The experiences of autistic doctors: a cross-sectional study

Shaw, S. C. K., Fossi, A., Carravallah, L., Rabenstein, K., Ross, W., & Doherty, M. (2023). The experiences of autistic doctors: a cross-sectional study. Frontiers in Psychiatry, 14, 1160994-1160994. https://doi.org/10.3389/fpsyt.2023.1160994

Publication date: 18 Jul 2023 Added to AutiHub: 5 Jul 2026 Type: Article Article language: English

This publication is integrated into AutiHub through:

Authors

Publication authors
6
Publication authors identified as autistic
3 / 6 (50.0%)

Abstract

Introduction Medicine may select for autistic characteristics. As awareness and diagnosis of autism are growing, more medical students and doctors may be discovering they are autistic. No studies have explored the experiences of autistic doctors. This study aimed to fill that gap. Methods This is a cross-sectional study. A participatory approach was used to identify the need for the project and to modify a pre-existing survey for use exploring the experiences of autistic doctors. Results We received 225 responses. 64% had a formal diagnosis of autism. The mean age of receiving a formal diagnosis was 36 (range 3–61). Most were currently working as doctors (82%). The most common specialties were general practice / family medicine (31%), psychiatry (18%), and anesthesia (11%). Almost half of those working had completed specialty training (46%) and 40% were current trainees. 29% had not disclosed being autistic to anyone at work. 46% had requested adjustments in the workplace but of these, only half had them implemented. Three quarters had considered suicide (77%), one quarter had attempted suicide (24%) and half had engaged in self-harm (49%). 80% reported having worked with another doctor they suspected was autistic, but only 22% reported having worked with another doctor they knew was autistic. Having never worked with a potentially autistic colleague was associated with having considered suicide. Most preferred to be called “autistic doctors” (64%). Most considered autism to be a difference (83%). Considering autism to be a disorder was associated with preference for the term “doctors with autism,” and with having attempted suicide. Conclusion Autistic doctors reported many challenges in the workplace. This may have contributed to a culture of nondisclosure. Mental health was poor with high rates of suicidal ideation, self-harm, and prior suicide attempts. Despite inhospitable environments, most were persevering and working successfully. Viewing autism as a disorder was associated with prior suicide attempts and a preference for person-first language. A neurodiversity-affirmative approach to autism may lead to a more positive self-identity and improved mental health. Furthermore, providing adequate supports and improving awareness of autistic medical professionals may promote inclusion in the medical workforce.

Bibliography cited by this reference

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Bibliography inclusion overview

These indicators describe the cited bibliography imported for this publication. Cited-reference metrics use the cited-reference total as denominator. Cited-author metrics state whether they use all cited-author occurrences or only occurrences linked to authors already integrated in the AutiHub database. They use cached links between cited authors and authors integrated in the AutiHub database. Last computed: 16 Aug 2026 11:30.

