Services de santé pour les adultes autistes australiens : Commentaire sur « Les expériences, points de vue et besoins des professionnels de santé qui fournissent des soins aux adultes du spectre de l’autisme » (Urbanowicz, Parkin, van Dooren, Girdler, Ciccarelli, & Lennox, 2020)

Titre original en anglais : Health services for Australian autistic adults: Commentary on “The experiences, views, and needs of health professionals who provide care to adults on the autism spectrum” (Urbanowicz, Parkin, van Dooren, Girdler, Ciccarelli, & Lennox, 2020)

Arnold, S. R. C., Higgins, J. M., & Trollor, J. N. (2020). Health services for Australian autistic adults: Commentary on “The experiences, views, and needs of health professionals who provide care to adults on the autism spectrum” (Urbanowicz, Parkin, van Dooren, Girdler, Ciccarelli, & Lennox, 2020). Research and Practice in Intellectual and Developmental Disabilities, 7(2), 193-198. https://doi.org/10.1080/23297018.2020.1753566

Date de publication: 06/05/2020 Ajout dans AutiHub: 05/07/2026 Type: Article Langue de l’article: Anglais

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
3
Auteur·ices de la publication identifié·es comme autistes
1 / 3 (33,3 %)

Résumé

À l’échelle internationale, nous savons que les adultes autistes 1 présentent des taux accrus de problèmes de santé physique et mentale (Croen et al., 2015 ; Jones et al., 2016), de mortalité (Hirvikoski et al., 2016) et de suicide...

Internationally we know that autistic adults 1 have increased rates of physical and mental health problems (Croen et al., 2015; Jones et al., 2016), mortality (Hirvikoski et al., 2016), and suicide...

