“Support Me to Take the Steps I Need, to Live the Life I Want, in Ways That Work for Me”: Perspectives of Autistic Adolescents on What is Important for Their Quality of Life

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Ambrose, K., Simpson, K., Pellicano, E., Heyworth, M., den Houting, J., Roth, J., & Adams, D. (2026). “Support Me to Take the Steps I Need, to Live the Life I Want, in Ways That Work for Me”: Perspectives of Autistic Adolescents on What is Important for Their Quality of Life. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-026-07464-4

Publication date: 30 Jul 2026 Added to AutiHub: 5 Aug 2026 Type: Article Article language: English
Publisher source (DOI) Full text OpenAlex source

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Authors

Publication authors
7
Publication authors identified as autistic
2 / 7 (28.6%)
  1. Kathryn Ambrose
  2. Kate Simpson
  3. Elizabeth Pellicano
  4. Melanie Heyworth *
  1. Jacquiline den Houting *
  2. Janneke Roth
  3. Dawn Adams

Abstract

Abstract Purpose Quality of life (QoL) is a subjective construct, influenced by an individual’s values, priorities and goals, yet little research considers the views of Autistic people regarding what is important for living a ‘good life’. This study addresses the question: “What do Autistic adolescents describe is important for them to live a ‘good life’?”. Methods 42 Autistic adolescents aged 10–17 years (52.4% girls, 45.2% boys, 2.4% non-binary gender) shared their views about what is important for their QoL through written or spoken responses in either a survey or interview. Autistic adolescents were recruited via social media advertisements directed towards parents. Results We identified five themes reflecting the priorities of Autistic adolescents: being understood and accepted, connecting deeply with others, engaging in strengths and passions to experience achievement and develop self-worth, having agency to manage their own needs, and being consulted and listened to. These themes highlight specific aspects within the broad concept of QoL that are most important for Autistic adolescents. Conclusion This study adds to the conceptualisation of QoL for Autistic children and adolescents by eliciting directly the views of Autistic adolescents. The findings can inform the development of individual supports and increase understanding of Autistic perspectives in research and the community, which better enable Autistic adolescents to live a ‘good life’. Further research should extend this work to include younger Autistic children and those with higher support needs.

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Bibliography cited by this reference

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Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 07:50.

Cited references
81
With a DOI
79
Without a DOI, from raw bibliography text
2
16 / 81 (19.8%) cited references include at least one author identified as autistic.
References with data to complete
2 / 81 (2.5%)
References with detected author names
80 / 81 (98.8%)
Without detected author names
1
Without a structured title
2
Without a stable identifier
2
References with raw author names still to review
1
References with external metadata lookup issues
1
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
367
From DOI or external metadata
367
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
24
180 / 367 (49.0%) names are linked to an author already present in AutiHub. 187 / 367 (51.0%) names are not yet linked.
Names linked to a person identified as autistic
25 / 367 (6.8%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 25 / 180 (13.9%). Distinct people identified as autistic: 18 / 322 (5.6%).
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