Cited references
58
Total cited references integrated for this publication.
Cited references with an identified autistic author
19 / 58 (32.8%)
Cited author occurrences identified as autistic
43 / 224 (19.2%)
Among occurrences linked to AutiHub author records: 43 / 97 (44.3%). Distinct cited authors identified as autistic: 15 / 183 (8.2%).
Cited author occurrences linked to AutiHub author records
97 / 224 (43.3%)
Distinct linked cited authors: 57 / 183 (31.1%)
Linked cited-author occurrences not identified as autistic
54 / 97 (55.7%)
Among linked cited-author occurrences only. Across all cited-author occurrences: 54 / 224 (24.1%). Distinct linked cited authors not identified as autistic: 42 / 57 (73.7%).
  1. Susanna Baldwin , Debra Costley , Anthony Warren (2014). Employment Activities and Experiences of Adults with High-Functioning Autism and Asperger’s Disorder . Journal of Autism and Developmental Disorders, 44(10), 2440-2449. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  2. (2020). The psychiatric management of autism in adults (CR228) . The psychiatric management of autism in adults (CR228).
    Type: Other
    Crossref
  3. Melissa Scott , Marita Falkmer , Sonya Girdler , Torbjörn Falkmer (2015). Viewpoints on Factors for Successful Employment for Adults with Autism Spectrum Disorder . PLOS ONE, 10(10), e0139281. Public Library of Science (PLoS).
    Crossref OpenAlex OpenCitations
  4. Ashley Dennis , Rob Warren , Fergus Neville , Anita Laidlaw , Gozde Ozakinci (2012). Anxiety about anxiety in medical undergraduates . The Clinical Teacher, 9(5), 330-333. Wiley.
    Crossref OpenAlex OpenCitations
  5. Simon Baron-Cohen (2017). Editorial Perspective: Neurodiversity – a revolutionary concept for autism and psychiatry . Journal of Child Psychology and Psychiatry, 58(6), 744-747. Wiley.
    Crossref OpenAlex OpenCitations
  6. Evan M. Kleiman , Richard T. Liu (2013). Social support as a protective factor in suicide: Findings from two nationally representative samples . Journal of Affective Disorders, 150(2), 540-545. Elsevier BV.
    Crossref OpenAlex OpenCitations
  7. Alisha Ohl , Mira Grice Sheff , Sarah Small , Jamie Nguyen , Kelly Paskor , Aliza Zanjirian (2017). Predictors of employment status among adults with Autism Spectrum Disorder . Work, 56(2), 345-355. SAGE Publications.
    Crossref OpenAlex OpenCitations
  8. Sarah Miller , Sarah Ross , Jennifer Cleland (2009). Medical students’ attitudes towards disability and support for disability in medicine . Medical Teacher, 31(6), e272-e277. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  9. Nader Salari , Shabnam Rasoulpoor , Shna Rasoulpoor , Shamarina Shohaimi , Sima Jafarpour , Nasrin Abdoli et al. (2022). The global prevalence of autism spectrum disorder: a comprehensive systematic review and meta-analysis . Italian Journal of Pediatrics, 48(1), 112. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  10. Matthew K. Nock , Guilherme Borges , Evelyn J. Bromet , Jordi Alonso , Matthias Angermeyer , Annette Beautrais et al. (2008). Cross-national prevalence and risk factors for suicidal ideation, plans and attempts . British Journal of Psychiatry, 192(2), 98-105. Royal College of Psychiatrists.
    Crossref OpenAlex OpenCitations
  11. Jinan Zeidan , Éric Fombonne , Julie Scorah , Alaa T. Ibrahim , Maureen S. Durkin , Shekhar Saxena et al. (2022). Global prevalence of autism: A systematic review update . Autism Research, 15(5), 778-790. Wiley.
    Type: Article DOI: 10.1002/aur.2696 OpenAlex: https://openalex.org/W4214849391
    Crossref OpenAlex OpenCitations
  12. Mary Doherty *Autistic author. Learn more… , Mona Johnson *Autistic author. Learn more… , Carole Buckley (2021). Supporting autistic doctors in primary care: challenging the myths and misconceptions . British Journal of General Practice, 71(708), 294-295. Royal College of General Practitioners.
    AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
  13. Rodgers (2022). Prevalence of autism (including asperger syndrome) in school age children in Northern Ireland . Prevalence of autism (including asperger syndrome) in school age children in Northern Ireland.
    Type: Other
    Crossref
  14. Sebastian Charles Keith Shaw *Autistic author. Learn more… , John L. Anderson , Alec Grant (2016). Studying Medicine with Dyslexia: A Collaborative Autoethnography . The Qualitative Report, 21, 2036. Nova Southeastern University.
    Crossref OpenAlex OpenCitations
  15. Lisa D. Wiggins , Maureen Durkin , Amy Esler , Li‐Ching Lee , Walter Zahorodny , Catherine Rice et al. (2020). Disparities in Documented Diagnoses of Autism Spectrum Disorder Based on Demographic, Individual, and Service Factors . Autism Research, 13(3), 464-473. Wiley.
    Type: Article DOI: 10.1002/aur.2255 OpenAlex: https://openalex.org/W2995074616
    Crossref OpenAlex OpenCitations
  16. Ruth Monk *Autistic author. Learn more… , Andrew Whitehouse , Hannah Waddington (2022). The use of language in autism research . Trends in Neurosciences, 45(11), 791-793. Elsevier BV.
    AutiHub · Autistic Scholars Crossref OpenAlex OpenCitations
  17. Sebastian Charles Keith Shaw *Autistic author. Learn more… , John L. Anderson (2017). Doctors with dyslexia: a world of stigma, stonewalling and silence, still? MedEdPublish, 6, 29. F1000 Research Ltd.
    Crossref OpenAlex OpenCitations
