What Matters Most? An Exploration of Quality of Life Through the Everyday Experiences of Autistic Young People and Adults

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

About the autistic author marker

Metadata sources used for this reference

OpenAlex Crossref OpenCitations
Learn more about the sources used

Merrington, H., gibbs, v., Haas, K., Clark, T., Robinson, A., AlAnsari, M., & Pellicano, E. (2024). What Matters Most? An Exploration of Quality of Life Through the Everyday Experiences of Autistic Young People and Adults. Autism in Adulthood, 7(3), 312-323. https://doi.org/10.1089/aut.2023.0127

Journal or book title
Autism in Adulthood
Publisher
SAGE Publications
Volume
7
Issue
3
Pages
312-323
Publication date: 12 Apr 2024 Added to AutiHub: 23 Sep 2026 Type: Article Article language: English
Publisher source (DOI) Full text OpenAlex source

This publication is integrated into AutiHub through:

Authors

Publication authors
7
Publication authors identified as autistic
1 / 7 (14.3%)
  1. Heidi Merrington
  2. vicki gibbs
  3. Kaaren Haas
  4. Trevor Clark
  1. Ainslie Robinson *
  2. Mustafa AlAnsari
  3. Elizabeth Pellicano

Abstract

Background: The quality of life (QoL) of Autistic people is consistently reported to be poor compared with the general population. Little is known, however, about how Autistic people experience QoL from their perspectives and the ways they would like it to be enhanced. This qualitative study, conducted in collaboration with Autistic people, sought to understand how Autistic young people and adults define a good life and what helps and hinders them from achieving a good QoL. Methods: We conducted semi-structured in-depth interviews with 34 Autistic adults and 14 Autistic adolescents about their everyday life experiences of different aspects of QoL, including physical health, sensory needs, mental health, money, home, transport, leisure, social connections, acceptance, and inclusion, being in charge of one's life and perceptions of the future. We coded transcripts in NVivo and analyzed them using reflexive thematic analysis. Results: We identified four themes: two themes that described what a good QoL meant for our participants along with aspects of their lives that facilitated a good QoL: “feeling good” and “being myself in the world”; and two themes that described barriers to achieving a good QoL: “exhaustion and overwhelm” and “negative experiences shape perceptions.” Discussion: These findings highlight the need to consider Autistic people's QoL within the context of their everyday realities. Enhancing QoL will only be achieved through focusing on these realities and through the provision of adaptations and supports to create more inclusive environments.

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 3 Oct 2026 01:01.

Cited references
98
With a DOI
96
Without a DOI, from raw bibliography text
2
23 / 98 (23.5%) cited references include at least one author identified as autistic.
References with data to complete
0 / 98 (0.0%)
References with detected author names
98 / 98 (100.0%)
Without detected author names
0
Without a structured title
0
Without a stable identifier
2
References with raw author names still to review
0
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
424
From DOI or external metadata
424
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
0
273 / 424 (64.4%) names are linked to an author already present in AutiHub. 151 / 424 (35.6%) names are not yet linked.
Names linked to a person identified as autistic
85 / 424 (20.0%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 85 / 273 (31.1%). Distinct people identified as autistic: 63 / 346 (18.2%).
  1. Alissa Levy , Adrienne Perry (2011). Outcomes in adolescents and adults with autism: A review of the literature . Research in Autism Spectrum Disorders, 5(4), 1271-1282. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2011.01.023 OpenAlex: https://openalex.org/W2071242118
    Crossref OpenAlex OpenCitations
  3. Amanda Taboas , Karla Doepke , Corinne Zimmerman (2023). Preferences for identity-first versus person-first language in a US sample of autism stakeholders . Autism, 27(2), 565-570. SAGE Publications.
