Critical autism studies: exploring epistemic dialogues and intersections, challenging dominant understandings of autism
O’Dell, L., Bertilsdotter Rosqvist, H., Ortega, F., Brownlow, C., & Orsini, M. (2016). Critical autism studies: exploring epistemic dialogues and intersections, challenging dominant understandings of autism. Disability & Society, 31(2), 166-179. https://doi.org/10.1080/09687599.2016.1164026
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Abstract
Critical autism studies: exploring epistemic dialogues and intersections, challenging dominant understandings of autismIn this paper we explore how our cultural contexts give rise to different kinds of knowledges of autism and examine how they are articulated, gain currency, and form the basis for policy, practice and political movements.We outline key tensions for the development of critical autism studies as an international, critical abilities approach.Our aim is not to offer a cross-cultural account of autism or to assume a coherence or universality of 'autism' as a singular diagnostic category/reality.Rather, we map the ways in which what is experienced and understood as autism, plays out in different cultural contexts, drawing on the notion of 'epistemic communities' to explore shifts in knowledge about autism, including concepts such as 'neurodiversity', and how these travel through cultural spaces.The paper explores two key epistemic tensions; the dominance of 'neuro culture' and dominant constructions of personhood and what it means to be human.
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Bibliography inclusion overview
These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:30.
-
Lennard J. Davis (1995). Enforcing Normalcy: Disability, Deafness, and the Body .Type: Book OpenAlex: https://openalex.org/W356539818Crossref OpenAlex
-
Aggege S. (2006). A vida segregada do brasileiro autista . O Globo, 18.Type: OtherCrossref
-
Michael L. Dorn (1997). Book Review: Lennard J. Davis' Enforcing Normalcy: Disability, Deafness and the Body. New York: Verso, 1995. UKnowledge (University of Kentucky), 6(1), 4. Committee on Social Theory, University of Kentucky.OpenAlex
-
González Moreno, Andrés Santiago (2013). Diagnostic and Statistical Manual of Mental Disorders . American Psychiatric Association.Crossref OpenAlex
-
Smith R. (2008). Being human: historical knowledge and the creation of human nature . Choice Reviews Online, 45(10), 45-5507-45-5507. American Library Association.Crossref OpenAlex
-
Tony Attwood (1997). Asperger's Syndrome: A Guide for Parents and Professionals .Type: Book OpenAlex: https://openalex.org/W1577621244Crossref
-
Richard Devlin , Dianne Pothier (2005). Critical disability theory: essays in philosophy, politics, policy, and law .Type: Book OpenAlex: https://openalex.org/W619320854OpenAlex
-
Crossref OpenAlex
-
(2014). Dis/ability studies: theorising disablism and ableism . Choice Reviews Online, 52(04), 52-2284-52-2284. American Library Association.OpenAlex
-
Jenny Bergenmar , Hanna Bertilsdotter Rosqvist *Autistic author. Learn more… , Ann-Sofie Lönngren (2015). Autism and the Question of the Human . Literature and Medicine, 33(1), 202-221. Project MUSE.
-
C Silverman (2012). Understanding autism: parents, doctors, and the history of a disorder . Choice Reviews Online, 49(09), 49-5096-49-5096. American Library Association.Crossref OpenAlex
-
Hanna Bertilsdotter Rosqvist *Autistic author. Learn more… , Lindsay O’Dell , Charlotte Brownlow (2014). The citizen-worker: ambivalent meanings of ‘real jobs’, ‘full citizenship’ and adulthood in the case of autistic people . The Australian Community Psychologist., 26(1), 1.Type: Article OpenAlex: https://openalex.org/W1924871924Crossref OpenAlex
-
Emma Whelan (2007). ‘No one agrees except for those of us who have it’: endometriosis patients as an epistemological community . Sociology of Health & Illness, 29(7), 957-982. Wiley.Crossref OpenAlex
-
Hanna Bertilsdotter Rosqvist *Autistic author. Learn more… , Charlotte Brownlow , Lindsay O’Dell (2015). ‘An Association for All’—Notions of the Meaning of Autistic Self‐Advocacy Politics within a Parent‐Dominated Autistic Movement . Journal of Community & Applied Social Psychology, 25(3), 219-231. Wiley.
