Mesure de la qualité de vie subjective chez des adultes autistes à l’aide du PROMIS Global–10 : étude psychométrique et élaboration d’une méthode de cotation spécifique à l’autisme

Titre original en anglais : Measuring subjective quality of life in autistic adults with the PROMIS global–10: Psychometric study and development of an autism-specific scoring method

Sources de métadonnées utilisées pour cette référence

OpenAlex Crossref OpenCitations
En savoir plus sur les sources utilisées

Williams, Z. J., Cascio, C. J., & Woynaroski, T. G. (2022). Measuring subjective quality of life in autistic adults with the PROMIS global–10: Psychometric study and development of an autism-specific scoring method. Autism, 27(1), 145-157. https://doi.org/10.1177/13623613221085364

Date de publication: 11/04/2022 Ajout dans AutiHub: 07/07/2026 Type: Article Langue de l’article: Anglais
Source OpenAlex Source éditeur (DOI)

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
3
Auteur·ices de la publication identifié·es comme autistes
1 / 3 (33,3 %)
  1. Zachary J. Williams *
  2. Carissa J. Cascio
  3. Tiffany G. Woynaroski

Résumé

La qualité de vie est largement reconnue comme l’un des résultats les plus importants de la recherche sur l’autisme, mais peu de mesures de ce construit ont été validées pour une utilisation chez les personnes autistes. L’objectif de la présente étude était d’examiner les propriétés psychométriques du Patient-Reported Outcomes Measurement Information System Global–10, une mesure établie par autoévaluation de la qualité de vie liée à la santé, dans un échantillon de 901 adultes autistes (principalement des femmes et diagnostiqués à l’âge adulte) recrutés au sein de la cohorte Simons Foundation Powering Autism Research for Knowledge. À l’aide d’un cadre fondé sur la théorie de réponse à l’item, nous avons réalisé une évaluation psychométrique complète du Patient-Reported Outcomes Measurement Information System Global–10 dans cet échantillon, en examinant sa structure latente, le fonctionnement différentiel des items, la fiabilité et la validité de construit. Après l’élaboration d’un modèle de mesure spécifique à l’autisme, le Patient-Reported Outcomes Measurement Information System Global–10 a démontré d’excellentes propriétés psychométriques dans l’échantillon actuel, notamment un excellent ajustement entre le modèle et les données, une fiabilité élevée, un fonctionnement différentiel minimal des items entre les sous-groupes d’adultes autistes, et un profil attendu de corrélations avec des variables externes. Des analyses exploratoires ont indiqué qu’une qualité de vie plus faible était associée au sexe féminin et au fait de s’identifier comme membre d’une minorité sexuelle/de genre. Un calculateur de scores en ligne gratuit a été créé afin de faciliter l’utilisation et l’interprétation des scores normés du trait latent de qualité de vie générale du Patient-Reported Outcomes Measurement Information System Global–10 pour des applications cliniques et de recherche (disponible à l’adresse https://asdmeasures.shinyapps.io/promis_qol ). Résumé vulgarisé La qualité de vie est un résultat que les chercheurs et les défenseurs des personnes autistes s’accordent à considérer comme extrêmement important à prendre en compte lors de la mise en œuvre de services, d’interventions et de soutiens destinés aux personnes autistes. Toutefois, peu de recherches ont porté sur la manière dont la qualité de vie peut être mesurée au mieux chez les personnes autistes ou sur la question de savoir si les questionnaires existants sur la qualité de vie sont appropriés pour une utilisation dans la population autiste. Cette étude visait à valider une mesure établie de la qualité de vie, le Patient-Reported Outcomes Measurement Information System Global–10, dans un vaste échantillon d’adultes autistes recrutés en ligne. Nous avons créé une nouvelle méthode de cotation de l’échelle Patient-Reported Outcomes Measurement Information System Global–10 et de génération d’un score de « qualité de vie générale » spécifique aux adultes autistes. Ce nouveau score s’est très bien comporté dans cet échantillon, présentant très peu d’erreur de mesure et étant lié de manière attendue à des construits similaires, tels que la santé physique et la détresse émotionnelle. Des analyses exploratoires ont montré qu’une qualité de vie plus faible était associée au sexe féminin et à l’auto-identification comme membre d’une minorité sexuelle ou de genre (c’est-à-dire une identité LGBTQ +). Ces résultats suggèrent que le nouveau score de qualité de vie du Patient-Reported Outcomes Measurement Information System Global–10 est une mesure fiable et valide de la qualité de vie chez les adultes autistes, bien que des études supplémentaires soient nécessaires pour explorer davantage ses propriétés de mesure dans d’autres sous-groupes de la population autiste, tels que les personnes présentant une déficience intellectuelle. Cette mesure est disponible gratuitement pour être utilisée comme résultat tant dans la recherche que dans la pratique clinique, et un calculateur de scores en ligne est disponible pour soutenir l’utilisation de cette mesure dans des applications réelles.

