Health services for Australian autistic adults: Commentary on “The experiences, views, and needs of health professionals who provide care to adults on the autism spectrum” (Urbanowicz, Parkin, van Dooren, Girdler, Ciccarelli, & Lennox, 2020)

This publication is included in the Autistic Autism Scholarship Project. one author of this publication is identified as autistic in the project.

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Arnold, S. R. C., Higgins, J. M., & Trollor, J. (2020). Health services for Australian autistic adults: Commentary on “The experiences, views, and needs of health professionals who provide care to adults on the autism spectrum” (Urbanowicz, Parkin, van Dooren, Girdler, Ciccarelli, & Lennox, 2020). Research and Practice in Intellectual and Developmental Disabilities, 7(2), 193-198. https://doi.org/10.1080/23297018.2020.1753566

Publication date: 6 May 2020 Added to AutiHub: 5 Jul 2026 Type: Article Article language: English
Publisher source (DOI) OpenAlex source

This publication is integrated into AutiHub through:

Authors

Publication authors
3
Publication authors identified as autistic
1 / 3 (33.3%)
  1. Samuel R. C. Arnold
  2. Julianne M. Higgins *
  3. Julian Trollor

Abstract

Internationally we know that autistic adults 1 have increased rates of physical and mental health problems (Croen et al., 2015; Jones et al., 2016), mortality (Hirvikoski et al., 2016), and suicide...

Bibliography cited by this reference

Cited references are imported from external metadata sources when they are available. The list may be partial.

Cited bibliography overview

These indicators describe the bibliography cited by this publication. An author name is counted each time it appears in one cited reference, so the same person can be counted more than once. Names not yet linked to an author already present in AutiHub are treated as unknown, not as non-autistic. Last computed: 2 Oct 2026 17:07.