-
Majia Holmer Nadesan (2005). Constructing Autism: Unravelling the 'Truth' and Understanding the Social .Type: Book OpenAlex: https://openalex.org/W1608527469Crossref OpenAlex
-
Block P. (2014). Disability Histories . Disability Histories, 77.Type: OtherCrossref
-
J. R. Brasic , A. Mankodi (1999). Asperger's Syndrome: A Guide for Parents and Professionals . Neurology, 52(5), 1112-1112. Ovid Technologies (Wolters Kluwer Health).OpenAlex
-
Bourke J. (2011). What It Means to Be Human: Reflections from 1791 to the Present . What It Means to Be Human: Reflections from 1791 to the Present.Type: OtherCrossref
-
Alicia A. Broderick , Ari Ne'eman *Autistic author. Learn more… (2008). Autism as metaphor: narrative and counter‐narrative . International Journal of Inclusive Education, 12(5-6), 459-476. Informa UK Limited.
-
Charlotte Brownlow , Hanna Bertilsdotter Rosqvist *Autistic author. Learn more… , Lindsay O’Dell (2015). Exploring the potential for social networking among people with autism: challenging dominant ideas of ‘friendship’ . Scandinavian Journal of Disability Research, 17(2), 188-193. Stockholm University Press.
-
Brigitte Chamak (2008). Autism and social movements: French parents’ associations and international autistic individuals’ organisations . Sociology of Health & Illness, 30(1), 76-96. Wiley.Crossref OpenAlex
-
Erica Burman (2008). Deconstructing developmental psychology, 2nd ed. Deconstructing Developmental Psychology.Type: Article OpenAlex: https://openalex.org/W2558778717Crossref OpenAlex
-
Justin H. G. Williams , A. Whiten , T. Suddendorf , D.I. Perrett (2001). Imitation, mirror neurons and autism . Neuroscience & Biobehavioral Reviews, 25(4), 287-295. Elsevier BV.Crossref OpenAlex
-
Fátima Gonçalves Cavalcante (2003). Pessoas muito especiais: a construção social do portador de deficiência e a reinvenção da família . Editora FIOCRUZ.Crossref OpenAlex
-
Craig J. Newschaffer , Laura Kresch Curran (2003). Autism: an emerging public health problem . Public Health Reports, 118(5), 393-399. SAGE Publications.OpenAlex
-
Sally Ozonoff , Bruce F. Pennington , Sally J. Rogers (1991). Executive Function Deficits in High‐Functioning Autistic Individuals: Relationship to Theory of Mind . Journal of Child Psychology and Psychiatry, 32(7), 1081-1105. Wiley.OpenAlex
-
Brigitte Chamak (2014). Autism as Viewed by French Parents . In Comprehensive Guide to Autism (pp. 2533-2543). Springer New York.Crossref OpenAlex
-
Katherine Runswick-Cole (2014). ‘Us’ and ‘them’: the limits and possibilities of a ‘politics of neurodiversity’ in neoliberal times . Disability & Society, 29(7), 1117-1129. Informa UK Limited.Crossref OpenAlex
-
B. Chamak , B. Bonniau (2013). Changes in the Diagnosis of Autism: How Parents and Professionals Act and React in France . Culture, Medicine, and Psychiatry, 37(3), 405-426. Springer Science and Business Media LLC.Crossref OpenAlex
-
Tony Charman (2006). Autism at the crossroads: determining the phenotype matters for neuroscience . Nature Neuroscience, 9(10), 1197-1197. Springer Science and Business Media LLC.Crossref OpenAlex
-
Edward Feinberg , John Vacca (2000). The Drama and Trauma of Creating Policies on Autism . Focus on Autism and Other Developmental Disabilities, 15(3), 130-137. SAGE Publications.Crossref OpenAlex
-
(n.d.). Couto M. C. V. 2012. “Política de Saúde Mental para crianças e adolescentes: especificidades e desafios da experiência brasileira (2001-2010).” Ph D. Dissertation. Institute of Psychiatry. Federal University of Rio de Janeiro.Type: OtherCrossref
-
Uta Frith , Francesca Happé (1994). Autism: beyond “theory of mind” . Cognition, 50(1-3), 115-132. Elsevier BV.Crossref OpenAlex
