Analyse psychométrique de la version allemande de la liste de contrôle des obstacles aux soins de santé — forme courte

Titre original en anglais : Psychometric Analysis of the German Version of the Barriers to Healthcare Checklist—Short Form

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Peth, J., David, N., Dückert, S., Gewohn, P., Schöttle, D., Rahlff, P., Konnopka, A., König, H., Vogeley, K., Nicolaidis, C., Raymaker, D. M., & Schulz, H. (2026). Psychometric Analysis of the German Version of the Barriers to Healthcare Checklist—Short Form. Autism in Adulthood. https://doi.org/10.1177/25739581261441229

Date de publication: 23/04/2026 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
12
Auteur·ices de la publication identifié·es comme autistes
1 / 12 (8,3 %)
  1. Judith Peth
  2. Nicole David
  3. Sophia Dückert
  4. Petia Gewohn
  1. Daniel Schöttle
  2. Pascal Rahlff
  3. Alexander Konnopka
  4. Hannah König
  1. Kai Vogeley
  2. Christina Nicolaidis
  3. Dora M Raymaker *
  4. H Schulz

Résumé

Contexte : Les personnes autistes sont confrontées à de multiples obstacles aux soins de santé. Afin de reconnaître des obstacles spécifiques de manière standardisée, les personnes autistes, les prestataires de soins de santé et les chercheurs ont besoin d’un outil de mesure approprié. L’Academic Autistic Spectrum Partnership in Research and Education a développé avec succès la liste de contrôle des obstacles aux soins de santé — forme courte (BHC-SF). Il reste à déterminer si (1) une version allemande de la BHC-SF présente de bonnes propriétés psychométriques et si (2) la BHC-SF se compose de plusieurs construits (c’est-à-dire en évaluant la validité structurelle). Méthodes : Nous avons créé une version traduite et culturellement adaptée de la BHC-SF à 17 items et l’avons utilisée auprès de 345 personnes autistes en Allemagne. Les analyses psychométriques comprenaient des calculs visant à tester la fiabilité de la cohérence interne (alpha de Cronbach) et la validité de construit (c’est-à-dire des tests d’hypothèses a priori concernant les corrélations avec l’arrêt antérieur de traitements et des déclarations sur les obstacles aux soins de santé en termes de manque de connaissances, de participation, de besoins spécifiques à l’autisme, de manque de services, d’accès/de financement et de collaboration). Nous avons réalisé une analyse factorielle exploratoire (EFA) afin d’étudier la présence de sous-échelles de la BHC-SF (c’est-à-dire la validité structurelle) et avons effectué des calculs de fiabilité et de validité lorsque cela était approprié. Résultats : Le score total moyen de la BHC-SF était de moyenne = 8,05 (écart-type = 4,05), avec davantage d’obstacles chez les personnes s’identifiant comme femmes par rapport aux hommes. Le score total de la BHC-SF a révélé une bonne fiabilité de cohérence interne (alpha de Cronbach = 0,82). L’évaluation de la validité de construit a principalement soutenu les associations hypothétisées. L’EFA a identifié quatre sous-échelles de la BHC-SF, pour lesquelles nous avons trouvé un soutien psychométrique plus faible en ce qui concerne la fiabilité de cohérence interne et la validité de construit. Conclusions : La version allemande de la BHC-SF démontre une bonne fiabilité de cohérence interne et une bonne validité de construit. Nous avons identifié quatre construits différents sous-jacents à la BHC-SF. Les sous-échelles dérivées nécessitent des tests psychométriques supplémentaires. L’utilisation du score total de la BHC-SF pourrait potentiellement aider les prestataires de soins de santé et les chercheurs à identifier et à traiter systématiquement les obstacles aux soins de santé pour les patients autistes.

Background: Autistic people face multiple barriers to health care. To recognize specific barriers in a standardized way, autistic people, health care providers, and researchers need a suitable measure. The Academic Autistic Spectrum Partnership in Research and Education successfully developed the Barriers to Healthcare Checklist—Short Form (BHC-SF). It remains unclear whether (1) a German version of the BHC-SF performs well in terms of psychometric properties and (2) the BHC-SF consists of multiple constructs (i.e., assessing structural validity). Methods: We created a translated and culturally adapted version of the 17-item BHC-SF and used it with 345 autistic people in Germany. Psychometric analyses included calculations to test for internal consistency reliability (Cronbach’s α) and construct validity (i.e., a priori hypothesis tests for correlations with previous treatment termination and statements about barriers to health care in terms of lack of knowledge, participation, autism-specific needs, lack of services, access/financing and collaboration). We conducted an exploratory factor analysis (EFA) to investigate the presence of BHC-SF subscales (i.e., structural validity) and performed reliability and validity calculations where appropriate. Results: The average BHC-SF total score was mean = 8.05 (standard deviation = 4.05), with more barriers for persons who identified as female compared with males. The BHC-SF total score revealed good internal consistency reliability (Cronbach’s α = 0.82). The assessment of construct validity mainly supported the hypothesized associations. The EFA identified four BHC-SF subscales, for which we found lower psychometric support with respect to internal consistency reliability and construct validity. Conclusions: The German version of the BHC-SF demonstrates good internal consistency reliability and construct validity. We identified four different constructs underlying the BHC-SF. The derived subscales need further psychometric testing. Use of the BHC-SF total score could potentially help health care providers and researchers systematically identify and address barriers to health care for autistic patients.

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:31.

Références citées
66
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
9 / 66 (13,6 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
28 / 395 (7,1 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 28 / 197 (14,2 %). Auteurices cité·es distinct·es identifié·es comme autistes : 11 / 304 (3,6 %).
Occurrences citées rattachées à la base AutiHub
197 / 395 (49,9 %)
Auteurices cité·es distinct·es rattaché·es : 113 / 304 (37,2 %)
Occurrences rattachées, non identifiées comme autistes
169 / 197 (85,8 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 169 / 395 (42,8 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 102 / 113 (90,3 %).
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