Quality of life is widely acknowledged as one of the most important outcomes in autism research, but few measures of this construct have been validated for use in autistic people. The goal of the current study was to examine the psychometric properties of the Patient-Reported Outcomes Measurement Information System Global–10, an established self-report measure of health-related quality of life, in a sample of 901 autistic adults (predominantly female and adult-diagnosed) recruited from the Simons Foundation Powering Autism Research for Knowledge cohort. Using an item response theory framework, we performed a comprehensive psychometric evaluation of the Patient-Reported Outcomes Measurement Information System Global–10 in this sample, examining its latent structure, differential item functioning, reliability, and construct validity. After developing an autism-specific measurement model, the Patient-Reported Outcomes Measurement Information System Global–10 demonstrated excellent psychometric properties in the current sample, including excellent model-data fit, high reliability, minimal differential item functioning across subgroups of autistic adults, and an expected pattern of correlations with external variables. Exploratory analyses indicated that lower quality of life was associated with female sex and identified as a sexual/gender minority. A free online score calculator has been created to facilitate the use and interpretation of normed Patient-Reported Outcomes Measurement Information System Global–10 general quality of life latent trait scores for clinical and research applications (available at https://asdmeasures.shinyapps.io/promis_qol ). Lay Abstract Quality of Life an outcome that both researchers and autistic advocates agree is extremely important to consider when implementing services, interventions, and supports for autistic people. However, there has been little research on the topic of how quality of life can best be measured in autistic people or whether existing quality of life questionnaires are appropriate for use in the autistic population. This study aimed to validate an established quality of life measure, the Patient-Reported Outcomes Measurement Information System Global–10, in a large sample of autistic adults recruited online. We created a new way to score the Patient-Reported Outcomes Measurement Information System Global–10 scale and generate a “General quality of life” score specific to autistic adults. This new score performed very well in this sample, showing very little measurement error and relating in expected ways to similar constructs, such as physical health and emotional distress. Exploratory analyses found that lower quality of life was associated with female sex and self-identification as a sexual or gender minority (i.e. LGBTQ + identity). These findings suggest that the new Patient-Reported Outcomes Measurement Information System Global–10 quality of life score is a reliable and valid measure of quality of life in autistic adults, although additional studies are necessary to further explore its measurement properties in other subsets of the autistic population, such as individuals with intellectual disabilities. This measure is freely available for use as an outcome in both research and clinical practice, and an online score calculator is available to support the use of this measure in real-world applications.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:31.

Références citées
83
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
10 / 83 (12,0 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
18 / 539 (3,3 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 18 / 102 (17,6 %). Auteurices cité·es distinct·es identifié·es comme autistes : 11 / 480 (2,3 %).
Occurrences citées rattachées à la base AutiHub
102 / 539 (18,9 %)
Auteurices cité·es distinct·es rattaché·es : 64 / 480 (13,3 %)
Occurrences rattachées, non identifiées comme autistes
84 / 102 (82,4 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 84 / 539 (15,6 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 53 / 64 (82,8 %).
  1. Eric K. H. Chan (2014). Standards and Guidelines for Validation Practices: Development and Evaluation of Measurement Instruments . Dans Social Indicators Research Series (pp. 9-24). Springer International Publishing.
    Type: Chapitre de livre DOI: 10.1007/978-3-319-07794-9_2 OpenAlex: https://openalex.org/W136753908
    Crossref OpenAlex OpenCitations
  2. Leah M. Adams , Dennis C. Turk (2018). Central sensitization and the biopsychosocial approach to understanding pain . Journal of Applied Biobehavioral Research, 23(2). Wiley.
    Type: Article DOI: 10.1111/jabr.12125 OpenAlex: https://openalex.org/W2789524804
    Crossref OpenAlex OpenCitations
  3. Bryce B. Reeve , Ron D. Hays , Jakob B. Bjorner , Karon F. Cook , Paul K. Crane , Jeanne A. Teresi et al. (2007). Psychometric Evaluation and Calibration of Health-Related Quality of Life Item Banks . Medical Care, 45(5), S22-S31. Ovid Technologies (Wolters Kluwer Health).
    Type: Article DOI: 10.1097/01.mlr.0000250483.85507.04 OpenAlex: https://openalex.org/W2007010480
    Crossref OpenAlex OpenCitations
  4. Muhammad Yunus (2015). Editorial Review (Thematic Issue: An Update on Central Sensitivity Syndromes and the Issues of Nosology and Psychobiology) . Current Rheumatology Reviews, 11(2), 70-85. Bentham Science Publishers Ltd..