-
(n.d.). Curran M. 2014. “A Historical Journey through Autism Spectrum Disorders in the Wake of DSM–5: A Review of the Journal of Autism and Developmental Disorders 1971–2012.” Unpublished Master Thesis in Clinical Psychology University of South Queensland.Type: OtherCrossref
-
Katherine A. Loveland , Jocelyne Bachevalier , Deborah A. Pearson , David M. Lane (2008). Fronto-limbic functioning in children and adolescents with and without autism . Neuropsychologia, 46(1), 49-62. Elsevier BV.Type: Article DOI: 10.1016/j.neuropsychologia.2007.08.017 OpenAlex: https://openalex.org/W2037894386Crossref OpenAlex
-
J Davidson (2013). Worlds of Autism . University of Minnesota Press.Crossref OpenAlex
-
Simon Baron-Cohen (1995). Mindblindness: an essay on autism and theory of mind . Choice Reviews Online, 33(04), 33-2412-33-2412. American Library Association.OpenAlex
-
Scott DeShong (2012). On (post)human (dis)ability . Subjectivity, 5(3), 265-275. Springer Science and Business Media LLC.Crossref OpenAlex
-
Michael Orsini , Miriam Smith (2010). Social movements, knowledge and public policy: the case of autism activism in Canada and the US . Critical Policy Studies, 4(1), 38-57. Informa UK Limited.Crossref OpenAlex
-
Doan M. (2013). The Philosophy of Autism . The Philosophy of Autism, 47.Type: OtherCrossref
-
Ann Folwell , Rosemarie Garland Thomson (1998). Extraordinary Bodies: Figuring Physical Disability in American Culture and Literature . American Literature, 70(1), 187. JSTOR.OpenAlex
-
Uta Frith , Chris Frith (2010). The social brain: allowing humans to boldly go where no other species has been . Philosophical Transactions of the Royal Society B: Biological Sciences, 365(1537), 165-176. The Royal Society.Crossref OpenAlex
-
Dan Goodley , Rebecca Lawthom , Katherine Runswick-Cole (2014). Dis/ability and austerity: beyond work and slow death . Disability & Society, 29(6), 980-984. Informa UK Limited.Crossref OpenAlex
-
Clarice Rios , Barbara Costa Andrada (2015). The changing face of autism in Brazil . Culture, Medicine, and Psychiatry, 39(2), 213-234. Springer Science and Business Media LLC.Crossref OpenAlex
-
Garland Thomson R (1997). Extraordinary bodies: figuring physical disability in American culture and literature . Choice Reviews Online, 34(11), 34-6147-34-6147. American Library Association.Crossref
-
Dan Goodley (2013). Dis/entangling critical disability studies . Disability & Society, 28(5), 631-644. Informa UK Limited.Crossref OpenAlex
-
Dan Goodley (2014). Dis/ability Studies . Routledge.Crossref OpenAlex
-
Catherine Lord , Rebecca M. Jones (2012). Annual Research Review: Re‐thinking the classification of autism spectrum disorders . Journal of Child Psychology and Psychiatry, 53(5), 490-509. Wiley.Crossref OpenAlex
-
Hacking I. (1995). Causal Cognition: A Multidisciplinary Approach . Causal Cognition: A Multidisciplinary Approach, 351.Type: OtherCrossref
-
Hacking I. (2002). ‘Making up People’, Historical Ontology . ‘Making up People’, Historical Ontology.Type: OtherCrossref
-
Halberstam J. (1995). Posthuman Bodies . Posthuman Bodies, 1.Type: OtherCrossref
-
Shanti R. Mitchell , Allan L. Reiss , Danielle H. Tatusko , Ichiro Ikuta , Dana B. Kazmerski , Jo-Anna C. Botti et al. (2009). Neuroanatomic Alterations and Social and Communication Deficits in Monozygotic Twins Discordant for Autism Disorder . American Journal of Psychiatry, 166(8), 917-925. American Psychiatric Association Publishing.Crossref OpenAlex
-
Michele Noterdaeme , Anna Hutzelmeyer-Nickels (2010). Early symptoms and recognition of pervasive developmental disorders in Germany . Autism, 14(6), 575-588. SAGE Publications.Crossref OpenAlex
