Les Navajos et l’autisme : la beauté de l’harmonie

Titre original en anglais : Navajo and autism: the beauty of harmony

Kapp, S. K. (2011). Navajo and autism: the beauty of harmony. Disability & Society, 26(5), 583-595. https://doi.org/10.1080/09687599.2011.589192

Date de publication: 01/08/2011 Ajout dans AutiHub: 06/07/2026 Type: Article Langue de l’article: Anglais

Cette publication est intégrée dans AutiHub via :

Auteurs

Auteur·ices des publications
1
Auteur·ices de la publication identifié·es comme autistes
1 / 1 (100,0 %)

Résumé

Avec tant d’inconnues au sujet de l’autisme, le handicap tend à refléter les préconceptions socioculturelles que les gens y projettent. Le récit prédominant dans la société occidentale de l’autisme comme une « maladie » au sein du modèle médical contraste avec la vision plus positive et habilitante de l’autisme comme une « différence » dans le modèle social et le mouvement de la neurodiversité. La société a également discriminé et rendu handicapés les Amérindiens navajos depuis l’arrivée des Euro-Américains. Les Navajos concilient avec résilience l’exercice de l’autodétermination au sein de leur propre nation et l’adaptation à la société extérieure, avec une culture qui demeure remarquablement intacte. Les Navajos ont ainsi offert une occasion exceptionnelle d’analyse interculturelle. Cela a suggéré que les constructions sociales navajos traditionnelles d’harmonie et de beauté, telles qu’elles sont englobées par une philosophie du bien-être appelée Hozho, répondent mieux aux besoins des personnes autistes que la notion occidentale de « progrès » par la science et la technologie.

With so much unknown about autism, the disability tends to reflect the sociocultural preconceptions people project onto it. The predominant narrative in Western society of autism as a ‘disease’ within the medical model contrasts with the more positive, empowering view of autism as a ‘difference’ in the social model and neurodiversity movement. Society has also discriminated against and disabled the Navajo Native Americans since the arrival of Euro-Americans. Navajos resiliently balance between exercising self-determination within their own nation and adapting to outside society, with a culture that remains remarkably intact. The Navajo thus presented exceptional opportunity for cross-cultural analysis. It suggested that the traditional Navajo social constructs of harmony and beauty, as encompassed by a wellness philosophy called Hozho, better serve the needs of Autistic people than the Western notion of ‘progress’ through science and technology.

Bibliographie citée par cette référence

Les références citées sont importées depuis des sources externes de métadonnées lorsqu’elles sont disponibles. La liste peut être partielle.

Vue d’ensemble de l’inclusion dans la bibliographie

Ces indicateurs décrivent la bibliographie citée importée pour cette publication. Les métriques de références citées utilisent le total des références citées comme dénominateur. Les métriques d’auteurices cité·es indiquent si elles utilisent toutes les occurrences d’auteurices cité·es ou seulement les occurrences rattachées à des auteurices déjà intégré·es à la base de données AutiHub. Ils utilisent les rattachements mis en cache entre les auteurices cité·es et les auteurices intégré·es à la base de données AutiHub. Dernier calcul : 16/08/2026 11:30.

