Utilisation de méthodes Photovoice pour établir des priorités de recherche avec des personnes autistes ayant l'expérience d'un trouble des conduites alimentaires
Titre original en anglais : Using Photovoice Methods to Set Research Priorities With Autistic People With Experience of an Eating Disorder
Nimbley, E., Buchan, K., Maloney, E., Kettley, S., Sader, M., Duffy, F., & Gillespie‐Smith, K. (2025). Using Photovoice Methods to Set Research Priorities With Autistic People With Experience of an Eating Disorder. Journal of Clinical Psychology, 81(8), 677-693. https://doi.org/10.1002/jclp.23802
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Résumé
OBJECTIF(S) : L'autisme et les traits autistiques sont plus élevés chez les personnes présentant des troubles des conduites alimentaires (ED), les personnes autistes rapportant des résultats et des expériences de traitement moins favorables. Malgré cela, les mécanismes de ce chevauchement restent mal compris, peut-être en raison de l'exclusion des perspectives d'expérience vécue lors de l'établissement des programmes de recherche. L'étude visait donc à identifier les priorités de recherche pour les personnes autistes présentant un trouble des conduites alimentaires (ED) en utilisant des méthodologies de recherche artistiques accessibles et inclusives. MÉTHODES : Les questions de recherche ont été explorées à l'aide de Photovoice, une méthodologie de recherche créative impliquant la création et la discussion d'images. Quatorze participants ont assisté à des ateliers de groupe, dont deux au cours desquels ils ont exploré les priorités de recherche pour les personnes autistes présentant un ED. Les images et les transcriptions ont été analysées à l'aide d'une matrice de questions Photovoice adaptée (production, contenu et signification de l'image) et d'une analyse thématique. Les participants ont eu l'occasion de fournir un retour sur les thèmes émergents avant que les thèmes ne soient finalisés. RÉSULTATS : Cinq thèmes ont été identifiés, mettant en évidence les priorités de recherche pour les personnes autistes présentant un ED : (1) Impact des expériences précoces (avec les sous-thèmes Internalisation des récits socioculturels sur l'alimentation et le corps et cycles générationnels) ; (2) Fonction de l'ED (avec les sous-thèmes ED comme stratégie de régulation et ED comme stratégie d'acceptation sociale) ; (3) Obstacles et facilitateurs du rétablissement de l'ED (avec les sous-thèmes Traits autistiques comme obstacles, Traits autistiques comme facilitateurs et Bienfaits et méfaits du démêlage) ; (4) Comprendre et prendre en compte la complexité (avec les sous-thèmes Affections concomitantes et Intersectionnalité) ; et (5) Changer la culture de la recherche (avec les sous-thèmes Recherche inclusive et participative et Soutien non clinique). DISCUSSION : Les résultats de l'étude sont contextualisés dans le cadre des recherches existantes sur l'autisme et les ED, mettant en évidence des pistes pour de futures recherches et formulant des recommandations pour de futures questions de recherche. En identifiant des priorités de recherche portées par la communauté, il est espéré que les résultats de l'étude inspireront des recherches nouvelles, interdisciplinaires et coproduites qui constitueront une base de données probantes significative pour améliorer la vie des personnes autistes présentant un ED.
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