« Les parents somaliens ont l'impression d'être mis à l'écart » : expériences de mères somaliennes concernant les relations parents-enseignants pour leurs enfants autistes
Titre original en anglais : ‘Somali parents feel like they’re on the outer’: Somali mothers’ experiences of parent–teacher relationships for their autistic children
Smith, J., Rabba, A. S., Ali, A., Datta, P., Dresens, E., Faragaab, N., Hall, G., Heyworth, M., Ige, K., Lawson, W., Lilley, R., Syeda, N., & Pellicano, E. (2023). ‘Somali parents feel like they’re on the outer’: Somali mothers’ experiences of parent–teacher relationships for their autistic children. Autism, 27(6), 1777-1789. https://doi.org/10.1177/13623613221146077
Cette publication est intégrée dans AutiHub via :
Auteurs
Résumé
Des partenariats efficaces entre parents et enseignants peuvent améliorer les résultats des élèves autistes. Pourtant, nous savons peu de choses sur ce à quoi ressemblent des partenariats efficaces pour les parents d'enfants autistes issus de milieux divers. À l'aide de méthodes participatives, nous avons mené des entretiens semi-structurés avec 15 mères somaliennes d'enfants autistes fréquentant des jardins d'enfants/écoles australiens afin de comprendre leurs expériences des interactions entre parents et enseignants. Nous avons utilisé une analyse thématique réflexive pour identifier les thèmes principaux. Nous avons constaté que les mères étaient fières de leurs enfants et les acceptaient. Elles avaient des attentes élevées, particulièrement concernant l'autonomie des enfants. Les mères souhaitaient que les différences de leurs enfants soient comprises et soutenues par les autres, y compris les enseignants. Elles étaient frustrées par les faibles attentes envers les enfants, le manque de communication authentique de la part des enseignants et les connaissances, compétences et expériences limitées spécifiques à l'autisme au sein des écoles. Elles ont décrit des attitudes racistes envers leurs enfants et ont rapporté avoir elles-mêmes vécu de la stigmatisation. Elles disposaient également de peu de sources de soutien sur lesquelles s'appuyer, bien que leurs filles non autistes et leur foi constituent d'importants fondements de résilience. Malgré toutes ces difficultés, les mères accroissaient elles-mêmes la sensibilisation et les connaissances de la communauté concernant l'autisme, dans l'espoir qu'elles-mêmes et leurs enfants soient valorisés par les autres. Nos travaux ont des implications quant à la manière dont les enseignants et les écoles peuvent favoriser des relations fructueuses avec les parents somaliens d'enfants autistes. Résumé vulgarisé De bonnes relations entre les parents et les écoles peuvent améliorer la réussite scolaire des enfants autistes. De nombreuses raisons expliquent pourquoi les familles issues de contextes culturels différents ont plus de difficultés à développer de bonnes relations avec les écoles, telles que les barrières linguistiques, la discrimination et la méconnaissance des systèmes éducatifs. Nous savons peu de choses sur ce à quoi ressemblent de « bonnes relations » pour ces familles. Ici, nous avons travaillé avec une équipe de chercheurs autistes et non autistes ainsi qu'avec un groupe consultatif de parents somaliens afin de mener des entretiens avec 15 mères somaliennes d'enfants autistes d'âge préscolaire et scolaire. Nous avons interrogé les mères sur leurs expériences de l'éducation de leur enfant, de la communication avec les enseignants et sur ce à quoi ressemblerait une bonne relation avec les écoles. Nous avons également demandé comment, selon elles, la communauté somalienne comprenait l'autisme. Nous avons recherché les éléments communs dans ce que les mères disaient. Nous avons constaté que les mères étaient très fières de leurs enfants. Elles avaient des attentes élevées, particulièrement quant à ce que les enfants pouvaient faire par eux-mêmes. Les mères trouvaient frustrant que les enseignants aient de faibles attentes, que les écoles ne communiquent pas bien avec elles et que les compétences et l'expérience spécifiques à l'autisme soient peu fréquentes dans les écoles. Elles ont également rapporté des attitudes racistes envers leurs enfants. Les mères ont vécu de la stigmatisation et manquaient de ressources, mais elles obtenaient du soutien de leurs filles et de leur religion. Les mères accroissaient elles-mêmes activement la sensibilisation et les connaissances de la communauté concernant l'autisme, dans l'espoir qu'elles-mêmes et leurs enfants autistes soient valorisés et mieux soutenus. Nos travaux ont des implications quant à la manière dont les enseignants et les écoles peuvent travailler avec les parents somaliens afin de forger de meilleurs avenirs pour les enfants autistes.