    Type: Article DOI: 10.1177/13623613221130845 OpenAlex: https://openalex.org/W4306157884
    OpenCitations
  4. Lawrence A. Palinkas , Sarah M. Horwitz , Carla A. Green , Jennifer P. Wisdom , Naihua Duan , Kimberly Hoagwood (2015). Purposeful Sampling for Qualitative Data Collection and Analysis in Mixed Method Implementation Research . Administration and Policy in Mental Health and Mental Health Services Research, 42(5), 533-544. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10488-013-0528-y OpenAlex: https://openalex.org/W2085028749
    Crossref OpenAlex OpenCitations
  5. Laura Graham Holmes , Casey J. Zampella , Caitlin Clements , Joseph P. McCleery , Brenna Maddox , Julia Parish‐Morris et al. (2020). A Lifespan Approach to Patient‐Reported Outcomes and Quality of Life for People on the Autism Spectrum . Autism Research, 13(6), 970-987. Wiley.
    Type: Article DOI: 10.1002/aur.2275 OpenAlex: https://openalex.org/W3012300037
    Crossref OpenAlex OpenCitations
  7. Lauren Bishop-Fitzpatrick , Jinkuk Hong , Leann E. Smith , Renee A. Makuch , Jan S. Greenberg , Marsha R. Mailick (2016). Characterizing Objective Quality of Life and Normative Outcomes in Adults with Autism Spectrum Disorder: An Exploratory Latent Class Analysis . Journal of Autism and Developmental Disorders, 46(8), 2707-2719. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-016-2816-3 OpenAlex: https://openalex.org/W2397380280
    Crossref OpenAlex OpenCitations
  9. Eilidh Cage , Jessica Di Monaco , Victoria Newell (2019). Understanding, attitudes and dehumanisation towards autistic people . Autism, 23(6), 1373-1383. SAGE Publications.
    Type: Article DOI: 10.1177/1362361318811290 OpenAlex: https://openalex.org/W2901663576
    Crossref OpenCitations
  10. Víctor B. Arias , Laura E. Gómez , Mª Lucía Morán , Mª Ángeles Alcedo , Asunción Monsalve , Yolanda Fontanil (2018). Does Quality of Life Differ for Children With Autism Spectrum Disorder and Intellectual Disability Compared to Peers Without Autism? Journal of Autism and Developmental Disorders, 48(1), 123-136. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-017-3289-8 OpenAlex: https://openalex.org/W2755101507
    Crossref OpenAlex OpenCitations
  11. Marieke de Vries , Hilde M. Geurts (2015). Influence of Autism Traits and Executive Functioning on Quality of Life in Children with an Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 45(9), 2734-2743. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-015-2438-1 OpenAlex: https://openalex.org/W2074678033
    Crossref OpenCitations
  12. Gary Yu Hin Lam , Emily Holden , Megan Fitzpatrick , Linda Raffaele Mendez , Karen Berkman (2020). “Different but connected”: Participatory action research using Photovoice to explore well-being in autistic young adults . Autism, 24(5), 1246-1259. SAGE Publications.
    Type: Article DOI: 10.1177/1362361319898961 OpenAlex: https://openalex.org/W3002469440
    OpenCitations
  13. Rachel Grove , Rosa A. Hoekstra , Marlies Wierda , Sander Begeer (2018). Special interests and subjective wellbeing in autistic adults . Autism Research, 11(5), 766-775. Wiley.
    Type: Article DOI: 10.1002/aur.1931 OpenAlex: https://openalex.org/W2789112474
    Crossref OpenAlex OpenCitations
  14. Snæfrídur T Egilson , Linda B Ólafsdóttir , Thóra Leósdóttir , Evald Saemundsen (2017). Quality of life of high-functioning children and youth with autism spectrum disorder and typically developing peers: Self- and proxy-reports . Autism, 21(2), 133-141. SAGE Publications.
    Type: Article DOI: 10.1177/1362361316630881 OpenAlex: https://openalex.org/W2316438230
    Crossref OpenCitations
  15. Nicole Matthews , Kyla Christenson , Sarah Kiefer , Christopher J Smith (2021). A mixed-methods examination of the gap between intelligence and adaptive functioning in autistic young adults without intellectual disability . Autism, 25(8), 2317-2330. SAGE Publications.
