“Tell Me What My Job Is”: A Qualitative Exploration of the Experiences of Autistic Academic Staff Working in Higher Education in Ireland
Kenny, N., Doyle, J. K., O'Neill, C., Doyle, J. K., O'Kelly, J., Earley, F., & Neilson, S. (2026). “Tell Me What My Job Is”: A Qualitative Exploration of the Experiences of Autistic Academic Staff Working in Higher Education in Ireland. Autism, 30(7), 1724-1737. https://doi.org/10.1177/13623613261440799
This publication is integrated into AutiHub through:
Authors
Abstract
This co-produced study explores the experiences of autistic staff working in higher education in Ireland, a group largely overlooked in existing research. While much attention has been given to autistic students, little research has explored how autistic academics navigate their professional roles. This study investigates the challenges and strengths autistic staff encounter within academic environments. Eleven autistic participants took part in semi-structured interviews, conducted flexibly to respect individual preferences and communication needs. Data were analysed using the Reflexive Thematic Analysis. Four key themes emerged: (1) Discovering being autistic, (2) Role ambiguity and institutional invisibility, (3) Stress, burnout, and workplace unpredictability, and (4) Autistic strengths. Participants described strengths such as hyper-focus, problem-solving, and deep commitment to teaching while also highlighting barriers such as unclear expectations, a lack of visibility, and high emotional labour. The findings underscore the need for more inclusive institutional practices that reduce the pressure to mask and protect against burnout. Supporting autistic staff through affirming environments not only enables individuals to thrive but also enriches the wider educational community by fostering diverse approaches to teaching, learning, and communication. Lay Abstract This study explores the experiences of autistic people who work as academic staff in universities. Autistic staff often face challenges such as unclear job expectations, misunderstandings from colleagues, and barriers to being open about their identity. Through interviews, we learned that many autistic academics care deeply about their work but feel unsupported in environments that reward constant social interaction, speed, and competition. Despite this, participants found creative ways to make space for themselves and others. This research helps us understand what autistic staff need to thrive in universities and shows why workplaces should value different ways of thinking, working, and communicating. Making these changes could benefit not only autistic staff but the wider academic community as well.
Bibliography cited by this reference
Cited references are imported from external metadata sources when they are available. The list may be partial.
Bibliography inclusion overview
These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:31.
-
Damian Milton *Autistic author. Learn more… (2012). On the ontological status of autism: the ‘double empathy problem’ . Disability & Society, 27(6), 883-887. Informa UK Limited.
-
Alexa Baird (2020). Teaching While Autistic: Constructions of Disability, Performativity, and Identity . Ought: The Journal of Autistic Culture, 2(1). Grand Valley State University Libraries - DIGITAL COMMONS JOURNALS.Crossref OpenAlex
-
Ilan H. Meyer (1995). Minority Stress and Mental Health in Gay Men . Journal of Health and Social Behavior, 36(1), 38. SAGE Publications.Crossref OpenAlex
-
Monique Botha *Autistic author. Learn more… , David M. Frost (2020). Extending the Minority Stress Model to Understand Mental Health Problems Experienced by the Autistic Population . Society and Mental Health, 10(1), 20-34. SAGE Publications.