-
(n.d.). Lutz Amy S. F. 2013. “You Do Not Have Asperger’s: What Psychiatry’s New Diagnostic Manual Means for People on the Autism Spectrum.” Slate. May 22. http://www.slate.com/articles/health_and_science/medical_examiner/2013/05/autism_spectrum_diagnoses_the_dsm_5_eliminates_asperger_s_and_pdd_nos.htmlType: OtherCrossref
-
Lindsay O’Dell , Charlotte Brownlow (2015). Normative Development and the Autistic Child . In The Palgrave Handbook of Child Mental Health (pp. 296-309). Palgrave Macmillan UK.Crossref OpenAlex
-
Helen Meekosha , Russell Shuttleworth (2009). What's so ‘critical’ about critical disability studies? Australian Journal of Human Rights, 15(1), 47-75. Informa UK Limited.Crossref
-
Oberdiek, Hans (2012). What it means to be human: reflections from 1791 to the present . Choice Reviews Online, 49(08), 49-4377-49-4377. American Library Association.OpenAlex
-
Nelson L. H. (1993). Feminist Epistemologies . Feminist Epistemologies, 121.Type: OtherCrossref
-
Francisco Ortega , Fernando Vidal (2011). Neurocultures: glimpses into an expanding universe . Neurocultures: Glimpses into an expanding universe.Type: Article OpenAlex: https://openalex.org/W2565609851Crossref OpenAlex
-
Craig J. Newschaffer , Laura Kresch Curran (2003). Autism: an emerging public health problem . Public Health Reports, 118(5), 393-399. SAGE Publications.Crossref OpenAlex
-
Michael Orsini (2016). Contesting the Autistic Subject: Biological Citizenship and the Autism/Autistic Movement .Type: Article DOI: 10.4324/9781315575025-15 OpenAlex: https://openalex.org/W2896632138 Crossref: not foundOpenAlex
-
(n.d.). Nunes F. C. F. 2014. “Atuação política de grupos de pais de autistas no Rio de Janeiro: perspectivas para o campo da saúde.” Master Dissertation. Institute for Social Medicine. State University of Rio de Janeiro.Type: OtherCrossref
-
Marcia Jean Carter (2014). Diagnostic and Statistical Manual of Mental Disorders, 5th ed. Therapeutic Recreation Journal, 48(3).Type: Article OpenAlex: https://openalex.org/W2906253013OpenAlex
-
Erica Burman (2016). Deconstructing Developmental Psychology . Routledge.OpenAlex
-
(2010). e_1_3_2_46_1 Ethos, 38(1). Wiley.Crossref OpenAlex
-
Orsini M. (2009). Critical Interventions in the Ethics of Health Care . Critical Interventions in the Ethics of Health Care, 115.Type: OtherCrossref
-
Francisco Ortega (2013). Critical Autism Studies: Enabling Inclusion, Defending Difference . Critical Autism Studies: Enabling Inclusion, Defending Difference, 73.Type: OtherCrossref
-
(1991). e_1_3_2_52_1 Journal of Child Psychology and Psychiatry, 32(7). Wiley.Crossref OpenAlex
-
Type: OtherCrossref
-
Dave Holmes (2016). Critical Interventions in the Ethics of Healthcare . Routledge.OpenAlex
-
Merl Storr , Linda Alcoff , Elizabeth Potter (1994). Feminist Epistemologies . Feminist Review, (48), 142. JSTOR.OpenAlex
-
Pothier D. (2006). Critical Disability Theory. Essays in Philosophy, Politics, Policy and Law . Critical Disability Theory. Essays in Philosophy, Politics, Policy and Law.Type: OtherCrossref
-
Dan Goodley (2017). Dis/entangling Critical Disability Studies . In Culture - Theory - Disability (pp. 81-110). transcript Verlag.OpenAlex
-
Rose N. (2005). Global Anthropology . Global Anthropology, 439.Type: OtherCrossref
-
(n.d.). The National Board of Health and Welfare (NBHW). 2009. Swedish Disability Policy – Service and Care for People with Functional Impairments. Accessed October 27 2013. http://www.socialstyrelsen.se/Lists/Artikelkatalog/Attachments/8407/2009-126-188_2009126188.pdfType: OtherCrossref