Faisabilité et validation transculturelle d’un programme adapté d’entraînement en groupe aux compétences sociales (KONTAKT TM CHILD) destiné aux enfants autistes chinois : protocole d’un ECR avec liste d’attente

Titre original en anglais : Feasibility and cross-cultural validation of an adapted social skills group training programme (KONTAKT TM CHILD) for Chinese autistic children: a waitlist RCT protocol

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

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Lao, U., Zhu, H., Liang, F., Bai, W., Yin, P., Huang, X., Girdler, S., Bölte, S., & Zou, X. (2024). Feasibility and cross-cultural validation of an adapted social skills group training programme (KONTAKT TM CHILD) for Chinese autistic children: a waitlist RCT protocol. BMJ Open, 14(11), e081827. https://doi.org/10.1136/bmjopen-2023-081827

Date de publication: 01/11/2024 Ajout dans AutiHub: 22/09/2026 Type: Article Langue de l’article: Anglais
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Auteurs

Auteur·ices des publications
9
Auteur·ices de la publication identifié·es comme autistes
1 / 9 (11,1 %)
  1. Uchong Lao *
  2. Huilin Zhu
  3. Fengjing Liang
  4. Wuxia Bai
  5. Peipei Yin
  1. Xiaoqian Huang
  2. Sonya Girdler
  3. Sven Bölte
  4. Xiaobing Zou

Résumé

Introduction Les enfants autistes d’âge scolaire rencontrent couramment des difficultés de communication et d’interaction sociales dans leur vie quotidienne. Bien que les données internationales suggèrent que les programmes d’entraînement en groupe aux compétences sociales (SSGT) peuvent soutenir les enfants autistes en améliorant leur fonctionnement psychosocial, il n’existe à ce jour aucune donnée probante standardisée concernant un SSGT adapté aux besoins des enfants autistes âgés de 8 à 12 ans vivant en Chine continentale. Par conséquent, l’objectif principal de cette étude sera d’évaluer la faisabilité et l’acceptabilité d’une version culturellement adaptée en 16 séances du programme de compétences sociales KONTAKT chez des enfants autistes chinois. En outre, l’efficacité préliminaire et le rapport coût-efficacité seront évalués afin d’éclairer un futur essai définitif. Méthodes et analyse Cette étude utilisera un plan de faisabilité randomisé, en simple aveugle, contrôlé par liste d’attente, auprès de 36 enfants autistes chinois âgés de 8 à 12 ans, avec un QI supérieur à 70, adressés au Child Development and Behavior Center de Guangzhou, en Chine. Les participants seront répartis aléatoirement soit dans le groupe d’entraînement immédiat, soit dans le groupe d’entraînement différé, avec stratification selon le sexe. La faisabilité sera évaluée à l’aide de données quantitatives et qualitatives obtenues auprès des participants à KONTAKT CHILD, de leurs parents et des animateurs du programme. L’efficacité préliminaire et le rapport coût-efficacité seront évalués au moyen de données quantitatives recueillies à cinq moments. Le critère principal d’efficacité est l’amélioration des compétences sociales des participants, mesurée par le Contextual Assessment of Social Skills. Les autres critères comprennent les rapports des parents et des enseignants sur les traits autistiques et le fonctionnement adaptatif des participants, les autoévaluations des participants et les tests projectifs portant sur l’affirmation de soi et le fonctionnement psychosocial, ainsi que les rapports des parents sur le fonctionnement réflexif parental et le soutien scolaire perçu. Les facteurs communs du processus et leurs effets sur les résultats seront également explorés. Le rapport coût-efficacité sera considéré à la fois du point de vue sociétal et du point de vue des soins de santé. Éthique et diffusion Le présent protocole d’étude a été examiné et l’approbation éthique a été obtenue auprès du comité d’éthique du Third Affiliated Hospital of Sun Yat-sen University (II2023-119-01). L’essai a été préenregistré dans Chinese Clinical Trials (ChiCTR2300072136) le 5 juin 2023. Les résultats de cet essai seront activement diffusés au moyen de publications évaluées par les pairs et de présentations lors de conférences. Toute information personnelle identifiable sera anonymisée afin de protéger la confidentialité. Version du protocole 2.0, 31 juillet 2024. Numéro d’enregistrement de l’essai : ChiCTR2300072136.

Introduction School-age autistic children commonly experience social communication and interaction challenges in their everyday lives. While international evidence suggests that social skills group training (SSGT) programmes can support autistic children, improving their psychosocial functioning, to date there is no standardised evidence-based SSGT tailored towards the needs of autistic children aged 8–12 years living in the Chinese Mainland. Therefore, the primary objective of this study will be to evaluate the feasibility and acceptability of a culturally adapted 16-session version of the social skills programme KONTAKT in Chinese autistic children. Additionally, preliminary efficacy and cost-effectiveness will be assessed to inform a future definitive trial. Methods and analysis This study will employ a randomised, single-blinded, waitlist-controlled feasibility design with 36 Chinese autistic children aged 8–12 years with IQ over 70 referred to the Child Development and Behavior Center in Guangzhou, China. Participants will be randomly assigned to either the immediate training group or the delayed training group stratified by sex. Feasibility will be assessed using quantitative and qualitative data obtained from the KONTAKT CHILD participants, their parents and facilitators of the programme. Preliminary efficacy and cost-effectiveness are assessed via quantitative data obtained at five time points. The primary efficacy outcome is participants’ improvement in social skills as measured by the Contextual Assessment of Social Skills. Other outcomes include parents and teachers’ reports of participants’ autistic traits and adaptive functioning, participants’ self-report and projective tests for self-assertiveness and psychosocial functioning, and parent reports on parental reflective functioning and perceived school support. Common process factors and their effects on outcomes will also be explored. Cost-effectiveness will consider from both societal and healthcare perspectives. Ethics and dissemination The current study protocol has been reviewed and ethics approval has been obtained from the Ethical Board Committee at the Third Affiliated Hospital of Sun Yat-sen University (II2023-119-01). The trial was pre-registered in Chinese Clinical Trials (ChiCTR2300072136) on 5 June 2023. The results of this trial will be actively disseminated through peer-reviewed publications and conference presentations. Any identifiable personal information will be anonymised to protect confidentiality. Protocol version 2.0, 31 July 2024. Trial registration number ChiCTR2300072136.

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Références citées
95
Avec un DOI
79
Sans DOI, à partir du texte brut de la bibliographie
14
6 / 95 (6,3 %) références citées comprennent au moins une personne identifiée comme autiste.
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81 / 95 (85,3 %)
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Sans titre structuré
14
Sans identifiant stable
14
Références avec noms bruts d’auteurices restant à vérifier
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2
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491
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491
À partir du texte brut validé de la bibliographie
0
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0
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22
139 / 491 (28,3 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 352 / 491 (71,7 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
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Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 12 / 139 (8,6 %). Personnes distinctes identifiées comme autistes : 10 / 416 (2,4 %).
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