Demander de l'aide : le développement d'une application de santé mentale fondée sur la simulation visant à améliorer les connaissances sur la dépression, la communication en santé mentale et la recherche d'aide chez les jeunes Noirs autistes

Titre original en anglais : Asking for help: the development of a simulation-based mental health application to enhance depression literacy, mental health communication, and help-seeking among Black autistic youth

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Williams, E. D., Vakil, F., Abubakare, O., Latin, A., Ware, L., Nelson, D., & Smith, M. J. (2026). Asking for help: the development of a simulation-based mental health application to enhance depression literacy, mental health communication, and help-seeking among Black autistic youth. Frontiers in Psychiatry, 17, 1766641-1766641. https://doi.org/10.3389/fpsyt.2026.1766641

Date de publication: 01/04/2026 Ajout dans AutiHub: 04/07/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
7
Auteur·ices de la publication identifié·es comme autistes
1 / 7 (14,3 %)
  1. Ed-Dee Williams
  2. Fatima Vakil
  3. Oluwatobi Abubakare *
  4. Angelina Latin
  1. Lauren Ware
  2. David Nelson
  3. Matthew J. Smith

Résumé

Les jeunes Noirs autistes connaissent des taux de dépression disproportionnellement élevés et font face à des obstacles qui se recoupent, tels que la discrimination raciale, la stigmatisation et l'accès limité aux soins, mais peu d'interventions répondent à leurs besoins. Cette étude présente Asking for Help (A4H), une intervention culturellement adaptée, fondée sur la simulation, conçue pour améliorer les connaissances sur la dépression et les compétences de recherche d'aide grâce à un module d'apprentissage en ligne et à une pratique interactive de la conversation. Guidée par la théorie des connaissances en santé mentale, la Theory of Help-Seeking Behavior, la Theory of Planned Behavior et la Disability Critical Theory, A4H a été développée selon des principes de conception impliquant la communauté et centrée sur l'utilisateur. Les tests d'utilisabilité ont employé une conception à méthodes mixtes auprès de 32 participants (12 jeunes, 10 aidants, 8 spécialistes), à l'aide de la System Usability Scale (SUS), du Patient Health Questionnaire-9 (PHQ-9) et d'entretiens semi-structurés. Les jeunes Noirs autistes ont rapporté des symptômes dépressifs modérés (moyenne du PHQ-9 = 14,7) et ont évalué l'utilisabilité légèrement en dessous du seuil de référence (moyenne de la SUS = 66,2), tandis que les aidants et les spécialistes ont obtenu des scores plus élevés (73,5 et 71,0). Les retours qualitatifs ont mis en évidence la pertinence culturelle et le retour immédiat comme points forts, avec des recommandations pour un langage simplifié, une navigation améliorée et des soutiens multimodaux ; la sécurité émotionnelle et la confiance étaient essentielles à l'engagement. Aucun changement symptomatique à court terme n'a été observé, ce qui est conforme à la conception formative. Les résultats indiquent que A4H est réalisable et culturellement adapté, mais nécessite des améliorations avant les tests d'efficacité afin d'évaluer les effets sur les connaissances, les intentions de recherche d'aide et les compétences de communication.

Black autistic youth experience disproportionately high rates of depression and face intersecting barriers such as racial discrimination, stigma, and limited access to care, yet few interventions address their needs. This study introduces Asking for Help (A4H), a culturally responsive, simulation-based intervention designed to improve depression literacy and help-seeking skills through an e-learning module and interactive conversation practice. Guided by mental health literacy theory, the Theory of Help-Seeking Behavior, the Theory of Planned Behavior, and Disability Critical Theory, A4H was developed using community-engaged and user-centered design principles. Usability testing employed a mixed-methods design with 32 participants (12 youth, 10 caregivers, 8 specialists) using the System Usability Scale (SUS), Patient Health Questionnaire-9 (PHQ-9), and semi-structured interviews. Black autistic youth reported moderate depressive symptoms (mean PHQ-9 = 14.7) and rated usability slightly below benchmark (mean SUS = 66.2), while caregivers and specialists scored higher (73.5 and 71.0). Qualitative feedback highlighted cultural relevance and immediate feedback as strengths, with recommendations for simplified language, improved navigation, and multimodal supports; emotional safety and trust were critical for engagement. No short-term symptom change was observed, consistent with the formative design. Findings indicate A4H is feasible and culturally responsive but requires refinements before efficacy testing to assess impacts on literacy, help-seeking intentions, and communication skills.

Bibliographie citée par cette référence

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Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
83
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
3 / 83 (3,6 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
3 / 641 (0,5 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 3 / 44 (6,8 %). Auteurices cité·es distinct·es identifié·es comme autistes : 2 / 606 (0,3 %).
Occurrences citées rattachées à la base AutiHub
44 / 641 (6,9 %)
Auteurices cité·es distinct·es rattaché·es : 36 / 606 (5,9 %)
Occurrences rattachées, non identifiées comme autistes
41 / 44 (93,2 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 41 / 641 (6,4 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 34 / 36 (94,4 %).
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