Références citées
70
Nombre total de références citées intégrées pour cette publication.
Références citées avec un·e auteur·ice identifié·e comme autiste
2 / 70 (2,9 %)
Occurrences d’auteur·ices cité·es identifié·es comme autistes
2 / 155 (1,3 %)
Parmi les occurrences rattachées à des auteurices intégré·es à la base de données AutiHub : 2 / 7 (28,6 %). Auteurices cité·es distinct·es identifié·es comme autistes : 2 / 146 (1,4 %).
Occurrences citées rattachées à la base AutiHub
7 / 155 (4,5 %)
Auteurices cité·es distinct·es rattaché·es : 6 / 146 (4,1 %)
Occurrences rattachées, non identifiées comme autistes
5 / 7 (71,4 %)
Parmi les seules occurrences rattachées. Sur l’ensemble des occurrences d’auteurices cité·es : 5 / 155 (3,2 %). Auteurices cité·es distinct·es rattaché·es, non identifié·es comme autistes : 4 / 6 (66,7 %).
  1. Malea Powell (2002). Rhetorics of Survivance: How American Indians Use Writing . College Composition & Communication, 53(3), 396-434. National Council of Teachers of English.
    Type: Article DOI: 10.2307/1512132 OpenAlex: https://openalex.org/W320755495
    Crossref OpenAlex OpenCitations
  2. Karen L. Applequist , Donald B. Bailey (2000). Navajo Caregivers' Perceptions of Early Intervention Services . Journal of Early Intervention, 23(1), 47-61. SAGE Publications.
    Crossref OpenAlex OpenCitations
  3. Richard M. Ryan , Edward L. Deci (2000). Self-determination theory and the facilitation of intrinsic motivation, social development, and well-being. American Psychologist, 55(1), 68-78. American Psychological Association (APA).
    Crossref OpenAlex OpenCitations
  4. Joseph P. Shapiro (1993). No Pity: People with Disabilities Forging a New Civil Rights Movement .
    Type: Livre OpenAlex: https://openalex.org/W1523860101
    Crossref OpenAlex
  5. Nancy Bagatell (2010). From Cure to Community: Transforming Notions of Autism . Ethos, 38(1), 33-55. Wiley.
    Crossref OpenAlex OpenCitations
  6. Charlotte Brownlow (2010). Re-presenting Autism: The Construction of ‘NT Syndrome’ . Journal of Medical Humanities, 31(3), 243-255. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  7. James Wilson (1998). The Earth Shall Weep: A History of Native America .
    Type: Livre OpenAlex: https://openalex.org/W1574556578
    Crossref OpenAlex
  8. Harold G. Begay , C. June Maker (2020). When Geniuses Fail: Na-Dene’ (Navajo) Conception of Giftedness in the Eyes of the Holy Deities . Dans Conceptions of Giftedness (pp. 127-163). Routledge.
    Type: Chapitre de livre DOI: 10.4324/9781003064435-5 OpenAlex: https://openalex.org/W3102991937
    Crossref OpenAlex OpenCitations
  9. Louise Lamphere (2007). Migration, assimilation and the cultural construction of identity: Navajo perspectives . Ethnic and Racial Studies, 30(6), 1132-1151. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  10. Roy R. Grinker (2007). Unstrange Minds: Remapping the World of Autism .
    Type: Livre OpenAlex: https://openalex.org/W1593564694
    Crossref OpenAlex
  11. Brickman Philip , Rabinowitz Vita Carulli , Karuza Jurgis , Coates Dan , Cohn Ellen , Kidder Louise (1982). Models of helping and coping. American Psychologist, 37(4), 368-384. American Psychological Association (APA).
    Crossref OpenAlex OpenCitations
  12. Joseph A. Carrese , Lorna A. Rhodes (2000). Bridging cultural differences in medical practice . Journal of General Internal Medicine, 15(2), 92-96. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  13. Matthew D. Jones , Renee V. Galliher (2007). Ethnic Identity and Psychosocial Functioning in Navajo Adolescents . Journal of Research on Adolescence, 17(4), 683-696. Wiley.
    Crossref OpenAlex OpenCitations
  14. Alicia A. Broderick , Ari Ne'eman *Auteur·ice autiste. En savoir plus… (2008). Autism as metaphor: narrative and counter‐narrative . International Journal of Inclusive Education, 12(5-6), 459-476. Informa UK Limited.
    AutiHub · Chercheur·euses autistes Crossref OpenAlex OpenCitations
  15. Joyce Davidson , Victoria L. Henderson (2010). ‘Coming out’ on the spectrum: autism, identity and disclosure . Social & Cultural Geography, 11(2), 155-170. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  16. Anne M. Donnellan (1984). The Criterion of the Least Dangerous Assumption . Behavioral Disorders, 9(2), 141-150. SAGE Publications.