-
Rachel Grove , Ilona Roth , Rosa A. Hoekstra (2016). The motivation for special interests in individuals with autism and controls: Development and validation of the special interest motivation scale . Autism Research, 9(6), 677-688. Wiley.Crossref OpenAlex
-
Braun V. Clarke V. (2021). Thematic analysis: A practical guide. SAGE Publications.Type: OtherCrossref
-
Laura Foran Lewis (2017). A Mixed Methods Study of Barriers to Formal Diagnosis of Autism Spectrum Disorder in Adults . Journal of Autism and Developmental Disorders, 47(8), 2410-2424. Springer Science and Business Media LLC.Crossref OpenAlex
-
Nicole Brown , Jennifer Leigh (2018). Ableism in academia: where are the disabled and ill academics? Disability & Society, 33(6), 985-989. Informa UK Limited.Crossref OpenAlex
-
Megan Cherewick , Michael Matergia (2024). Neurodiversity in Practice: a Conceptual Model of Autistic Strengths and Potential Mechanisms of Change to Support Positive Mental Health and Wellbeing in Autistic Children and Adolescents . Advances in Neurodevelopmental Disorders, 8(3), 408-422. Springer Science and Business Media LLC.Crossref OpenAlex
-
Sue Fletcher‐Watson , Jonathan Adams *Autistic author. Learn more… , Kabie Brook *Autistic author. Learn more… , Tony Charman , Laura Crane , James Cusack *Autistic author. Learn more… et al. (2019). Making the future together: Shaping autism research through meaningful participation . Autism, 23(4), 943-953. SAGE Publications.
-
Mary Doherty *Autistic author. Learn more… , Sue McCowan *Autistic author. Learn more… , Sebastian Charles Keith Shaw *Autistic author. Learn more… (2023). Autistic SPACE: a novel framework for meeting the needs of autistic people in healthcare settings . British Journal of Hospital Medicine, 84(4), 1-9. IMR Press.
-
Christina Nicolaidis , Dora M Raymaker *Autistic author. Learn more… , Steven K. Kapp *Autistic author. Learn more… , Amelia E.V. Baggs , Elesia Ashkenazy *Autistic author. Learn more… , Katherine McDonald et al. (2019). The AASPIRE practice-based guidelines for the inclusion of autistic adults in research as co-researchers and study participants . Autism, 23(8), 2007-2019. SAGE Publications.
-
Crossref OpenAlex
-
Alexandra Leedham , Andrew R. Thompson , Richard Smith , Megan Freeth (2020). ‘I was exhausted trying to figure it out’: The experiences of females receiving an autism diagnosis in middle to late adulthood . Autism, 24(1), 135-146. SAGE Publications.Crossref OpenAlex
-
Miranda Fricker (2007). Epistemic Injustice . Oxford University PressOxford.Type: Book DOI: 10.1093/acprof:oso/9780198237907.001.0001 OpenAlex: https://openalex.org/W4252633962Crossref OpenAlex
-
Sandy Thompson-Hodgetts , Chantal Labonte , Rinita Mazumder , Shanon Phelan (2020). Helpful or harmful? A scoping review of perceptions and outcomes of autism diagnostic disclosure to others . Research in Autism Spectrum Disorders, 77, 101598. Elsevier BV.Crossref OpenAlex
-
Laura Gormley , Abbie Feeney , Sinéad McNally (2024). A scoping review of research trends and future directions for research on the experiences of autistic students and staff in post-secondary education . European Journal of Higher Education, 14(4), 554-573. Informa UK Limited.Crossref OpenAlex
-
Nick Walker *Autistic author. Learn more… , Dora M Raymaker *Autistic author. Learn more… (2021). Toward a Neuroqueer Future: An Interview with Nick Walker . Autism in Adulthood, 3(1), 5-10. SAGE Publications.Crossref OpenAlex
-
Eloise Stark , Dorota Ali , Annalise Ayre , Naomi Schneider , Sophia Parveen , Keith Marais et al. (2021). Coproduction with Autistic Adults: Reflections from the Authentistic Research Collective . Autism in Adulthood, 3(2), 195-203. SAGE Publications.Crossref OpenAlex
-
Davida Hartman , Tara O’Donnell-Killen , Jessica K. Doyle *Autistic author. Learn more… , Dr Maeve Kavanagh , Dr Anna Day , Dr Juliana Azevedo (2023). The Adult Autism Assessment Handbook . Hodder & Stoughton Ltd: An Hachette Company.Crossref OpenAlex
-
Anna Melissa Romualdez , Brett Heasman , Zachary Walker , Jade Davies , Anna Remington (2021). “People Might Understand Me Better”: Diagnostic Disclosure Experiences of Autistic Individuals in the Workplace . Autism in Adulthood, 3(2), 157-167. SAGE Publications.Crossref OpenAlex
-
Valerie Helsen , Paul Enzlin , Luk Gijs (2022). Mental health in transgender adults: The role of proximal minority stress, community connectedness, and gender nonconformity. Psychology of Sexual Orientation and Gender Diversity, 9(4), 466-477. American Psychological Association (APA).Crossref OpenAlex
-
Amy Pearson *Autistic author. Learn more… , Kieran Rose *Autistic author. Learn more… (2021). A Conceptual Analysis of Autistic Masking: Understanding the Narrative of Stigma and the Illusion of Choice . Autism in Adulthood, 3(1), 52-60. SAGE Publications.
