Inclusion, Exclusion and Isolation of Autistic People: Community Attitudes and Autistic People’s Experiences
Thom-Jones, S., Gordon, C. S., Akram, M., Murphy, N., & Sharkie, F. (2021). Inclusion, Exclusion and Isolation of Autistic People: Community Attitudes and Autistic People’s Experiences. Journal of Autism and Developmental Disorders, 52(3), 1131-1142. https://doi.org/10.1007/s10803-021-04998-7
This publication is integrated into AutiHub through:
Authors
Abstract
There is limited research examining the inclusion of autistic people in their local communities. This paper reports on two Australian studies which explored this gap, focusing on both autistic people's experiences and non-autistic people's attitudes towards autistic individuals. Study One was conducted with primarily non-autistic people (n = 2,383), and Study Two with primarily parents and carers of autistic people (n = 1,297 people). The majority of non-autistic adults perceived discrimination against autistic people in the community; consistent with the experiences of autistic people and their carers. Of particular concern was more negative attitudes towards, and experiences of, autistic adults. There is an urgent need to improve society's acceptance and inclusion of autistic people of all ages.
Bibliography cited by this reference
Cited references are imported from external metadata sources when they are available. The list may be partial.
Bibliography inclusion overview
These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:31.
-
Hong Mei Tong , Daniel W. L. Lai , Qun Zeng , Wen Yan Xu (2011). Effects of Social Exclusion on Depressive Symptoms: Elderly Chinese Living Alone in Shanghai, China . Journal of Cross-Cultural Gerontology, 26(4), 349-364. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
ABS. (2015). Autism in Australia https://www.abs.gov.au/ausstats/abs@.nsf/Lookup/4430 . 0Main%20Features752015Type: OtherCrossref
-
Christina N. Marsack , Preethy S. Samuel (2017). Mediating Effects of Social Support on Quality of Life for Parents of Adults with Autism . Journal of Autism and Developmental Disorders, 47(8), 2378-2389. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Rozanna Lilley (2013). It’s an absolute nightmare: maternal experiences of enrolling children diagnosed with autism in primary school in Sydney, Australia . Disability & Society, 28(4), 514-526. Informa UK Limited.Crossref OpenAlex OpenCitations
-
ABS. (2012). Autism in Australia 2012, Autism and Education. https://www.abs.gov.au/ausstats/abs@.nsf/Latestproducts/4428 . 0Main%20Features52012Type: OtherCrossref
-
Clare Sarah Allely (2019). Understanding and recognising the female phenotype of autism spectrum disorder and the “camouflage” hypothesis: a systematic PRISMA review . Advances in Autism, 5(1), 14-37. Emerald.Crossref OpenAlex OpenCitations
-
Nicholas Gelbar , Isaac C. Smith , Brian Reichow (2014). Systematic Review of Articles Describing Experience and Supports of Individuals with Autism Enrolled in College and University Programs . Journal of Autism and Developmental Disorders, 44(10), 2593-2601. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
ABS (2018). 2018 Survey of Disabiltiy . 2018 Survey of Disabiltiy.Type: OtherCrossref
-
Andriy Yur’yev , Peeter Värnik , Merike Sisask , Lauri Leppik , Kaur Lumiste , Airi Värnik (2013). Some aspects of social exclusion: Do they influence suicide mortality? International Journal of Social Psychiatry, 59(3), 232-238. SAGE Publications.Crossref OpenAlex OpenCitations
-
Natalie A. Henninger , Julie Lounds Taylor (2013). Outcomes in adults with autism spectrum disorders: a historical perspective . Autism, 17(1), 103-116. SAGE Publications.Crossref OpenAlex OpenCitations
-
Kerrianne E Morrison , Kilee M. DeBrabander , Desiree R. Jones , Daniel J Faso , Robert A. Ackerman , Noah J. Sasson (2020). Outcomes of real-world social interaction for autistic adults paired with autistic compared to typically developing partners . Autism, 24(5), 1067-1080. SAGE Publications.Crossref OpenAlex OpenCitations