    Crossref OpenAlex OpenCitations
  17. Roberta L. Woodgate , Christine Ateah , Loretta Secco (2008). Living in a World of Our Own: The Experience of Parents Who Have a Child With Autism . Qualitative Health Research, 18(8), 1075-1083. SAGE Publications.
    Crossref OpenAlex OpenCitations
  18. Anne M. Donnellan (1999). Invented Knowledge and Autism: Highlighting Our Strengths and Expanding the Conversation . Journal of the Association for Persons with Severe Handicaps, 24(3), 230-236. SAGE Publications.
    Crossref OpenAlex OpenCitations
  19. Kristin Bumiller (2008). Quirky Citizens: Autism, Gender, and Reimagining Disability . Signs: Journal of Women in Culture and Society, 33(4), 967-991. University of Chicago Press.
    Type: Article DOI: 10.1086/528848 OpenAlex: https://openalex.org/W1971010661
    Crossref OpenAlex OpenCitations
  20. Bette Jacobs , Jason Roffenbender , Jeff Collmann , Kate Cherry , LeManuel Lee Bitsói , Kim Bassett et al. (2010). Bridging the Divide between Genomic Science and Indigenous Peoples . Journal of Law, Medicine & Ethics, 38(3), 684-696. Cambridge University Press (CUP).
    Crossref OpenAlex OpenCitations
  21. Jennifer Campbell , Linda Gilmore , Monica Cuskelly (2003). Changing student teachers’ attitudes towards disability and inclusion . Journal of Intellectual & Developmental Disability, 28(4), 369-379. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  22. Y. Lachapelle , M. L. Wehmeyer , M.‐C. Haelewyck , Y. Courbois , K. D. Keith , R. Schalock et al. (2005). The relationship between quality of life and self‐determination: an international study . Journal of Intellectual Disability Research, 49(10), 740-744. Wiley.
    Crossref OpenAlex OpenCitations
  23. Margaret A. Waller , Shirley Patterson (2002). Natural Helping and Resilience in a Diné (Navajo) Community . Families in Society: The Journal of Contemporary Social Services, 83(1), 73-84. SAGE Publications.
    Crossref OpenAlex OpenCitations
  24. James S. House , Karl R. Landis , Debra Umberson (1988). Social Relationships and Health . Science, 241(4865), 540-545. American Association for the Advancement of Science (AAAS).
    Crossref OpenAlex OpenCitations
  25. Elizabeth L. Lewton , Victoria Bydone (2000). Identity and Healing in Three Navajo Religious Traditions: Sa'ah Naagháí Bik'eh Hózho . Medical Anthropology Quarterly, 14(4), 476-497. Wiley.
    Crossref OpenAlex OpenCitations
  26. Julie Causton-Theoharis , Christine Ashby , Meghan Cosier (2009). Islands of Loneliness: Exploring Social Interaction Through the Autobiographies of Individuals With Autism . Intellectual and Developmental Disabilities, 47(2), 84-96. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  27. Molly Helt , Elizabeth Kelley , Marcel Kinsbourne , Juhi Pandey , Hilary Boorstein , Martha Herbert et al. (2008). Can Children with Autism Recover? If So, How? Neuropsychology Review, 18(4), 339-366. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  28. Patrick Chambres , Catherine Auxiette , Carole Vansingle , Sandrine Gil (2008). Adult Attitudes Toward Behaviors of a Six-year-old Boy with Autism . Journal of Autism and Developmental Disorders, 38(7), 1320-1327. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  29. Barry Schwartz (2000). Self-determination: The tyranny of freedom. American Psychologist, 55(1), 79-88. American Psychological Association (APA).
    Crossref OpenAlex OpenCitations
  30. Claire Tregaskis (2002). Social Model Theory: The story so far . Disability & Society, 17(4), 457-470. Informa UK Limited.
    OpenAlex
  31. Valery Chirkov , Richard M. Ryan , Youngmee Kim , Ulas Kaplan (2003). Differentiating autonomy from individualism and independence: A self-determination theory perspective on internalization of cultural orientations and well-being. Journal of Personality and Social Psychology, 84(1), 97-110. American Psychological Association (APA).
    Crossref OpenAlex OpenCitations
