Power to the People

This publication is included in the Autistic Autism Scholarship Project. two authors of this publication are identified as autistic in the project.

About the autistic author marker

den Houting, J., Sesterka, A., & Pellicano, E. (2024). Power to the People. In The Palgrave Handbook of Research Methods and Ethics in Neurodiversity Studies (pp. 411-421). Springer Nature Switzerland. https://doi.org/10.1007/978-3-031-66127-3_24

Publication date: 1 Jan 2024 Added to AutiHub: 30 Aug 2026 Type: Book chapter Article language: English

This publication is integrated into AutiHub through:

Authors

Publication authors
3
Publication authors identified as autistic
2 / 3 (66.7%)

Abstract

No structured abstract stored for this reference.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 12 Sep 2026 07:09.

Cited references
61
With a DOI
49
Without a DOI, from raw bibliography text
12
24 / 61 (39.3%) cited references include at least one author identified as autistic.
References with data to complete
12 / 61 (19.7%)
References with detected author names
49 / 61 (80.3%)
Without detected author names
12
Without a structured title
12
Without a stable identifier
12
References with raw author names still to review
12
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
214
From DOI or external metadata
214
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
33
156 / 214 (72.9%) names are linked to an author already present in AutiHub. 58 / 214 (27.1%) names are not yet linked.
Names linked to a person identified as autistic
56 / 214 (26.2%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 56 / 156 (35.9%). Distinct people identified as autistic: 32 / 169 (18.9%).
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  5. Alexandra S Drawson , Elaine Toombs , Christopher J. Mushquash (2017). Indigenous Research Methods: A Systematic Review . International Indigenous Policy Journal, 8(2). University of Western Ontario, Western Libraries.
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  7. Diana Weiting Tan , Laura Crane , Tori Haar *Autistic author. Learn more… , Melanie Heyworth *Autistic author. Learn more… , Rebecca Poulsen *Autistic author. Learn more… , Elizabeth Pellicano (2024). Reporting community involvement in autism research: Findings from the journal Autism . Autism, 29. Center for Open Science.
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  8. Keith Lloyd , Joanna White (2011). Democratizing clinical research . Nature, 474(7351), 277-278. Springer Science and Business Media LLC.
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  9. Kristen Bottema-Beutel (2023). We must improve the low standards underlying “evidence-based practice” . Autism, 27(2), 269-274. SAGE Publications.
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  10. Mildred Boveda , Subini Ancy Annamma (2023). Beyond Making a Statement: An Intersectional Framing of the Power and Possibilities of Positioning . Educational Researcher, 52(5), 306-314. American Educational Research Association (AERA).
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  11. Andrea Cornwall , Rachel Jewkes (1995). What is participatory research? Social Science & Medicine, 41(12), 1667-1676. Elsevier BV.
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  12. Eilidh Cage , Zoe Troxell-Whitman (2019). Understanding the Reasons, Contexts and Costs of Camouflaging for Autistic Adults . Journal of Autism and Developmental Disorders, 49(5), 1899-1911. Springer Science and Business Media LLC.
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  13. Elizabeth Sheppard , Dhanya Pillai , Genevieve Tze-Lynn Wong , Danielle Ropar , Peter Mitchell (2016). How Easy is it to Read the Minds of People with Autism Spectrum Disorder? Journal of Autism and Developmental Disorders, 46(4), 1247-1254. Springer Science and Business Media LLC.
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  14. Nina Wallerstein , Michael Muhammad , Shannon Sanchez-Youngman , Patricia Rodriguez Espinosa , Magdalena Avila , Elizabeth A. Baker et al. (2019). Power Dynamics in Community-Based Participatory Research: A Multiple–Case Study Analysis of Partnering Contexts, Histories, and Practices . Health Education & Behavior, 46(1_suppl), 19S-32S. SAGE Publications.
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  15. Noah J. Sasson , Daniel J. Faso , Jack Nugent , Sarah Lovell , Daniel P. Kennedy , Ruth B. Grossman (2017). Neurotypical Peers are Less Willing to Interact with Those with Autism based on Thin Slice Judgments . Scientific Reports, 7(1), 40700. Springer Science and Business Media LLC.
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  16. Jude Fransman , Kate Newman (2017). RETHINKING RESEARCH PARTNERSHIS: Evidence and the Politics of Participation in Academic-INGO Research Partnerships for International Development – ESRC . Impact, 2017(9), 9-9. Science Impact, Ltd..
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  17. Flora Cornish , Nancy Nyutsem Breton , Ulises Moreno-Tabarez , Jenna Delgado , Mohi Rua , Ama de‐Graft Aikins et al. (2023). Participatory action research . Nature Reviews Methods Primers, 3(1). Springer Science and Business Media LLC.
