Using Photovoice Methods to Set Research Priorities With Autistic People With Experience of an Eating Disorder

Authors

Abstract

OBJECTIVE(S): Autism and Autistic traits are heightened in individuals with eating disorders (EDs), with Autistic people reporting poorer treatment outcomes and experiences. Despite this, mechanisms of this overlap remain poorly understood, perhaps due to an exclusion of lived experience perspectives in setting research agendas. The study therefore sought to identify research priorities for Autistic people with an eating disorder (ED) by using accessible and inclusive arts-based research methodologies. METHODS: Research questions were explored using Photovoice, a creative research methodology involving the creation and discussion of images. 14 participants attended group workshops, in two of which they explored research priorities for Autistic people with an ED. Images and transcripts were analysed using an adapted Photovoice Question Matrix (production, content and meaning of the image) and thematic analysis. Participants had the opportunity to provide feedback on emerging themes before themes were finalised. RESULTS: Five themes were identified that highlighted research priorities for Autistic people with an ED: (1) Impact of early experiences (with subthemes Internalizing of socio-cultural food and body narratives and generational cycles); (2) Function of the ED (with sub-themes ED as a regulatory strategy and ED as a social acceptance strategy); (3) Barriers and facilitators to ED recovery (with sub-themes Autistic traits as barriers, Autistic traits as facilitators and Help and harm of unravelling); (4) Understanding and accommodating for complexity (with sub-themes Co-occurring conditions and Intersectionality); and (5) Changing research culture (with sub-themes Inclusive and participatory research and Nonclinical support). DISCUSSION: Study findings are contextualised within existing autism and ED research, highlighting avenues for future research and making recommendations for future research questions. By identifying community-driven research priorities, it is hoped that study findings will inspire novel, interdisciplinary and co-produced research that will serve as a meaningful evidence base towards improving the lives of Autistic people with an ED.

1. Gillian Rose (2014). On the Relation between ‘Visual Research Methods’ and Contemporary Visual Culture . The Sociological Review, 62(1), 24-46. SAGE Publications.

   Type: Article DOI: 10.1111/1467-954x.12109 OpenAlex: https://openalex.org/W1913623206

   Crossref OpenAlex
2. Kiera Louise Adams , Will Mandy , Caroline Catmur , Geoffrey Bird (2024). Potential mechanisms underlying the association between feeding and eating disorders and autism . Neuroscience & Biobehavioral Reviews, 162, 105717. Elsevier BV.

   Type: Article DOI: 10.1016/j.neubiorev.2024.105717 OpenAlex: https://openalex.org/W4396936404

   Crossref OpenAlex
3. A. Bengtsson-Tops , B. Svensson (2010). Mental health users' experiences of being interviewed by another user in a research project. A qualitative study . Journal of Mental Health, 19(3), 234-242. Informa UK Limited.

   Type: Article DOI: 10.3109/09638230903531084 OpenAlex: https://openalex.org/W2020258888

   Crossref OpenAlex
4. Kiera Louise Adams , Jennifer Murphy , Caroline Catmur , Geoffrey Bird (2022). The role of interoception in the overlap between eating disorders and autism: Methodological considerations . European Eating Disorders Review, 30(5), 501-509. Wiley.

   Type: Article DOI: 10.1002/erv.2905 OpenAlex: https://openalex.org/W4223512617

   Crossref OpenAlex
5. Dinah Murray *Autistic author. Learn more… , Mike Lesser *Autistic author. Learn more… , Wenn Lawson *Autistic author. Learn more… (2005). Attention, monotropism and the diagnostic criteria for autism . Autism, 9(2), 139-156. SAGE Publications.

   Type: Article DOI: 10.1177/1362361305051398 OpenAlex: https://openalex.org/W2028337741

   AutiHub · Autistic Scholars Crossref OpenAlex
6. Carrie Allison , Bonnie Auyeung , Simon Baron-Cohen (2012). Toward Brief “Red Flags” for Autism Screening: The Short Autism Spectrum Quotient and the Short Quantitative Checklist in 1,000 Cases and 3,000 Controls . Journal of the American Academy of Child & Adolescent Psychiatry, 51(2), 202-212.e7. Elsevier BV.

   Type: Article DOI: 10.1016/j.jaac.2011.11.003 OpenAlex: https://openalex.org/W2100429511

   Crossref OpenAlex
7. Louise Karlsson , Maria Råstam , Elisabet Wentz (2013). The SWedish Eating Assessment for Autism spectrum disorders (SWEAA)—Validation of a self-report questionnaire targeting eating disturbances within the autism spectrum . Research in Developmental Disabilities, 34(7), 2224-2233. Elsevier BV.