  32. Jeanne L. Connors , Anne M. Donnellan (1993). Citizenship and culture: the role of disabled people in Navajo society . Disability, Handicap & Society, 8(3), 265-280. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  33. Donna Deyhle (1995). Navajo Youth and Anglo Racism: Cultural Integrity and Resistance . Harvard Educational Review, 65(3), 403-445. Harvard Education Publishing Group.
    Crossref OpenAlex OpenCitations
  34. (s. d.). Connors, J. L., and A. M. Donnellan. 1998. Walk in beauty: Western perspectives on disability and Navajo family/cultural resilience. InResilience in Native American and immigrant families, Vol. 2, ed. H. I. McCubbin, E. A. Thompson, A. I. Thompson, and J. E. Fromer, 159–182. Thousand Oaks, CA: Sage.
    Type: Autre
    Crossref
  35. Susan Folstein (2008). Unstrange Minds: Remapping the World of Autism . Journal of Nervous & Mental Disease, 196(2), 173-174. Ovid Technologies (Wolters Kluwer Health).
    OpenAlex
  36. Thomas J. Csordas , Michael J. Storck , Milton Strauss (2008). Diagnosis and Distress in Navajo Healing . Journal of Nervous & Mental Disease, 196(8), 585-596. Ovid Technologies (Wolters Kluwer Health).
    Crossref OpenAlex OpenCitations
  37. Johnny L. Matson , Daniene Neal (2009). Diagnosing high incidence autism spectrum disorders in adults . Research in Autism Spectrum Disorders, 3(3), 581-589. Elsevier BV.
    Crossref OpenAlex OpenCitations
  38. Michael J. Ward , Roger N. Meyer (1999). Self-Determination for People with Developmental Disabilities and Autism . Focus on Autism and Other Developmental Disabilities, 14(3), 133-139. SAGE Publications.
    Crossref OpenAlex OpenCitations
  39. Darren Hedley , Robyn Young (2006). Social comparison processes and depressive symptoms in children and adolescents with Asperger syndrome . Autism, 10(2), 139-153. SAGE Publications.
    Crossref OpenAlex OpenCitations
  40. Joyce Davidson , Mick Smith (2009). Autistic Autobiographies and More-Than-Human Emotional Geographies . Environment and Planning D: Society and Space, 27(5), 898-916. SAGE Publications.
    Type: Article DOI: 10.1068/d4308 OpenAlex: https://openalex.org/W2098565910
    Crossref OpenAlex OpenCitations
  41. DONNA DEYHLE (1998). From Break Dancing to Heavy Metal . Youth & Society, 30(1), 3-31. SAGE Publications.
    Crossref OpenAlex OpenCitations
  42. Christopher Dole , Thomas J. Csordas (2003). Trials of Navajo Youth: Identity, Healing, and the Struggle for Maturity . Ethos, 31(3), 357-384. Wiley.
    Crossref OpenAlex OpenCitations
  43. Mark Schoepfle , Michael Burton , Kenneth Begishe (1984). Navajo Attitudes Toward Development and Change: A Unified Ethnographic and Survey Approach to an Understanding of Their Future . American Anthropologist, 86(4), 885-904. Wiley.
    Crossref OpenAlex OpenCitations
  44. Carina Saragovi , Richard Koestner , Lina Di Dio , Jennifer Aubé (1997). Agency, communion, and well-being: Extending Helgeson's (1994) model. Journal of Personality and Social Psychology, 73(3), 593-609. American Psychological Association (APA).
    Crossref OpenAlex OpenCitations
  45. Cigdem Kagitcibasi (2005). Autonomy and Relatedness in Cultural Context . Journal of Cross-Cultural Psychology, 36(4), 403-422. SAGE Publications.
    Crossref OpenAlex OpenCitations
  46. Shahaf Milshtein , Nurit Yirmiya , David Oppenheim , Nina Koren-Karie , Shlomit Levi (2010). Resolution of the Diagnosis Among Parents of Children with Autism Spectrum Disorder: Associations with Child and Parent Characteristics . Journal of Autism and Developmental Disorders, 40(1), 89-99. Springer Science and Business Media LLC.
    Crossref OpenAlex OpenCitations
  47. Frankland H.C. (2004). CIT0023 Education and Training in Developmental Disabilities, 39, 191.
    Type: Autre
    Crossref
  48. William M. McMahon , Bonnie Jeanne Baty , Jeffrey Botkin (2006). Genetic counseling and ethical issues for autism . American Journal of Medical Genetics Part C: Seminars in Medical Genetics, 142C(1), 52-57. Wiley.
    Crossref OpenAlex OpenCitations
  49. Jennie R. Joe (1982). Cultural Influences on Navajo Mothers with Disabled Children . American Indian Quarterly, 6(1/2), 170. JSTOR.
    Type: Article DOI: 10.2307/1183602 OpenAlex: https://openalex.org/W2057367651
    Crossref OpenAlex OpenCitations