-
Julianne M. Higgins *Autistic author. Learn more… , Samuel R. C. Arnold , Janelle Weise , Elizabeth Pellicano , Julian N Trollor (2021). Defining autistic burnout through experts by lived experience: Grounded Delphi method investigating #AutisticBurnout . Autism, 25(8), 2356-2369. SAGE Publications.
-
Laura Hull , Lily Levy , Meng-Chuan Lai , K. V. Petrides , Simon Baron-Cohen , Carrie Allison et al. (2021). Is social camouflaging associated with anxiety and depression in autistic adults? Molecular Autism, 12(1), 13-13. Springer Science and Business Media LLC.Crossref OpenAlex
-
Yunhe Huang , Ye In Hwang , Samuel R. C. Arnold , Lauren P. Lawson , Amanda L. Richdale , Julian N Trollor (2022). Autistic Adults’ Experiences of Diagnosis Disclosure . Journal of Autism and Developmental Disorders, 52(12), 5301-5307. Springer Science and Business Media LLC.Crossref OpenAlex
-
Rebecca Wood , Francesca Happé (2023). What are the views and experiences of autistic teachers? Findings from an online survey in the UK . Disability & Society, 38(1), 47-72. Informa UK Limited.Crossref OpenAlex
-
Margaret Janse van Rensburg , Bridget Liang (2025). Improving Autistic Students' Experiences in Higher Education: Developing a Community Framework for Individual Autistic Student and Autistic Community Flourishing . Autism in Adulthood, 7(2), 141-154. SAGE Publications.Crossref OpenAlex
-
Sandra Thom-Jones *Autistic author. Learn more… (2023). Advice for autistic people considering a career in academia . Autism, 27(7), 2187-2192. SAGE Publications.
-
Sandra Thom-Jones *Autistic author. Learn more… (2023). Autistics working in academia: What are the barriers and facilitators? Autism, 27(3), 822-831. SAGE Publications.
-
Geraldine Scanlon , Jessica K. Doyle *Autistic author. Learn more… (2021). Transition stories: Voices of school leavers with intellectual disabilities . British Journal of Learning Disabilities, 49(4), 456-466. Wiley.Crossref OpenAlex
-
Neil Kenny , Jessica K. Doyle *Autistic author. Learn more… (2024). A phenomenological exploration of the lived experience of adults experiencing pathological demand avoidance . Neurodiversity, 2. SAGE Publications.Crossref OpenAlex
-
Jasmine Phung , Melanie Penner , Clémentine Pirlot , Christie Welch (2021). What I Wish You Knew: Insights on Burnout, Inertia, Meltdown, and Shutdown From Autistic Youth . Frontiers in Psychology, 12, 741421-741421. Frontiers Media SA.Crossref OpenAlex
-
Neil Kenny , Jessica K. Doyle *Autistic author. Learn more… , Finbar Horgan (2023). Transformative Inclusion: Differentiating Qualitative Research Methods to Support Participation for Individuals With Complex Communication or Cognitive Profiles . International Journal of Qualitative Methods, 22. SAGE Publications.Crossref OpenAlex
-
Marianthi Kourti *Autistic author. Learn more… (2021). A Critical Realist Approach on Autism: Ontological and Epistemological Implications for Knowledge Production in Autism Research . Frontiers in Psychology, 12, 6051. Frontiers Media SA.