   Type: Article DOI: 10.1016/j.ridd.2013.03.035 OpenAlex: https://openalex.org/W2059188579

   Crossref OpenAlex
8. González Moreno, Andrés Santiago (2013). Diagnostic and Statistical Manual of Mental Disorders . American Psychiatric Association.

   Type: Book DOI: 10.1176/appi.books.9780890425596 OpenAlex: https://openalex.org/W4247665917

   Crossref OpenAlex
9. Caroline Wang , Mary Ann Burris (1994). Empowerment through Photo Novella: Portraits of Participation . Health Education Quarterly, 21(2), 171-186. SAGE Publications.

   Type: Article DOI: 10.1177/109019819402100204 OpenAlex: https://openalex.org/W2066766963

   Crossref OpenAlex
10. Charli Babb , Janina Brede , Catherine R. G. Jones , Lucy Serpell , Will Mandy , John Fox (2022). A comparison of the eating disorder service experiences of autistic and non‐autistic women in the UK . European Eating Disorders Review, 30(5), 616-627. Wiley.

    Type: Article DOI: 10.1002/erv.2930 OpenAlex: https://openalex.org/W4283747798

    Crossref OpenAlex
11. Meng-Chuan Lai , Michael Lombardo , Bonnie Auyeung , Bhismadev Chakrabarti , Simon Baron-Cohen (2015). Sex/Gender Differences and Autism: Setting the Scene for Future Research . Journal of the American Academy of Child & Adolescent Psychiatry, 54(1), 11-24. Elsevier BV.

    Type: Article DOI: 10.1016/j.jaac.2014.10.003 OpenAlex: https://openalex.org/W2069328123

    Crossref OpenAlex
12. Summer Bottini , Hannah E. Morton *Autistic author. Learn more… , Kelly A. Buchanan , Kait Gould (2024). Moving from Disorder to Difference: A Systematic Review of Recent Language Use in Autism Research . Autism in Adulthood, 6(2), 128-140. SAGE Publications.

    Type: Article DOI: 10.1089/aut.2023.0030 OpenAlex: https://openalex.org/W4386469786

    AutiHub · Autistic Scholars Crossref OpenAlex
13. Will Mandy , Kate Tchanturia (2015). Do women with eating disorders who have social and flexibility difficulties really have autism? A case series . Molecular Autism, 6(1), 6-6. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1186/2040-2392-6-6 OpenAlex: https://openalex.org/W2103717755

    Crossref OpenAlex
14. Siofra Bradley , Fhionna R. Moore , Fiona Duffy , Lili Clark , Tasha Suratwala , Pooky Knightsmith et al. (2024). Camouflaging, not sensory processing or autistic identity, predicts eating disorder symptoms in autistic adults . Autism, 28(11), 2858-2868. SAGE Publications.

    Type: Article DOI: 10.1177/13623613241245749 OpenAlex: https://openalex.org/W4394919084

    Crossref OpenAlex
15. Søren Nielsen , Henrik Anckarsäter , Carina Gillberg , Christopher Gillberg , Maria Råstam , Elisabet Wentz (2015). Effects of autism spectrum disorders on outcome in teenage-onset anorexia nervosa evaluated by the Morgan-Russell outcome assessment schedule: a controlled community-based study . Molecular Autism, 6(1), 14. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1186/s13229-015-0013-4 OpenAlex: https://openalex.org/W2116827753

    Crossref OpenAlex
16. Virginia Braun , Victoria Clarke (2021). To saturate or not to saturate? Questioning data saturation as a useful concept for thematic analysis and sample-size rationales . Qualitative Research in Sport, Exercise and Health, 13(2), 201-216. Informa UK Limited.

    Type: Article DOI: 10.1080/2159676x.2019.1704846 OpenAlex: https://openalex.org/W2996597775

    Crossref OpenAlex
17. Andrea Cornwall , Rachel Jewkes (1995). What is participatory research? Social Science & Medicine, 41(12), 1667-1676. Elsevier BV.

    Type: Article DOI: 10.1016/0277-9536(95)00127-s OpenAlex: https://openalex.org/W2140960626

    Crossref OpenAlex
18. Braun V. (2023). Supporting Research in Counselling and Psychotherapy: Qualitative, Quantitative, and Mixed Methods Research . Supporting Research in Counselling and Psychotherapy: Qualitative, Quantitative, and Mixed Methods Research, 19.

    Type: Other

    Crossref
19. Lorcan Kenny , Caroline Hattersley , Bonnie Molins , Carole Buckley , Carol Povey , Elizabeth Pellicano (2016). Which terms should be used to describe autism? Perspectives from the UK autism community . Autism, 20(4), 442-462. SAGE Publications.

