Exploring the Paradigm of Co-Produced Research Within the Context of the COVID-19 Pandemic

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Kenny, N., Neilson, S., O'Kelly, J., Doyle, J. K., & McDonald, J. (2024). Exploring the Paradigm of Co-Produced Research Within the Context of the COVID-19 Pandemic. In International Perspectives on Inclusive Education (pp. 149-161). Emerald Publishing Limited. https://doi.org/10.1108/s1479-363620240000023012

Publication date: 20 May 2024 Added to AutiHub: 12 Aug 2026 Type: Book chapter Article language: English
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Authors

Publication authors
5
Publication authors identified as autistic
1 / 5 (20.0%)
  1. Neil Kenny
  2. Stuart Neilson
  3. Jane O'Kelly
  4. Jessica K. Doyle *
  5. Joan McDonald

Abstract

There has been a paradigm shift within research exploring autistic experience in recent decades towards greater participation, agency and voice for autistic researchers and the autistic community more generally (Fletcher-Watson et al., 2019). This approach has shown a greater focus on research oriented towards the priorities or preferences of the autistic community (Fletcher-Watson & Happé, 2019; Pellicano et al., 2014), curtails concerns regarding epistemic injustice and has influenced understandings of autistic ontology and neurology. Co-produced research, characterised by the inclusion of diverse stakeholders, builds trust between participants. Nonetheless, co-production in research requires careful planning and support (Stark et al., 2021), sometimes proving ‘turbulent’ and ‘challenging’ (Worsley et al., 2021). This chapter explores the experiences and reflections of a team of autistic and non-autistic researchers conducting co-produced research amid the global COVID-19 pandemic. With research practices and systems altered due to increased remote work, online communication and limited in-person interaction, this topic is especially pertinent. With the increasing emphasis on involving members of the autistic community in research at all levels of development, the impact of the pandemic on how participatory research is carried out may be complex. This chapter has implications for planning and conducting co-produced research in our new reality, considering both the opportunities and obstacles it presents.

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Cited references
46
Total cited references integrated for this publication.
Cited references with an identified autistic author
13 / 46 (28.3%)
Cited author occurrences identified as autistic
21 / 131 (16.0%)
Among occurrences linked to AutiHub author records: 21 / 60 (35.0%). Distinct cited authors identified as autistic: 16 / 113 (14.2%).
Cited author occurrences linked to AutiHub author records
60 / 131 (45.8%)
Distinct linked cited authors: 42 / 113 (37.2%)
Linked cited-author occurrences not identified as autistic
39 / 60 (65.0%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 39 / 131 (29.8%). Distinct linked cited authors not identified as autistic: 26 / 42 (61.9%).
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