    Type: Article DOI: 10.2174/157339711102150702112236 OpenAlex: https://openalex.org/W843849817
    Crossref OpenAlex OpenCitations
  5. Rashada Alexander , Karen Parker , Tara Schwetz (2016). Sexual and Gender Minority Health Research at the National Institutes of Health . LGBT Health, 3(1), 7-10. SAGE Publications.
    Type: Article DOI: 10.1089/lgbt.2015.0107 OpenAlex: https://openalex.org/W1857515060
    Crossref OpenAlex OpenCitations
  6. Dominique Makowski , Mattan S. Ben-Shachar , S. H. Annabel Chen , Daniel Lüdecke (2019). Indices of Effect Existence and Significance in the Bayesian Framework . Frontiers in Psychology, 10, 2767. Frontiers Media SA.
    Type: Article DOI: 10.3389/fpsyg.2019.02767 OpenAlex: https://openalex.org/W2996229661
    Crossref OpenAlex OpenCitations
  7. Randall D. Penfield , Gregory Camilli (2006). 5 Differential Item Functioning and Item Bias . Dans Handbook of Statistics (pp. 125-167). Elsevier.
    Type: Chapitre de livre DOI: 10.1016/s0169-7161(06)26005-x OpenAlex: https://openalex.org/W1693178780
    Crossref OpenAlex OpenCitations
  8. Ragini Alok , Siddharth Kumar Das , Girdhar Gopal Agarwal , Sarvada Chand Tiwari , Latika Salwahan , Ragini Srivastava (2014). Problem-Focused Coping and Self-efficacy as Correlates of Quality of Life and Severity of Fibromyalgia in Primary Fibromyalgia Patients . JCR: Journal of Clinical Rheumatology, 20(6), 314-316. Ovid Technologies (Wolters Kluwer Health).
    Type: Article DOI: 10.1097/rhu.0000000000000130 OpenAlex: https://openalex.org/W2395747035
    Crossref OpenAlex OpenCitations
  9. Anthony Rodriguez , Steven P. Reise , Mark G. Haviland (2016). Evaluating bifactor models: Calculating and interpreting statistical indices. Psychological Methods, 21(2), 137-150. American Psychological Association (APA).
    Type: Article DOI: 10.1037/met0000045 OpenAlex: https://openalex.org/W2403516908
    Crossref OpenAlex OpenCitations
  10. Heidi Sivertsen , Guro Hanevold Bjørkløf , Knut Engedal , Geir Selbæk , Anne-Sofie Helvik (2015). Depression and Quality of Life in Older Persons: A Review . Dementia and Geriatric Cognitive Disorders, 40(5-6), 311-339. S. Karger AG.
    Type: Article DOI: 10.1159/000437299 OpenAlex: https://openalex.org/W1845447069
    OpenAlex
  11. Michael Ayres , Jeremy R. Parr , Jacqui Rodgers , David Mason , Leah Avery , Darren Flynn (2018). A systematic review of quality of life of adults on the autism spectrum . Autism, 22(7), 774-783. SAGE Publications.
    Type: Article DOI: 10.1177/1362361317714988 OpenAlex: https://openalex.org/W2743496150
    Crossref OpenAlex OpenCitations
  13. Yoav Benjamini , Yosef Hochberg (1995). Controlling the False Discovery Rate: A Practical and Powerful Approach to Multiple Testing . Journal of the Royal Statistical Society Series B: Statistical Methodology, 57(1), 289-300. Oxford University Press (OUP).
    Type: Article DOI: 10.1111/j.2517-6161.1995.tb02031.x OpenAlex: https://openalex.org/W2110065044
    Crossref OpenAlex OpenCitations
  14. Anthony Rodriguez , Steven P. Reise , Mark G. Haviland (2016). Applying Bifactor Statistical Indices in the Evaluation of Psychological Measures . Journal of Personality Assessment, 98(3), 223-237. Informa UK Limited.
    Type: Article DOI: 10.1080/00223891.2015.1089249 OpenAlex: https://openalex.org/W1881923603
    Crossref OpenAlex OpenCitations
  15. R. Darrell Bock , Robert J. Mislevy (1982). Adaptive EAP Estimation of Ability in a Microcomputer Environment . Applied Psychological Measurement, 6(4), 431-444. SAGE Publications.
    Type: Article DOI: 10.1177/014662168200600405 OpenAlex: https://openalex.org/W2070351096
    Crossref OpenAlex OpenCitations
  16. Yoko Kamio , Naoko Inada , Tomonori Koyama (2013). A nationwide survey on quality of life and associated factors of adults with high-functioning autism spectrum disorders . Autism, 17(1), 15-26. SAGE Publications.
