Troubles du comportement alimentaire chez les personnes autistes trans et de genre divers : une revue exploratoire guidée par l'expérience vécue

Titre original en anglais : Disordered eating in autistic trans and gender diverse people: a lived experience-led scoping review

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». deux auteur·ices de cette publication sont identifié·es comme autistes dans le projet.

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White, L., Schweizer, K., & Thomas, K. S. (2025). Disordered eating in autistic trans and gender diverse people: a lived experience-led scoping review. Journal of Eating Disorders, 13(1), Article 266. https://doi.org/10.1186/s40337-025-01447-z

Date de publication: 19/11/2025 Ajout dans AutiHub: 05/10/2026 Type: Article Langue de l’article: Anglais
Source éditeur (DOI) Texte intégral Source OpenAlex

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Auteurs

Auteur·ices des publications
3
Auteur·ices de la publication identifié·es comme autistes
2 / 3 (66,7 %)
  1. Luka White *
  2. Kai Schweizer *
  3. Kai S. Thomas

Résumé

Résumé Contexte Cette revue exploratoire guidée par l'expérience vécue examine la base de données probantes relative aux troubles alimentaires/comportements alimentaires désordonnés chez les personnes autistes trans et de genre divers (TGD). Cette revue met en évidence les données actuellement disponibles sur les taux de prévalence des troubles alimentaires, les comparaisons avec les groupes allistiques et cisgenres, les facteurs déclencheurs et de maintien, la relation entre les troubles alimentaires et les soins médicaux d'affirmation de genre, ainsi que les résultats des traitements dans cette population. Méthodes Nous avons effectué une recherche dans les bases de données ProQuest, Medline, CINAHL, Cochrane Library, Web of Science, Scopus et PsycINFO afin d'identifier des articles relatifs aux troubles alimentaires/comportements alimentaires désordonnés chez les personnes autistes TGD. Cinq articles publiés entre 2021 et 2025 répondaient aux critères de la revue. Résultats Les articles inclus étaient principalement des études transversales (n = 4) et une série de cas (n = 1). Les chercheurs ont utilisé un mélange de diagnostics de troubles alimentaires autodéclarés et consignés cliniquement, ainsi que des mesures validées, notamment le Eating Disorder Examination Questionnaire et la Nine-Item Avoidant/Restrictive Food Intake Disorder Scale. La littérature souligne que la prévalence des troubles alimentaires/comportements alimentaires désordonnés est élevée dans la population autiste TGD et suggère que les présentations atypiques peuvent être particulièrement fréquentes. Les facteurs déclencheurs et de maintien possibles comprennent l'hypersensibilité sensorielle, le trouble du déficit de l'attention avec hyperactivité concomitant, la dysphorie de genre et les préoccupations liées au fait d'être perçu comme appartenant au genre souhaité, ainsi que les pressions liées à l'apparence idéalisant la minceur. Des données limitées étaient disponibles sur le rôle des soins médicaux d'affirmation de genre ou des traitements des troubles alimentaires, ou sur les résultats des traitements. Discussion Des recherches supplémentaires sont nécessaires afin de mieux comprendre les nuances des troubles alimentaires/comportements alimentaires désordonnés chez les personnes autistes TGD. Les futures recherches devraient impérativement adopter une approche intersectionnelle, co-produire la recherche avec des personnes autistes TGD et prendre en compte les résultats des traitements.

Abstract Background This lived experience-led scoping review explores the evidence base related to eating disorders/disordered eating behaviours in Autistic trans and gender diverse (TGD) people. This review highlights the currently available data on eating disorder prevalence rates, comparisons with allistic and cisgender groups, drivers and maintenance factors, the relationship between eating disorders and gender-affirming medical care, and treatment outcomes in this population. Methods We conducted a search of the databases ProQuest, Medline, CINAHL, Cochrane Library, Web of Science, Scopus, and PsycINFO for articles relating to eating disorders/disordered eating behaviours in Autistic TGD people. Five articles published between 2021 and 2025 met the criteria for the review. Results The included articles were predominantly cross-sectional studies (n = 4) and one case series (n = 1). Researchers used a mixture of self-reported and clinically recorded eating disorder diagnoses, as well as validated measures, including the Eating Disorder Examination Questionnaire and the Nine-Item Avoidant/Restrictive Food Intake Disorder Scale. The literature highlights that the prevalence of eating disorders/disordered eating behaviours is high in the Autistic TGD population, and suggests that atypical presentations may be particularly common. Possible drivers and maintenance factors include sensory hypersensitivity, co-occurring Attention-Deficit Hyperactivity Disorder, gender dysphoria and passing concerns, and appearance pressures idealising thinness. Limited data were available on the role of gender-affirming medical care or eating disorder treatments, or on treatment outcomes. Discussion Further research is needed to better understand the nuances of eating disorders/disordered eating behaviours in Autistic TGD people. Key to future research inquiries should be the adoption of an intersectional approach, co-production of research with Autistic TGD people, and research considering treatment outcomes.

Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 28/10/2026 01:01.

Références citées
104
Avec un DOI
97
Sans DOI, à partir du texte brut de la bibliographie
7
15 / 104 (14,4 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
6 / 104 (5,8 %)
Références avec noms d’auteurices détectés
101 / 104 (97,1 %)
Sans nom d’auteurice détecté
3
Sans titre structuré
6
Sans identifiant stable
7
Références avec noms bruts d’auteurices restant à vérifier
3
Références avec problème de récupération des métadonnées externes
1
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
779
À partir du DOI ou de métadonnées externes
779
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
4
179 / 779 (23,0 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 600 / 779 (77,0 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
18 / 779 (2,3 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 18 / 179 (10,1 %). Personnes distinctes identifiées comme autistes : 14 / 583 (2,4 %).
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