Le questionnaire sur les attitudes envers la neurodiversité : élaboration et validation initiale

Titre original en anglais : The Neurodiversity Attitudes Questionnaire: Development and Initial Validation

Schuck, R. K., Choi, S., Baiden, K. M. P., Dwyer, P., & Uljarević, M. (2024). The Neurodiversity Attitudes Questionnaire: Development and Initial Validation. Autism, 28(11), 2821-2833. https://doi.org/10.1177/13623613241245756

Date de publication: 28/04/2024 Ajout dans AutiHub: 05/07/2026 Type: Article Langue de l’article: Anglais

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Auteurs

Auteur·ices des publications
5
Auteur·ices de la publication identifié·es comme autistes
1 / 5 (20,0 %)

Résumé

La neurodiversité renvoie à l'idée que tous les cerveaux, quelles que soient leurs différences, ont de la valeur et devraient être acceptés. Les attitudes envers la perspective de la neurodiversité peuvent avoir des répercussions concrètes sur la vie des personnes neurodivergentes, allant des effets sur les interactions quotidiennes à la manière dont les professionnels fournissent des services aux personnes neurodivergentes. Afin d'identifier les attitudes négatives envers la neurodiversité et, potentiellement, d'intervenir pour les améliorer, nous devons d'abord mesurer ces attitudes. Cet article décrit l'élaboration et la validation initiale du Neurodiversity Attitudes Questionnaire (NDAQ), y compris la révision des items sur la base de l'examen par des experts, des entretiens cognitifs, l'évaluation systématique du processus de réponse des participants et l'analyse de la structure factorielle interne de l'instrument au moyen d'une modélisation exploratoire par équations structurelles. Une analyse pilote menée auprès de 351 personnes vivant majoritairement aux Etats-Unis et travaillant actuellement dans des professions d'aide ou ayant l'intention d'en exercer indique que le NDAQ présente une validité de construit, est bien compris par les participants et correspond à une structure à cinq facteurs. Bien que le NDAQ représente le premier instrument conçu pour évaluer spécifiquement les attitudes envers la perspective de la neurodiversité, des travaux de validation supplémentaires sont encore nécessaires. Résumé grand public La neurodiversité renvoie à l'idée que les différences cérébrales, y compris les handicaps, ont de la valeur et devraient être acceptées. Les attitudes envers la neurodiversité peuvent avoir des répercussions concrètes sur la vie des personnes neurodivergentes, c'est-à-dire celles dont les cerveaux ne correspondent pas à la « norme » de la société. Ces répercussions peuvent inclure des effets sur les interactions quotidiennes, ainsi que sur la manière dont des professionnels tels que les enseignants et les médecins fournissent des services aux personnes neurodivergentes. Afin d'identifier les attitudes négatives envers la neurodiversité et, potentiellement, de les améliorer, nous devons d'abord mesurer ces attitudes. Cet article décrit l'élaboration du Neurodiversity Attitudes Questionnaire (NDAQ). L'élaboration du NDAQ comprenait la révision des items du questionnaire sur la base des retours d'experts et de personnes neurodivergentes, l'évaluation systématique de la manière dont les participants répondaient aux items du questionnaire, et l'analyse de la façon dont les items du NDAQ sont regroupés en différents facteurs. Une analyse préliminaire menée auprès de 351 personnes vivant majoritairement aux Etats-Unis, qui travaillaient alors dans une profession d'aide ou prévoyaient d'y travailler, par exemple médecins, enseignants, thérapeutes, etc., indique que le NDAQ mesure les attitudes envers la neurodiversité, est bien compris par les participants et correspond à une structure à cinq facteurs. Bien que le NDAQ représente le premier instrument conçu pour évaluer spécifiquement les attitudes envers l'idée générale de neurodiversité, des travaux supplémentaires sont encore nécessaires.

Neurodiversity refers to the idea that all brains—no matter their differences—are valuable and should be accepted. Attitudes toward the neurodiversity perspective can have real-life impacts on the lives of neurodivergent people, from effects on daily interactions to how professionals deliver services for neurodivergent individuals. In order to identify negative attitudes toward neurodiversity and potentially intervene to improve them, we first need to measure these attitudes. This article describes the development and initial validation of the Neurodiversity Attitudes Questionnaire (NDAQ), including item revision based on expert review, cognitive interviews, systematic evaluation of participants’ response process, and analysis of the instrument’s internal factor structure using exploratory structural equation modeling. Pilot analysis with 351 individuals mostly living in the United States who were currently working in or intending to pursue helping professions indicates that the NDAQ has construct validity, is well understood by participants, and fits a five-factor structure. While the NDAQ represents the first instrument designed to specifically assess attitudes toward the neurodiversity perspective, further validation work is still needed. Lay Abstract Neurodiversity refers to the idea that brain differences (including disabilities) are valuable and should be accepted. Attitudes toward neurodiversity can have real-life impacts on the lives of neurodivergent people (those whose brains do not fit society’s “standard”). These impacts can include effects on daily interactions, as well as how professionals such as teachers and doctors deliver services to neurodivergent people. In order to identify negative attitudes toward neurodiversity and potentially improve them, we first need to measure these attitudes. This article describes the development of the Neurodiversity Attitudes Questionnaire (NDAQ). NDAQ development included revision of questionnaire items based on feedback from experts and neurodivergent people, systematically evaluating the way participants responded to questionnaire items, and analysis of how the NDAQ items are grouped into different factors. A preliminary analysis with 351 individuals mostly living in the United States who were currently working or planning to work in a helping profession (e.g. doctors, teachers, therapists, and so on) indicates that the NDAQ measures attitudes toward neurodiversity, is well understood by participants, and fits a five-factor structure. While the NDAQ represents the first instrument designed to specifically assess attitudes toward the broad idea of neurodiversity, further work is still needed.

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
73
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
10 / 73 (13,7 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
15 / 149 (10,1 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 15 / 47 (31,9 %). Auteurices cité·es distinct·es identifié·es comme autistes : 10 / 135 (7,4 %).
Occurrences citées rattachées à la base AutiHub
47 / 149 (31,5 %)
Auteurices cité·es distinct·es rattaché·es : 37 / 135 (27,4 %)
Occurrences rattachées, non identifiées comme autistes
32 / 47 (68,1 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 32 / 149 (21,5 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 27 / 37 (73,0 %).
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