    Type: Article DOI: 10.1177/1362361315588200 OpenAlex: https://openalex.org/W2227393071

    Crossref OpenAlex
20. Janina Brede , Charli Babb , Catherine Jones , Mair Elliott , Cathy Zanker , Kate Tchanturia et al. (2020). “For Me, the Anorexia is Just a Symptom, and the Cause is the Autism”: Investigating Restrictive Eating Disorders in Autistic Women . Journal of Autism and Developmental Disorders, 50(12), 4280-4296. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-020-04479-3 OpenAlex: https://openalex.org/W3013495962

    Crossref OpenAlex
21. Elles de Schipper , Soheil Mahdi , Petrus de Vries , Mats Granlund , Martin Holtmann , Sunil Karande et al. (2016). Functioning and disability in autism spectrum disorder: A worldwide survey of experts . Autism Research, 9(9), 959-969. Wiley.

    Type: Article DOI: 10.1002/aur.1592 OpenAlex: https://openalex.org/W2232388721

    Crossref OpenAlex
22. Claire M Brown , Darren Hedley , Merrilyn Hooley , Susan Hayward , Matthew Fuller-Tyszkiewicz , Isabel Krug et al. (2026). Hiding in Plain Sight: Eating Disorders, Autism, and Diagnostic Overshadowing in Women . Autism in Adulthood, 8(3), 410-422. SAGE Publications.

    Type: Article DOI: 10.1089/aut.2023.0197 OpenAlex: https://openalex.org/W4402901739

    Crossref OpenAlex
23. Diane L Williams , Nancy J Minshew , Gerald Goldstein (2015). Further understanding of complex information processing in verbal adolescents and adults with autism spectrum disorders . Autism, 19(7), 859-867. SAGE Publications.

    Type: Article DOI: 10.1177/1362361315586171 OpenAlex: https://openalex.org/W2273128400

    Crossref OpenAlex
24. Eilidh Cage , Jessica Di Monaco , Victoria Newell (2018). Experiences of Autism Acceptance and Mental Health in Autistic Adults . Journal of Autism and Developmental Disorders, 48(2), 473-484. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-017-3342-7 OpenAlex: https://openalex.org/W2766434912

    Crossref OpenAlex
25. Kirsti Malterud , Volkert Dirk Siersma , Ann Dorrit Guassora (2016). Sample Size in Qualitative Interview Studies . Qualitative Health Research, 26(13), 1753-1760. SAGE Publications.

    Type: Article DOI: 10.1177/1049732315617444 OpenAlex: https://openalex.org/W2305278139

    Crossref OpenAlex
26. Eilidh Cage , Zoe Troxell-Whitman (2019). Understanding the Reasons, Contexts and Costs of Camouflaging for Autistic Adults . Journal of Autism and Developmental Disorders, 49(5), 1899-1911. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-018-03878-x OpenAlex: https://openalex.org/W2909219349

    Crossref OpenAlex
27. Heather Westwood , Kate Tchanturia (2017). Autism Spectrum Disorder in Anorexia Nervosa: An Updated Literature Review . Current Psychiatry Reports, 19(7), 41-41. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s11920-017-0791-9 OpenAlex: https://openalex.org/W2619800727

    Crossref OpenAlex
28. Barbara Carpita , Dario Muti , Ivan Mirko Cremone , Andrea Fagiolini , Liliana Dell’Osso (2022). Eating disorders and autism spectrum: links and risks . CNS Spectrums, 27(3), 272-280. Cambridge University Press (CUP).

    Type: Article DOI: 10.1017/s1092852920002011 OpenAlex: https://openalex.org/W3103016146

    Crossref OpenAlex
29. C. Gesi , C. Carmassi , M. Luciano , L. Bossini , V. Ricca , A. Fagiolini et al. (2017). Autistic Traits in Patients with Anorexia Nervosa, Bulimia Nervosa or Binge Eating Disorder: A Pilot Study . European Psychiatry, 41(S1), S100-S100. Cambridge University Press (CUP).

    Type: Article DOI: 10.1016/j.eurpsy.2017.01.310 OpenAlex: https://openalex.org/W2726916026

    Crossref OpenAlex
30. Virginia Carter Leno , Nadia Micali , Rachel Bryant‐Waugh , Moritz Herle (2022). Associations between childhood autistic traits and adolescent eating disorder behaviours are partially mediated by fussy eating . European Eating Disorders Review, 30(5), 604-615. Wiley.