-
K. G. Gray , A. Piccinin , C. M. Keating , J. Taffe , T. R. Parmenter , S. Hofer et al. (2014). Outcomes in young adulthood: are we achieving community participation and inclusion? Journal of Intellectual Disability Research, 58(8), 734-745. Wiley.Crossref OpenAlex OpenCitations
-
Angela Novak Amado , Roger J. Stancliffe , Mary McCarron , Philip McCallion (2013). Social Inclusion and Community Participation of Individuals with Intellectual/Developmental Disabilities . Intellectual and Developmental Disabilities, 51(5), 360-375. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Julie Lounds Taylor , Ryan E. Adams , Somer Bishop (2017). Social participation and its relation to internalizing symptoms among youth with autism spectrum disorder as they transition from high school . Autism Research, 10(4), 663-672. Wiley.Crossref OpenAlex OpenCitations
-
Anastasia H. Anderson , Jennifer Stephenson , Mark Carter (2017). A systematic literature review of the experiences and supports of students with autism spectrum disorder in post-secondary education . Research in Autism Spectrum Disorders, 39(1), 33-53. Elsevier BV.Crossref OpenAlex OpenCitations
-
Tiffany D. Johnson , Aparna Joshi (2016). Dark clouds or silver linings? A stigma threat perspective on the implications of an autism diagnosis for workplace well-being. Journal of Applied Psychology, 101(3), 430-449. American Psychological Association (APA).Crossref OpenAlex OpenCitations
-
Christine Bigby , Ilan Wiesel (2019). Using the concept of encounter to further the social inclusion of people with intellectual disabilities: what has been learned? Research and Practice in Intellectual and Developmental Disabilities, 6(1), 39-51. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Femmianne Bredewold , Evelien Tonkens , Margo Trappenburg (2016). Urban encounters limited: The importance of built-in boundaries in contacts between people with intellectual or psychiatric disabilities and their neighbours . Urban Studies, 53(16), 3371-3387. SAGE Publications.Crossref OpenAlex OpenCitations
-
Noah J. Sasson , Daniel J. Faso , Jack Nugent , Sarah Lovell , Daniel P. Kennedy , Ruth B. Grossman (2017). Neurotypical Peers are Less Willing to Interact with Those with Autism based on Thin Slice Judgments . Scientific Reports, 7(1), 40700-40700. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Gregory L. Wallace , Jessica Budgett , Rebecca A. Charlton (2016). Aging and autism spectrum disorder: Evidence from the broad autism phenotype . Autism Research, 9(12), 1294-1303. Wiley.Crossref OpenAlex OpenCitations
-
Sarah Cassidy , K. Gould , E. Townsend , Mirabel Pelton , Ashley Robertson , Jacqui Rodgers (2020). Is Camouflaging Autistic Traits Associated with Suicidal Thoughts and Behaviours? Expanding the Interpersonal Psychological Theory of Suicide in an Undergraduate Student Sample . Journal of Autism and Developmental Disorders, 50(10), 3638-3648. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Rachel Peters , Rob Brooks (2016). Parental perspectives on the transition to secondary school for students with Asperger syndrome and high‐functioning autism: a pilot survey study . British Journal of Special Education, 43(1), 75-91. Wiley.Crossref OpenAlex OpenCitations
-
Ana Hategan , James A. Bourgeois , Jeremy Goldberg (2017). Aging with autism spectrum disorder: an emerging public health problem . International Psychogeriatrics, 29(4), 695-697. Elsevier BV.Crossref OpenAlex OpenCitations
-
Craig Goodall , Alison MacKenzie (2019). Title: what about my voice? Autistic young girls’ experiences of mainstream school . European Journal of Special Needs Education, 34(4), 499-513. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Jenna M. Hodges , Jonathan S. Gore (2019). Social Connections and Well-Being: With Whom Do You Identify and Why? Psychological Studies, 64(4), 436-446. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Haelle, T. (2018). The consequences of compensation in autism. https://www.neurologyadvisor.com/topics/autism-spectrum-disorder/the-consequences-of-compensation-in-autism/Type: OtherCrossref