    Type: Article DOI: 10.1177/1362361312436848 OpenAlex: https://openalex.org/W2095938341
    Crossref OpenAlex OpenCitations
  17. Joan Broderick , Esi Morgan DeWit , Nan Rothrock , Paul Crane , Christopher B. Forrest (2013). Advances in Patient Reported Outcomes: The NIH PROMIS Measures . eGEMs (Generating Evidence & Methods to improve patient outcomes), 1(1), 12. Ubiquity Press, Ltd..
    Type: Article DOI: 10.13063/2327-9214.1015 OpenAlex: https://openalex.org/W1908118904
    Crossref OpenAlex OpenCitations
  18. David Cella , William Riley , Arthur Stone , Nan Rothrock , Bryce Reeve , Susan Yount et al. (2010). The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005–2008 . Journal of Clinical Epidemiology, 63(11), 1179-1194. Elsevier BV.
    Type: Article DOI: 10.1016/j.jclinepi.2010.04.011 OpenAlex: https://openalex.org/W2162420979
    Crossref OpenAlex OpenCitations
  19. R. Philip Chalmers (2012). mirt: A Multidimensional Item Response Theory Package for the R Environment . Journal of Statistical Software, 48(6). Foundation for Open Access Statistic.
    Type: Article DOI: 10.18637/jss.v048.i06 OpenAlex: https://openalex.org/W1919216659
    Crossref OpenAlex OpenCitations
  20. Heather M. Brown * , Patrick Dwyer * , Dena L. Gassner * , Morénike Giwa Onaiwu * , Steven K. Kapp * , Ari Ne'eman * et al. (2022). The Autism Intervention Research Network on Physical Health Autistic Researcher Review Board . Pediatrics, 149(Supplement 4). American Academy of Pediatrics (AAP).
    Type: Article DOI: 10.1542/peds.2020-049437f OpenAlex: https://openalex.org/W4220936069
    Crossref OpenAlex OpenCitations
  21. David Felce , Jonathan Perry (1995). Quality of life: Its definition and measurement . Research in Developmental Disabilities, 16(1), 51-74. Elsevier BV.
    Type: Article DOI: 10.1016/0891-4222(94)00028-8 OpenAlex: https://openalex.org/W1968912676
    Crossref OpenAlex OpenCitations
  22. Audrey F. Burgess , Steven E. Gutstein (2007). Quality of Life for People with Autism: Raising the Standard for Evaluating Successful Outcomes . Child and Adolescent Mental Health, 12(2), 80-86. Wiley.
    Type: Article DOI: 10.1111/j.1475-3588.2006.00432.x OpenAlex: https://openalex.org/W2172253007
    Crossref OpenAlex OpenCitations
  23. Ron D. Hays , Jakob B. Bjorner , Dennis A. Revicki , Karen L. Spritzer , David Cella (2009). Development of physical and mental health summary scores from the patient-reported outcomes measurement information system (PROMIS) global items . Quality of Life Research, 18(7), 873-880. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s11136-009-9496-9 OpenAlex: https://openalex.org/W2107748660
    Crossref OpenAlex OpenCitations
  24. Li Cai , Ji Seung Yang , Mark Hansen (2011). Generalized full-information item bifactor analysis. Psychological Methods, 16(3), 221-248. American Psychological Association (APA).
    Type: Article DOI: 10.1037/a0023350 OpenAlex: https://openalex.org/W1984112996
    Crossref OpenAlex OpenCitations
  25. Cai L., Monroe S. (2014). A new statistic for evaluating item response theory models for ordinal data (CRESST Report 839). National Center for Research on Evaluation, Standards, and Student Testing, University of California. https://eric.ed.gov/?id=ED555726
    Type: Autre
    Crossref
  26. Shuting Zheng , Ryan Adams , Julie Lounds Taylor , Florencia Pezzimenti , Somer Bishop (2021). Depression in independent young adults on the autism spectrum: Demographic characteristics, service use, and barriers . Autism, 25(7), 1960-1972. SAGE Publications.
    Type: Article DOI: 10.1177/13623613211008276 OpenAlex: https://openalex.org/W3158507747
    Crossref OpenAlex OpenCitations
  27. Adam W. Meade (2010). A taxonomy of effect size measures for the differential functioning of items and scales. Journal of Applied Psychology, 95(4), 728-743. American Psychological Association (APA).
    Type: Article DOI: 10.1037/a0018966 OpenAlex: https://openalex.org/W1986031600
    Crossref OpenAlex OpenCitations
  28. Leann Smith DaWalt , Julie Lounds Taylor , Arezoo Movaghar , Jinkuk Hong , Bryan Kim , Murray Brilliant et al. (2021). Health profiles of adults with autism spectrum disorder: Differences between women and men . Autism Research, 14(9), 1896-1904. Wiley.