Bibliographie citée par cette référence
Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.
Vue d’ensemble de l’inclusion dans la bibliographie
Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.
-
Ann P. Turnbull (2010). Families, Professionals, and Exceptionality: Positive Outcomes Through Partnerships and Trust .Type: Livre OpenAlex: https://openalex.org/W576879130OpenAlex
-
Nura O. Aabe , Fiona Fox , Dheeraj Rai , Sabi Redwood (2019). Inside, outside and in‐between: The process and impact of co‐producing knowledge about autism in a UK Somali community . Health Expectations, 22(4), 752-760. Wiley.Crossref OpenAlex OpenCitations
-
Jennifer Hall-Lande , Amy N. Esler , Amy Hewitt , Amy L. Gunty (2021). Age of Initial Identification of Autism Spectrum Disorder in a Diverse Urban Sample . Journal of Autism and Developmental Disorders, 51(3), 798-803. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Haines S. J. (2019). International Review of Research in Developmental Disabilities . Dans International review of research in developmental disabilities (pp. i). Elsevier.Type: Chapitre de livre DOI: 10.1016/s2211-6095(19)30028-4 OpenAlex: https://openalex.org/W1869384926Crossref OpenAlex
-
Ifrah Abdullahi , Estie Kruger , Marc Tennant (2017). Service access and perceptions for Somali Australian migrants at risk of autism . International Journal of Migration, Health and Social Care, 13(1), 119-125. Emerald.Crossref OpenAlex OpenCitations
-
Joep Bakker , Eddie Denessen , Mariël Brus‐Laeven (2007). Socio‐economic background, parental involvement and teacher perceptions of these in relation to pupil achievement . Educational Studies, 33(2), 177-192. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Nigel P. Pierce , Mark F. O’Reilly , Audrey M. Sorrells , Christina L. Fragale , Pamela J. White , Jeannie M. Aguilar et al. (2014). Ethnicity Reporting Practices for Empirical Research in Three Autism-Related Journals . Journal of Autism and Developmental Disorders, 44(7), 1507-1519. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Sahra Bashir Abdullahi , Li Wei (2021). Living with diversity and change: intergenerational differences in language and identity in the Somali community in Britain . International Journal of the Sociology of Language, 2021(269), 15-45. Walter de Gruyter GmbH.Crossref OpenAlex OpenCitations
-
MARTINA BARNEVIK‐OLSSON , Christopher Gillberg , ELISABETH FERNELL (2010). Prevalence of autism in children of Somali origin living in Stockholm: brief report of an at‐risk population . Developmental Medicine & Child Neurology, 52(12), 1167-1168. Wiley.Crossref OpenAlex OpenCitations
-
Catherine McNerney , Vivian Hill , Elizabeth Pellicano (2015). Choosing a secondary school for young people on the autism spectrum: a multi-informant study . International Journal of Inclusive Education, 19(10), 1096-1116. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Ethar A. Alsharaydeh , Muhammad Alqudah , Regina Lai Tong Lee , Sally Wai-Chi Chan (2019). Challenges, Coping, and Resilience Among Immigrant Parents Caring for a Child With a Disability: An Integrative Review . Journal of Nursing Scholarship, 51(6), 670-679. Wiley.Crossref OpenAlex OpenCitations
-
Phillip Atiba Goff , Matthew Christian Jackson , Brooke Allison Lewis Di Leone , Carmen Marie Culotta , Natalie Ann DiTomasso (2014). The essence of innocence: Consequences of dehumanizing Black children. Journal of Personality and Social Psychology, 106(4), 526-545. American Psychological Association (APA).Crossref OpenAlex OpenCitations
-
Robert Harris (1982). THE NATIONAL HEALTH AND MEDICAL RESEARCH COUNCIL . Australian Dental Journal, 27(4), 257-258. Wiley.OpenAlex
-
Australian Government. (2006). National Health and Medical Research Council. (2006) Cultural competency in health: A guide for policy partnerships and participation. Commonwealth of Australia. https://www.nhmrc.gov.au/guidelines-publications/hp19-hp26Type: AutreCrossref
-
