Aménagement par la personnalisation : garantir à l'étudiant autiste une chance égale de réussir lors de la soutenance orale de doctorat

Titre original en anglais : Accommodation through personalisation: ensuring the autistic student has an equal opportunity for success in the PhD viva voce

Sandland, B., MacLeod, A., Hall, M. N., & Chown, N. (2023). Accommodation through personalisation: ensuring the autistic student has an equal opportunity for success in the PhD viva voce. Journal of Further and Higher Education, 47(10), 1404-1419. https://doi.org/10.1080/0309877x.2023.2250740

Date de publication: 07/09/2023 Ajout dans AutiHub: 05/07/2026 Type: Article Langue de l’article: Anglais

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
4
Auteur·ices de la publication identifié·es comme autistes
1 / 4 (25,0 %)

Résumé

Bien que la soutenance orale soit une composante essentielle de tous les doctorats et autres diplômes de doctorat dans les universités britanniques, peu de recherches portent sur leur accessibilité pour les étudiants autistes, ou sur le processus de leur adaptation aux besoins individuels des étudiants. Les voix des étudiants autistes au sujet de la soutenance orale sont presque entièrement absentes de la littérature. Cet article est le premier à employer une étude de cas ethnographique collaborative pour explorer l'expérience de la soutenance orale de doctorat d'un étudiant autiste, directement depuis sa perspective et depuis les perspectives d'universitaires non autistes au centre du processus. Les expériences que nous partageons mettent en évidence les limites des plans d'« aménagement raisonnable », s'ils n'offrent qu'un soutien générique fondé sur une étiquette diagnostique, plutôt que de prendre en compte les besoins individuels, ainsi que l'importance de reconnaître le rôle unique que la soutenance orale joue au sein des études doctorales. Nous présentons un document de discussion sur les « aménagements raisonnables », afin de faciliter des discussions centrées sur l'étudiant autiste et de garantir que le processus de soutenance orale soit équitable et accessible. Nous affirmons en outre que les aménagements devraient être officiellement consignés dans le rapport d'examen quant à leur utilisation et à leur impact.