    Type: Article DOI: 10.1002/aur.2563 OpenAlex: https://openalex.org/W3173811501
    Crossref OpenAlex OpenCitations
  29. Mengyang Cao , Louis Tay , Yaowu Liu (2017). A Monte Carlo Study of an Iterative Wald Test Procedure for DIF Analysis . Educational and Psychological Measurement, 77(1), 104-118. SAGE Publications.
    Type: Article DOI: 10.1177/0013164416637104 OpenAlex: https://openalex.org/W2317802767
    Crossref OpenAlex OpenCitations
  30. Samuel B. Green , Yanyun Yang (2009). Reliability of Summed Item Scores Using Structural Equation Modeling: An Alternative to Coefficient Alpha . Psychometrika, 74(1), 155-167. Cambridge University Press (CUP).
    Type: Article DOI: 10.1007/s11336-008-9099-3 OpenAlex: https://openalex.org/W2032743311
    Crossref OpenAlex OpenCitations
  31. Sarah Cassidy , Louise Bradley , Rebecca Shaw , Simon Baron-Cohen (2018). Risk markers for suicidality in autistic adults . Molecular Autism, 9(1), 42. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/s13229-018-0226-4 OpenAlex: https://openalex.org/W2887488849
    Crossref OpenAlex OpenCitations
  32. Tslil Simantov , Alexa Pohl , Alexandros Tsompanidis , Elizabeth M Weir , Michael Lombardo , Amber Ruigrok et al. (2022). Medical symptoms and conditions in autistic women . Autism, 26(2), 373-388. SAGE Publications.
    Type: Article DOI: 10.1177/13623613211022091 OpenAlex: https://openalex.org/W3174812215
    Crossref OpenAlex OpenCitations
  34. Robert D. Gibbons , R. Darrell Bock , Donald Hedeker , David J. Weiss , Eisuke Segawa , Dulal K. Bhaumik et al. (2007). Full-Information Item Bifactor Analysis of Graded Response Data . Applied Psychological Measurement, 31(1), 4-19. SAGE Publications.
    Type: Article DOI: 10.1177/0146621606289485 OpenAlex: https://openalex.org/W2040455338
    Crossref OpenAlex OpenCitations
  35. Paul A. Pilkonis , Seung W. Choi , Steven P. Reise , Angela M. Stover , William T. Riley , David Cella et al. (2011). Item Banks for Measuring Emotional Distress From the Patient-Reported Outcomes Measurement Information System (PROMIS®): Depression, Anxiety, and Anger . Assessment, 18(3), 263-283. SAGE Publications.
    Type: Article DOI: 10.1177/1073191111411667 OpenAlex: https://openalex.org/W2159516675
    Crossref OpenAlex OpenCitations
  36. Susan E. Embretson (1996). The new rules of measurement. Psychological Assessment, 8(4), 341-349. American Psychological Association (APA).
    Type: Article DOI: 10.1037/1040-3590.8.4.341 OpenAlex: https://openalex.org/W2083879993
    Crossref OpenAlex OpenCitations
  37. Alexander P. Christensen , Luis Eduardo Garrido , Hudson Golino (2020). Unique variable analysis: A network psychometrics method to detect local dependence . Center for Open Science.
    Type: Prépublication DOI: 10.31234/osf.io/4kra2 OpenAlex: https://openalex.org/W3162857268
    Crossref OpenAlex OpenCitations
  38. Steven K. Kapp * (2018). Social Support, Well-being, and Quality of Life Among Individuals on the Autism Spectrum . Pediatrics, 141(Supplement_4), S362-S368. American Academy of Pediatrics (AAP).
    Type: Article DOI: 10.1542/peds.2016-4300n OpenAlex: https://openalex.org/W2796366587
    AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
  39. Robert J. Gatchel , Yuan Bo Peng , Madelon L. Peters , Perry N. Fuchs , Dennis C. Turk (2007). The biopsychosocial approach to chronic pain: Scientific advances and future directions. Psychological Bulletin, 133(4), 581-624. American Psychological Association (APA).
    Type: Article DOI: 10.1037/0033-2909.133.4.581 OpenAlex: https://openalex.org/W2095921734
    Crossref OpenAlex OpenCitations
  40. Jacob Cohen (1992). A power primer. Psychological Bulletin, 112(1), 155-159. American Psychological Association (APA).
    Type: Article DOI: 10.1037/0033-2909.112.1.155 OpenAlex: https://openalex.org/W2037557484
    Crossref OpenAlex OpenCitations
  41. Hudson F. Golino , Sacha Epskamp (2017). Exploratory graph analysis: A new approach for estimating the number of dimensions in psychological research . PLOS ONE, 12(6), e0174035. Public Library of Science (PLoS).