    Type: Article DOI: 10.1177/13623613211018334 OpenAlex: https://openalex.org/W3164814020
    OpenCitations
  16. Bethany Oakley , Julian Tillmann , Jumana Ahmad , Daisy Crawley , Antonia San José Cáceres , R. J. Holt et al. (2021). How do core autism traits and associated symptoms relate to quality of life? Findings from the Longitudinal European Autism Project . Autism, 25(2), 389-404. SAGE Publications.
    Type: Article DOI: 10.1177/1362361320959959 OpenAlex: https://openalex.org/W3092212229
    Crossref OpenCitations
  18. Jennifer S. Singh , Garrett Bunyak (2019). Autism Disparities: A Systematic Review and Meta-Ethnography of Qualitative Research . Qualitative Health Research, 29(6), 796-808. SAGE Publications.
    Type: Article DOI: 10.1177/1049732318808245 OpenAlex: https://openalex.org/W2902672703
    Crossref OpenAlex OpenCitations
  19. Patricia Howlin , Iliana Magiati (2017). Autism spectrum disorder . Current Opinion in Psychiatry, 30(2), 69-76. Ovid Technologies (Wolters Kluwer Health).
    Type: Article DOI: 10.1097/yco.0000000000000308 OpenAlex: https://openalex.org/W2569059432
    Crossref OpenCitations
  20. Rosie Cope , Anna Remington (2022). The Strengths and Abilities of Autistic People in the Workplace . Autism in Adulthood, 4(1), 22-31. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2021.0037 OpenAlex: https://openalex.org/W3204469468
    Crossref OpenAlex OpenCitations
  21. Louise Camm-Crosbie , Louise Bradley , Rebecca Shaw , Simon Baron-Cohen , Sarah Cassidy (2019). ‘People like me don’t get support’: Autistic adults’ experiences of support and treatment for mental health difficulties, self-injury and suicidality . Autism, 23(6), 1431-1441. SAGE Publications.
    Type: Article DOI: 10.1177/1362361318816053 OpenAlex: https://openalex.org/W2902777586
    Crossref OpenAlex OpenCitations
  24. Jessica Dreaver , Craig Thompson , Sonya Girdler , Margareta Adolfsson , Melissa H. Black , Marita Falkmer (2020). Success Factors Enabling Employment for Adults on the Autism Spectrum from Employers’ Perspective . Journal of Autism and Developmental Disorders, 50(5), 1657-1667. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-019-03923-3 OpenAlex: https://openalex.org/W2914690720
    Crossref OpenAlex OpenCitations
  25. Kristina M. Byström , Cristina A. Lundqvist Persson (2015). The Meaning of Companion Animals for Children and Adolescents with Autism: The Parents' Perspective . Anthrozoös, 28(2), 263-275. Informa UK Limited.
    Type: Article DOI: 10.2752/089279315x14219211661813
    OpenCitations
  26. Virginia Braun , Victoria Clarke (2019). Reflecting on reflexive thematic analysis . Qualitative Research in Sport, Exercise and Health, 11(4), 589-597. Informa UK Limited.
    Type: Article DOI: 10.1080/2159676x.2019.1628806 OpenAlex: https://openalex.org/W2950504429
    Crossref OpenAlex OpenCitations
  28. A. J. Baxter , Traolach Brugha , Holly E. Erskine , R. W. Scheurer , Theo Vos , J. G. Scott (2015). The epidemiology and global burden of autism spectrum disorders . Psychological Medicine, 45(3), 601-613. Cambridge University Press (CUP).