    AutiHub · Documentation center Crossref OpenAlex OpenCitations
  18. Laura Hull , K.V. Petrides , Carrie Allison , Paula Smith , Simon Baron-Cohen , Meng-Chuan Lai et al. (2017). “Putting on My Best Normal”: Social Camouflaging in Adults with Autism Spectrum Conditions . Journal of Autism and Developmental Disorders, 47(8), 2519-2534. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  19. Susan Ghanbarpour , Ada Palotai , Mimi E. Kim , Aracelia Aguilar , Juana Flores , Amber Hodson et al. (2018). An Exploratory Framework for Community-Led Research to Address Intimate Partner Violence: a Case Study of the Survivor-Centered Advocacy Project . Journal of Family Violence, 33(8), 521-535. Springer Science and Business Media LLC.
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  20. Jacquiline den Houting *Autistic author. Learn more… , Elizabeth Pellicano (2019). A portfolio analysis of autism research funding in Australia . Autism and Developmental Disorders, 49(11), 4400. Springer Science and Business Media LLC.
    AutiHub · Autistic Autism Scholarship Project Crossref OpenAlex OpenCitations
  21. Esther Turnhout , Tamara Metze , Carina Wyborn , Nicole Klenk , Elena Louder (2020). The politics of co-production: participation, power, and transformation . Current Opinion in Environmental Sustainability, 42, 15-21. Elsevier BV.
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  22. Farr, M., Davies, R., Davies, P., Bagnall, D., Brangan, E., & Andrews, H. (2020). A map of resources for co-producing research in health and social care. https://arc-w.nihr.ac.uk/publications/a-map-of-resources-for-co-producing-research-in-health-and-social-care/
    Type: Other
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  23. Miranda Fricker (2007). Epistemic Injustice . Oxford University PressOxford.
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  24. Gatfield, O., Mangan, C., Haar, T., Kinniburgh, A., & Rodger, S. (2016). 2016 Research Priorities Survey Report. https://www.autismcrc.com.au/sites/default/files/inline-files/Research%20priorities%20survey%20-%20Final%20report.pdf
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  25. Desiree R. Jones , Kilee M. DeBrabander , Noah J. Sasson (2021). Effects of autism acceptance training on explicit and implicit biases toward autism . Autism, 25(5), 1246-1261. SAGE Publications.
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  26. den Houting, J. (2021). Participatory and inclusive autism research practice guides. Autism CRC. https://www.autismcrc.com.au/best-practice/sites/default/files/resources/Participatory_and_Inclusive_Autism_Research_Practice_Guides.pdf
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  27. (n.d.). International Society for Autism Research (INSAR). Autistic researchers committee (ARC). https://www.autism-insar.org/page/InsarARC
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  28. Sandra Thom-Jones *Autistic author. Learn more… (2021). Let's Talk About Autistic Autism Researchers . Autism in Adulthood, 3(3), 206-208. SAGE Publications.
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  29. Damian Milton *Autistic author. Learn more… , Emine Gürbüz , Beatriz López (2022). The ‘double empathy problem’: Ten years on . Autism, 26(8), 1901-1903. SAGE Publications.
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  30. Mary Ann Liebert, Inc. (2024). Autism in Adulthood: Most read articles. https://www.liebertpub.com/action/showMostReadArticles?journalCode=aut
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  31. Rachel Nuwer (2020). Meet the autistic scientists redefining autism research . Spectrum. Simons Foundation.
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  32. Office of Autism Research Coordination. (2019). 2016 IACC Autism Spectrum Disorder Research Portfolio Analysis Report. https://iacc.hhs.gov/portfolio-analysis/2016/index.shtml
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  33. Roper, C., Grey, F., & Cadogan, E. (2018). Co-production: Putting principles into practice in mental health contexts. https://healthsciences.unimelb.edu.au/departments/nursing/about-us/centre-for-psychiatric-nursing/resources
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  35. Strnadova, I., Dowse, L., & Watfern, C. (2020). Doing research inclusively: Guidelines for co-producing research with people with disability. https://www.disabilityinnovation.unsw.edu.au/inclusive-research/guidelines
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  36. Tan, D. W., den Houting, J., Banerjee, M., D’Aloya, L. P., Jayawardene, L., Rabuka, M., Winspear-Schillings, H., Haar, T., & Pellicano, E. (2024a). A comprehensive systematic review of participatory autism research. Manuscript in preparation.
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  37. The University of Edinburgh (2017). Learning about research: A course for autistic people. https://dart.ed.ac.uk/research/learning-about-research/
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