    Type: Article DOI: 10.1002/erv.2902 OpenAlex: https://openalex.org/W4226145916

    Crossref OpenAlex
31. Stuart B. Murray , Jason M. Nagata , Scott Griffiths , Jerel P. Calzo , Tiffany A. Brown , Deborah Mitchison et al. (2017). The enigma of male eating disorders: A critical review and synthesis . Clinical Psychology Review, 57, 1-11. Elsevier BV.

    Type: Article DOI: 10.1016/j.cpr.2017.08.001 OpenAlex: https://openalex.org/W2740254683

    Crossref OpenAlex
32. Emily L. Casanova , Carolina Baeza-Velasco , Caroline B. Buchanan , Manuel F. Casanova (2020). The Relationship between Autism and Ehlers-Danlos Syndromes/Hypermobility Spectrum Disorders . Journal of Personalized Medicine, 10(4), 260. MDPI AG.

    Type: Article DOI: 10.3390/jpm10040260 OpenAlex: https://openalex.org/W3108527319

    Crossref OpenAlex
33. Robert Chapman *Autistic author. Learn more… , Monique Botha *Autistic author. Learn more… (2023). Neurodivergence‐informed therapy . Developmental Medicine & Child Neurology, 65(3), 310-317. Wiley.

    Type: Article DOI: 10.1111/dmcn.15384 OpenAlex: https://openalex.org/W4295008953

    AutiHub · Autistic Scholars Crossref OpenAlex
34. Hana F. Zickgraf , Jordan M. Ellis (2018). Initial validation of the Nine Item Avoidant/Restrictive Food Intake disorder screen (NIAS): A measure of three restrictive eating patterns . Appetite, 123, 32-42. Elsevier BV.

    Type: Article DOI: 10.1016/j.appet.2017.11.111 OpenAlex: https://openalex.org/W2774111579

    Crossref OpenAlex
35. Laura Hull , Will Mandy , Meng-Chuan Lai , Simon Baron-Cohen , Carrie Allison , Paula Smith et al. (2019). Development and Validation of the Camouflaging Autistic Traits Questionnaire (CAT-Q) . Journal of Autism and Developmental Disorders, 49(3), 819-833. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1007/s10803-018-3792-6 OpenAlex: https://openalex.org/W2898221520

    Crossref OpenAlex
36. Rosita Dangmann (2023). A hypothesis to explain the potential influence of hormones on the severity of autism spectrum conditions in women . Medical Hypotheses, 178, 111136. Elsevier BV.

    Type: Article DOI: 10.1016/j.mehy.2023.111136 OpenAlex: https://openalex.org/W4385787167

    Crossref OpenAlex
37. Emma Kinnaird , Catherine Stewart , Kate Tchanturia (2019). Investigating alexithymia in autism: A systematic review and meta-analysis . European Psychiatry, 55, 80-89. Cambridge University Press (CUP).

    Type: Article DOI: 10.1016/j.eurpsy.2018.09.004 OpenAlex: https://openalex.org/W2899269258

    Crossref OpenAlex
38. Phuong L. Do , Patsie Frawley , Sophie Goldingay , Amie O'Shea (2021). The Use of Photovoice in Research With People on the Autism Spectrum: A Meta-Synthesis of the Literature . Research in Autism Spectrum Disorders, 87, 101828. Elsevier BV.

    Type: Article DOI: 10.1016/j.rasd.2021.101828 OpenAlex: https://openalex.org/W3178771683

    Crossref OpenAlex
39. Jessica F. Saunders , Asia A. Eaton (2018). Social comparisons in eating disorder recovery: Using PhotoVoice to capture the sociocultural influences on women's recovery . International Journal of Eating Disorders, 51(12), 1361-1366. Wiley.

    Type: Article DOI: 10.1002/eat.22978 OpenAlex: https://openalex.org/W2902165564

    Crossref OpenAlex
40. Fiona Duffy , Karri Gillespie‐Smith , Helen Sharpe , Kyle Buchan , Emy Nimbley , Ellen Maloney *Autistic author. Learn more… et al. (2025). Eating Disorder and Autism Collaborative project outline: promoting eating disorder research embedded in a neurodiversity-affirming culture . BJPsych Bulletin, 49(4), 272-277. Royal College of Psychiatrists.

    Type: Article DOI: 10.1192/bjb.2024.61 OpenAlex: https://openalex.org/W4401434066

    AutiHub · Autistic Scholars Crossref OpenAlex
41. Patrick Dwyer *Autistic author. Learn more… (2022). The Neurodiversity Approach(es): What Are They and What Do They Mean for Researchers? Human Development, 66(2), 73-92. S. Karger AG.