    Type: Article DOI: 10.1017/s003329171400172x OpenAlex: https://openalex.org/W2171607710
    OpenCitations
  29. Elizabeth Pellicano , Serena Cribb , Lorcan Kenny (2020). Patterns of Continuity and Change in the Psychosocial Outcomes of Young Autistic People: a Mixed-Methods Study . Journal of Abnormal Child Psychology, 48(2), 301-313. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10802-019-00602-w OpenAlex: https://openalex.org/W2993303969
    Crossref OpenAlex OpenCitations
  30. R. L. Schalock (2004). The concept of quality of life: what we know and do not know . Journal of Intellectual Disability Research, 48(3), 203-216. Wiley.
    Type: Article DOI: 10.1111/j.1365-2788.2003.00558.x OpenAlex: https://openalex.org/W2169433009
    Crossref OpenCitations
  31. Goldie A. McQuaid , Colin H. Weiss , Alex Job Said , Kevin A. Pelphrey , Nancy Raitano Lee , Gregory L. Wallace (2022). Increased perceived stress is negatively associated with activities of daily living and subjective quality of life in younger, middle, and older autistic adults . Autism Research, 15(8), 1535-1549. Wiley.
    Type: Article DOI: 10.1002/aur.2779 OpenAlex: https://openalex.org/W4283822824
    Crossref OpenCitations
  33. THE WHOQOL GROUP (1998). Development of the World Health Organization WHOQOL-BREF Quality of Life Assessment . Psychological Medicine, 28(3), 551-558. Cambridge University Press (CUP).
    Type: Article DOI: 10.1017/s0033291798006667 OpenAlex: https://openalex.org/W2429180991
    Crossref OpenCitations
  36. Carla A. Mazefsky , J. Kao , D.P. Oswald (2011). Preliminary evidence suggesting caution in the use of psychiatric self-report measures with adolescents with high-functioning autism spectrum disorders . Research in Autism Spectrum Disorders, 5(1), 164-174. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2010.03.006 OpenAlex: https://openalex.org/W2077644735
    OpenCitations
  38. The WHOQOL Group (1995). The World Health Organization quality of life assessment (WHOQOL): Position paper from the World Health Organization . Social Science & Medicine, 41(10), 1403-1409. Elsevier BV.
    Type: Article DOI: 10.1016/0277-9536(95)00112-k OpenAlex: https://openalex.org/W2255756224
    Crossref OpenCitations
  39. Michal Waisman‐Nitzan , Eynat Gal , Naomi Schreuer (2021). “It’s like a ramp for a person in a wheelchair”: Workplace accessibility for employees with autism . Research in Developmental Disabilities, 114, 103959. Elsevier BV.
    Type: Article DOI: 10.1016/j.ridd.2021.103959 OpenAlex: https://openalex.org/W3158266539
    Crossref OpenAlex OpenCitations
  41. Gray Atherton , Emma Edisbury , Andrea Piovesan , Liam Cross (2022). Autism Through the Ages: A Mixed Methods Approach to Understanding How Age and Age of Diagnosis Affect Quality of Life . Journal of Autism and Developmental Disorders, 52(8), 3639-3654. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-021-05235-x OpenAlex: https://openalex.org/W3191831555
    Crossref OpenCitations
  42. Caner Ozboke , Mehmet Yanardag , Ilker Yilmaz (2022). Exploring the relationships between motor proficiency, independence and quality of life in adolescents with autism spectrum disorder . International Journal of Developmental Disabilities, 68(6), 850-857. Informa UK Limited.
    Type: Article DOI: 10.1080/20473869.2021.1900506
    Crossref OpenCitations
  43. Lauren Bishop-Fitzpatrick , Carla A. Mazefsky , Shaun M. Eack (2018). The combined impact of social support and perceived stress on quality of life in adults with autism spectrum disorder and without intellectual disability . Autism, 22(6), 703-711. SAGE Publications.
    Type: Article DOI: 10.1177/1362361317703090 OpenAlex: https://openalex.org/W2733243365
    Crossref OpenCitations
  44. Riley Buijsman , Sander Begeer , Anke Scheeren (2023). ‘Autistic person’ or ‘person with autism’? Person-first language preference in Dutch adults with autism and parents . Autism, 27(3), 788-795. SAGE Publications.
