« C'est vraiment qui ils sont et ce qu'ils veulent » : perspectives du personnel sur le soutien à l'autonomie des adultes autistes présentant une déficience intellectuelle

Titre original en anglais : ‘It's Really Who They Are and What They Want’: Staff Perspectives on Supporting Autonomy for Autistic Adults With Intellectual Disabilities

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Ryan, J. G., Brown, H. M., Borden, A., Devlin, C., Kedmy, A., Lee, A., Nicholas, D., & Thompson-Hodgetts, S. (2025). ‘It's Really Who They Are and What They Want’: Staff Perspectives on Supporting Autonomy for Autistic Adults With Intellectual Disabilities. Journal of Applied Research in Intellectual Disabilities, 38(4), e70106-e70106. https://doi.org/10.1111/jar.70106

Date de publication: 01/07/2025 Ajout dans AutiHub: 05/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
8
Auteur·ices de la publication identifié·es comme autistes
2 / 8 (25,0 %)
  1. Jacalyn G. Ryan *
  2. Heather M. Brown *
  3. Anne Borden
  4. Christina Devlin
  1. Adam Kedmy
  2. Austin Lee
  3. David Nicholas
  4. Sandy Thompson-Hodgetts

Résumé

CONTEXTE : L'autonomie est une composante cruciale de l'autodétermination, mais elle est limitée chez les personnes autistes, en particulier celles présentant une déficience intellectuelle concomitante. Nous avons exploré la manière dont les professionnels soutenaient l'autonomie des personnes autistes présentant une déficience intellectuelle. MATÉRIELS ET MÉTHODES : Cette étude qualitative a utilisé une approche participative communautaire. Neuf membres du personnel travaillant au sein d'un programme de transition postsecondaire visant à soutenir de jeunes adultes autistes présentant une déficience intellectuelle ont été interrogés. Les données ont été analysées à l'aide d'une analyse thématique réflexive. RÉSULTATS : La qualité et la profondeur des relations entre le personnel et les adultes autistes présentant une déficience intellectuelle, ainsi qu'un environnement sûr et favorable, étaient essentielles au soutien de l'autonomie. Le personnel a également identifié plusieurs domaines de compétences dont les participants au programme bénéficieraient pour exercer leur autonomie, notamment l'autoreprésentation, la conscience intéroceptive, le travail avec les autres et la compréhension des choix. CONCLUSIONS : Ces informations cruciales pour soutenir l'autonomie des adultes autistes présentant une déficience intellectuelle fournissent une base pour mettre en oeuvre des changements de programme afin de promouvoir l'autodétermination. Des recommandations pour le personnel et le développement des programmes sont fournies.

BACKGROUND: Autonomy is a crucial component of self-determination, yet it is limited for Autistic individuals, especially those with co-occurring intellectual disabilities. We explored how professionals supported Autistic people with intellectual disabilities' autonomy. MATERIALS AND METHODS: This qualitative study used a community-based participatory approach. Nine staff who worked within a post-secondary transition programme to support Autistic young adults with intellectual disabilities were interviewed. Data were analysed using reflexive thematic analysis. RESULTS: The quality and depth of relationships between staff and Autistic adults with intellectual disabilities, and a safe, supportive environment, were critical to supporting autonomy. Staff also identified several skill areas that would benefit program participants to exert their autonomy, including self-advocacy, interoceptive awareness, working with others, and understanding choices. CONCLUSIONS: This crucial information for supporting autonomy for Autistic adults with intellectual disabilities provides a basis for enacting programme change to promote self-determination. Recommendations for staff and programme development are provided.

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
68
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
9 / 68 (13,2 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
27 / 257 (10,5 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 27 / 104 (26,0 %). Auteurices cité·es distinct·es identifié·es comme autistes : 20 / 217 (9,2 %).
Occurrences citées rattachées à la base AutiHub
104 / 257 (40,5 %)
Auteurices cité·es distinct·es rattaché·es : 85 / 217 (39,2 %)
Occurrences rattachées, non identifiées comme autistes
77 / 104 (74,0 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 77 / 257 (30,0 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 65 / 85 (76,5 %).
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