    Type: Article DOI: 10.1159/000523723 OpenAlex: https://openalex.org/W4213371521

    AutiHub · Autistic Scholars Crossref OpenAlex
42. Emma Kinnaird , Caroline Norton , Catherine Stewart , Kate Tchanturia (2019). Same behaviours, different reasons: what do patients with co-occurring anorexia and autism want from treatment? International Review of Psychiatry, 31(4), 308-317. Informa UK Limited.

    Type: Article DOI: 10.1080/09540261.2018.1531831 OpenAlex: https://openalex.org/W2919305369

    Crossref OpenAlex
43. Michelle Farr , Philippa Davies , Heidi Andrews , Darren Bagnall , Emer Brangan , Rosemary Davies (2021). Co-producing knowledge in health and social care research: reflections on the challenges and ways to enable more equal relationships . Humanities and Social Sciences Communications, 8(1). Springer Science and Business Media LLC.

    Type: Article DOI: 10.1057/s41599-021-00782-1 OpenAlex: https://openalex.org/W3163090250

    Crossref OpenAlex
44. Meng-Chuan Lai , Caroline Kassee , Richard Besney , Sarah Bonato , Laura Hull , Will Mandy et al. (2019). Prevalence of co-occurring mental health diagnoses in the autism population: a systematic review and meta-analysis . The Lancet Psychiatry, 6(10), 819-829. Elsevier BV.

    Type: Article DOI: 10.1016/s2215-0366(19)30289-5 OpenAlex: https://openalex.org/W2936336589

    Crossref OpenAlex
45. Laura E. Flores , Roshell Muir , Imani Weeks , Helen Burton Murray , Julie K. Silver (2022). Analysis of Age, Race, Ethnicity, and Sex of Participants in Clinical Trials Focused on Eating Disorders . JAMA Network Open, 5(2), e220051. American Medical Association (AMA).

    Type: Article DOI: 10.1001/jamanetworkopen.2022.0051 OpenAlex: https://openalex.org/W4213214039

    Crossref OpenAlex
46. Kathrin Nickel , Simon Maier , Dominique Endres , Andreas Joos , Viktoria Maier , Ludger Tebartz van Elst et al. (2019). Systematic Review: Overlap Between Eating, Autism Spectrum, and Attention-Deficit/Hyperactivity Disorder . Frontiers in Psychiatry, 10, 708-708. Frontiers Media SA.

    Type: Article DOI: 10.3389/fpsyt.2019.00708 OpenAlex: https://openalex.org/W2971955558

    Crossref OpenAlex
47. Emma Gowen , Rachel Taylor , Thomas Bleazard , Anat Greenstein , Peter Baimbridge , Daniel Poole (2019). Guidelines for conducting research studies with the autism community. Autism Policy & Practice, 2(1), 29.

    Type: Article OpenAlex: https://openalex.org/W2987130266

    Crossref OpenAlex
48. Camilla Gesi , Giovanni Migliarese , Sara Torriero , Martina Capellazzi , Anna Caterina Omboni , Giancarlo Cerveri et al. (2021). Gender Differences in Misdiagnosis and Delayed Diagnosis among Adults with Autism Spectrum Disorder with No Language or Intellectual Disability . Brain Sciences, 11(7), 912. MDPI AG.

    Type: Article DOI: 10.3390/brainsci11070912 OpenAlex: https://openalex.org/W3179002399

    Crossref OpenAlex
49. Ann Hallyburton (2022). Diagnostic overshadowing: An evolutionary concept analysis on the misattribution of physical symptoms to pre‐existing psychological illnesses . International Journal of Mental Health Nursing, 31(6), 1360-1372. Wiley.

    Type: Article DOI: 10.1111/inm.13034 OpenAlex: https://openalex.org/W4283156768

    Crossref OpenAlex
50. Moneek Madra , Roey Ringel , Kara Gross Margolis (2020). Gastrointestinal Issues and Autism Spectrum Disorder . Child and Adolescent Psychiatric Clinics of North America, 29(3), 501-513. Elsevier BV.

    Type: Article DOI: 10.1016/j.chc.2020.02.005 OpenAlex: https://openalex.org/W3014608586

    Crossref OpenAlex
51. Nirit Haruvi-Lamdan , Danny Horesh , Shani Zohar , Meital Kraus , Ofer Golan (2020). Autism Spectrum Disorder and Post-Traumatic Stress Disorder: An unexplored co-occurrence of conditions . Autism, 24(4), 884-898. SAGE Publications.