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
31
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
4 / 31 (12,9 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
10 / 130 (7,7 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 10 / 70 (14,3 %). Auteurices cité·es distinct·es identifié·es comme autistes : 5 / 100 (5,0 %).
Occurrences citées rattachées à la base AutiHub
70 / 130 (53,8 %)
Auteurices cité·es distinct·es rattaché·es : 40 / 100 (40,0 %)
Occurrences rattachées, non identifiées comme autistes
60 / 70 (85,7 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 60 / 130 (46,2 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 35 / 40 (87,5 %).
  1. Afia Ali , Katrina Scior , Victoria Ratti , Andre Strydom , Michael King , Angela Hassiotis (2013). Discrimination and Other Barriers to Accessing Health Care: Perspectives of Patients with Mild and Moderate Intellectual Disability and Their Carers . PLoS ONE, 8(8), e70855. Public Library of Science (PLoS).
    Crossref OpenAlex OpenCitations
  2. Maryellen Brunson McClain , Bryn Harris , Cassity R. Haverkamp , Megan E. Golson , Sarah E. Schwartz (2020). The ASKSP Revised (ASKSP-R) as a Measure of ASD Knowledge for Professional Populations . Journal of Autism and Developmental Disorders, 50(3), 998-1006. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  3. Mary Beth Bruder , Gerard Kerins , Cynthia Mazzarella , Jessica Sims , Neil Stein (2012). Brief Report: The Medical Care of Adults with Autism Spectrum Disorders: Identifying the Needs . Journal of Autism and Developmental Disorders, 42(11), 2498-2504. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  4. Samuel R. C. Arnold , Kitty‐Rose Foley , Ye In Hwang , Amanda L. Richdale , Mirko Uljarević , Lauren P. Lawson et al. (2019). Cohort profile: the Australian Longitudinal Study of Adults with Autism (ALSAA) . BMJ Open, 9(12), e030798. BMJ.
    Crossref OpenAlex OpenCitations
  5. Justin Kruger , David Dunning (1999). Unskilled and unaware of it: How difficulties in recognizing one's own incompetence lead to inflated self-assessments. Journal of Personality and Social Psychology, 77(6), 1121-1134. American Psychological Association (APA).
    Crossref OpenAlex OpenCitations
  6. Beardon, L. (2017). Autism and Asperger syndrome in adults. John Murray Press. https://blackwells.co.uk/bookshop/product/Autism-and-Asperger-Syndrome-in-Adults-by-Luke-Beardon-author/9781847094452
    Type: Autre
    Crossref
  7. Tatja Hirvikoski , Ellenor Mittendorfer-Rutz , Marcus Boman , Henrik Larsson , Paul Lichtenstein , Sven Bölte (2016). Premature mortality in autism spectrum disorder . British Journal of Psychiatry, 208(3), 232-238. Royal College of Psychiatrists.
    Crossref OpenAlex OpenCitations
  8. Alex Clark , Sarah Browne , Liz Boardman , Lealah Hewitt , Sophie Light (2016). Implementing UK Autism policy & national institute for health and care excellence guidance- assessing the impact of Autism training for frontline staff in community learning disabilities teams . British Journal of Learning Disabilities, 44(2), 103-110. Wiley.
    Crossref OpenAlex OpenCitations
  9. Matthew Bennett , Vicki Hodgson (2017). The missing voices of Indigenous Australians with autism in research . Autism, 21(1), 122-123. SAGE Publications.
    Crossref OpenAlex OpenCitations
  10. Timothy R Hatfield , Rhonda F Brown , Melita J Giummarra , Bigna Lenggenhager (2019). Autism spectrum disorder and interoception: Abnormalities in global integration? Autism, 23(1), 212-222. SAGE Publications.
    Crossref OpenAlex OpenCitations
  11. Lisa A. Croen , Ousseny Zerbo , Yinge Qian , Maria L Massolo , Steve Rich , Stephen Sidney et al. (2015). The health status of adults on the autism spectrum . Autism, 19(7), 814-823. SAGE Publications.
    Crossref OpenAlex OpenCitations
  12. Pia Bradshaw , Elizabeth Pellicano , Mieke van Driel , Anna Urbanowicz (2019). How Can We Support the Healthcare Needs of Autistic Adults Without Intellectual Disability? Current Developmental Disorders Reports, 6(2), 45-56. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  13. Ye In Hwang , Preeyaporn Srasuebkul , Kitty‐Rose Foley , Samuel R. C. Arnold , Julian N Trollor (2019). Mortality and cause of death of Australians on the autism spectrum . Autism Research, 12(5), 806-815. Wiley.
    Type: Article DOI: 10.1002/aur.2086 OpenAlex: https://openalex.org/W2917274387
    Crossref OpenAlex OpenCitations
  14. Louise Camm-Crosbie , Louise Bradley , Rebecca Shaw , Simon Baron-Cohen , Sarah Cassidy (2019). ‘People like me don’t get support’: Autistic adults’ experiences of support and treatment for mental health difficulties, self-injury and suicidality . Autism, 23(6), 1431-1441. SAGE Publications.
    Crossref OpenAlex OpenCitations
  15. Andrew Cashin , Thomas Buckley , Julian N Trollor , Nicholas Lennox (2018). A scoping review of what is known of the physical health of adults with autism spectrum disorder . Journal of Intellectual Disabilities, 22(1), 96-108. SAGE Publications.
    Crossref OpenAlex OpenCitations
  16. Kyle B Jones , Kristina Cottle , Amanda Bakian , Megan Farley , Deborah Bilder , Hilary Coon et al. (2016). A description of medical conditions in adults with autism spectrum disorder: A follow-up of the 1980s Utah/UCLA Autism Epidemiologic Study . Autism, 20(5), 551-561. SAGE Publications.
    Crossref OpenAlex OpenCitations
  17. Sarah Cassidy , Jacqui Rodgers (2017). Understanding and prevention of suicide in autism . The Lancet Psychiatry, 4(6), e11. Elsevier BV.
    Crossref OpenAlex OpenCitations
  18. Brett Heasman , Alex Gillespie (2018). Perspective-taking is two-sided: Misunderstandings between people with Asperger’s syndrome and their family members . Autism, 22(6), 740-750. SAGE Publications.
    Crossref OpenAlex OpenCitations
  19. Rachael C. Cvejic , Samuel R. C. Arnold , Kitty‐Rose Foley , Julian N Trollor (2018). Neuropsychiatric profile and psychotropic medication use in adults with autism spectrum disorder: results from the Australian Longitudinal Study of Adults with Autism . BJPsych Open, 4(6), 461-466. Royal College of Psychiatrists.
    Crossref OpenAlex OpenCitations
  20. Darren Hedley , Mirko Uljarević , Mathilda Wilmot , Amanda L. Richdale , Cheryl Dissanayake (2017). Brief Report: Social Support, Depression and Suicidal Ideation in Adults with Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 47(11), 3669-3677. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  21. Higgins, J. & van Dooren, K. (2015). An introduction to your rights to healthcare. The Cooperative Research Centre for Living with Autism (Autism CRC), Queensland, Australia.
    Type: Autre
    Crossref
  22. Luke Beardon (2017). Autism and Asperger Syndrome in Adults .
    Type: Livre OpenAlex: https://openalex.org/W2947511713
    OpenAlex
  23. Camilla M. McMahon , Brianna Stoll , Meghan Linthicum (2020). Perceived versus actual autism knowledge in the general population . Research in Autism Spectrum Disorders, 71, 101499. Elsevier BV.
    Crossref OpenAlex OpenCitations
  24. Anna Urbanowicz , Timothy Parkin , Kate van Dooren , Sonya Girdler , Marina Ciccarelli , Nicholas Lennox (2020). The experiences, views, and needs of health professionals who provide care to adults on the autism spectrum . Research and Practice in Intellectual and Developmental Disabilities, 7(2), 179-192. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  25. (s. d.). Price, J. (2019, September). Double empathy and autism. The Psychologist. https://thepsychologist.bps.org.uk/volume-32/september-2019/double-empathy-and-autism
    Type: Autre
    Crossref
  26. Soraya, L. (2014). Barriers to effective medical care for autistic adults. Psychology Today. http://www.psychologytoday.com/blog/aspergers-diary/201406/barriers-effective-medical-care-autistic-adults
    Type: Autre
    Crossref
  27. (s. d.). Vivian, S. (2019, November 16). An open letter to King’s College London: Regarding the use of dehumanising rhetoric [open letter]. https://theautisticadvocate.com/2020/02/regarding-the-use-of-dehumanising-rhetoric.html
    Type: Autre
    Crossref