, and future longitudinal research.

Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 23/10/2026 07:45.

Références citées
72
Avec un DOI
55
Sans DOI, à partir du texte brut de la bibliographie
17
11 / 72 (15,3 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
4 / 72 (5,6 %)
Références avec noms d’auteurices détectés
69 / 72 (95,8 %)
Sans nom d’auteurice détecté
3
Sans titre structuré
4
Sans identifiant stable
17
Références avec noms bruts d’auteurices restant à vérifier
3
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
515
À partir du DOI ou de métadonnées externes
515
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
4
180 / 515 (35,0 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 335 / 515 (65,0 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
25 / 515 (4,9 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 25 / 180 (13,9 %). Personnes distinctes identifiées comme autistes : 17 / 452 (3,8 %).
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