Autistic SPACE: a novel framework for meeting the needs of autistic people in healthcare settings

This publication is included in the Autistic Autism Scholarship Project. three authors of this publication are identified as autistic in the project.

About the autistic author marker

Doherty, M., McCowan, S., & Shaw, S. C. (2023). Autistic SPACE: a novel framework for meeting the needs of autistic people in healthcare settings. British Journal of Hospital Medicine, 84(4), 1-9. https://doi.org/10.12968/hmed.2023.0006

Publication date: 2 Apr 2023 Added to AutiHub: 5 Jul 2026 Type: Article Article language: English

This publication is integrated into AutiHub through:

Authors

Publication authors
3
Publication authors identified as autistic
3 / 3 (100.0%)

Abstract

Autistic people experience significant health disparities and reduced life expectancy. Barriers to accessing healthcare are associated with adverse health outcomes. Autism training and healthcare professionals' knowledge about autism is variable, and heterogeneity among autistic people leads to additional educational and clinical complexities. Autism remains nebulous for many practitioners, who are unclear about communication differences, access needs or life experiences common to autistic people. Healthcare environments can be challenging for all patients but autistic people may require specific accommodations to allow equitable access. The authors have developed a simple framework which may facilitate equitable clinical services at all points of access and care, using the acronym 'SPACE'. This encompasses five core autistic needs: Sensory needs, Predictability, Acceptance, Communication and Empathy. Three additional domains are represented by physical space, processing space and emotional space. This simple yet memorable framework encompasses commonalities shared by autistic people.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 01:35.

