Former des identites culturelles fortes dans un espace d intersection entre l autochtonie et l autisme au moyen de la recherche action participative et du recit numerique

Titre original en anglais : Forming strong cultural identities in an intersecting space of Indigeneity and autism using participatory action research and digital storytelling

Cette publication est incluse dans le projet « Contributions académiques de personnes autistes sur l’autisme ». un auteur·ice de cette publication est identifié·e comme autiste dans le projet.

À propos de la mention auteur·ice autiste

Simpson, H. A. (2023). Forming strong cultural identities in an intersecting space of Indigeneity and autism using participatory action research and digital storytelling. AlterNative: An International Journal of Indigenous Peoples, 19(4), 862-872. https://doi.org/10.1177/11771801231197838

Date de publication: 24/11/2023 Ajout dans AutiHub: 21/09/2026 Type: Article Langue de l’article: Anglais

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
1
Auteur·ices de la publication identifié·es comme autistes
1 / 1 (100,0 %)

Résumé

Cette recherche repond a l urgence de perturber les schemas d injustice sociale, d exclusion et de genocide culturel tout en favorisant une formation identitaire positive, la fierte et la resilience des personnes autistes autochtones dans le systeme d enseignement postsecondaire. Cette etude a utilise une approche de recherche action participative positionnant les participants comme collaborateurs de l equipe de recherche. La collecte de donnees a comporte des donnees qualitatives tirees des transcriptions de seances en ligne, des recits numeriques des participants et d une enquete sommative. Une analyse thematique a ete utilisee pour identifier des themes emergents d un recit individuel et collectif. Les resultats sont presentes sous la forme d un concept original de l auteur appele Thrivival: The Fire Within, comprenant quatre themes: l identite de soi, le temps, l equilibre et la communaute. Ce travail contribue a une comprehension et a des expressions plus larges de l autochtonisation, de la decolonisation, de l equite, de la diversite et de l inclusion dans l enseignement, l apprentissage et les politiques de l enseignement postsecondaire afin de mieux soutenir l identite et la reussite des etudiants autistes autochtones et, sans doute, de tous les etudiants qui subissent une discrimination intersectionnelle au sein des systemes d enseignement postsecondaire.

This research responds to the urgency to disrupt patterns of social injustice, exclusion, and cultural genocide while promoting positive identity formation, pride, and resilience for Indigenous autistics in the post-secondary education system. This study utilized a participatory action research approach positioning participants as collaborators with the research team. Data collection involved qualitative data derived from the transcripts of online sessions, participant digital stories, and a summative survey. Thematic analysis was used to identify emergent themes of individual and a collective narrative. Findings are presented as an original concept of the author called Thrivival: The Fire Within, comprising four themes: self-identity, time, balance, and community. This work contributes to a broader understanding and expressions of Indigenization, decolonization, equity, diversity, and inclusion in post-secondary teaching, learning, and policy to better support the identity and success of Indigenous autistic students and arguably, all students who experience intersectional discrimination within post-secondary education systems.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de la bibliographie citée

Ces indicateurs décrivent la bibliographie citée par cette publication. Un nom d’auteurice est compté chaque fois qu’il apparaît dans une référence citée : une même personne peut donc être comptée plusieurs fois. Les noms qui ne sont pas encore associés à un·e auteurice déjà présent·e dans AutiHub sont traités comme inconnus, pas comme non autistes. Dernier calcul : 02/10/2026 08:11.

