Les problèmes internalisés comme médiateur de la qualité de vie chez les adultes émergents avec et sans autisme. Une étude longitudinale de 10 ans

Titre original en anglais : Internalizing Problems as a Mediator for Quality of Life in Emerging Adults with and without Autism. A 10- year longitudinal study

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Andersen, P. N., Orm, S., Fossum, I. N., Øie, M. G., & Skogli, E. W. (2022). Internalizing Problems as a Mediator for Quality of Life in Emerging Adults with and without Autism. A 10- year longitudinal study [Preprint]. Research Square Platform LLC. https://doi.org/10.21203/rs.3.rs-2025572/v1

Date de publication: 07/09/2022 Ajout dans AutiHub: 20/09/2026 Type: Prépublication Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
5
Auteur·ices de la publication identifié·es comme autistes
1 / 5 (20,0 %)
  1. Per Normann Andersen
  2. Stian Orm *
  3. Ingrid Nesdal Fossum
  4. Merete Glenne Øie
  5. Erik Winther Skogli

Résumé

Résumé Contexte Les personnes autistes tendent à avoir une qualité de vie réduite tout au long de la vie. Cette réduction de la qualité de vie résulte des traits autistiques, de la détresse psychique et d'une mauvaise adéquation entre la personne et l'environnement. Dans la présente étude, nous avons examiné le rôle médiateur des problèmes internalisés et externalisés dans la relation entre le fait d'avoir un diagnostic d'autisme et la qualité de vie perçue, selon un plan longitudinal. Méthodes Au total, 66 participants ont été inclus dans un groupe combiné composé d'adultes émergents diagnostiqués avec un trouble du spectre de l'autisme (âge moyen : 22,2 ans) et d'un groupe sans autisme (âge moyen : 20,9 ans), suivis prospectivement pendant dix ans au cours de trois vagues d'évaluation à 12, 14 et 22 ans. Les participants ont rempli le Questionnaire sur la qualité de vie perçue. Les effets totaux et indirects ont été testés dans une analyse de médiation sérielle. Résultats Les résultats ont révélé un effet significatif de l'autisme sur la qualité de vie. Les problèmes internalisés au suivi à deux ans ont significativement médiatisé la qualité de vie à l'âge adulte émergent, contrairement aux problèmes externalisés. L'effet direct de l'autisme sur la qualité de vie n'a pas atteint le seuil de significativité statistique après l'introduction des problèmes internalisés comme médiateur. Conclusion Il existe une corrélation significative entre le fait d'avoir un autisme et une mauvaise qualité de vie ; toutefois, cette corrélation est médiatisée par l'impact des problèmes internalisés à l'adolescence sur la qualité de vie actuellement perçue.

Abstract Background Individuals with autism tend to have a reduced quality of life across the lifespan. This reduced quality of life is a result of autism traits, mental distress, and poor person/environment fit. In the present study, we examined the mediating role of internalizing and externalizing problems on the relationship between having an autism diagnosis and perceived quality of life in a longitudinal design. Methods There were in total 66 participants in a combined group of emerging adults diagnosed with autism spectrum disorder (mean age 22.2 years), and a group without autism (mean age 20.9 years) prospectively followed for ten years through three assessment waves at 12, 14 and 22 years. Participants filled out the Perceived Quality of Life Questionnaire. Total and indirect effects were tested in serial mediation analysis. Results Results revealed a significant effect of autism on quality of life. Internalizing problems at two-year follow-up significantly mediated quality of life in emerging adulthood while externalizing problems did not. The direct effect of autism on quality of life did not reach statistical significance after entering internalizing problems as a mediator. Conclusion There is a significant correlation between having autism and poor quality of life; however, this correlation is mediated by adolescent internalizing problems' impact on the current perceived quality of life.

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Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

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Références citées
63
Avec un DOI
56
Sans DOI, à partir du texte brut de la bibliographie
7
8 / 63 (12,7 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
4 / 63 (6,3 %)
Références avec noms d’auteurices détectés
63 / 63 (100,0 %)
Sans nom d’auteurice détecté
0
Sans titre structuré
4
Sans identifiant stable
7
Références avec noms bruts d’auteurices restant à vérifier
0
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
322
À partir du DOI ou de métadonnées externes
322
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
0
143 / 322 (44,4 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 179 / 322 (55,6 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
17 / 322 (5,3 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 17 / 143 (11,9 %). Personnes distinctes identifiées comme autistes : 13 / 277 (4,7 %).
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