-
Neil Kenny , Stuart Neilson , Jane O'Kelly , Jessica K. Doyle *Autistic author. Learn more… , Joan McDonald (2024). Exploring the Paradigm of Co-Produced Research Within the Context of the COVID-19 Pandemic . In International Perspectives on Inclusive Education (pp. 149-161). Emerald Publishing Limited.
-
McCoy S. Ye K. Carroll E. (2025). Paths tracks gaps and cliffs: The post-school transitions of students with special educational needs. National Council for Special Education. https://www.esri.ie/publications/paths-tracks-gaps-and-cliffs-the-post-school-transitions-of-students-with-specialType: OtherCrossref
-
Elaine McGoldrick , Aoife Munroe , Rachel Ferguson , Carina Byrne , Mary Doherty *Autistic author. Learn more… (2025). Autistic SPACE for Inclusive Education . Neurodiversity, 3. SAGE Publications.
-
Stuart Neilson , Jane O'Kelly , Jessica K. Doyle *Autistic author. Learn more… , Neil Kenny , Claire O'Neill , Sophie Butler et al. (2025). “...Fallen through the cracks...”: A Co-Produced Qualitative Exploration of Autistic Student Experiences at an Irish Higher Education Institution . Autism in Adulthood, 7(4), 505-516. SAGE Publications.
-
Claire O'Neill , Neil Kenny (2023). “I Saw Things through a Different Lens…”: An Interpretative Phenomenological Study of the Experiences of Autistic Teachers in the Irish Education System . Education Sciences, 13(7), 670. MDPI AG.Crossref OpenAlex
-
O’Kelly J. Kenny N. Butler S. Scully C. (2024). Future expectations: A qualitative exploration of the perceptions and expectations of autistic adults regarding the IMPACT programme. Dublin City University. https://drive.google.com/file/d/1B8M0TvPkP7_9_5nIfjK01J5dxzOaJVZA/viewType: OtherCrossref
-
Billy Wong (2024). Exploring the spatial belonging of students in higher education . Studies in Higher Education, 49(3), 546-558. Informa UK Limited.Crossref OpenAlex
-
Elizabeth Pellicano , Melanie Heyworth *Autistic author. Learn more… (2023). The Foundations of Autistic Flourishing . Current Psychiatry Reports, 25(9), 419-427. Springer Science and Business Media LLC.
-
Prendeville P. (2025). Implementing organizational change using SPACE to support autistic and neurodivergent adults with intellectual disability . Implementing organizational change using SPACE to support autistic and neurodivergent adults with intellectual disability.Type: OtherCrossref
-
Kelly A. Shaw , Susan Williams , Mary E. Patrick , Miguel Valencia-Prado , Maureen S. Durkin , Ellen M. Howerton et al. (2025). Prevalence and Early Identification of Autism Spectrum Disorder Among Children Aged 4 and 8 Years — Autism and Developmental Disabilities Monitoring Network, 16 Sites, United States, 2022 . MMWR. Surveillance Summaries, 74(2), 1-22. Centers for Disease Control MMWR Office.Crossref OpenAlex
-
Sinclair J. (1993). Don’t mourn for us. Autism Network International. https://www.autreat.com/dont_mourn.htmlType: OtherCrossref
-
Sparkes I. (2022). Outcomes for disabled people in the UK: 2021 . Outcomes for disabled people in the UK: 2021.Type: OtherCrossref
-
Thewissen S. (2021). Disability, work and inclusion in Ireland: Engaging and supporting employers . Disability, work and inclusion in Ireland: Engaging and supporting employers.Type: OtherCrossref
-
Walker N. (2021). Neuroqueer heresies: Notes on the neurodiversity paradigm, Autistic empowerment, and postnormal possibilities . Neuroqueer heresies: Notes on the neurodiversity paradigm, Autistic empowerment, and postnormal possibilities.Type: OtherCrossref