Robert D. Schweitzer , Sasha Mackay , Donna Hancox , Nigar G. Khawaja (2021). Fostering belonging in a CALD school environment: learning from a research collaboration with a refugee and migrant school community in Australia . Intercultural Education, 32(6), 593-609. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Virginia Braun , Victoria Clarke (2006). Using thematic analysis in psychology . Qualitative Research in Psychology, 3(2), 77-101. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Gazi Azad , David S. Mandell (2016). Concerns of parents and teachers of children with autism in elementary school . Autism, 20(4), 435-441. SAGE Publications.Crossref OpenAlex OpenCitations
-
Irang Kim , Yao Wang , Sarah Dababnah , Gail Betz (2021). East Asian American Parents of Children with Autism: a Scoping Review . Review Journal of Autism and Developmental Disorders, 8(3), 312-320. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Gazi F. Azad , Steven C. Marcus , David S. Mandell (2021). Partners in School: Optimizing Communication between Parents and Teachers of Children with Autism Spectrum Disorder . Journal of Educational and Psychological Consultation, 31(4), 438-462. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Martina Barnevik–Olsson , Christopher Gillberg , Elisabeth Fernell (2008). Prevalence of autism in children born to Somali parents living in Sweden: a brief report . Developmental Medicine & Child Neurology, 50(8), 598-601. Wiley.Crossref OpenAlex OpenCitations
-
Brinda Jegatheesan (2009). Cross-Cultural Issues in Parent-Professional Interactions: A Qualitative Study of Perceptions of Asian American Mothers of Children with Developmental Disabilities . Research and Practice for Persons with Severe Disabilities, 34(3-4), 123-136. SAGE Publications.Crossref OpenAlex OpenCitations
-
Baker D. (2018). Unsettling the resettled: An intersectional analysis of autism in the Somali diaspora . Review of Disability Studies: An International Journal, 14, 1.Type: AutreCrossref
-
Rozanna Lilley (2019). Fostering Collaborative Family–School Relationships to Support Students on the Autism Spectrum . Dans The SAGE Handbook of Autism and Education (pp. 351-362). SAGE Publications Ltd.Crossref OpenAlex OpenCitations
-
Hui-Ting Wang , Nicole Casillas (2013). Asian American Parents’ Experiences of Raising Children with Autism: Multicultural Family Perspective . Journal of Asian and African Studies, 48(5), 594-606. SAGE Publications.Crossref OpenAlex OpenCitations
-
Rozanna Lilley (2015). Trading places: Autism Inclusion Disorder and school change . International Journal of Inclusive Education, 19(4), 379-396. Informa UK Limited.Crossref OpenAlex OpenCitations
-
J. Celeste Walley-Jean (2009). Debunking the Myth of the "Angry Black Woman": An Exploration of Anger in Young African American Women . Black Women, Gender & Families, 3(2), 68-86. Project MUSE.Crossref OpenAlex OpenCitations
-
Amal M Hussein , Elizabeth Pellicano , Laura Crane (2019). Understanding and awareness of autism among Somali parents living in the United Kingdom . Autism, 23(6), 1408-1418. SAGE Publications.Crossref OpenAlex OpenCitations
-
Kenneth L. Robey , Linda Beckley , Matthew Kirschner (2006). Implicit Infantilizing Attitudes About Disability . Journal of Developmental and Physical Disabilities, 18(4), 441-453. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Emily Simonoff , Catherine R.G. Jones , Andrew Pickles , Francesca Happé , Gillian Baird , Tony Charman (2012). Severe mood problems in adolescents with autism spectrum disorder . Journal of Child Psychology and Psychiatry, 53(11), 1157-1166. Wiley.Crossref OpenAlex OpenCitations
-
Yuan Lai , F. Ishu Ishiyama (2004). Involvement of Immigrant Chinese Canadian Mothers of Children with Disabilities . Exceptional Children, 71(1), 97-108. SAGE Publications.Crossref OpenAlex OpenCitations
-
Jyoti Bhagia , Simon Kung (2014). The Need for More Autism Awareness in the Somali American Population . Global Pediatric Health, 1, 2333794X14550526-2333794X14550526. SAGE Publications.Crossref OpenAlex OpenCitations
-
Emily Hickey , Michelle Stransky , Jocelyn Kuhn , Jessica E Rosenberg , Howard J Cabral , Carol Weitzman et al. (2021). Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder . Autism, 25(6), 1694-1708. SAGE Publications.Crossref OpenAlex OpenCitations
-
Kanchan Marcus , Madhan Balasubramanian , Stephanie Short , Woosung Sohn (2022). Culturally and linguistically diverse (CALD): terminology and standards in reducing healthcare inequalities . Australian and New Zealand Journal of Public Health, 46(1), 7-9. Elsevier BV.Crossref OpenAlex OpenCitations