    Type: Article DOI: 10.1177/1362361320912143 OpenAlex: https://openalex.org/W3015082203

    Crossref OpenAlex
52. Katie Heiden-Rootes , Whitney Linsenmeyer , Samantha Levine , Mark Oliveras , Miriam Joseph (2023). A scoping review of the research literature on eating and body image for transgender and nonbinary adults . Journal of Eating Disorders, 11(1), 111-111. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1186/s40337-023-00828-6 OpenAlex: https://openalex.org/W4383059102

    Crossref OpenAlex
53. Felicity Sedgewick , Jenni Leppanen , Kate Tchanturia (2021). Gender differences in mental health prevalence in autism . Advances in Autism, 7(3), 208-224. Emerald.

    Type: Article DOI: 10.1108/aia-01-2020-0007 OpenAlex: https://openalex.org/W3016216785

    Crossref OpenAlex
54. Camille Hours , Christophe Recasens , Jean-Marc Baleyte (2022). ASD and ADHD Comorbidity: What Are We Talking About? Frontiers in Psychiatry, 13, 837424-837424. Frontiers Media SA.

    Type: Article DOI: 10.3389/fpsyt.2022.837424 OpenAlex: https://openalex.org/W4214479707

    Crossref OpenAlex
55. Francesca Solmi , Francesca Bentivegna , Helen Bould , Will Mandy , Radha Kothari , Dheeraj Rai et al. (2021). Trajectories of autistic social traits in childhood and adolescence and disordered eating behaviours at age 14 years: A UK general population cohort study . Journal of Child Psychology and Psychiatry, 62(1), 75-85. Wiley.

    Type: Article DOI: 10.1111/jcpp.13255 OpenAlex: https://openalex.org/W3016583187

    Crossref OpenAlex
56. Heather Hower , Andrea LaMarre , Rachel Bachner-Melman , Erin N. Harrop , Beth McGilley , Therese E. Kenny (2022). Conceptualizing eating disorder recovery research: Current perspectives and future research directions . Journal of Eating Disorders, 10(1), 165-165. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1186/s40337-022-00678-8 OpenAlex: https://openalex.org/W4309438087

    Crossref OpenAlex
57. Qingchun Wang , Karin Hannes (2020). Toward a More Comprehensive Type of Analysis in Photovoice Research: The Development and Illustration of Supportive Question Matrices for Research Teams . International Journal of Qualitative Methods, 19. SAGE Publications.

    Type: Article DOI: 10.1177/1609406920914712 OpenAlex: https://openalex.org/W3016623467

    Crossref OpenAlex
58. Jessica F. Saunders , Asia A. Eaton , Sabrina Aguilar (2020). From self(ie)-objectification to self-empowerment: The meaning of selfies on social media in eating disorder recovery . Computers in Human Behavior, 111, 106420. Elsevier BV.

    Type: Article DOI: 10.1016/j.chb.2020.106420 OpenAlex: https://openalex.org/W3021937443

    Crossref OpenAlex
59. Kate Tchanturia , Yasemin Dandil , Zhuo Li , Katherine Smith , Monica Leslie , Sarah Byford (2021). A novel approach for autism spectrum condition patients with eating disorders: Analysis of treatment cost‐savings . European Eating Disorders Review, 29(3), 514-518. Wiley.

    Type: Article DOI: 10.1002/erv.2760 OpenAlex: https://openalex.org/W3041848458

    Crossref OpenAlex
60. Johanna Keller , Moritz Herle , Will Mandy , Virginia Carter Leno (2024). The overlap of disordered eating, autism and ADHD: future research priorities as identified by adults with lived experience . The Lancet Psychiatry, 11(12), 1030-1036. Elsevier BV.

    Type: Article DOI: 10.1016/s2215-0366(24)00186-x OpenAlex: https://openalex.org/W4401598725

    Crossref OpenAlex
61. Emma Kinnaird , Kate Tchanturia (2021). Looking beneath the surface: Distinguishing between common features in autism and anorexia nervosa . Journal of Behavioral and Cognitive Therapy, 31(1), 3-13. Elsevier BV.

    Type: Article DOI: 10.1016/j.jbct.2020.09.001 OpenAlex: https://openalex.org/W3089869938

    Crossref OpenAlex
62. Eric Rubenstein , Sarah Furnier (2021). #Bias: The Opportunities and Challenges of Surveys That Recruit and Collect Data of Autistic Adults Online . Autism in Adulthood, 3(2), 120-128. SAGE Publications.

    Type: Article DOI: 10.1089/aut.2020.0031 OpenAlex: https://openalex.org/W3102111285

    Crossref OpenAlex
63. Freya Rumball , Lucinda Brook , Francesca Happé , Anke Karl (2021). Heightened risk of posttraumatic stress disorder in adults with autism spectrum disorder: The role of cumulative trauma and memory deficits . Research in Developmental Disabilities, 110, 103848. Elsevier BV.