    Type: Article DOI: 10.1371/journal.pone.0174035 OpenAlex: https://openalex.org/W2391304757
    Crossref OpenAlex OpenCitations
  42. Gary Yu Hin Lam , Sujay Sabnis , Maria Migueliz Valcarlos , Jennifer R. Wolgemuth (2021). A Critical Review of Academic Literature Constructing Well-Being in Autistic Adults . Autism in Adulthood, 3(1), 61-71. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2020.0053 OpenAlex: https://openalex.org/W3129551381
    Crossref OpenAlex OpenCitations
  43. Jennifer Elder , Consuelo Kreider , Susan Brasher , Margaret Ansell (2017). Clinical impact of early diagnosis of autism on the prognosis and parent-child relationships . Psychology Research and Behavior Management, Volume 10, 283-292. Informa UK Limited.
    Type: Article DOI: 10.2147/prbm.s117499 OpenAlex: https://openalex.org/W2745968167
    Crossref OpenAlex OpenCitations
  44. Grinell Smith (2008). Does Gender Influence Online Survey Participation? A Record-Linkage Analysis of University Faculty Online Survey Response Behavior. San José State University ScholarWorks (San Jose State University).
    Type: Article OpenAlex: https://openalex.org/W2120487507
    OpenAlex
  45. Pamela Feliciano , Amy M. Daniels , LeeAnne Green Snyder , Amy Beaumont , Alexies Camba , Amy Esler et al. (2018). SPARK: A US Cohort of 50,000 Families to Accelerate Autism Research . Neuron, 97(3), 488-493. Elsevier BV.
    Type: Article DOI: 10.1016/j.neuron.2018.01.015 OpenAlex: https://openalex.org/W2785900161
    Crossref OpenAlex OpenCitations
  46. Éric Fombonne , Leigh Coppola , Sarah Mastel , Brian J. O’Roak (2022). Validation of Autism Diagnosis and Clinical Data in the SPARK Cohort . Journal of Autism and Developmental Disorders, 52(8), 3383-3398. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-021-05218-y OpenAlex: https://openalex.org/W3183185631
    Crossref OpenAlex OpenCitations
  47. Benjamin Gierk , Sebastian Kohlmann , Kurt Kroenke , Lena Spangenberg , Markus Zenger , Elmar Brähler et al. (2014). The Somatic Symptom Scale–8 (SSS-8) . JAMA Internal Medicine, 174(3), 399. American Medical Association (AMA).
    Type: Article DOI: 10.1001/jamainternmed.2013.12179 OpenAlex: https://openalex.org/W2160871282
    Crossref OpenAlex OpenCitations
  48. Éric Fombonne , Éric Fombonne , LeeAnne Green Snyder , Amy Daniels , Pamela Feliciano , Wendy Chung (2020). Psychiatric and Medical Profiles of Autistic Adults in the SPARK Cohort . Journal of Autism and Developmental Disorders, 50(10), 3679-3698. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-020-04414-6 OpenAlex: https://openalex.org/W3009036752
    Crossref OpenAlex OpenCitations
  49. Elizabeth M Weir , Carrie Allison , Simon Baron-Cohen (2021). Understanding the substance use of autistic adolescents and adults: a mixed-methods approach . The Lancet Psychiatry, 8(8), 673-685. Elsevier BV.
    Type: Article DOI: 10.1016/s2215-0366(21)00160-7 OpenAlex: https://openalex.org/W3174426852
    Crossref OpenAlex OpenCitations
  50. Benjamin E. Yerys , Goldie A. McQuaid , Nancy Raitano Lee , Gregory L. Wallace (2021). Impacts of Co-Occurring ADHD Symptoms on Critical Markers of Outcome for Autistic Adults . Center for Open Science.
    Type: Prépublication DOI: 10.31234/osf.io/zwjp7 OpenAlex: https://openalex.org/W4206472567
    Crossref OpenAlex OpenCitations
  51. Milad Karimi , John Brazier (2016). Health, Health-Related Quality of Life, and Quality of Life: What is the Difference? PharmacoEconomics, 34(7), 645-649. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40273-016-0389-9 OpenAlex: https://openalex.org/W2279074305
    Crossref OpenAlex OpenCitations
  52. William Revelle , David M. Condon (2019). Reliability from α to ω: A tutorial. Psychological Assessment, 31(12), 1395-1411. American Psychological Association (APA).
    Type: Article DOI: 10.1037/pas0000754 OpenAlex: https://openalex.org/W2966091252
    Crossref OpenAlex OpenCitations
  53. Meng-Chuan Lai , Caroline Kassee , Richard Besney , Sarah Bonato , Laura Hull , Will Mandy et al. (2019). Prevalence of co-occurring mental health diagnoses in the autism population: a systematic review and meta-analysis . The Lancet Psychiatry, 6(10), 819-829. Elsevier BV.