    Type: Article DOI: 10.1177/13623613221117914 OpenAlex: https://openalex.org/W4291165536
    OpenCitations
  45. Janina Brede , Eilidh Cage , Joseph Trott , Lisa Palmer , Anika Smith , Lucy Serpell et al. (2022). “We Have to Try to Find a Way, a Clinical Bridge” - autistic adults' experience of accessing and receiving support for mental health difficulties: A systematic review and thematic meta-synthesis . Clinical Psychology Review, 93, 102131. Elsevier BV.
    Type: Article DOI: 10.1016/j.cpr.2022.102131 OpenAlex: https://openalex.org/W4210911395
    Crossref OpenAlex OpenCitations
  46. Lauren P Lawson , Amanda Richdale , Alexandra Haschek , Rebecca L. Flower , Josh Vartuli , Samuel R. C. Arnold et al. (2020). Cross-sectional and longitudinal predictors of quality of life in autistic individuals from adolescence to adulthood: The role of mental health and sleep quality . Autism, 24(4), 954-967. SAGE Publications.
    Type: Article DOI: 10.1177/1362361320908107 OpenAlex: https://openalex.org/W3011778920
    Crossref OpenCitations
  47. Virginia Braun , Victoria Clarke (2021). One size fits all? What counts as quality practice in (reflexive) thematic analysis? Qualitative Research in Psychology, 18(3), 328-352. Informa UK Limited.
    Type: Article DOI: 10.1080/14780887.2020.1769238 OpenAlex: https://openalex.org/W3048560297
    OpenCitations
  48. Ling-Yi Lin , Pai-Chuan Huang (2019). Quality of life and its related factors for adults with autism spectrum disorder . Disability and Rehabilitation, 41(8), 896-903. Informa UK Limited.
    Type: Article DOI: 10.1080/09638288.2017.1414887 OpenAlex: https://openalex.org/W2772050964
    Crossref OpenCitations
  49. Ane Knüppel , Gry Kjaersdam Telléus , Helle Jakobsen , Marlene Briciet Lauritsen (2018). Quality of life in adolescents and adults with autism spectrum disorder: Results from a nationwide Danish survey using self-reports and parental proxy-reports . Research in Developmental Disabilities, 83, 247-259. Elsevier BV.
    Type: Article DOI: 10.1016/j.ridd.2018.09.004 OpenAlex: https://openalex.org/W2896819996
    OpenCitations
  51. Ilker Etikan (2016). Comparison of Convenience Sampling and Purposive Sampling . American Journal of Theoretical and Applied Statistics, 5(1), 1. Science Publishing Group.
    Type: Article DOI: 10.11648/j.ajtas.20160501.11 OpenAlex: https://openalex.org/W2239306219
    OpenCitations
  52. Erika Ikeda , Erica Hinckson , Chris Krägeloh (2014). Assessment of quality of life in children and youth with autism spectrum disorder: a critical review . Quality of Life Research, 23(4), 1069-1085. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s11136-013-0591-6 OpenAlex: https://openalex.org/W2067433859
    Crossref OpenCitations
  53. Andrew J. Hogan (2019). Moving Away from the “Medical Model”: The Development and Revision of the World Health Organization’s Classification of Disability . Bulletin of the History of Medicine, 93(2), 241-269. Project MUSE.
    Type: Article DOI: 10.1353/bhm.2019.0028 OpenAlex: https://openalex.org/W2959486133
    OpenCitations
  55. Virginia Braun , Victoria Clarke (2006). Using thematic analysis in psychology . Qualitative Research in Psychology, 3(2), 77-101. Informa UK Limited.