Despite the viva being an essential component of all PhD and other doctoral qualifications in UK universities, there is little research into their accessibility for autistic students, or the process of adjusting them to individual students' needs. Autistic student voices about the viva are almost completely absent from the literature. This paper is the first to employ a collaborative, ethnographical case study to explore the doctoral viva voce experience of an autistic student, directly from their perspective and from the perspectives of non-autistic academics central to the process. The experiences we share highlight the limitations of 'reasonable accommodation' plans, if they offer only generic support based on a diagnostic label, rather than taking account of the individual needs, and the importance of recognising the unique role that the viva voce holds within doctoral studies. We present a 'reasonable accommodations' discussion document, to facilitate autistic student-centred discussions and ensure the viva process is fair and accessible. We further assert that accommodations should be formally noted within the examination report as to their use and impact.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
68
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
6 / 68 (8,8 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
7 / 141 (5,0 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 7 / 47 (14,9 %). Auteurices cité·es distinct·es identifié·es comme autistes : 4 / 133 (3,0 %).
Occurrences citées rattachées à la base AutiHub
47 / 141 (33,3 %)
Auteurices cité·es distinct·es rattaché·es : 40 / 133 (30,1 %)
Occurrences rattachées, non identifiées comme autistes
40 / 47 (85,1 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 40 / 141 (28,4 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 36 / 40 (90,0 %).
  1. Chris Park (2003). Levelling the playing field: towards best practice in the doctoral viva. Higher Education Review, 36(1), 47.
    Type: Article OpenAlex: https://openalex.org/W95315403
    Crossref OpenAlex
  2. Amy L. Accardo (2017). College-bound young adults with ASD: Self-reported factors promoting and inhibiting success . College of Education Faculty Scholarship, 4(1), 9.
    Type: Article OpenAlex: https://openalex.org/W2782829328
    Crossref OpenAlex
  3. Jacqueline H. Watts (2012). Preparing doctoral candidates for the viva: issues for students and supervisors . Journal of Further and Higher Education, 36(3), 371-381. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  4. Great Britain. Comptroller (2009). Supporting people with autism through adulthood . Medical Entomology and Zoology.
    Type: Article OpenAlex: https://openalex.org/W595516635
    OpenAlex
  5. Adelman C. (1980). Towards a Science of the Singular: Essays about Case Study in Educational Research and Evaluation . Towards a Science of the Singular: Essays about Case Study in Educational Research and Evaluation, 47.
    Type: Autre
    Crossref
  6. Dido Green , Susie Chandler , Tony Charman , Emily Simonoff , Gillian Baird (2016). Brief Report: DSM-5 Sensory Behaviours in Children With and Without an Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 46(11), 3597-3606. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  7. Helen Simons (1980). Towards a science of the singular: essays about case study in educational research and evaluation .
    Type: Livre OpenAlex: https://openalex.org/W632729393
    OpenAlex
  8. González Moreno, Andrés Santiago (2013). Diagnostic and Statistical Manual of Mental Disorders . American Psychiatric Association.
    Crossref OpenAlex OpenCitations
  9. Scott Bellini (2006). The Development of Social Anxiety in Adolescents With Autism Spectrum Disorders . Focus on Autism and Other Developmental Disabilities, 21(3), 138-145. SAGE Publications.
    Crossref OpenAlex OpenCitations
  10. Anastasia H. Anderson , Mark Carter , Jennifer Stephenson (2018). Perspectives of University Students with Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 48(3), 651-665. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  11. Carolyn Jackson , Penny Tinkler (2001). Back to Basics: A consideration of the purposes of the PhD viva . Assessment & Evaluation in Higher Education, 26(4), 355-366. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  12. Andrea MacLeod , Sue Green (2009). Beyond the books: case study of a collaborative and holistic support model for university students with Asperger syndrome . Studies in Higher Education, 34(6), 631-646. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  13. Jill Ashburner , Jenny Ziviani , Sylvia Rodger (2008). Sensory Processing and Classroom Emotional, Behavioral, and Educational Outcomes in Children With Autism Spectrum Disorder . American Journal of Occupational Therapy, 62(5), 564-573. SAGE Publications.
    Crossref OpenAlex OpenCitations
  14. Elizabeth Pellicano , Marc Stears (2020). The hidden inequalities of COVID-19 . Autism, 24(6), 1309-1310. SAGE Publications.
    Crossref OpenAlex OpenCitations
  15. Christina Boulter , Mark Freeston , Mikle South , Jacqui Rodgers (2014). Intolerance of Uncertainty as a Framework for Understanding Anxiety in Children and Adolescents with Autism Spectrum Disorders . Journal of Autism and Developmental Disorders, 44(6), 1391-1402. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  16. Luke Beardon (2017). Autism and Asperger Syndrome in Adults .
    Type: Livre OpenAlex: https://openalex.org/W2947511713
    Crossref
  17. Stephanie Pinder-Amaker (2014). Identifying the Unmet Needs of College Students on the Autism Spectrum . Harvard Review of Psychiatry, 22(2), 125-137. Ovid Technologies (Wolters Kluwer Health).
    Crossref OpenAlex OpenCitations