    Type: Article DOI: 10.1016/j.ridd.2020.103848 OpenAlex: https://openalex.org/W3118693932

    Crossref OpenAlex
64. Jenni Leppanen , Felicity Sedgewick , Daniel Halls , Kate Tchanturia (2022). Autism and anorexia nervosa: Longitudinal prediction of eating disorder outcomes . Frontiers in Psychiatry, 13, 985867-985867. Frontiers Media SA.

    Type: Article DOI: 10.3389/fpsyt.2022.985867 OpenAlex: https://openalex.org/W4296743026

    Crossref OpenAlex
65. Matthew D Lerner , Ava Gurba *Autistic author. Learn more… , Dena L. Gassner *Autistic author. Learn more… (2023). A framework for neurodiversity-affirming interventions for autistic individuals. Journal of Consulting and Clinical Psychology, 91(9), 503-504. American Psychological Association (APA).

    Type: Article DOI: 10.1037/ccp0000839 OpenAlex: https://openalex.org/W4385798994

    AutiHub · Autistic Scholars Crossref OpenAlex
66. Elizabeth Pellicano , Wenn Lawson *Autistic author. Learn more… , Gabrielle Hall *Autistic author. Learn more… , Joanne Mahony , Rozanna Lilley , Melanie Heyworth *Autistic author. Learn more… et al. (2022). “I Knew She'd Get It, and Get Me”: Participants' Perspectives of a Participatory Autism Research Project . Autism in Adulthood, 4(2), 120-129. SAGE Publications.

    Type: Article DOI: 10.1089/aut.2021.0039 OpenAlex: https://openalex.org/W3217565456

    AutiHub · Autistic Scholars AutiHub · Documentation center Crossref OpenAlex
67. Zhuo Li , Chloe Hutchings-Hay , Sarah Byford , Kate Tchanturia (2024). A qualitative evaluation of the pathway for eating disorders and autism developed from clinical experience (PEACE): clinicians’ perspective . Frontiers in Psychiatry, 15, 1332441-1332441. Frontiers Media SA.

    Type: Article DOI: 10.3389/fpsyt.2024.1332441 OpenAlex: https://openalex.org/W4393946894

    Crossref OpenAlex
68. Søren Nielsen , Sandra Rydberg Dobrescu , Lisa Dinkler , Carina Gillberg , Christopher Gillberg , Maria Råstam et al. (2022). Effects of autism on 30-year outcome of anorexia nervosa . Journal of Eating Disorders, 10(1), 4-4. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1186/s40337-021-00518-1 OpenAlex: https://openalex.org/W4206451409

    Crossref OpenAlex
69. Phaedra Longhurst , Emy Nimbley , Elizabeth H. Evans , Keren MacLennan , Karri Gillespie‐Smith , Fiona Duffy (2025). Measuring eating disorders in Autistic people: a proposal for future research . Eating Disorders, 33(6), 724-733. Informa UK Limited.

    Type: Article DOI: 10.1080/10640266.2024.2416340 OpenAlex: https://openalex.org/W4403451521

    Crossref OpenAlex
70. Eric Stice , Christy F. Telch , Shireen L. Rizvi (2000). Development and validation of the Eating Disorder Diagnostic Scale: A brief self-report measure of anorexia, bulimia, and binge-eating disorder. Psychological Assessment, 12(2), 123-131. American Psychological Association (APA).

    Type: Article DOI: 10.1037/1040-3590.12.2.123 OpenAlex: https://openalex.org/W4254908148

    Crossref OpenAlex
71. Emy Nimbley , Lisa Golds , Helen Sharpe , Karri Gillespie‐Smith , Fiona Duffy (2022). Sensory processing and eating behaviours in autism: A systematic review . European Eating Disorders Review, 30(5), 538-559. Wiley.

    Type: Article DOI: 10.1002/erv.2920 OpenAlex: https://openalex.org/W4283324823

    Crossref OpenAlex
72. Emy Nimbley , Karri Gillespie‐Smith , Fiona Duffy , Ellen Maloney *Autistic author. Learn more… , Carrie Ballantyne , Helen Sharpe (2023). “It’s not about wanting to be thin or look small, it’s about the way it feels”: an IPA analysis of social and sensory differences in autistic and non-autistic individuals with anorexia and their parents . Journal of Eating Disorders, 11(1), 89-89. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1186/s40337-023-00813-z OpenAlex: https://openalex.org/W4379469620

    AutiHub · Autistic Scholars Crossref OpenAlex
73. Elizabeth M. Radulski (2022). Conceptualising Autistic Masking, Camouflaging, and Neurotypical Privilege: Towards a Minority Group Model of Neurodiversity . Human Development, 66(2), 113-127. S. Karger AG.