-
Donna Koller , Kevin P. Stoddart (2021). Approaches that Address Social Inclusion for Children with Disabilities: A Critical Review . Child & Youth Care Forum, 50(4), 679-699. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Chantelle Makin , Vivian Hill , Elizabeth Pellicano (2017). The primary-to-secondary school transition for children on the autism spectrum: A multi-informant mixed-methods study . Autism & Developmental Language Impairments, 2, 1. SAGE Publications.Crossref OpenAlex OpenCitations
-
Darren Hedley , Mirko Uljarević , Kitty‐Rose Foley , Amanda L. Richdale , Julian N Trollor (2018). Risk and protective factors underlying depression and suicidal ideation in Autism Spectrum Disorder . Depression and Anxiety, 35(7), 648-657. Wiley.Crossref OpenAlex OpenCitations
-
Jennifer Sarrett (2017). Interviews, Disclosures, and Misperceptions: Autistic Adults' Perspectives on Employment Related Challenges . Disability Studies Quarterly, 37(2). The Ohio State University Libraries.Crossref OpenAlex OpenCitations
-
Laura Hull , K. V. Petrides , Carrie Allison , Paula Smith , Simon Baron-Cohen , Meng-Chuan Lai et al. (2017). “Putting on My Best Normal”: Social Camouflaging in Adults with Autism Spectrum Conditions . Journal of Autism and Developmental Disorders, 47(8), 2519-2534. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Sandra Thom-Jones *Autistic author. Learn more… , Muhammad Akram , Chloe S. Gordon , Nicole Murphy , Fiona Sharkie (2021). Autism in Australia: Community Knowledge and Autistic People’s Experiences . Journal of Autism and Developmental Disorders, 51(10), 3677-3689. Springer Science and Business Media LLC.
-
Jeromey B Temple , Margaret Kelaher (2018). Is disability exclusion associated with psychological distress? Australian evidence from a national cross-sectional survey . BMJ Open, 8(5), e020829. BMJ.Crossref OpenAlex OpenCitations
-
Erica C. Jacoby , Katherine Walton , Joseph Guada (2019). Community Perspectives on Adults With Autism Spectrum Disorder . Occupational Therapy in Mental Health, 35(1), 72-91. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Rachael PS John , Fiona J Knott , Kate N Harvey (2018). Myths about autism: An exploratory study using focus groups . Autism, 22(7), 845-854. SAGE Publications.Crossref OpenAlex OpenCitations
-
Noah J. Sasson , Kerrianne E Morrison (2019). First impressions of adults with autism improve with diagnostic disclosure and increased autism knowledge of peers . Autism, 23(1), 50-59. SAGE Publications.Crossref OpenAlex OpenCitations
-
Jill Cornelius Underhill , Victoria Ledford , Hillary Adams (2019). Autism stigma in communication classrooms: exploring peer attitudes and motivations toward interacting with atypical students . Communication Education, 68(2), 175-192. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Amanda D. Lowe , Sami Bawazeer , David G. Watson , Suzanne McGill , Richard J. S. Burchmore , P. P Pomeroy et al. (2017). Rapid changes in Atlantic grey seal milk from birth to weaning – immune factors and indicators of metabolic strain . Scientific Reports, 7(1), 16093-16093. Springer Science and Business Media LLC.OpenAlex
-
Jones, S. (2019). We need to stop perpetuating the myth that children grow out of autism https://theconversation.com/we-need-to-stop-perpetuating-the-myth-that-children-grow-out-of-autism-119540Type: OtherCrossref
-
United Nations. (2016). Convention on the Rights of Persons with Disabilities, General comment No. 4 (2016), Article 24: Right to inclusive education https://www.ohchr.org/Documents/HRBodies/CRPD/GC/RighttoEducation/CRPD-C-GC-4.docType: OtherCrossref