    Type: Article DOI: 10.1016/s2215-0366(19)30289-5 OpenAlex: https://openalex.org/W2936336589
    Crossref OpenAlex OpenCitations
  54. Louis Tay , Adam W Meade , Mengyang Cao (2015). An Overview and Practical Guide to IRT Measurement Equivalence Analysis . Organizational Research Methods, 18(1), 3-46. SAGE Publications.
    Type: Article DOI: 10.1177/1094428114553062 OpenAlex: https://openalex.org/W2320111878
    Crossref OpenAlex OpenCitations
  56. Helen McConachie , Colin Wilson , David Mason , Deborah Garland , Jeremy R. Parr , Alexia Rattazzi et al. (2020). What Is Important in Measuring Quality of Life? Reflections by Autistic Adults in Four Countries . Autism in Adulthood, 2(1), 4-12. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2019.0008 OpenAlex: https://openalex.org/W2974102439
    Crossref OpenAlex OpenCitations
  57. Rachel Grove , Sander Begeer , Anke Scheeren , Ricarda F. Weiland , Rosa A. Hoekstra (2021). Evaluating the latent structure of the non-social domain of autism in autistic adults . Molecular Autism, 12(1), 22-22. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/s13229-020-00401-x OpenAlex: https://openalex.org/W3135212467
    Crossref OpenAlex OpenCitations
  58. Tyler C. McFayden , Alyssa J. Gatto , Angela V. Dahiya , Ligia Antezana , Yasuo Miyazaki , Lee D. Cooper (2021). Integrating Measurement-Based Care into Treatment for Autism Spectrum Disorder: Insights from a Community Clinic . Journal of Autism and Developmental Disorders, 51(10), 3651-3661. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-020-04824-6 OpenAlex: https://openalex.org/W3117831917
    Crossref OpenAlex OpenCitations
  59. Deisy Morselli Gysi , Andre Voigt , Tiago De Miranda Fragoso , Eivind Almaas , Katja Nowick (2018). wTO: an R package for computing weighted topological overlap and a consensus network with integrated visualization tool . BMC Bioinformatics, 19(1), 392-392. Freie Universität Berlin.
    Type: Article DOI: 10.17169/refubium-922 OpenAlex: https://openalex.org/W2964310261
    Crossref OpenAlex OpenCitations
  60. Zachary J. Williams * , Katherine Gotham (2021). Current and Lifetime Somatic Symptom Burden Among Transition-aged Autistic Young Adults . medRxiv. openRxiv.
    Type: Prépublication DOI: 10.1101/2021.10.02.21264461 OpenAlex: https://openalex.org/W3202508906
    OpenCitations
  61. THE WHOQOL GROUP (1998). Development of the World Health Organization WHOQOL-BREF Quality of Life Assessment . Psychological Medicine, 28(3), 551-558. Cambridge University Press (CUP).
    Type: Article DOI: 10.1017/s0033291798006667 OpenAlex: https://openalex.org/W2429180991
    Crossref OpenAlex OpenCitations
  62. Penelope Strauss , Angus Cook , Vanessa Watson , Sam Winter , Andrew Whitehouse , Nicole Albrecht et al. (2021). Mental health difficulties among trans and gender diverse young people with an autism spectrum disorder (ASD): Findings from Trans Pathways . Journal of Psychiatric Research, 137, 360-367. Elsevier BV.
    Type: Article DOI: 10.1016/j.jpsychires.2021.03.005 OpenAlex: https://openalex.org/W3138305906
    Crossref OpenAlex OpenCitations
  63. Li Cai , Scott Monroe (2014). A New Statistic for Evaluating Item Response Theory Models for Ordinal Data. CRESST Report 839. National Center for Research on Evaluation, Standards, and Student Testing.
    Type: Article OpenAlex: https://openalex.org/W2468619180
    OpenAlex
  64. Laura Graham Holmes , Casey J. Zampella , Caitlin Clements , Joseph P. McCleery , Brenna B. Maddox , Julia Parish‐Morris et al. (2020). A Lifespan Approach to Patient‐Reported Outcomes and Quality of Life for People on the Autism Spectrum . Autism Research, 13(6), 970-987. Wiley.
    Type: Article DOI: 10.1002/aur.2275 OpenAlex: https://openalex.org/W3012300037
    Crossref OpenAlex OpenCitations
  65. Michael D. Toland , Isabella Sulis , Francesca Giambona , Mariano Porcu , Jonathan M. Campbell (2017). Introduction to bifactor polytomous item response theory analysis . Journal of School Psychology, 60, 41-63. Elsevier BV.
    Type: Article DOI: 10.1016/j.jsp.2016.11.001 OpenAlex: https://openalex.org/W2564615627
    Crossref OpenAlex OpenCitations
  67. R Core Team (2026). R: A Language and Environment for Statistical Computing . R Foundation for Statistical Computing.