  18. Sally Lindsay , Victoria Osten , Mana Rezai , Sunny Bui (2021). Disclosure and workplace accommodations for people with autism: a systematic review . Disability and Rehabilitation, 43(5), 597-610. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  19. Introduction (2020). Autistic community and the neurodiversity movement . Autistic community and the neurodiversity movement, 1.
    Type: Other
    Crossref
  20. Sebastian Charles Keith Shaw *Autistic author. Learn more… , John L. Anderson (2018). The experiences of medical students with dyslexia: An interpretive phenomenological study . Dyslexia, 24(3), 220-233. Wiley.
    Type: Article DOI: 10.1002/dys.1587 OpenAlex: https://openalex.org/W2796882681
    Crossref OpenAlex OpenCitations
  21. Sarah Cassidy , Louise Bradley , Rebecca Shaw , Simon Baron-Cohen (2018). Risk markers for suicidality in autistic adults . Molecular Autism, 9(1), 42. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  22. Shaw (2021). The impacts of dyslexia and dyspraxia on medical education . The impacts of dyslexia and dyspraxia on medical education.
    Type: Other
    Crossref
  23. Ghaidaa Khalifa , Zonera Sharif , Madiha Sultan , Briano Di Rezze (2020). Workplace accommodations for adults with autism spectrum disorder: a scoping review . Disability and Rehabilitation, 42(9), 1316-1331. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  24. Jessica Dreaver , Craig Thompson , Sonya Girdler , Margareta Adolfsson , Melissa H. Black , Marita Falkmer (2020). Success Factors Enabling Employment for Adults on the Autism Spectrum from Employers’ Perspective . Journal of Autism and Developmental Disorders, 50(5), 1657-1667. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  25. Rebecca Wood , Francesca Happé (2023). What are the views and experiences of autistic teachers? Findings from an online survey in the UK . Disability & Society, 38(1), 47-72. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  26. Antonio Ventriglio , Cameron Watson , Dinesh Bhugra (2020). Suicide among doctors . Indian Journal of Psychiatry, 62(2), 114-120. Ovid Technologies (Wolters Kluwer Health).
    Crossref OpenAlex OpenCitations
  27. Eloi Magnin , Ilham Ryff , Thierry Moulin (2021). Medical teachers’ opinions about students with neurodevelopmental disorders and their management . BMC Medical Education, 21(1), 16-16. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  28. Jennifer N. Haddock , Louis P. Hagopian (2020). Suicidality and Self-Harm in Autism Spectrum Conditions . The Oxford Handbook of Autism and Co-Occurring Psychiatric Conditions, 348-368. Oxford University Press.
    OpenAlex
  29. Simona Karbouniaris , Tineke Abma , Jean-Pierre Wilken , Alie Weerman (2020). Use of experiential knowledge by mental health professionals and its contribution to recovery: literature review . J Recov Ment Health, 4(1), 4.
    Type: Article OpenAlex: https://openalex.org/W3119496679
    Crossref OpenAlex
  30. Lisa M. Meeks , Sarah S. Conrad , Zakia Nouri , Christopher J. Moreland , Xiaochu Hu , Michael J. Dill (2022). Patient And Coworker Mistreatment Of Physicians With Disabilities . Health Affairs, 41(10), 1396-1402. Health Affairs Publishing, LLC.
    Crossref OpenAlex OpenCitations
  31. Michał T. Tomczak , Joanna Maria Szulc , Małgorzata Szczerska (2021). Inclusive Communication Model Supporting the Employment Cycle of Individuals with Autism Spectrum Disorders . International Journal of Environmental Research and Public Health, 18(9), 4696. MDPI AG.
    Crossref OpenAlex OpenCitations
  32. (2019). ref23
    Type: Other
    Crossref
  33. (2021). ref24
    Type: Other
    Crossref
  34. Sebastian Charles Keith Shaw *Autistic author. Learn more… , John L. Anderson (2021). Coping with Medical School: An Interpretive Phenomenological Study . The Qualitative Report, 26, 1864. Nova Southeastern University.
    Crossref OpenAlex OpenCitations
  35. Great (2010). Equality act 2010 . Equality act 2010.
    Type: Other
    Crossref
  36. (2020). ref26
    Type: Other
    Crossref
  37. Ruth Riley , Farina Kokab , Marta Buszewicz , Anya Gopfert , Maria Van Hove , Anna K Taylor et al. (2021). Protective factors and sources of support in the workplace as experienced by UK foundation and junior doctors: a qualitative study . BMJ Open, 11(6), e045588. BMJ.
    Crossref OpenAlex OpenCitations
  38. Rana Kilic , Julian Adriano Nasello , Valérie Melchior , Jean-Marc Triffaux (2021). Academic burnout among medical students: respective importance of risk and protective factors . Public Health, 198, 187-195. Elsevier BV.
    Crossref OpenAlex OpenCitations
  39. Shaw (2023). ref31
    Type: Other
    Crossref
  40. Cassidy (2020). Suicidality and self-harm in autism spectrum conditions . Oxford handbook of autism and co-occurring psychiatric conditions, 349.
    Type: Other
    Crossref
  41. White, Susan W. ca. 20./21. Jh. , Maddox, Brenna ca. 20./21. Jh. , Mazefsky, Carla ca. 20./21. Jh. (2020). The Oxford Handbook of Autism and Co-Occurring Psychiatric Conditions . Oxford University Press.
    OpenAlex
  42. Heather Ingman (2019). I Know Why the Caged Bird Sings . In Mothers and Daughters in the Twentieth Century (pp. 186-199). Edinburgh University Press.
    OpenAlex
  43. Doherty (2021). Autism in general practice . Aust J Gen Pract, 50, 343.
    Type: Other
    Crossref
  44. Gerada (2018). The wounded healer: Report on the first 10 years of practitioner health service . The wounded healer: Report on the first 10 years of practitioner health service.
    Type: Other
    Crossref
  45. Angelou (1969). I know why the caged bird sings . I know why the caged bird sings.
    Type: Other
    Crossref