  18. Beardon L (2022). Avoiding Anxiety in Autistic Adults . Avoiding Anxiety in Autistic Adults.
    Type: Autre
    Crossref
  19. Debbie Spain , David Mason , Simone J Capp , Laura Stoppelbein , Susan W. White , Francesca Happé (2021). “This may be a really good opportunity to make the world a more autism friendly place”: Professionals’ perspectives on the effects of COVID-19 on autistic individuals . Research in Autism Spectrum Disorders, 83, 101747. Elsevier BV.
    Crossref OpenAlex OpenCitations
  20. Valérie Van Hees , Tinneke Moyson , Herbert Roeyers (2015). Higher Education Experiences of Students with Autism Spectrum Disorder: Challenges, Benefits and Support Needs . Journal of Autism and Developmental Disorders, 45(6), 1673-1688. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  21. Jessica A. Hobson , R. Peter Hobson , Supriya Malik , Kyratso Bargiota , Susana Caló (2013). The relation between social engagement and pretend play in autism . British Journal of Developmental Psychology, 31(1), 114-127. Wiley.
    Crossref OpenAlex OpenCitations
  22. Pennie Foster‐Fishman , Tiffeny Jimenez , Maria Valenti , Tasha Kelley (2007). Building the next generation of leaders in the disabilities movement . Disability & Society, 22(4), 341-356. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  23. Ayelet Ben-Sasson , Sharon A. Cermak , Gael I. Orsmond , Helen Tager-Flusberg , Alice S. Carter , Mary Beth Kadlec et al. (2007). Extreme Sensory Modulation Behaviors in Toddlers With Autism Spectrum Disorders . American Journal of Occupational Therapy, 61(5), 584-592. SAGE Publications.
    Crossref OpenAlex OpenCitations
  24. Nicholas Gelbar , Isaac C. Smith , Brian Reichow (2014). Systematic Review of Articles Describing Experience and Supports of Individuals with Autism Enrolled in College and University Programs . Journal of Autism and Developmental Disorders, 44(10), 2593-2601. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  25. Susan Leekam , Carmen Nieto , Sarah J. Libby , Lorna Wing , Judith Gould (2007). Describing the Sensory Abnormalities of Children and Adults with Autism . Journal of Autism and Developmental Disorders, 37(5), 894-910. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  26. Clem Adelman , David Jenkins , Stephen Kemmis (1976). Re‐thinking case study: notes from the second Cambridge Conference . Cambridge Journal of Education, 6(3), 139-150. Informa UK Limited.
    OpenAlex
  27. Beyer J. (2000). Autism and Play . Autism and Play.
    Type: Autre
    Crossref
  28. Jonathan Lake (2015). Autoethnography and reflective practice: reconstructing the doctoral thesis experience . Reflective Practice, 16(5), 677-687. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  29. Nicholas Chown *Auteur·ice autiste. En savoir plus… , Luke Beardon , Nicola Martin , Susanne D. Ellis (2016). Examining intellectual prowess, not social difference: Removing barriers from the doctoral viva for autistic candidates . Journal of Inclusive Practice in Further and Higher Education, 6(1), 22.
    Type: Article OpenAlex: https://openalex.org/W2713994475
    Crossref OpenAlex
  30. Rebecca Greenaway , Patricia Howlin (2010). Dysfunctional Attitudes and Perfectionism and Their Relationship to Anxious and Depressive Symptoms in Boys with Autism Spectrum Disorders . Journal of Autism and Developmental Disorders, 40(10), 1179-1187. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  31. Louis Cohen , Lawrence Manion , Keith Morrison (2017). Research Methods in Education . Routledge.
    Crossref OpenAlex
  32. Rachael-Anne Knight , Lucy Dipper , Madeline Cruice (2018). Viva survivors – the effect of peer-mentoring on pre-viva anxiety in early-years students . Studies in Higher Education, 43(1), 190-199. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  33. Equality Act (2010). UK Legislation . UK Legislation.
    Type: Autre
    Crossref
  34. Elizabeth Sheppard , Editha van Loon , Geoffrey Underwood , Danielle Ropar (2016). Difficulties predicting time-to-arrival in individuals with autism spectrum disorders . Research in Autism Spectrum Disorders, 28, 17-23. Elsevier BV.
    Crossref OpenAlex OpenCitations
  35. Marc Fabri (2016). Best Practice for Professionals Supporting Autistic Students within or outside HE Institutions: A Guide to Best Practice in Supporting Higher Education Students on the Autism Spectrum . Best Practice for Professionals Supporting Autistic Students within or outside HE Institutions: A Guide to Best Practice in Supporting Higher Education Students on the Autism Spectrum.
    Type: Autre
    Crossref
  36. Graham Hitchcock , David Hughes (1989). Research and the Teacher: A Qualitative Introduction to School-based Research .
    Type: Livre OpenAlex: https://openalex.org/W2093870995
    OpenAlex
  37. Shulamite A. Green , Ayelet Ben-Sasson (2010). Anxiety Disorders and Sensory Over-Responsivity in Children with Autism Spectrum Disorders: Is There a Causal Relationship? Journal of Autism and Developmental Disorders, 40(12), 1495-1504. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  38. Niamh Gallagher (2018). Continuity of care experiences following the transition from Early Intervention Teams to Primary, Community and Continuous Care Teams in Ireland: A multi-perspective case study exploring the views of caregivers’ of children with Autistic Spectrum Disorder and service providers . Research Ideas and Outcomes, 4, e28047. Pensoft Publishers.
    Crossref OpenAlex OpenCitations
  39. Richard Jenkinson , Elizabeth Milne , Andrew R. Thompson (2020). The relationship between intolerance of uncertainty and anxiety in autism: A systematic literature review and meta-analysis . Autism, 24(8), 1933-1944. SAGE Publications.
    Crossref OpenAlex OpenCitations