    Type: Article DOI: 10.1191/1478088706qp063oa OpenAlex: https://openalex.org/W1979290264
    Crossref OpenCitations
  56. Serena Cribb , Lorcan Kenny , Elizabeth Pellicano (2019). ‘I definitely feel more in control of my life’: The perspectives of young autistic people and their parents on emerging adulthood . Autism, 23(7), 1765-1781. SAGE Publications.
    Type: Article DOI: 10.1177/1362361319830029 OpenAlex: https://openalex.org/W2918237446
    Crossref OpenCitations
  57. Vikram K. Jaswal , Nameera Akhtar (2019). Being versus appearing socially uninterested: Challenging assumptions about social motivation in autism . Behavioral and Brain Sciences, 42, e82. Cambridge University Press (CUP).
    Type: Article DOI: 10.1017/s0140525x18001826 OpenAlex: https://openalex.org/W2809138493
    OpenCitations
  58. Finch TL (2022). “We couldn't think in the box if we tried . We can't even find the damn box”: A qualitative study of the lived experiences of autistic adults and relatives of autistic adults. PLoS One, 17(3).
    Type: Other
    Crossref
  59. Simon Bury , Rachel Jellett , Jennifer R. Spoor , Darren Hedley (2023). “It Defines Who I Am” or “It’s Something I Have”: What Language Do [Autistic] Australian Adults [on the Autism Spectrum] Prefer? Journal of Autism and Developmental Disorders, 53(2), 677-687. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-020-04425-3 OpenAlex: https://openalex.org/W3007056653
    OpenCitations
  60. So Yoon Kim (2019). The experiences of adults with autism spectrum disorder: Self-determination and quality of life . Research in Autism Spectrum Disorders, 60, 1-15. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2018.12.002 OpenAlex: https://openalex.org/W2910526802
    Crossref OpenCitations
  61. Francesca Happé , Rebecca A. Charlton (2012). Aging in Autism Spectrum Disorders: A Mini-Review . Gerontology, 58(1), 70-78. S. Karger AG.
    Type: Article DOI: 10.1159/000329720 OpenAlex: https://openalex.org/W2067317225
    OpenCitations
  62. Collette Sosnowy , Chloe Silverman , Paul Shattuck , Tamara Garfield (2019). Setbacks and Successes: How Young Adults on the Autism Spectrum Seek Friendship . Autism in Adulthood, 1(1), 44-51. SAGE Publications.
    Type: Article DOI: 10.1089/aut.2018.0009 OpenAlex: https://openalex.org/W2802726706
    Crossref OpenCitations
  63. Rackeb Tesfaye , Valerie Courchesne , Pat Mirenda , Wendy Mitchell , David Nicholas , Ilina Singh et al. (2023). Autism voices: Perspectives of the needs, challenges, and hopes for the future of autistic youth . Autism, 27(4), 1142-1156. SAGE Publications.
    Type: Article DOI: 10.1177/13623613221132108 OpenAlex: https://openalex.org/W4308183720
    OpenCitations
  64. Jacqueline Roberts , Kate Simpson (2016). A review of research into stakeholder perspectives on inclusion of students with autism in mainstream schools . International Journal of Inclusive Education, 20(10), 1084-1096. Informa UK Limited.
    Type: Article DOI: 10.1080/13603116.2016.1145267 OpenAlex: https://openalex.org/W2343357028
    Crossref OpenCitations
  65. Robert L. Schalock (2000). Three Decades of Quality of Life . Focus on Autism and Other Developmental Disabilities, 15(2), 116-127. SAGE Publications.
    Type: Article DOI: 10.1177/108835760001500207 OpenAlex: https://openalex.org/W2057140190
    OpenCitations
  67. Kirsti Malterud , Volkert Dirk Siersma , Ann Dorrit Guassora (2016). Sample Size in Qualitative Interview Studies . Qualitative Health Research, 26(13), 1753-1760. SAGE Publications.
    Type: Article DOI: 10.1177/1049732315617444 OpenAlex: https://openalex.org/W2305278139
    OpenCitations
  68. Rebecca Wood (2021). Autism, intense interests and support in school: from wasted efforts to shared understandings . Educational Review, 73(1), 34-54. Informa UK Limited.