Cited references
37
With a DOI
32
Without a DOI, from raw bibliography text
5
13 / 37 (35.1%) cited references include at least one author identified as autistic.
References with data to complete
5 / 37 (13.5%)
References with detected author names
37 / 37 (100.0%)
Without detected author names
0
Without a structured title
5
Without a stable identifier
5
References with raw author names still to review
0
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
171
From DOI or external metadata
171
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
0
85 / 171 (49.7%) names are linked to an author already present in AutiHub. 86 / 171 (50.3%) names are not yet linked.
Names linked to a person identified as autistic
31 / 171 (18.1%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 31 / 85 (36.5%). Distinct people identified as autistic: 22 / 153 (14.4%).
  1. Ousseny Zerbo , Maria L Massolo , Yinge Qian , Lisa A. Croen (2015). A Study of Physician Knowledge and Experience with Autism in Adults in a Large Integrated Healthcare System . Journal of Autism and Developmental Disorders, 45(12), 4002-4014. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  2. Ben Belek (2019). Articulating Sensory Sensitivity: From Bodies with Autism to Autistic Bodies . Medical Anthropology, 38(1), 30-43. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  3. Chloe Walsh , Sinéad Lydon , Emily O’Dowd , Paul O’Connor (2020). Barriers to Healthcare for Persons with Autism: A Systematic Review of the Literature and Development of A Taxonomy . Developmental Neurorehabilitation, 23(7), 413-430. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  4. Ru Ying Cai , Amanda Richdale , Mirko Uljarevic , Cheryl Dissanayake , Andrea C. Samson (2018). Emotion regulation in autism spectrum disorder: Where we are and where we need to go . Autism Research, 11(7), 962-978. Wiley.
    Type: Article DOI: 10.1002/aur.1968 OpenAlex: https://openalex.org/W2839700533
    Crossref OpenAlex OpenCitations
  5. Andrew McDonnell , Michael McCreadie , Richard Mills , Roy Deveau , Regine Anker , Judy Hayden (2015). The role of physiological arousal in the management of challenging behaviours in individuals with autistic spectrum disorders . Research in Developmental Disabilities, 36, 311-322. Elsevier BV.
    Crossref OpenAlex OpenCitations
  6. Pia Bradshaw , Claire Pickett , Mieke L van Driel , Katie Brooker , Anna Urbanowicz (2021). Recognising, supporting and understanding Autistic adults in general practice settings . Australian Journal of General Practice, 50(3), 126-130. The Royal Australian College of General Practitioners.
    Crossref OpenAlex OpenCitations
  7. Tatja Hirvikoski , Ellenor Mittendorfer-Rutz , Marcus Boman , Henrik Larsson , Paul Lichtenstein , Sven Bölte (2016). Premature mortality in autism spectrum disorder . British Journal of Psychiatry, 208(3), 232-238. Royal College of Psychiatrists.
    Crossref OpenAlex OpenCitations
  8. Rebecca Brewer , Federica Biotti , Caroline Catmur , Clare Press , Francesca Happé , Richard Cook et al. (2016). Can Neurotypical Individuals Read Autistic Facial Expressions? Atypical Production of Emotional Facial Expressions in Autism Spectrum Disorders . Autism Research, 9(2), 262-271. Wiley.
    Type: Article DOI: 10.1002/aur.1508 OpenAlex: https://openalex.org/W2159450620
    Crossref OpenAlex OpenCitations
  9. Eric P. Hazen , Jennifer L. Stornelli , Julia A. O’Rourke , Karmen Koesterer , Christopher J. McDougle (2014). Sensory Symptoms in Autism Spectrum Disorders . Harvard Review of Psychiatry, 22(2), 112-124. Ovid Technologies (Wolters Kluwer Health).
    Crossref OpenAlex OpenCitations
  10. Brignell A (2018). B5 Cochrane Database Syst Rev., 11.
    Type: Other
    Crossref
  11. T. Tavassoli , Lucy J Miller , Sarah A Schoen , Darci M Nielsen , Simon Baron-Cohen (2014). Sensory over-responsivity in adults with autism spectrum conditions . Autism, 18(4), 428-432. SAGE Publications.
    Crossref OpenAlex OpenCitations
  12. Rebecca A. Charlton , Timothy Entecott , Evelina Belova , Gabrielle Nwaordu (2021). “It feels like holding back something you need to say”: Autistic and Non-Autistic Adults accounts of sensory experiences and stimming . Research in Autism Spectrum Disorders, 89, 101864. Elsevier BV.
    Crossref OpenAlex OpenCitations
  13. Susan Young , Jack Hollingdale , Michael Absoud , Patrick Bolton , Polly Branney , William Colley et al. (2020). Guidance for identification and treatment of individuals with attention deficit/hyperactivity disorder and autism spectrum disorder based upon expert consensus . BMC Medicine, 18(1), 1. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  14. Clare Cummins , Elizabeth Pellicano , Laura Crane (2020). Autistic adults’ views of their communication skills and needs . International Journal of Language & Communication Disorders, 55(5), 678-689. Wiley.
    Crossref OpenAlex OpenCitations
  15. Silvana Unigwe , Carole Buckley , Laura Crane , Lorcan Kenny , Anna Remington , Elizabeth Pellicano (2017). GPs’ confidence in caring for their patients on the autism spectrum: an online self-report study . British Journal of General Practice, 67(659), e445-e452. Royal College of General Practitioners.
    Crossref OpenAlex OpenCitations
  16. Mary Doherty *Autistic author. Learn more… , Clair Haydon , Ian A Davidson (2021). Recognising autism in healthcare . British Journal of Hospital Medicine, 82(12), 1-7. IMR Press.
    AutiHub · Autistic Autism Scholarship Project Crossref OpenAlex OpenCitations
  17. Sue Fletcher-Watson , Geoffrey Bird (2020). Autism and empathy: What are the real links? Autism, 24(1), 3-6. SAGE Publications.
    Crossref OpenAlex OpenCitations
  18. Julio Frenk , Lincoln C Chen , Latha Chandran , Elizabeth O H Groff , Roderick King , Afaf Meleis et al. (2022). Challenges and opportunities for educating health professionals after the COVID-19 pandemic . The Lancet, 400(10362), 1539-1556. Elsevier BV.
    Crossref OpenAlex OpenCitations
  19. Daniela Smirni , Pietro Smirni , Marco Carotenuto , Lucia Parisi , Giuseppe Quatrosi , Michele Roccella (2019). Noli Me Tangere: Social Touch, Tactile Defensiveness, and Communication in Neurodevelopmental Disorders . Brain Sciences, 9(12), 368. MDPI AG.
    Crossref OpenAlex OpenCitations
  20. Lyons-Warren AM (2022). B19 Int J Mol Sci., 23(21).
    Type: Other
    Crossref
  21. MacLennan K (2022). B20 Autism Adulthood.
    Type: Other
    Crossref
  22. Carmelo Mario Vicario , Michael A. Nitsche , Mohammad A. Salehinejad , Laura Avanzino , Gabriella Martino (2020). Time Processing, Interoception, and Insula Activation: A Mini-Review on Clinical Disorders . Frontiers in Psychology, 11, 1893. Frontiers Media SA.
    Crossref OpenAlex OpenCitations
  23. Maria Strömberg , Lina Liman , Peter Bang , Kajsa Igelström (2022). Experiences of Sensory Overload and Communication Barriers by Autistic Adults in Health Care Settings . Autism in Adulthood, 4(1), 66-75. SAGE Publications.
    Crossref OpenAlex OpenCitations
  24. Phung J (2021). B26 Front Psychol., 4981.
    Type: Other
    Crossref
  25. Shaw SCK (2022). B29 Br J Gen Pract Open, 6(1).
    Type: Other
    Crossref