  40. Kristen Gillespie-Lynch , Emily Hotez , Matthew C. Zajic , Ariana Riccio , Danielle DeNigris , Bella Kofner et al. (2020). Comparing the writing skills of autistic and nonautistic university students: A collaboration with autistic university students . Autism, 24(7), 1898-1912. SAGE Publications.
    Crossref OpenAlex OpenCitations
  41. Matthew Scott , Felicity Sedgewick (2021). ‘I have more control over my life’: A qualitative exploration of challenges, opportunities, and support needs among autistic university students . Autism & Developmental Language Impairments, 6, 23969415211010419-23969415211010419. SAGE Publications.
    Crossref OpenAlex OpenCitations
  42. Mohammad-Reza Mohammadi (2011). A Comprehensive Book on Autism Spectrum Disorders . InTech.
    Type: Livre DOI: 10.5772/975 OpenAlex: https://openalex.org/W2216412207
    OpenAlex
  43. Emine Gürbüz , Mary Hanley , Deborah M. Riby (2019). University Students with Autism: The Social and Academic Experiences of University in the UK . Journal of Autism and Developmental Disorders, 49(2), 617-631. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  44. Debbie Spain , Jacqueline Sin , Kai B. Linder , Johanna McMahon , Francesca Happé (2018). Social anxiety in autism spectrum disorder: A systematic review . Research in Autism Spectrum Disorders, 52, 51-68. Elsevier BV.
    Crossref OpenAlex OpenCitations
  45. Simon Wallace (2001). Trial by ordeal or the chummy game? Six case studies in the conduct of the British PhD viva examination . International Higher Education Review, 34(1), 35.
    Type: Article OpenAlex: https://openalex.org/W2273773946
    Crossref OpenAlex
  46. Irene E. Harmsen (2019). Empathy in Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 49(10), 3939-3955. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  47. Fiona E. J. Howe , Steven D. Stagg (2016). How Sensory Experiences Affect Adolescents with an Autistic Spectrum Condition within the Classroom . Journal of Autism and Developmental Disorders, 46(5), 1656-1668. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  48. Hartley J (2002). The Viva Experience: Examining the Examiners . Higher Education Review, 35(1), 24.
    Type: Autre
    Crossref
  49. Michelle Share (2016). The PhD viva: a space for academic development . International Journal for Academic Development, 21(3), 178-193. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  50. (s. d.). HESA 2022. Higher Education Statistics Agency. He Student Data: Who’s Studying in He? https://www.hesa.ac.uk/data-and-analysis/students/whos-in-he#characteristics [Accessed 25th July 2022]
    Type: Autre
    Crossref
  51. Judith C. Lapadat (2017). Ethics in Autoethnography and Collaborative Autoethnography . Qualitative Inquiry, 23(8), 589-603. SAGE Publications.
    Crossref OpenAlex OpenCitations
  52. Hitchcock G (1995). Research and the Teacher: A Qualitative Introduction to School-Based Research . Research and the Teacher: A Qualitative Introduction to School-Based Research.
    Type: Autre
    Crossref
  53. Scott L. J. Jackson , Logan Hart , Jane Thierfeld Brown , Fred R. Volkmar (2018). Brief Report: Self-Reported Academic, Social, and Mental Health Experiences of Post-Secondary Students with Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 48(3), 643-650. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  54. Steven K. Kapp *Auteur·ice autiste. En savoir plus… (2019). How social deficit models exacerbate the medical model: autism as case in point . Autism Policy & Practice, 2(1), 3.
    Type: Article OpenAlex: https://openalex.org/W2989969085
    Crossref OpenAlex
  55. David Jackson‐Perry (2017). Autism and Asperger syndrome in adults . Disability & Society, 32(8), 1280-1282. Informa UK Limited.
    OpenAlex
  56. Kapp S.K. (2011). A Comprehensive Book on Autism Spectrum Disorders . A Comprehensive Book on Autism Spectrum Disorders, 451.
    Type: Autre
    Crossref
  57. Nicola Martin (2010). Minimising the Stress of the Phd Viva for Students with Asperger Syndrome . Good Autism Practice (GAP), 11(1), 52.
    Type: Autre
    Crossref
  58. Damian Milton *Auteur·ice autiste. En savoir plus… (2012). So what exactly is autism . Kent Academic Repository (University of Kent).
    Type: Article OpenAlex: https://openalex.org/W2977353849
    Crossref OpenAlex
  59. National Audit Office (2009). Supporting People with Autism through Adulthood . Supporting People with Autism through Adulthood.
    Type: Autre
    Crossref
  60. (s. d.). Opitz T. 2020. “Demystifying the Viva – The Staff Perspective.” [Blog] Research Bow Available at: [Accessed 1 June 2022].
    Type: Autre
    Crossref
  61. (s. d.). The Quality Assurance Agency for Higher Education. 2020. “ Doctoral Degree Characteristics.” https://www.qaa.ac.uk/docs/qaa/quality-code/doctoral-degree-characteristics-statement-2020.pdf?sfvrsn=a3c5ca81_14
    Type: Autre
    Crossref
  62. Trafford V. (2008). Stepping Stones to Achieving Your Doctorate: By Focusing on Your Viva from the Start: Focusing on Your Viva from the Start . Stepping Stones to Achieving Your Doctorate: By Focusing on Your Viva from the Start: Focusing on Your Viva from the Start.
    Type: Autre
    Crossref
  63. (s. d.). UK Council for Graduate Education 2022. UK Supervision Survey 2021 Report. https://ukcge.ac.uk/assets/resources/UK-Research-Supervision-Survey-2021-UK-Council-for-Graduate-Education.pdf
    Type: Autre
    Crossref
  64. United Nations. 2007. Convention on the Rights of Persons with Disabilities. Article 2. Ratified by the UK Government (2009). https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities.html
    Type: Autre
    Crossref
  65. Williams D. (1996). Autism: An Inside-Out Approach . Autism: An ‘Inside-Out’ Approach.
    Type: Autre
    Crossref