    Type: Article DOI: 10.1080/00131911.2019.1566213 OpenAlex: https://openalex.org/W2915127262
    OpenCitations
  69. Corden K (2021). A systematic review of healthcare professionals' knowledge, self-efficacy and attitudes towards working with autistic people . Rev J Autism Dev Disord, 9.
    Type: Other
    Crossref
  70. Seth J. Schwartz , Mariya Petrova (2019). Prevention Science in Emerging Adulthood: a Field Coming of Age . Prevention Science, 20(3), 305-309. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s11121-019-0975-0 OpenAlex: https://openalex.org/W2908830474
    OpenCitations
  72. Elizabeth Pellicano , Sven Bölte , Aubyn C. Stahmer (2018). The current illusion of educational inclusion . Autism, 22(4), 386-387. SAGE Publications.
    Type: Article DOI: 10.1177/1362361318766166 OpenAlex: https://openalex.org/W2794897573
    OpenCitations
  74. Collette Sosnowy , Chloe Silverman , Paul Shattuck (2018). Parents’ and young adults’ perspectives on transition outcomes for young adults with autism . Autism, 22(1), 29-39. SAGE Publications.
    Type: Article DOI: 10.1177/1362361317699585 OpenAlex: https://openalex.org/W2760977149
    OpenCitations
  75. Neil Humphrey , Judith Hebron (2015). Bullying of children and adolescents with autism spectrum conditions: a ‘state of the field’ review . International Journal of Inclusive Education, 19(8), 845. Informa UK Limited.
    Type: Article DOI: 10.1080/13603116.2014.981602 OpenAlex: https://openalex.org/W2036366806
    OpenCitations
  77. The Whoqol Group (1998). The World Health Organization quality of life assessment (WHOQOL): Development and general psychometric properties . Social Science & Medicine, 46(12), 1569-1585. Elsevier BV.
    Type: Article DOI: 10.1016/s0277-9536(98)00009-4 OpenAlex: https://openalex.org/W2153037374
    OpenCitations
  79. Matthew Scott , Felicity Sedgewick (2021). ‘I have more control over my life’: A qualitative exploration of challenges, opportunities, and support needs among autistic university students . Autism & Developmental Language Impairments, 6, 239694152110104. SAGE Publications.
    Type: Article DOI: 10.1177/23969415211010419 OpenAlex: https://openalex.org/W3161714707
    OpenCitations
  80. Kristy A. Anderson , Collette Sosnowy , Alice A. Kuo , Paul Shattuck (2018). Transition of Individuals With Autism to Adulthood: A Review of Qualitative Studies . Pediatrics, 141(Supplement_4), S318-S327. American Academy of Pediatrics (AAP).
    Type: Article DOI: 10.1542/peds.2016-4300i OpenAlex: https://openalex.org/W2796352845
    OpenCitations
  81. Lorcan Kenny , Caroline Hattersley , Bonnie Molins , Carole Buckley , Carol Povey , Elizabeth Pellicano (2016). Which terms should be used to describe autism? Perspectives from the UK autism community . Autism, 20(4), 442-462. SAGE Publications.
    Type: Article DOI: 10.1177/1362361315588200 OpenAlex: https://openalex.org/W2227393071
    OpenCitations
  82. Jeffrey Jensen Arnett (2000). Emerging adulthood: A theory of development from the late teens through the twenties. American Psychologist, 55(5), 469. American Psychological Association (APA).
    Type: Article DOI: 10.1037/0003-066x.55.5.469 OpenAlex: https://openalex.org/W2012186625
    OpenCitations
  83. Marie Lizon , Liesbeth Taels , Stijn Vanheule (2024). Specific interests as a social boundary and bridge: A qualitative interview study with autistic individuals . Autism, 28(5), 1150-1160. SAGE Publications.
