Développement de l’échelle révisée d’impact du diagnostic (IODS-R)

Titre original en anglais : Development of the Impact of Diagnosis Scale–Revised (IODS-R)

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Arnold, S. R. C., Huang, Y., Lawson, L. P., Higgins, J. M., Hwang, Y. I., Richdale, A. L., & Trollor, J. N. (2023). Development of the Impact of Diagnosis Scale–Revised (IODS-R). Assessment, 31(4), 908-919. https://doi.org/10.1177/10731911231196486

Date de publication: 12/09/2023 Ajout dans AutiHub: 05/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
7
Auteur·ices de la publication identifié·es comme autistes
1 / 7 (14,3 %)
  1. Samuel R. C. Arnold
  2. Yunhe Huang
  3. Lauren P. Lawson
  4. Julianne M. Higgins *
  1. Ye In Hwang
  2. Amanda L. Richdale
  3. Julian N Trollor

Résumé

Aucun outil ne quantifie l’expérience ainsi que l’impact psychologique et pratique de la réception d’un diagnostic dans une perspective non déficitaire. L’autisme est de plus en plus diagnostiqué tardivement à l’âge adulte. L’Impact of Diagnosis Scale (IODS) a été initialement élaborée pour le trouble de la personnalité borderline. Nous avons visé à développer une version révisée adaptée aux adultes autistes et potentiellement à d’autres groupes diagnostiques. À la suite d’un essai d’une révision préliminaire, les chercheurs et les conseillers de recherche autistes ont coproduit un ensemble élargi de 46 items, évalués sur une échelle de type Likert à 7 points, au sein de 6 domaines hypothétiques. Des processus de réduction de l’échelle ont été appliqués aux données de 125 adultes autistes ayant reçu un diagnostic formel. À la suite de cycles itératifs d’analyse factorielle utilisant l’estimation du maximum de vraisemblance avec rotation Promax, 22 items répartis dans 4 domaines ont été retenus pour constituer l’IODS-R. L’IODS-R apporte une nouvelle compréhension de l’expérience de recevoir un diagnostic d’autisme à l’âge adulte. Elle peut être utile pour évaluer les services diagnostiques et d’autres groupes diagnostiques.

No tools quantify the experience, psychological, and practical impact of receiving a diagnosis from a non-deficit perspective. Autism is increasingly late diagnosed in adulthood. The Impact of Diagnosis Scale (IODS) was initially developed for borderline personality disorder. We aimed to develop a revised version suitable for autistic adults and potentially other diagnostic groups. Following a trial of a preliminary revision, the researchers and autistic research advisors co-produced an expanded pool of 46 items, scored on 7-point Likert-type scale, within 6 hypothesized domains. Scale reduction processes were applied to data from 125 formally diagnosed autistic adults. Following iterative rounds of factor analysis using maximum likelihood estimation with Promax rotation, 22 items were retained across 4 domains to comprise the IODS-R. The IODS-R adds new understanding to the experience of receiving an autism diagnosis in adulthood. It may be useful for evaluating diagnostic services and other diagnostic groups.

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Références citées
64
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
8 / 64 (12,5 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
14 / 270 (5,2 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 14 / 97 (14,4 %). Auteurices cité·es distinct·es identifié·es comme autistes : 9 / 236 (3,8 %).
Occurrences citées rattachées à la base AutiHub
97 / 270 (35,9 %)
Auteurices cité·es distinct·es rattaché·es : 65 / 236 (27,5 %)
Occurrences rattachées, non identifiées comme autistes
83 / 97 (85,6 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 83 / 270 (30,7 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 56 / 65 (86,2 %).
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