« Il ne s’agit pas de vouloir être mince ou paraître petit, il s’agit de la sensation que cela procure » : une analyse IPA des différences sociales et sensorielles chez des personnes autistes et non autistes souffrant d’anorexie et chez leurs parents

Titre original en anglais : “It’s not about wanting to be thin or look small, it’s about the way it feels”: an IPA analysis of social and sensory differences in autistic and non-autistic individuals with anorexia and their parents

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Nimbley, E., Gillespie‐Smith, K., Duffy, F., Maloney, E., Ballantyne, C., & Sharpe, H. (2023). “It’s not about wanting to be thin or look small, it’s about the way it feels”: an IPA analysis of social and sensory differences in autistic and non-autistic individuals with anorexia and their parents. Journal of Eating Disorders, 11(1), 89-89. https://doi.org/10.1186/s40337-023-00813-z

Date de publication: 05/06/2023 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
6
Auteur·ices de la publication identifié·es comme autistes
1 / 6 (16,7 %)
  1. Emy Nimbley
  2. Karri Gillespie‐Smith
  3. Fiona Duffy
  1. Ellen Maloney *
  2. Carrie Ballantyne
  3. Helen Sharpe

Résumé

CONTEXTE : Malgré des données probantes croissantes étayant un chevauchement entre l’autisme et l’anorexie mentale (AN), les mécanismes sous-jacents restent mal compris. Les facteurs sociaux et sensoriels sont apparus comme des cibles prometteuses tant dans l’autisme que dans l’AN ; toutefois, il reste nécessaire de comparer ces différences entre les expériences de l’AN chez les personnes autistes et non autistes. S’appuyant sur des perspectives multiples dyadiques, cette étude a exploré les expériences des différences sociales et sensorielles chez des adultes autistes et non autistes ainsi que chez leurs parents et/ou aidants. MÉTHODES : À l’aide de l’analyse phénoménologique interprétative (IPA), des entretiens dyadiques ont été menés auprès de 14 dyades, comprenant sept dyades autistes et sept dyades non autistes. L’analyse des données a fait l’objet d’une triangulation des interprétations : (1) les participants eux-mêmes ; (2) un chercheur neurotypique ; (3) et un chercheur Autiste ayant une expérience vécue/actuelle de l’AN. RÉSULTATS : L’IPA a identifié trois thèmes dans chaque groupe, avec des similitudes et des différences entre les dyades autistes et non autistes. Des thèmes similaires ont été identifiés concernant l’importance du lien social et les difficultés socio-émotionnelles, ainsi qu’un manque commun de confiance dans le soi social et sensoriel et dans le corps. Les thèmes spécifiques à l’autisme étaient centrés sur des sentiments de « défectuosité » sociale, des divergences entre la perception et l’expression de certains signaux, et des différences de traitement multisensoriel tout au long de la vie. Les thèmes non autistes reflétaient les comparaisons sociales et le sentiment d’inadéquation, ainsi que des sensibilités à l’apprentissage des idéaux et des comportements au travers des expériences précoces. CONCLUSIONS : Bien que des similitudes aient été observées dans les deux groupes, il semblait exister des différences notables dans le rôle et l’influence perçus des différences sociales et sensorielles. Ces résultats pourraient avoir des implications importantes pour la mise en œuvre et la modification des interventions relatives aux troubles alimentaires. Plus précisément, ils suggèrent que, bien que les cibles thérapeutiques puissent sembler similaires, de subtiles différences dans les mécanismes sous-jacents et les approches pourraient être nécessaires pour les personnes Autistes souffrant d’AN dans les interventions fondées sur les aspects sensoriels, émotionnels et communicationnels.

BACKGROUND: Despite increasing evidence to support an overlap between autism and anorexia nervosa (AN), underlying mechanisms remain poorly understood. Social and sensory factors have emerged as promising targets in both autism and AN, however there remains scope to compare these differences across autistic and non-autistic experiences of AN. Drawing on dyadic multi-perspectives, this study explored experiences of social and sensory differences in autistic and non-autistic adults and their parents and/or carers. METHODS: Using interpretative phenomenological analysis (IPA), dyadic interviews were conducted with 14 dyads, with seven autistic dyads and seven non-autistic dyads. Data analysis was subjected to a triangulation of interpretations: (1) the participants themselves; (2) a neurotypical researcher; (3) and an Autistic researcher with lived/living experience of AN. RESULTS: IPA identified three themes in each group, with similarities and differences between autistic and non-autistic dyads. Similar themes were identified regarding the importance of social connectedness and socio-emotional difficulties, as well a common lack of trust in the social and sensory self and body. Autism-specific themes centred on feelings of social 'defectiveness', disparities between sensing and expressing certain cues, and lifelong, multi-sensory processing differences. Non-autistic themes reflected social comparisons and inadequacy, and sensitivities to the learning of ideals and behaviour through early experiences. CONCLUSIONS: While similarities were observed across both groups, there appeared to be notable differences in the perceived role and influence of social and sensory differences. These findings may have important implications on the delivery and modification of eating disorder interventions. Specifically, they suggest that while treatment targets may look similar, subtle differences in underlying mechanisms and approaches may be required for Autistic individuals with AN across sensory, emotion and communication-based interventions.

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:31.

Références citées
61
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
4 / 61 (6,6 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
9 / 267 (3,4 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 9 / 82 (11,0 %). Auteurices cité·es distinct·es identifié·es comme autistes : 8 / 213 (3,8 %).
Occurrences citées rattachées à la base AutiHub
82 / 267 (30,7 %)
Auteurices cité·es distinct·es rattaché·es : 47 / 213 (22,1 %)
Occurrences rattachées, non identifiées comme autistes
73 / 82 (89,0 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 73 / 267 (27,3 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 39 / 47 (83,0 %).
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