    Type: Article DOI: 10.1159/000524122 OpenAlex: https://openalex.org/W4287738988

    Crossref OpenAlex
74. Emy Nimbley , Ellen Maloney *Autistic author. Learn more… , Kyle Buchan , Michelle Sader , Karri Gillespie‐Smith , Fiona Duffy (2024). Barriers and facilitators to ethical co-production with Autistic people with an eating disorder . Journal of Eating Disorders, 12(1), 113-113. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1186/s40337-024-01076-y OpenAlex: https://openalex.org/W4401463357

    AutiHub · Autistic Scholars Crossref OpenAlex
75. Emy Nimbley , Ellen Maloney *Autistic author. Learn more… , Fiona Duffy (2023). A call for autism‐led research exploring definitions of recovery in Autistic individuals with an eating disorder . International Journal of Eating Disorders, 56(7), 1335-1340. Wiley.

    Type: Article DOI: 10.1002/eat.23953 OpenAlex: https://openalex.org/W4365135756

    AutiHub · Autistic Scholars Crossref OpenAlex
76. Emy Nimbley , Helen Sharpe , Ellen Maloney *Autistic author. Learn more… , Karri Gillespie‐Smith , Kate Tchanturia , Fiona Duffy (2025). A Mixed Method Systematic Review Into the Impact of ED Treatment in Autistic People and Those With High Autistic Traits . International Journal of Eating Disorders, 58(1), 117-138. Wiley.

    Type: Article DOI: 10.1002/eat.24311 OpenAlex: https://openalex.org/W4404348520

    AutiHub · Autistic Scholars Crossref OpenAlex
77. Marieke Nuyttens , Annik Simons , Inge Antrop , Inge Glazemakers (2024). A longitudinal study of autism spectrum disorder characteristics in adolescents with restrictive type anorexia nervosa during and after underweight . European Eating Disorders Review, 32(2), 310-321. Wiley.

    Type: Article DOI: 10.1002/erv.3042 OpenAlex: https://openalex.org/W4388010800

    Crossref OpenAlex
78. Alba X. Realpe , Nicola Mills , Lucy Beasant , Sarah Douglas , Lorcan Kenny , Dheeraj Rai (2023). Lockdown Experiences and Views on Future Research Participation of Autistic Adults in the UK During the First 6 Months of the COVID-19 Pandemic . Autism in Adulthood, 5(3), 301-310. SAGE Publications.

    Type: Article DOI: 10.1089/aut.2022.0027 OpenAlex: https://openalex.org/W4317937922

    Crossref OpenAlex
79. Cat Papastavrou Brooks , Eshika Kafle , Natali Butt , Dave Chawner , Anna Day *Autistic author. Learn more… , Chloë Elsby-Pearson et al. (2023). Co-producing principles to guide health research: an illustrative case study from an eating disorder research clinic . Research Involvement and Engagement, 9(1), 84. Springer Science and Business Media LLC.

    Type: Article DOI: 10.1186/s40900-023-00460-3 OpenAlex: https://openalex.org/W4386891971

    Crossref OpenAlex
80. Valentina Petrolini , Marta Jorba , Agustín Vicente (2023). What does it take to be rigid? Reflections on the notion of rigidity in autism . Frontiers in Psychiatry, 14, 1072362-1072362. Frontiers Media SA.

    Type: Article DOI: 10.3389/fpsyt.2023.1072362 OpenAlex: https://openalex.org/W4320494240

    Crossref OpenAlex
81. Andreas Paphiti , Jody Gilbert , Alison Gibson , Paula Collin (2025). Patient Experiences of an Autism Pathway within an Eating Disorders Service: A Qualitative Evaluation . SSRN Electronic Journal. Elsevier BV.

    Type: Preprint DOI: 10.2139/ssrn.5130129 OpenAlex: https://openalex.org/W4407363559

    Crossref OpenAlex
82. Michelle Sader , Annabel Weston , Kyle Buchan , Jess Kerr‐Gaffney , Karri Gillespie‐Smith , Helen Sharpe et al. (2025). The Co‐Occurrence of Autism and Avoidant/Restrictive Food Intake Disorder (ARFID ): A Prevalence‐Based Meta‐Analysis . International Journal of Eating Disorders, 58(3), 473-488. Wiley.

    Type: Article DOI: 10.1002/eat.24369 OpenAlex: https://openalex.org/W4406102841

    Crossref OpenAlex
83. Singer J. (2017). Neurodiversity: The birth of an idea.

    Type: Other

    Crossref