Les taux de diagnostic chez les femmes autistes augmentent-ils ? Examen des tendances à l’échelle de l’État

Titre original en anglais : Are the diagnostic rates of autistic females increasing? An examination of state‐wide trends

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Harrop, C., Tomaszewski, B., Putnam, O., Klein, C., Lamarche, E., & Klinger, L. (2024). Are the diagnostic rates of autistic females increasing? An examination of state‐wide trends. Journal of Child Psychology and Psychiatry, 65(7), 973-983. https://doi.org/10.1111/jcpp.13939

Titre de la revue ou du livre
Journal of Child Psychology and Psychiatry
Éditeur
Wiley
Volume
65
Numéro
7
Pages
973-983
Date de publication: 05/01/2024 Ajout dans AutiHub: 27/09/2026 Type: Article Langue de l’article: Anglais
Source éditeur (DOI) Texte intégral Source OpenAlex

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
6
Auteur·ices de la publication identifié·es comme autistes
1 / 6 (16,7 %)
  1. Clare Harrop
  2. Brianne Tomaszewski
  3. Orla Putnam *
  1. Claire Klein
  2. Elena Lamarche
  3. Laura Klinger

Résumé

Contexte L’autisme a été considéré comme une condition à « prédominance masculine ». Cependant, des recherches récentes suggèrent que les femmes autistes sont sous-diagnostiquées, mal diagnostiquées et diagnostiquées plus tardivement. Les femmes peuvent également présenter des profils comportementaux différents et plus nuancés. Afin d’examiner les taux de diagnostic chez les femmes, nous avons utilisé 20 ans de données à l’échelle de l’État pour caractériser les tendances historiques du diagnostic de l’autisme chez les femmes et déterminer si la proportion de femmes diagnostiquées autistes a changé au fil du temps. Méthodes Les données provenaient de 10 247 participants (hommes = 8 319, femmes = 1 928) ayant reçu un diagnostic d’autisme entre 2000 et 2021 dans des centres d’autisme à l’échelle de l’État associés au TEACCH Autism Program de l’University of North Carolina. Résultats Les taux de femmes diagnostiquées autistes ont augmenté à un rythme plus élevé que ceux des hommes. L’âge au diagnostic est demeuré constamment plus élevé chez les femmes. Le diagnostic tardif (défini comme 13 ans ou plus) a augmenté au fil du temps chez les hommes comme chez les femmes, mais était plus couramment associé aux femmes, en particulier à celles présentant une déficience intellectuelle concomitante. Conclusions Nos résultats indiquent que la proportion de femmes diagnostiquées autistes a augmenté régulièrement sur une période de 20 ans, ce qui reflète probablement une meilleure connaissance sociétale de la manière dont l’autisme peut se manifester différemment chez les femmes.

Background Autism has been considered a ‘male‐dominant’ condition. However, recent research suggests that autistic females are underdiagnosed, misdiagnosed, and later diagnosed. Females may also have different and more nuanced behavioral profiles. To examine diagnosis rates of females, we used 20 years of state‐wide data to characterize historical trends in the diagnosis of autism in females to determine whether the proportion of females diagnosed with autism has changed over time. Methods Data were drawn from 10,247 participants (males = 8,319, females = 1928) who received an autism diagnosis between 2000 and 2021 from state‐wide autism centers associated with the University of North Carolina TEACCH Autism Program. Results The rates of females diagnosed with autism increased at a greater rate compared with males. Age of diagnosis remained consistently higher for females. Late diagnosis (defined as 13+) increased over time across both males and females, however, was more commonly associated with females, particularly those with co‐occurring intellectual disability. Conclusions Our results indicate that the proportion of females diagnosed with autism has increased steadily over a 20‐year period, which likely reflects greater societal knowledge of how autism may manifest differentially in females.

Bibliographie citée par cette référence

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Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 03/10/2026 08:20.

Références citées
104
Avec un DOI
86
Sans DOI, à partir du texte brut de la bibliographie
18
5 / 104 (4,8 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
3 / 104 (2,9 %)
Références avec noms d’auteurices détectés
101 / 104 (97,1 %)
Sans nom d’auteurice détecté
3
Sans titre structuré
2
Sans identifiant stable
18
Références avec noms bruts d’auteurices restant à vérifier
2
Références avec problème de récupération des métadonnées externes
1
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
677
À partir du DOI ou de métadonnées externes
677
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
2
192 / 677 (28,4 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 485 / 677 (71,6 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
5 / 677 (0,7 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 5 / 192 (2,6 %). Personnes distinctes identifiées comme autistes : 5 / 521 (1,0 %).
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