Classification du fonctionnement et de la déficience : élaboration des ensembles de base de la ICF pour le trouble du spectre de l'autisme

Titre original en anglais : Classification of Functioning and Impairment: The Development of ICF C ore S ets for Autism Spectrum Disorder

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Bölte, S., Schipper, E. d., Robison, J. E., Wong, V., Selb, M., Singhal, N., Vries, P. J. d., & Zwaigenbaum, L. (2013). Classification of Functioning and Impairment: The Development of ICF C ore S ets for Autism Spectrum Disorder. Autism Research, 7(1), 167-172. https://doi.org/10.1002/aur.1335

Date de publication: 03/10/2013 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
8
Auteur·ices de la publication identifié·es comme autistes
1 / 8 (12,5 %)
  1. Sven Bölte
  2. Elles de Schipper
  3. John Elder Robison *
  4. Virginia Wong
  1. Melissa Selb
  2. Nidhi Singhal
  3. Petrus J. de Vries
  4. Lonnie Zwaigenbaum

Résumé

Compte tenu de la variabilité observée dans le trouble du spectre de l'autisme (TSA), une quantification précise du fonctionnement est essentielle pour étudier les résultats et la qualité de vie des personnes concernées. La Classification internationale du fonctionnement, du handicap et de la santé (ICF) fournit un cadre complet et universellement accepté pour la description du fonctionnement lié à la santé. Les ensembles de base de la ICF sont des listes restreintes de catégories de la ICF sélectionnées afin de saisir les aspects du fonctionnement les plus pertinents lors de la description d'une personne présentant une affection spécifique. Dans cet article, les auteurs présentent le processus d'élaboration des ensembles de base de la ICF pour le TSA, dans le cadre d'une collaboration avec l'Organisation mondiale de la Santé et la branche de recherche de la ICF. La version de la ICF destinée aux enfants et aux jeunes (ICF-CY) a été dérivée de la ICF et conçue pour saisir la situation spécifique de l'enfant en développement. Comme le TSA affecte les personnes tout au long de la vie et que l'ICF-CY comprend toutes les catégories de la ICF, l'ICF-CY sera utilisée dans ce projet (« ICF(-CY) » désormais). Les catégories de l'ICF(-CY) à inclure dans les ensembles de base de la ICF pour le TSA seront déterminées lors d'une conférence de consensus sur les ensembles de base de la ICF, où les données probantes issues de quatre études préparatoires (une revue systématique, une enquête auprès d'experts, une étude qualitative auprès de patients et d'aides-soignants, et une étude clinique transversale) seront intégrées. Des ensembles de base complets et brefs de la ICF pour le TSA seront élaborés dans le but de fournir des normes utiles pour la recherche et la pratique clinique, et de générer un langage commun pour le fonctionnement et la déficience dans le TSA, dans différents domaines de la vie et tout au long de la vie.

Given the variability seen in Autism Spectrum Disorder (ASD), accurate quantification of functioning is vital to studying outcome and quality of life in affected individuals. The International Classification of Functioning, Disability and Health (ICF) provides a comprehensive, universally accepted framework for the description of health-related functioning. ICF Core Sets are shortlists of ICF categories that are selected to capture those aspects of functioning that are most relevant when describing a person with a specific condition. In this paper, the authors preview the process for developing ICF Core Sets for ASD, a collaboration with the World Health Organization and the ICF Research Branch. The ICF Children and Youth version (ICF-CY) was derived from the ICF and designed to capture the specific situation of the developing child. As ASD affects individuals throughout the life span, and the ICF-CY includes all ICF categories, the ICF-CY will be used in this project ("ICF(-CY)" from now on). The ICF(-CY) categories to be included in the ICF Core Sets for ASD will be determined at an ICF Core Set Consensus Conference, where evidence from four preparatory studies (a systematic review, an expert survey, a patient and caregiver qualitative study, and a clinical cross-sectional study) will be integrated. Comprehensive and Brief ICF Core Sets for ASD will be developed with the goal of providing useful standards for research and clinical practice and generating a common language for functioning and impairment in ASD in different areas of life and across the life span.

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Références citées
37
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
0 / 37 (0,0 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
0 / 144 (0,0 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 0 / 15 (0,0 %). Auteurices cité·es distinct·es identifié·es comme autistes : 0 / 118 (0,0 %).
Occurrences citées rattachées à la base AutiHub
15 / 144 (10,4 %)
Auteurices cité·es distinct·es rattaché·es : 12 / 118 (10,2 %)
Occurrences rattachées, non identifiées comme autistes
15 / 15 (100,0 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 15 / 144 (10,4 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 12 / 12 (100,0 %).
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