Cited references
31
With a DOI
25
Without a DOI, from raw bibliography text
5
5 / 31 (16.1%) cited references include at least one author identified as autistic.
References with data to complete
5 / 31 (16.1%)
References with detected author names
26 / 31 (83.9%)
Without detected author names
5
Without a structured title
5
Without a stable identifier
5
References with raw author names still to review
5
References with external metadata lookup issues
0
These indicators apply to cited references displayed on this page, after technical duplicates have been merged. A reference without a DOI can still support author statistics when a title and author names are available.
Author names detected in the cited bibliography
130
From DOI or external metadata
130
From validated raw bibliography text
0
Raw names already validated
0
Raw names still to review
6
76 / 130 (58.5%) names are linked to an author already present in AutiHub. 54 / 130 (41.5%) names are not yet linked.
Names linked to a person identified as autistic
15 / 130 (11.5%)
Calculated across all author names detected in the cited bibliography. Among names linked to an author already present in AutiHub: 15 / 76 (19.7%). Distinct people identified as autistic: 8 / 100 (8.0%).
  2. Afia Ali , Katrina Scior , Victoria Ratti , Andre Strydom , Michael King , Angela Hassiotis (2013). Discrimination and Other Barriers to Accessing Health Care: Perspectives of Patients with Mild and Moderate Intellectual Disability and Their Carers . PLoS ONE, 8(8), e70855. Public Library of Science (PLoS).
    Type: Article DOI: 10.1371/journal.pone.0070855 OpenAlex: https://openalex.org/W2171330997
    Crossref OpenAlex OpenCitations
  3. Maryellen Brunson McClain , Bryn Harris , Cassity R. Haverkamp , Megan E. Golson , Sarah E. Schwartz (2020). The ASKSP Revised (ASKSP-R) as a Measure of ASD Knowledge for Professional Populations . Journal of Autism and Developmental Disorders, 50(3), 998-1006. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-019-04321-5 OpenAlex: https://openalex.org/W2995043716
    Crossref OpenAlex OpenCitations
  4. Mary Beth Bruder , Gerard Kerins , Cynthia Mazzarella , Jessica Sims , Neil Stein (2012). Brief Report: The Medical Care of Adults with Autism Spectrum Disorders: Identifying the Needs . Journal of Autism and Developmental Disorders, 42(11), 2498-2504. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s10803-012-1496-x OpenAlex: https://openalex.org/W2032407690
    Crossref OpenAlex OpenCitations
  5. Samuel R. C. Arnold , Kitty-Rose Foley , Ye In (Jane) Hwang , Amanda Richdale , Mirko Uljarevic , Lauren P Lawson et al. (2019). Cohort profile: the Australian Longitudinal Study of Adults with Autism (ALSAA) . BMJ Open, 9(12), e030798. BMJ.
    Type: Article DOI: 10.1136/bmjopen-2019-030798 OpenAlex: https://openalex.org/W2990453264
    Crossref OpenAlex OpenCitations
  6. Justin Kruger , David Dunning (1999). Unskilled and unaware of it: How difficulties in recognizing one's own incompetence lead to inflated self-assessments. Journal of Personality and Social Psychology, 77(6), 1121-1134. American Psychological Association (APA).
    Type: Article DOI: 10.1037/0022-3514.77.6.1121 OpenAlex: https://openalex.org/W2146006411
    Crossref OpenAlex OpenCitations
  8. Beardon, L. (2017). Autism and Asperger syndrome in adults. John Murray Press. https://blackwells.co.uk/bookshop/product/Autism-and-Asperger-Syndrome-in-Adults-by-Luke-Beardon-author/9781847094452
    Type: Other
    Crossref
  9. Tatja Hirvikoski , Ellenor Mittendorfer-Rutz , Marcus Boman , Henrik Larsson , Paul Lichtenstein , Sven Bölte (2016). Premature mortality in autism spectrum disorder . British Journal of Psychiatry, 208(3), 232-238. Royal College of Psychiatrists.
    Type: Article DOI: 10.1192/bjp.bp.114.160192 OpenAlex: https://openalex.org/W2168424072
    Crossref OpenAlex OpenCitations
  10. Alex Clark , Sarah Browne , Liz Boardman , Lealah Hewitt , Sophie Light (2016). Implementing UK Autism policy & national institute for health and care excellence guidance- assessing the impact of Autism training for frontline staff in community learning disabilities teams . British Journal of Learning Disabilities, 44(2), 103-110. Wiley.
    Type: Article DOI: 10.1111/bld.12116 OpenAlex: https://openalex.org/W2103961561
    Crossref OpenAlex OpenCitations
  11. Matthew Bennett , Vicki Hodgson (2017). The missing voices of Indigenous Australians with autism in research . Autism, 21(1), 122-123. SAGE Publications.
    Type: Article DOI: 10.1177/1362361316643696 OpenAlex: https://openalex.org/W2396359396
    Crossref OpenAlex OpenCitations
  12. Timothy R Hatfield , Rhonda F Brown , Melita J Giummarra , Bigna Lenggenhager (2019). Autism spectrum disorder and interoception: Abnormalities in global integration? Autism, 23(1), 212-222. SAGE Publications.
    Type: Article DOI: 10.1177/1362361317738392 OpenAlex: https://openalex.org/W2770302805
    Crossref OpenAlex OpenCitations
  13. Lisa A. Croen , Ousseny Zerbo , Yinge Qian , Maria L Massolo , Steve Rich , Stephen Sidney et al. (2015). The health status of adults on the autism spectrum . Autism, 19(7), 814-823. SAGE Publications.
    Type: Article DOI: 10.1177/1362361315577517 OpenAlex: https://openalex.org/W2108322879
    Crossref OpenAlex OpenCitations