Références citées
50
Avec un DOI
35
Sans DOI, à partir du texte brut de la bibliographie
13
3 / 50 (6,0 %) références citées comprennent au moins une personne identifiée comme autiste.
Références avec données à compléter
8 / 50 (16,0 %)
Références avec noms d’auteurices détectés
42 / 50 (84,0 %)
Sans nom d’auteurice détecté
8
Sans titre structuré
8
Sans identifiant stable
12
Références avec noms bruts d’auteurices restant à vérifier
8
Références avec problème de récupération des métadonnées externes
0
Ces indicateurs portent sur les références citées affichées sur cette page, après fusion des doublons techniques. Une référence sans DOI peut quand même soutenir les statistiques d’auteurices lorsqu’un titre et des noms d’auteurices sont disponibles.
Noms d’auteurices détectés dans la bibliographie citée
109
À partir du DOI ou de métadonnées externes
109
À partir du texte brut validé de la bibliographie
0
Noms bruts déjà validés
0
Noms bruts restant à vérifier
21
18 / 109 (16,5 %) noms sont associés à un·e auteurice déjà présent·e dans AutiHub. 91 / 109 (83,5 %) noms ne sont pas encore associés.
Noms associés à une personne identifiée comme autiste
3 / 109 (2,8 %)
Calculé sur l’ensemble des noms d’auteurices détectés dans la bibliographie citée. Parmi les noms associés à un·e auteurice déjà présent·e dans AutiHub : 3 / 18 (16,7 %). Personnes distinctes identifiées comme autistes : 2 / 104 (1,9 %).
  1. Amanda L. Sullivan (2013). School-Based Autism Identification: Prevalence, Racial Disparities, and Systemic Correlates . School Psychology Review, 42(3), 298-316. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  2. Archibald J.-A. (2019). Decolonizing research: Indigenous storywork as methodology . Decolonizing research: Indigenous storywork as methodology.
    Type: Autre
    Crossref
  3. Katie Johnston-Goodstar (2013). Indigenous Youth Participatory Action Research: Re-visioning Social Justice for Social Work with Indigenous Youths . Social Work, 58(4), 314-320. Oxford University Press (OUP).
    Crossref OpenAlex OpenCitations
  4. Verna J. Kirkness , Ray Barnhardt (1991). First Nations and Higher Education: The Four R's--Respect, Relevance, Reciprocity, Responsibility. The Journal of American Indian Education, 30(2), 1-109.
    Type: Article OpenAlex: https://openalex.org/W201476261
    OpenAlex
  5. Benjamin Bailey , Joanne Arciuli (2020). Indigenous Australians with autism: A scoping review . Autism, 24(5), 1031-1046. SAGE Publications.
    Crossref OpenAlex OpenCitations
  6. Rauna Kuokkanen (2007). Reshaping the university: Responsibility, Indigenous epistemes, and the logic of the gift .
    Type: Livre OpenAlex: https://openalex.org/W640724267
    Crossref OpenAlex
  7. Ranjan Datta (2018). Decolonizing both researcher and research and its effectiveness in Indigenous research . Research Ethics, 14(2), 1-24. SAGE Publications.
    Crossref OpenAlex OpenCitations
  8. Linda J. Graham (2012). Disproportionate over-representation of Indigenous students in New South Wales government special schools . Cambridge Journal of Education, 42(2), 163-176. Informa UK Limited.
    Type: Article DOI: 10.1080/0305764x.2012.676625
    Crossref OpenCitations
  9. S. K. Genuis , N. Willows , Alexander First Nation , C. Jardine (2015). Through the lens of our cameras: children's lived experience with food security in a C anadian I ndigenous c ommunity . Child: Care, Health and Development, 41(4), 600-610. Wiley.
    Crossref OpenAlex OpenCitations
  10. Ranjan Datta , Nyojy U. Khyang , Hla Kray Prue Khyang , Hla Aung Prue Kheyang , Mathui Ching Khyang , Jebunnessa Chapola (2015). Participatory action research and researcher’s responsibilities: an experience with an Indigenous community . International Journal of Social Research Methodology, 18(6), 581-599. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  11. Stephane M. Shepherd , Rosa Hazel Delgado , Juanita Sherwood , Yin Paradies (2018). The impact of indigenous cultural identity and cultural engagement on violent offending . BMC Public Health, 18(1), 50-50. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  12. Anne Lindblom (2014). Under-detection of autism among First Nations children in British Columbia, Canada . Disability & Society, 29(8), 1248-1259. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  13. Danielle DeNigris , Patricia J. Brooks , Rita Obeid , Maria Alarcon , Christina Shane‐Simpson , Kristen Gillespie-Lynch (2018). Bullying and Identity Development: Insights from Autistic and Non-autistic College Students . Journal of Autism and Developmental Disorders, 48(3), 666-678. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  14. Avery Smith , Hine Funaki , Liana MacDonald (2021). Living, breathing settler-colonialism: the reification of settler norms in a common university space . Higher Education Research & Development, 40(1), 132-145. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  15. Lino Faccini , Clare S. Allely (2021). Dealing with Trauma in Individuals with Autism Spectrum Disorders: Trauma Informed Care, Treatment, and Forensic Implications . Journal of Aggression, Maltreatment & Trauma, 30(8), 1082-1092. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  16. Naomi Winstone , Corinne Huntington , Lisa Goldsack , Elli Kyrou , Lynne Millward (2014). Eliciting rich dialogue through the use of activity-oriented interviews . Childhood, 21(2), 190-206. SAGE Publications.
    Crossref OpenAlex OpenCitations
  17. Natalia Flotskaya , Svetlana Bulanova , Maria Ponomareva , Nikolay Flotskiy , Tatiana Konopleva (2019). Self-Identity Development among Indigenous Adolescents from the Far North of Russia . Behavioral Sciences, 9(10), 106. MDPI AG.
    Crossref OpenAlex OpenCitations
  18. Shannon Freeman , Jenny Martin , Carrie Nash , Simone Hausknecht , Kelly Skinner (2020). Use of a Digital Storytelling Workshop to Foster Development of Intergenerational Relationships and Preserve Culture with the Nak’azdli First Nation: Findings from the Nak’azdli Lha’hutit’en Project . Canadian Journal on Aging / La Revue canadienne du vieillissement, 39(2), 284-293. Cambridge University Press (CUP).
    Crossref OpenAlex OpenCitations
  19. Adam Gaudry , Danielle Lorenz (2018). Indigenization as inclusion, reconciliation, and decolonization: navigating the different visions for indigenizing the Canadian Academy . AlterNative: An International Journal of Indigenous Peoples, 14(3), 218-227. SAGE Publications.
    Crossref OpenAlex OpenCitations
  20. Jody Wilson-Raybould , Murray Sinclair (2019). From Where I Stand . University of British Columbia Press.
    Crossref OpenAlex OpenCitations
  21. Rebecca Hanemaayer , Kimberley Anderson , Jess Haines , Kitty RLynn Lickers , Adrianne Lickers Xavier , Kelly Gordon et al. (2020). Exploring the Perceptions of and Experiences with Traditional Foods among First Nations Female Youth: A Participatory Photovoice Study . International Journal of Environmental Research and Public Health, 17(7), 2214. MDPI AG.
    Crossref OpenAlex OpenCitations
  22. Andrea MacLeod , Ann Lewis , Christopher Robertson (2013). ‘Why should I be like bloody Rain Man?!’ navigating the autistic identity . Br J Spec Educ, 40(1), 41-49. Wiley.
    Crossref OpenAlex OpenCitations
  23. Michelle Pidgeon (2016). More Than a Checklist: Meaningful Indigenous Inclusion in Higher Education . Social Inclusion, 4(1), 77-91. Cogitatio.
    Crossref OpenAlex OpenCitations
  24. Budd L. Hall , Rajesh Tandon (2017). Decolonization of knowledge, epistemicide, participatory research and higher education . Research for All, 1(1). UCL Press.
    Crossref OpenAlex OpenCitations
  25. Anne Lindblom (2017). Exploring autism and music interventions through a First Nations lens . AlterNative: An International Journal of Indigenous Peoples, 13(4), 202-209. SAGE Publications.
    Crossref OpenAlex OpenCitations
  26. Anne Lindblom (2017). ‘It gives them a place to be proud’ – Music and social inclusion. Two diverse cases of young First Nations people diagnosed with autism in British Columbia, Canada . Psychology of Music, 45(2), 268-282. SAGE Publications.
    Crossref OpenAlex OpenCitations
  27. Hyman A., Stacy E., Atkinson K., Novak Lauscher H., Rabeneck J., Oleman G., Cooper P., Young W., Kellman C., Ho K. (2020). Digital storytelling and dialogue to support culturally safe health care for Indigenous patients in British Columbia: The integration of Indigenous healing practices in the province’s health care system is being facilitated by a video that features traditional practitioners and Western medical professionals. British Columbia Medical Journal, 62(3), 94–97. https://bcmj.org/articles/digital-storytelling-and-dialogue-support-culturally-safe-health-care-indigenous-patients
    Type: Autre
    Crossref
  28. Marcella LaFever (2016). Switching from Bloom to the Medicine Wheel: creating learning outcomes that support Indigenous ways of knowing in post-secondary education . Intercultural Education, 27(5), 409-424. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  29. Johnson S. (2014). Knucwénte-kuc re Stsmémelt.s-kuc trauma-informed education for Indigenous children in foster care. Canadian Social Work Review/Revue Canadienne de Service Social, 31(2), 155–174. https://www.jstor.org/stable/43486319
