Utilisation de méthodes Photovoice pour établir des priorités de recherche avec des personnes autistes ayant l'expérience d'un trouble des conduites alimentaires

Titre original en anglais : Using Photovoice Methods to Set Research Priorities With Autistic People With Experience of an Eating Disorder

Nimbley, E., Buchan, K., Maloney, E., Kettley, S., Sader, M., Duffy, F., & Gillespie‐Smith, K. (2025). Using Photovoice Methods to Set Research Priorities With Autistic People With Experience of an Eating Disorder. Journal of Clinical Psychology, 81(8), 677-693. https://doi.org/10.1002/jclp.23802

Date de publication: 03/05/2025 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
7
Auteur·ices de la publication identifié·es comme autistes
1 / 7 (14,3 %)

Résumé

OBJECTIF(S) : L'autisme et les traits autistiques sont plus élevés chez les personnes présentant des troubles des conduites alimentaires (ED), les personnes autistes rapportant des résultats et des expériences de traitement moins favorables. Malgré cela, les mécanismes de ce chevauchement restent mal compris, peut-être en raison de l'exclusion des perspectives d'expérience vécue lors de l'établissement des programmes de recherche. L'étude visait donc à identifier les priorités de recherche pour les personnes autistes présentant un trouble des conduites alimentaires (ED) en utilisant des méthodologies de recherche artistiques accessibles et inclusives. MÉTHODES : Les questions de recherche ont été explorées à l'aide de Photovoice, une méthodologie de recherche créative impliquant la création et la discussion d'images. Quatorze participants ont assisté à des ateliers de groupe, dont deux au cours desquels ils ont exploré les priorités de recherche pour les personnes autistes présentant un ED. Les images et les transcriptions ont été analysées à l'aide d'une matrice de questions Photovoice adaptée (production, contenu et signification de l'image) et d'une analyse thématique. Les participants ont eu l'occasion de fournir un retour sur les thèmes émergents avant que les thèmes ne soient finalisés. RÉSULTATS : Cinq thèmes ont été identifiés, mettant en évidence les priorités de recherche pour les personnes autistes présentant un ED : (1) Impact des expériences précoces (avec les sous-thèmes Internalisation des récits socioculturels sur l'alimentation et le corps et cycles générationnels) ; (2) Fonction de l'ED (avec les sous-thèmes ED comme stratégie de régulation et ED comme stratégie d'acceptation sociale) ; (3) Obstacles et facilitateurs du rétablissement de l'ED (avec les sous-thèmes Traits autistiques comme obstacles, Traits autistiques comme facilitateurs et Bienfaits et méfaits du démêlage) ; (4) Comprendre et prendre en compte la complexité (avec les sous-thèmes Affections concomitantes et Intersectionnalité) ; et (5) Changer la culture de la recherche (avec les sous-thèmes Recherche inclusive et participative et Soutien non clinique). DISCUSSION : Les résultats de l'étude sont contextualisés dans le cadre des recherches existantes sur l'autisme et les ED, mettant en évidence des pistes pour de futures recherches et formulant des recommandations pour de futures questions de recherche. En identifiant des priorités de recherche portées par la communauté, il est espéré que les résultats de l'étude inspireront des recherches nouvelles, interdisciplinaires et coproduites qui constitueront une base de données probantes significative pour améliorer la vie des personnes autistes présentant un ED.

OBJECTIVE(S): Autism and Autistic traits are heightened in individuals with eating disorders (EDs), with Autistic people reporting poorer treatment outcomes and experiences. Despite this, mechanisms of this overlap remain poorly understood, perhaps due to an exclusion of lived experience perspectives in setting research agendas. The study therefore sought to identify research priorities for Autistic people with an eating disorder (ED) by using accessible and inclusive arts-based research methodologies. METHODS: Research questions were explored using Photovoice, a creative research methodology involving the creation and discussion of images. 14 participants attended group workshops, in two of which they explored research priorities for Autistic people with an ED. Images and transcripts were analysed using an adapted Photovoice Question Matrix (production, content and meaning of the image) and thematic analysis. Participants had the opportunity to provide feedback on emerging themes before themes were finalised. RESULTS: Five themes were identified that highlighted research priorities for Autistic people with an ED: (1) Impact of early experiences (with subthemes Internalizing of socio-cultural food and body narratives and generational cycles); (2) Function of the ED (with sub-themes ED as a regulatory strategy and ED as a social acceptance strategy); (3) Barriers and facilitators to ED recovery (with sub-themes Autistic traits as barriers, Autistic traits as facilitators and Help and harm of unravelling); (4) Understanding and accommodating for complexity (with sub-themes Co-occurring conditions and Intersectionality); and (5) Changing research culture (with sub-themes Inclusive and participatory research and Nonclinical support). DISCUSSION: Study findings are contextualised within existing autism and ED research, highlighting avenues for future research and making recommendations for future research questions. By identifying community-driven research priorities, it is hoped that study findings will inspire novel, interdisciplinary and co-produced research that will serve as a meaningful evidence base towards improving the lives of Autistic people with an ED.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:31.

Références citées
83
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
12 / 83 (14,5 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
19 / 370 (5,1 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 19 / 136 (14,0 %). Auteurices cité·es distinct·es identifié·es comme autistes : 14 / 287 (4,9 %).
Occurrences citées rattachées à la base AutiHub
136 / 370 (36,8 %)
Auteurices cité·es distinct·es rattaché·es : 71 / 287 (24,7 %)
Occurrences rattachées, non identifiées comme autistes
117 / 136 (86,0 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 117 / 370 (31,6 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 57 / 71 (80,3 %).
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