-
Bromley J. (2021). Teachers’ views of parental involvement in the schooling of low literacy refugee and migrant children: An Australian study . The Electronic Journal for English as a Second Language, 25(2), 1.Type: AutreCrossref
-
Fiona Fox , Nura Aabe , Katrina Turner , Sabi Redwood , Dheeraj Rai (2017). “It was like walking without knowing where I was going”: A Qualitative Study of Autism in a UK Somali Migrant Community . Journal of Autism and Developmental Disorders, 47(2), 305-315. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Sara Ryan , Katherine Runswick Cole (2009). From Advocate to Activist? Mapping the Experiences of Mothers of Children on the Autism Spectrum . Journal of Applied Research in Intellectual Disabilities, 22(1), 43-53. Wiley.Crossref OpenAlex OpenCitations
-
Bush H. H. (2017). Parents’ educational expectations for young children with Autism Spectrum Disorder . Division on Autism and Developmental Disabilities, 52(4), 357.Type: AutreCrossref
-
Shefaly Shorey , Esperanza D Ng , Gørill Haugan , Evelyn Law (2020). The parenting experiences and needs of Asian primary caregivers of children with autism: A meta-synthesis . Autism, 24(3), 591-604. SAGE Publications.Crossref OpenAlex OpenCitations
-
Virginia Chaidez , Robin L. Hansen , Irva Hertz-Picciotto (2012). Autism spectrum disorders in Hispanics and non-Hispanics . Autism, 16(4), 381-397. SAGE Publications.Crossref OpenAlex OpenCitations
-
Rozanna Lilley (2013). It’s an absolute nightmare: maternal experiences of enrolling children diagnosed with autism in primary school in Sydney, Australia . Disability & Society, 28(4), 514-526. Informa UK Limited.Crossref OpenAlex OpenCitations
-
M Hassan (2012). Predicting the prevalance of Autism among ethnic groups . Archives of Disease in Childhood, 97(Suppl 1), A95.2-A96. BMJ.Crossref OpenAlex OpenCitations
-
Kimberle Crenshaw (1991). Mapping the Margins: Intersectionality, Identity Politics, and Violence against Women of Color . Stanford Law Review, 43(6), 1241. JSTOR.Crossref OpenAlex OpenCitations
-
Denessen E. (2007). Multi-ethnic schools’ parental involvement policies and practices . The School Community Journal, 17(2), 27.Type: AutreCrossref
-
Selamawit Tadesse (2014). Parent Involvement: Perceived Encouragement and Barriers to African Refugee Parent and Teacher Relationships . Childhood Education, 90(4), 298-305. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Department of Home Affairs (2018). Somali-born community information summary . Somali-born community information summary.Type: AutreCrossref
-
Clemence Due , Damien W. Riggs , Martha Augoustinos (2016). Experiences of School Belonging for Young Children With Refugee Backgrounds . The Educational and Developmental Psychologist, 33(1), 33-53. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Emerson L. (2012). Parental engagement in learning and schooling: Lessons from research . Parental engagement in learning and schooling: Lessons from research.Type: AutreCrossref
-
Amy N. Esler , Jennifer Hall-Lande , Amy Hewitt (2017). Phenotypic Characteristics of Autism Spectrum Disorder in a Diverse Sample of Somali and Other Children . Journal of Autism and Developmental Disorders, 47(10), 3150-3165. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Tom S. Bellomo (2009). The Electronic Journal for English as a Second Language .Type: Article OpenAlex: https://openalex.org/W2185836506OpenAlex
-
Mostafa Salari Rad , Alison Jane Martingano , Jeremy Ginges (2018). Toward a psychology of Homo sapiens: Making psychological science more representative of the human population . Proceedings of the National Academy of Sciences, 115(45), 11401-11405. National Academy of Sciences.Crossref OpenAlex OpenCitations
-
James Galpin , Penny Barratt , Edward Ashcroft , Scot Greathead , Lorcan Kenny , Elizabeth Pellicano (2018). ‘The dots just don’t join up’: Understanding the support needs of families of children on the autism spectrum . Autism, 22(5), 571-584. SAGE Publications.Crossref OpenAlex OpenCitations
-
