Exploring the Paradigm of Co-Produced Research Within the Context of the COVID-19 Pandemic

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

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Kenny, N., Neilson, S., O'Kelly, J., Doyle, J. K., & McDonald, J. (2024). Exploring the Paradigm of Co-Produced Research Within the Context of the COVID-19 Pandemic. In International Perspectives on Inclusive Education (pp. 149-161). Emerald Publishing Limited. https://doi.org/10.1108/s1479-363620240000023012

Publication date: 20 May 2024 Added to AutiHub: 12 Aug 2026 Type: Book chapter Article language: English
Publisher source (DOI) Full text OpenAlex source

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Authors

Publication authors
5
Publication authors identified as autistic
1 / 5 (20.0%)
  1. Neil Kenny
  2. Stuart Neilson
  3. Jane O'Kelly
  4. Jessica K. Doyle *
  5. Joan McDonald

Abstract

There has been a paradigm shift within research exploring autistic experience in recent decades towards greater participation, agency and voice for autistic researchers and the autistic community more generally (Fletcher-Watson et al., 2019). This approach has shown a greater focus on research oriented towards the priorities or preferences of the autistic community (Fletcher-Watson & Happé, 2019; Pellicano et al., 2014), curtails concerns regarding epistemic injustice and has influenced understandings of autistic ontology and neurology. Co-produced research, characterised by the inclusion of diverse stakeholders, builds trust between participants. Nonetheless, co-production in research requires careful planning and support (Stark et al., 2021), sometimes proving ‘turbulent’ and ‘challenging’ (Worsley et al., 2021). This chapter explores the experiences and reflections of a team of autistic and non-autistic researchers conducting co-produced research amid the global COVID-19 pandemic. With research practices and systems altered due to increased remote work, online communication and limited in-person interaction, this topic is especially pertinent. With the increasing emphasis on involving members of the autistic community in research at all levels of development, the impact of the pandemic on how participatory research is carried out may be complex. This chapter has implications for planning and conducting co-produced research in our new reality, considering both the opportunities and obstacles it presents.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 08:07.

Cited references
46
With a DOI
35
Without a DOI, from raw bibliography text
11
15 / 46 (32.6%) cited references include at least one author identified as autistic.
References with data to complete
6 / 46 (13.0%)
References with detected author names
40 / 46 (87.0%)
Without detected author names
6
Without a structured title
0
Without a stable identifier
9
References with raw author names still to review
0
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
140
From DOI or external metadata
140
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
0
72 / 140 (51.4%) names are linked to an author already present in AutiHub. 68 / 140 (48.6%) names are not yet linked.
Names linked to a person identified as autistic
26 / 140 (18.6%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 26 / 72 (36.1%). Distinct people identified as autistic: 20 / 121 (16.5%).
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