Autisme et sommeil au cours du développement : faire progresser la recherche et le traitement grâce à la coproduction
Titre original en anglais : Autism and sleep across development: Advancing research and treatment through co-production
Spanò, G., Combs, D., Dwyer, P., Luongo, A., Parent-Johnson, W., & Edgin, J. O. (2024). Autism and sleep across development: Advancing research and treatment through co-production. Neurodiversity, 2. https://doi.org/10.1177/27546330241238668
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Auteurs
Résumé
Les difficultés de sommeil sont très fréquentes chez les personnes autistes tout au long de leur vie et constituent une préoccupation importante pour ces personnes, ainsi que pour les parents/proches aidants. Ces difficultés ont été exacerbées par la pandémie de COVID-19, et les effets à long terme ne sont pas clairs et devraient être surveillés. Malgré des progrès considérables, les troubles du sommeil continuent d'être sous-diagnostiqués et non traités chez les jeunes autistes. Les problèmes de sommeil rencontrés par les jeunes autistes diffèrent souvent de ceux observés dans les groupes neurotypiques en termes de présentation et d'approches thérapeutiques, ce qui souligne le besoin urgent de parcours diagnostiques validés spécifiques à l'autisme ainsi que de traitements personnalisés adaptés à leur groupe d'âge. Une étape vers le progrès consiste à intégrer des dépistages du sommeil comme élément systématique des soins de santé pour les personnes autistes à différents stades de développement, car les problèmes de sommeil pendant l'enfance peuvent différer de ceux observés à l'adolescence et à l'âge adulte. Les recherches futures dans ce domaine devraient viser à établir des partenariats de recherche communautaires avec des personnes autistes et des parents-proches aidants afin de maximiser les bénéfices des recherches futures pour la communauté. Un effort collaboratif est nécessaire pour répondre à leurs pratiques distinctes d'hygiène du sommeil et à leurs besoins uniques, qui semblent différer de ceux de la population générale. Par ce commentaire coproduit, nous visons à contribuer au dialogue en cours sur les difficultés de sommeil chez les jeunes autistes, en favorisant une approche collaborative afin d'améliorer la compréhension de ces troubles, de leur diagnostic et de la manière dont des traitements adaptés peuvent être disponibles. Résumé grand public Les personnes autistes rencontrent souvent des difficultés de sommeil qui persistent tout au long de leur vie, suscitant des préoccupations pour les personnes qui les vivent et leurs familles/proches aidants. La pandémie de COVID-19 a accru ces difficultés, avec des effets à long terme incertains. Malgré les progrès, les troubles du sommeil chez les jeunes autistes restent sous-diagnostiqués et non traités. Leurs problèmes de sommeil peuvent différer de ceux de leurs pairs neurotypiques, ce qui met l'accent sur la nécessité de solutions adaptées. Des dépistages réguliers du sommeil et des partenariats de recherche collaboratifs sont des étapes essentielles pour comprendre leurs besoins uniques en matière de sommeil et y répondre.
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