  14. Pia Bradshaw , Elizabeth Pellicano , Mieke van Driel , Anna Urbanowicz (2019). How Can We Support the Healthcare Needs of Autistic Adults Without Intellectual Disability? Current Developmental Disorders Reports, 6(2), 45-56. Springer Science and Business Media LLC.
    Type: Article DOI: 10.1007/s40474-019-00159-9 OpenAlex: https://openalex.org/W2944177211
    Crossref OpenAlex OpenCitations
  15. Ye In (Jane) Hwang , Preeyaporn Srasuebkul , Kitty-Rose Foley , Samuel R. C. Arnold , Julian Trollor (2019). Mortality and cause of death of Australians on the autism spectrum . Autism Research, 12(5), 806-815. Wiley.
    Type: Article DOI: 10.1002/aur.2086 OpenAlex: https://openalex.org/W2917274387
    Crossref OpenAlex OpenCitations
  16. Louise Camm-Crosbie , Louise Bradley , Rebecca Shaw , Simon Baron-Cohen , Sarah Cassidy (2019). ‘People like me don’t get support’: Autistic adults’ experiences of support and treatment for mental health difficulties, self-injury and suicidality . Autism, 23(6), 1431-1441. SAGE Publications.
    Type: Article DOI: 10.1177/1362361318816053 OpenAlex: https://openalex.org/W2902777586
    Crossref OpenAlex OpenCitations
  18. Andrew Cashin , Thomas Buckley , Julian Trollor , Nicholas Lennox (2018). A scoping review of what is known of the physical health of adults with autism spectrum disorder . Journal of Intellectual Disabilities, 22(1), 96-108. SAGE Publications.
    Type: Article DOI: 10.1177/1744629516665242 OpenAlex: https://openalex.org/W2519892621
    Crossref OpenAlex OpenCitations
  19. Kyle B Jones , Kristina Cottle , Amanda Bakian , Megan Farley , Deborah Bilder , Hilary Coon et al. (2016). A description of medical conditions in adults with autism spectrum disorder: A follow-up of the 1980s Utah/UCLA Autism Epidemiologic Study . Autism, 20(5), 551-561. SAGE Publications.
    Type: Article DOI: 10.1177/1362361315594798 OpenAlex: https://openalex.org/W2273594909
    Crossref OpenAlex OpenCitations
  20. Sarah Cassidy , Jacqui Rodgers (2017). Understanding and prevention of suicide in autism . The Lancet Psychiatry, 4(6), e11. Elsevier BV.
    Type: Article DOI: 10.1016/s2215-0366(17)30162-1 OpenAlex: https://openalex.org/W2617666343
    Crossref OpenAlex OpenCitations
  22. Brett Heasman * , Alex Gillespie (2018). Perspective-taking is two-sided: Misunderstandings between people with Asperger’s syndrome and their family members . Autism, 22(6), 740-750. SAGE Publications.
    Type: Article DOI: 10.1177/1362361317708287 OpenAlex: https://openalex.org/W2727105378
    Crossref OpenAlex OpenCitations
  23. Rachael C. Cvejic , Samuel R. C. Arnold , Kitty-Rose Foley , Julian Trollor (2018). Neuropsychiatric profile and psychotropic medication use in adults with autism spectrum disorder: results from the Australian Longitudinal Study of Adults with Autism . BJPsych Open, 4(6), 461-466. Royal College of Psychiatrists.
    Type: Article DOI: 10.1192/bjo.2018.64 OpenAlex: https://openalex.org/W2901692396
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  24. Darren Hedley , Mirko Uljarevic , Mathilda Wilmot , Amanda Richdale , Cheryl Dissanayake (2017). Brief Report: Social Support, Depression and Suicidal Ideation in Adults with Autism Spectrum Disorder . Journal of Autism and Developmental Disorders, 47(11), 3669-3677. Springer Science and Business Media LLC.
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  25. Higgins, J. & van Dooren, K. (2015). An introduction to your rights to healthcare. The Cooperative Research Centre for Living with Autism (Autism CRC), Queensland, Australia.
    Type: Other
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  26. Luke Beardon (2017). Autism and Asperger Syndrome in Adults .
    Type: Book OpenAlex: https://openalex.org/W2947511713
    OpenAlex
  27. Camilla M. McMahon , Brianna Stoll , Meghan Linthicum (2020). Perceived versus actual autism knowledge in the general population . Res. Autism Spectr. Disord., 71, 101499. Elsevier BV.
    Type: Article DOI: 10.1016/j.rasd.2019.101499 OpenAlex: https://openalex.org/W2995913686
    Crossref OpenAlex OpenCitations
  28. Anna Urbanowicz , Timothy Parkin , Kate van Dooren , Sonya Girdler , Marina Ciccarelli , Nicholas Lennox (2020). The experiences, views, and needs of health professionals who provide care to adults on the autism spectrum . Research and Practice in Intellectual and Developmental Disabilities, 7(2), 179-192. Informa UK Limited.
    Type: Article DOI: 10.1080/23297018.2020.1735943 OpenAlex: https://openalex.org/W3016395777
    Crossref OpenAlex OpenCitations
  29. (n.d.). Price, J. (2019, September). Double empathy and autism. The Psychologist. https://thepsychologist.bps.org.uk/volume-32/september-2019/double-empathy-and-autism
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  30. Soraya, L. (2014). Barriers to effective medical care for autistic adults. Psychology Today. http://www.psychologytoday.com/blog/aspergers-diary/201406/barriers-effective-medical-care-autistic-adults
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  31. (n.d.). Vivian, S. (2019, November 16). An open letter to King’s College London: Regarding the use of dehumanising rhetoric [open letter]. https://theautisticadvocate.com/2020/02/regarding-the-use-of-dehumanising-rhetoric.html
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