    Type: Autre
    Crossref
  30. Catherine D. Tan (2018). I’m a normal autistic person, not an abnormal neurotypical”: autism spectrum disorder diagnosis as biographical illumination . Soc Sci Med, 197, 161-167. Elsevier BV.
    Crossref OpenAlex OpenCitations
  31. Thomas D. Hall , Linda Tuhiwai Smith (2000). Decolonizing Methodologies: Research and Indigenous Peoples . Contemporary Sociology, 29(3), 567. SAGE Publications.
    Type: Article DOI: 10.2307/2653993 OpenAlex: https://openalex.org/W2734386536
    OpenAlex
  32. Michelle E. Kiger , Lara Varpio (2020). Thematic analysis of qualitative data: AMEE Guide No. 131 . Medical Teacher, 42(8), 846-854. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  33. Kelley M. N., Lowe J. R. (2018). Strong cultural identity effects stress levels among Native American youth at risk for obesity. Journal of Cultural Diversity, 25(4), 127–131. https://www.proquest.com/openview/ed7351dc71350b5b3b3d74d2a7164cad/1?pq-origsite=gscholar&cbl=34124
    Type: Autre
    Crossref
  34. Andrea McKivett , Judith N. Hudson , Dennis McDermott , David Paul (2020). Two‐eyed seeing: A useful gaze in Indigenous medical education research . Medical Education, 54(3), 217-224. Wiley.
    Crossref OpenAlex OpenCitations
  35. Kirkness V. J., Barnhardt R. (1991). First Nations and higher education: The four R’s–respect, relevance, reciprocity, responsibility. Journal of American Indian Education, 30(3), 1–15. https://www.jstor.org/stable/24397980
    Type: Autre
    Crossref
  36. Carly A. McMorris , Jessica Baraskewich , Megan A. Ames , Komal T. Shaikh , Busisiwe L. Ncube , James M. Bebko (2019). Mental Health Issues in Post-Secondary Students with Autism Spectrum Disorder: Experiences in Accessing Services . International Journal of Mental Health and Addiction, 17(3), 585-595. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  37. Lane P. (2012). The sacred tree . The sacred tree.
    Type: Autre
    Crossref
  38. Amber Young , David Nicholas , Shirley-Pat Chamberlain , Nirach Suapa , Nancy Gale , Anthony Bailey (2019). Exploring and building autism service capacity in rural and remote regions: Participatory action research in rural Alberta and British Columbia, Canada . Autism, 23(5), 1143-1151. SAGE Publications.
    Crossref OpenAlex OpenCitations
  39. Melessa Kelley , John Lowe (2018). Strong Cultural Identity Effects Stress Levels among Native American Youth at Risk for Obesity . Journal of cultural diversity, 25(4), 127.
    Type: Article OpenAlex: https://openalex.org/W2971343313
    OpenAlex
  40. Lubin J., Brooks J. (2021). College students with autism: Navigating the bumpy road. College Student Journal, 55(3), 318–324. https://go.gale.com/ps/i.do?id=GALE%7CA681132861&sid=googleScholar&v=2 . 1&it=r&linkaccess=abs&issn=01463934&p=AONE&sw=w&userGroupName=anon%7Ef505020&aty=open-web-entry
    Type: Autre
    Crossref
  41. Annette Schultz , Thang Nguyen , Moneca Sinclaire , Randy Fransoo , Elizabeth McGibbon (2021). Historical and Continued Colonial Impacts on Heart Health of Indigenous Peoples in Canada: What’s Reconciliation Got to Do With It? CJC Open, 3(12), S149-S164. Elsevier BV.
    Crossref OpenAlex OpenCitations
  42. Monchalin L (2016). The colonial problem: An Indigenous perspective on crime and injustice in Canada . The colonial problem: An Indigenous perspective on crime and injustice in Canada.
    Type: Autre
    Crossref
  43. Stephen Ashworth (2021). Decolonizing research: Indigenous storywork as methodology . International Journal of Lifelong Education, 40(4), 430-433. Informa UK Limited.
    OpenAlex
  44. Smith L. T (1999). Decolonizing methodologies: Research and Indigenous peoples . Decolonizing methodologies: Research and Indigenous peoples.
    Type: Autre
    Crossref
  45. Thompson Rivers University. (2010). A handbook for educators of aboriginal students. https://inside.tru.ca/wp-content/uploads/2011/02/ALBAA_handbook.pdf
    Type: Autre
    Crossref
  46. The Truth and Reconciliation Commission of Canada. (2015). Calls to action. https://ehprnh2mwo3.exactdn.com/wp-content/uploads/2021/01/Calls_to_Action_English2.pdf
    Type: Autre
    Crossref
  47. Ward V., de Leeuw S. (2018). Web of culture: Critically assessing online mental health resources for Indigenous youth in northern British Columbia using digital storytelling. UBC Medical Journal, 9(2), 20–22. https://ojs.library.ubc.ca/index.php/ubcmj/article/view/189864
    Type: Autre
    Crossref