Elizabeth A. West , Jason C. Travers , Talya D. Kemper , Lisa M. Liberty , Debra L. Cote , Meaghan M. McCollow et al. (2016). Racial and Ethnic Diversity of Participants in Research Supporting Evidence-Based Practices for Learners With Autism Spectrum Disorder . The Journal of Special Education, 50(3), 151-163. SAGE Publications.Crossref OpenAlex OpenCitations
-
Guerin B. (2004). Somali conceptions and expectations concerning mental health: Some guidelines for mental health professionals . New Zealand Journal of Psychology, 33, 59.Type: AutreCrossref
-
Wendy E. Shaia , Helen M. Nichols , Sarah Dababnah , Karen Campion , Nicole Garbarino (2020). Brief Report: Participation of Black and African-American Families in Autism Research . Journal of Autism and Developmental Disorders, 50(5), 1841-1846. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Amy Hewitt , Jennifer Hall-Lande , Kristin Hamre , Amy N. Esler , Judy Punyko , Joe Reichle et al. (2016). Autism Spectrum Disorder (ASD) Prevalence in Somali and Non-Somali Children . Journal of Autism and Developmental Disorders, 46(8), 2599-2608. Springer Science and Business Media LLC.Crossref OpenAlex OpenCitations
-
Guo K. (2005). Asian immigrant parents’ and New Zealand early childhood teachers’ views of parent-teacher relationships . NZ Research in Early Childhood Education, 8, 125.Type: AutreCrossref
-
Harvey A. (2020). Improving employment and education outcomes for Somali Australians . Improving employment and education outcomes for Somali Australians.Type: AutreCrossref
-
Lucy Ellen Selman , Fiona Fox , Nura Aabe , Katrina Turner , Dheeraj Rai , Sabi Redwood (2018). ‘You are labelled by your children’s disability’ – A community-based, participatory study of stigma among Somali parents of children with autism living in the United Kingdom . Ethnicity & Health, 23(7), 781-796. Informa UK Limited.Crossref OpenAlex OpenCitations
-
Amy Hodges , Annette Joosten , Helen Bourke-Taylor , Reinie Cordier (2020). School participation: The shared perspectives of parents and educators of primary school students on the autism spectrum . Research in Developmental Disabilities, 97, 103550. Elsevier BV.Crossref OpenAlex OpenCitations
-
Jodie Smith , Aspasia Stacey Rabba , Lin Cong , Poulomee Datta , Emma Dresens , Gabrielle Hall *Auteur·ice autiste. En savoir plus… et al. (2023). “They Were Saying That I Was a Typical Chinese Mum”: Chinese Parents’ Experiences of Parent-Teacher Partnerships for Their Autistic Children . Journal of Autism and Developmental Disorders, 53(12), 4888-4900. Springer Science and Business Media LLC.
-
Kediye K. (2009). Somali-Canadian mothers’ experiences in parenting a child with Autism Spectrum Disorder . Journal of the Association for Research on Mothering, 11, 211.Type: AutreCrossref
-
Jodie Smith , Rhylee Sulek , Ifrah Abdullahi , Cherie Green , Catherine A. Bent , Cheryl Dissanayake et al. (2021). Comparison of mental health, well-being and parenting sense of competency among Australian and South-East Asian parents of autistic children accessing early intervention in Australia . Autism, 25(6), 1784-1796. SAGE Publications.Crossref OpenAlex OpenCitations
-
Lowe K. (2009). Review of the literature: Family literacy programs . Review of the literature: Family literacy programs.Type: AutreCrossref
-
Marc Wilson (2019). New Zealand Journal of Psychology . New Zealand journal of psychology.Type: Article OpenAlex: https://openalex.org/W3207406831OpenAlex
-
Tia R. Schultz , Harriet Able , Melissa A. Sreckovic , Tamira White (2016). Parent-Teacher Collaboration: Teacher Perceptions of What is Needed to Support Students with ASD in the Inclusive Classroom . Education and Training in Autism and Developmental Disabilities, 51(4), 344-354. SAGE Publications.Type: Article DOI: 10.1177/215416471605100403Crossref
-
(2010). Journal of the Association for Research on Mothering . Encyclopedia of Motherhood. SAGE Publications, Inc..OpenAlex
-
Syeda N. (2020). Are school professionals in Australian schools well-prepared to collaborate with culturally and linguistically diverse families of their students on the autism spectrum? School Community Journal, 30, 73.Type: AutreCrossref
-
Turnbull A. P. (2015). Families, professionals, and exceptionality: Positive outcomes through partnerships and trust . Families, professionals, and exceptionality: Positive outcomes through partnerships and trust.Type: AutreCrossref