    Type: Article DOI: 10.32614/r.manuals OpenAlex: https://openalex.org/W2582743722
    OpenAlex
  68. Caroline Kassee , Stephanie Babinski , Ami Tint , Yona Lunsky , Hilary K. Brown , Stephanie H. Ameis et al. (2020). Physical health of autistic girls and women: a scoping review . Molecular Autism, 11(1), 84-84. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1186/s13229-020-00380-z OpenAlex: https://openalex.org/W3094995723
    Crossref OpenAlex OpenCitations
  70. Helen McConachie , David Mason , Jeremy R. Parr , Deborah Garland , Colin Wilson , Jacqui Rodgers (2018). Enhancing the Validity of a Quality of Life Measure for Autistic People . Journal of Autism and Developmental Disorders, 48(5), 1596-1611. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-017-3402-z OpenAlex: https://openalex.org/W2768942203
    Crossref OpenAlex OpenCitations
  71. (s. d.). Kurz A. S. (2019, February 10). Bayesian robust correlations with brms (and why you should love Student’s t). A. Solomon Kurz. https://solomonkurz.netlify.app/post/2019-02-10-bayesian-robust-correlations-with-brms-and-why-you-should-love-student-s-t/
    Type: Autre
    Crossref
  72. Dominique Makowski , Mattan Ben-Shachar , Daniel Lüdecke (2019). bayestestR: Describing Effects and their Uncertainty, Existence and Significance within the Bayesian Framework . Journal of Open Source Software, 4(40), 1541. The Open Journal.
    Type: Article DOI: 10.21105/joss.01541 OpenAlex: https://openalex.org/W2968619018
    Crossref OpenAlex OpenCitations
  73. David A. Williams (2018). Phenotypic features of central sensitization . Journal of Applied Biobehavioral Research, 23(2). Wiley.
    Type: Article DOI: 10.1111/jabr.12135 OpenAlex: https://openalex.org/W2810178235
    OpenAlex
  74. Jennifer Murphy , Freya Prentice , Reubs Walsh , Caroline Catmur , Geoffrey Bird (2020). Autism and transgender identity: Implications for depression and anxiety . Research in Autism Spectrum Disorders, 69, 101466. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2019.101466 OpenAlex: https://openalex.org/W2979173006
    Crossref OpenAlex OpenCitations
  75. Ginny Russell , Sal Stapley , Tamsin Newlove‐Delgado , Andrew Salmon , Rhianna White , Fiona Warren et al. (2022). Time trends in autism diagnosis over 20 years: a UK population‐based cohort study . Journal of Child Psychology and Psychiatry, 63(6), 674-682. Wiley.
    Type: Article DOI: 10.1111/jcpp.13505 OpenAlex: https://openalex.org/W3193769374
    Crossref OpenAlex OpenCitations
  77. Maj‐Britt Posserud , Berit Skretting Solberg , Anders Engeland , Jan Haavik , Kari Klungsøyr (2021). Male to female ratios in autism spectrum disorders by age, intellectual disability and attention‐deficit/hyperactivity disorder . Acta Psychiatrica Scandinavica, 144(6), 635-646. Wiley.
    Type: Article DOI: 10.1111/acps.13368 OpenAlex: https://openalex.org/W3196877855
    Crossref OpenAlex OpenCitations
  78. PROMIS Health Organization & PROMIS Cooperative Group. (2013). PROMIS® instrument development and validation scientific standards, Version 2. 0. http://www.nihpromis.org/Documents/PROMISStandards_Vers2 . 0_Final.pdf
    Type: Autre
    Crossref
  80. R Core Team. (2021). R: A language and environment for statistical computing (4. 1. 0) [Computer software]. R Foundation for Statistical Computing. https://www . R-project.org/
    Type: Autre
    Crossref
  81. Elizabeth M Weir , Carrie Allison , Varun Warrier , Simon Baron-Cohen (2021). Increased prevalence of non-communicable physical health conditions among autistic adults . Autism, 25(3), 681-694. SAGE Publications.
    Type: Article DOI: 10.1177/1362361320953652 OpenAlex: https://openalex.org/W3084014316
    Crossref OpenAlex OpenCitations
  82. Smith W. G. (2008). Does gender influence online survey participation? A record-linkage analysis of university faculty online survey response behavior. In Online submission (ED 501717). https://eric.ed.gov/?id=ED501717
    Type: Autre
    Crossref
  83. Williams Z. J. (2021). irt_extra: Additional functions to supplement the mirt R package [R]. https://www.researchgate.net/publication/340846037_irt_extra_Additional_Functions_to_Supplement_the_mirt_R_Package
    Type: Autre
    Crossref