    Type: Article DOI: 10.1177/13623613231193532 OpenAlex: https://openalex.org/W4386408010
    OpenCitations
  84. Jinkuk Hong , Lauren Bishop-Fitzpatrick , Leann E. Smith , Jan S. Greenberg , Marsha R. Mailick (2016). Factors Associated with Subjective Quality of Life of Adults with Autism Spectrum Disorder: Self-Report Versus Maternal Reports . Journal of Autism and Developmental Disorders, 46(4), 1368-1378. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-015-2678-0 OpenAlex: https://openalex.org/W2203061867
    OpenCitations
  85. Ingjerd Skafle , Anders Nordahl-Hansen , Roald A. Øien (2020). Short Report: Social Perception of High School Students with ASD in Norway . Journal of Autism and Developmental Disorders, 50(2), 670-675. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-019-04281-w OpenAlex: https://openalex.org/W2986351668
    OpenCitations
  87. Robert A. Cummins (2000). Objective and Subjective Quality of Life: an Interactive Model . Social Indicators Research, 52(1), 55-72. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1023/a:1007027822521 OpenAlex: https://openalex.org/W1801122495
    OpenCitations
  88. Rachel C. Leung , Konstantine K. Zakzanis (2014). Brief Report: Cognitive Flexibility in Autism Spectrum Disorders: A Quantitative Review . Journal of Autism and Developmental Disorders, 44(10), 2628-2645. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-014-2136-4 OpenAlex: https://openalex.org/W1981575082
    OpenCitations
  90. Christophe Maïano , Claude L Normand , Marie‐Claude Salvas , Grégory Moullec , Annie Aimé (2016). Prevalence of School Bullying Among Youth with Autism Spectrum Disorders: A Systematic Review and Meta‐Analysis . Autism Research, 9(6), 601-615. Wiley.
    Type: Article DOI: 10.1002/aur.1568 OpenAlex: https://openalex.org/W1942667353
    OpenCitations
  92. Jeffrey Jensen Arnett (2007). Emerging Adulthood: What Is It, and What Is It Good For? Child Development Perspectives, 1(2), 68-73. Oxford University Press (OUP).
    Type: Article DOI: 10.1111/j.1750-8606.2007.00016.x OpenAlex: https://openalex.org/W2147867618
    OpenCitations
  93. Anna Backman , Eric Zander , Lise Roll-Pettersson , Sarah Vigerland , Tatja Hirvikoski (2023). Functioning and quality of life in transition-aged youth on the autism spectrum – associations with autism symptom severity and mental health problems . Research in Autism Spectrum Disorders, 104, 102168. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2023.102168 OpenAlex: https://openalex.org/W4366818899
    OpenCitations
  94. Kris Evers , Jarymke Maljaars , Hadewych Schepens , Gert‐Jan Vanaken , Ilse Noens (2022). Conceptualization of quality of life in autistic individuals . Developmental Medicine & Child Neurology, 64(8), 950-956. Wiley.
    Type: Article DOI: 10.1111/dmcn.15205 OpenAlex: https://openalex.org/W4220966139
    OpenCitations
  97. Nancy Cheak-Zamora , Michelle Teti , Anna Maurer-Batjer (2018). Capturing Experiences of Youth With ASD via Photo Exploration: Challenges and Resources Becoming an Adult . Journal of Adolescent Research, 33(1), 117-145. SAGE Publications.
    Type: Article DOI: 10.1177/0743558416653218 OpenAlex: https://openalex.org/W2412611565
    OpenCitations
  98. Craig Thompson , Sven Bölte , Torbjörn Falkmer , Sonya Girdler (2018). To be understood: Transitioning to adult life for people with Autism Spectrum Disorder . PLOS ONE, 13(3), e0194758. Public Library of Science (PLoS).
    Type: Article DOI: 10.1371/journal.pone.0194758 OpenAlex: https://openalex.org/W2791148865
    OpenCitations