  50. Karen Hurlbutt , Lynne Chalmers (2002). Adults With Autism Speak Out . Focus on Autism and Other Developmental Disabilities, 17(2), 103-111. SAGE Publications.
    Crossref OpenAlex OpenCitations
  51. Neil Humphrey , Sarah Lewis (2008). `Make me normal' . Autism, 12(1), 23-46. SAGE Publications.
    Crossref OpenAlex OpenCitations
  52. Eve Müller , Adriana Schuler , Gregory B. Yates (2008). Social challenges and supports from the perspective of individuals with Asperger syndrome and other autism spectrum disabilities . Autism, 12(2), 173-190. SAGE Publications.
    Crossref OpenAlex OpenCitations
  53. Edith H. Luther , Daryl L. Canham , Virginia Young Cureton (2005). Coping and Social Support for Parents of Children with Autism . The Journal of School Nursing, 21(1), 40-47. SAGE Publications.
    Crossref OpenCitations
  54. Carolyn M. Shields (1999). Learning from Students about Representation, Identity, and Community . Educational Administration Quarterly, 35(1), 106-129. SAGE Publications.
    Crossref OpenAlex OpenCitations
  55. Philip Patston (2007). Constructive Functional Diversity: A new paradigm beyond disability and impairment . Disability and Rehabilitation, 29(20-21), 1625-1633. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  56. Michelle Kahn-John (2010). Concept Analysis of Diné Hózhó . Advances in Nursing Science, 33(2), 113-125. Ovid Technologies (Wolters Kluwer Health).
    Crossref OpenAlex OpenCitations
  57. Catherine Kim , Yeong S. Kwok (1998). Navajo Use of Native Healers . Archives of Internal Medicine, 158(20), 2245. American Medical Association (AMA).
    Crossref OpenAlex OpenCitations
  58. M. W. Krauss , M. M. Seltzer , H. T. Jacobson (2005). Adults with autism living at home or in non‐family settings: positive and negative aspects of residential status . Journal of Intellectual Disability Research, 49(2), 111-124. Wiley.
    Crossref OpenAlex OpenCitations
  59. Tiffany S. Lee (2009). Language, Identity, and Power: Navajo and Pueblo Young Adults' Perspectives and Experiences with Competing Language Ideologies . Journal of Language, Identity & Education, 8(5), 307-320. Informa UK Limited.
    Crossref OpenAlex OpenCitations
  60. M L Wehmeyer , K Kelchner , S Richards (1996). Essential characteristics of self-determined behavior of individuals with mental retardation. PubMed, 100(6), 632-42.
    Type: Article OpenAlex: https://openalex.org/W2110630488
    OpenAlex
  61. David Watson , Lee Anna Clark (2006). Clinical Diagnosis at the Crossroads. Clinical Psychology: Science and Practice, 13(3), 210-215. American Psychological Association (APA).
    Crossref OpenAlex OpenCitations
  62. H. Corine Frankland , Ann P. Turnbull , Michael L. Wehmeyer , Lavine Blackmountain (2004). An Exploration of the Self-Determination Construct and Disability as it Relates to the Diné (Navajo) Culture . Education and Training in Developmental Disabilities, 39(3), 191-205. SAGE Publications.
    OpenAlex
  63. Dalun Zhang , Leena Landmark , Cheryl Grenwelge , Linda Montoya (2010). Culturally Diverse Parents' Perspectives on Self-Determination . Education and Training in Autism and Developmental Disabilities, 45(2), 175-186. SAGE Publications.
    OpenAlex
  64. (s. d.). Tregaskis, C. 2002. Social model theory: The story so far …Disability & Society17, 4: 457–70.
    Type: Autre
    Crossref
  65. Wehmeyer M.L. (2006). CIT0059 American Journal on Mental Retardation, 100, 632.
    Type: Autre
    Crossref
  66. Zhang D. (2010). CIT0062 Education and Training in Autism and Developmental Disabilities, 45, 175.
    Type: Autre
    Crossref
  67. Cheryl A. Leighty , Joseph P. Shapiro (1994). No Pity: People with Disabilities Forging a New Civil Rights Movement . Michigan Law Review, 92(6), 1953. JSTOR.
    Type: Article DOI: 10.2307/1289622 OpenAlex: https://openalex.org/W3022730379
    OpenAlex
  68. Staff (2008). American Journal of Mental Retardation . Encyclopedia of Special Education, 108-108. Wiley.
    OpenAlex
  69. Edith H. Luther , Daryl L. Canham , Virginia Young Cureton (2005). Coping and Social Support for Parents of Children With Autism . The Journal of School Nursing, 21(1), 40. SAGE Publications.
    OpenAlex